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Is genetic testing ready for prime time?
I would be interested in opinions on whether genetic testing is ready for prime time and useful for selecting a treatment plan/AS. It certainly is getting marketing effort and promotion the real quesation is should the results steer our choices. The answer to this question will probably be different depending on where you…
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CAR T THerapy (Time Magazine Article)
The focus of this article is on fighting leukemia but it also noted potential applications for PCa and many others: http://time.com/4895010/cancers-newest-miracle-cure/?xid=homepage
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Combined Therapy Side Effects
I am 76 years old. I have hypertension and type 2 diabetes, both under control with medications. I was diagnosed with prostate cancer after a biopsy in November, 2006. My PSA was 8.5 at that time. I went to MD Anderson in January of 2007 for a second opinion and had consultations with a surgeon and a radiation oncologist.…
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Celebrate
Back from 1 year checkup... PSA still undetectable. Huzzah. RP last year after biopsy Gleason 6 3+3, but was dealing with recurring Staph infection that inflamed prostate. Finally got prostate size down so when the final pathology report came out after the RP, it was down to 197.7 grams. FYI... Normal prostate weight is 20…
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Need Incontinence Advice
Is this normal? I had my RP surgery 20 days ago and was told “the reconstruction went exceedingly well”. Since he has done over 4000 operations I believe him. I had the cath removed 14 days ago. I did my kegels for weeks before surgery and started doing them immediately after the cath was removed. Here is where I’m at and…
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Brachytherapy
i had brachytherapy done on March 21, 2017. Now, just about 5 months later, my prostate is still severely inflamed, I have to self cath, and I don't even want to talk about that pain, and also have incontinence, which is also extremely painful every time a drop comes out. I am on flomax , naproxen, and OxyConti. Anyone…
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Fear and loneliness
I am very new to this forum and to the fact that I have prostate cancer. I am moving through the medical system, learning about my disease and think I am heading in the right direction. And I have moments/times of real sadness and fear. I read some of the posts on this site and can head for a tailspin. I am sure this will…
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Reading material
I am a reader and want to learn all I can about this disease. Here are the books I have read to date. What others do you recommend? Prostate cancer - Ripoll & Saunders Prostate Book - Scardino Active Surveillance - Klotz surviving prostate cancer - Walsh Thrive - Espinosa 2017 report on prostate diseases - Harvard Health…
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newly diagnosed Gleason 6 65 years old
Hello all, I was diagnosed 2 days ago with prostate cancer. I am in the confused, shocked mode. I am looking for reading material to help me discern treatment options. Thanks, Denis
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prostate cancer hospitals in India
Recently I was going through the searching of top cancer hospitals in India. As my near one is suffering from prostate cancer stage 2. I find the list which I want to share with you. best cancer hospitals in India. hope this will help you all.
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Age 55 w/ Gleason score of 9 - Latest Update
Hello all, I'm 55 years old and received my diagnosis of prostate cancer on July the 13th (Friday). It's just a date, but how ironic! Let me give a little background that has led me to where I am today. In April of 2011, my gastro Doctor diagnosed me with a condition known as GAVE (gastric antral vascular ectasia) aka…
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Firmagon and insomnia
I am in month three of Firmagon and have developed a wicked case of insomnia. Wake up 1 - 6 times a night all edgy and uncomfortable and do the zombie walk as we call it. Anyone else have this and solve this problem? I have developed a nasty case of cumulative sleep derprivation. Thanks, George
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What are my odds for recurrence?
PSA 1/2013 was 3.6, DRE normal. PSA 8/2014 was 5.5, DRE normal. Was sent to Urologist for biopsy. Only thing we remember is the word “CANCER”. Retropubic Prostatectomy 11/20/2014. My age 55. On the table for approximately 5.5 hours. Came out with a scratched cornea from an eyelash being turned under during surgery. That…
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Rectum?
Rectum irritation is setting in at the half way point of salvage radiation. What worked best for you guys? Anything not in a messy mineral oil base? Thanks, George
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Soy for those on Hormone Shots?
This is a post responding to something gjeck posted in another thread RE soy. First, it is known that soy encourages the production of estrogen, which is nice for ladies, and not bad for men under normal conditions. But I am not normal right now. I am on Eligard that blocks all testosrone production in my body. Do I as a…
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Bone Scan question a little nervous here
I had a bone scan yesterday.. Ordered by my Othopedic for hip issues... during the scan.. they asked me if I had fractured my leg and arm..the answer was no.. then they called in Dr to look at it and see and if he wanted to do more test.. I am waiting for the report from my Orthopedic.. So my question is does metestized…
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Deepening Problems for Coloplast Virtue Male Sling
Since I continue to suffer since the implantation of Coloplast's Virtue male sling, more than four months ago; each week I check FDA's MAUDE Reports for physician reported injurious Adverse Events, requiring intervention, regarding the Coloplast Virtue Male Sling. This past week, the number of reported Adverse Reports grew…
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Reoccurence after HDR Brachytherapy and MDS
I was treated for PC in Feb and March of 2013 with High Dose Rate Brachytherapy (HDR). In October of 2014 I was diagnosed with Myelodysplastic Syndromes (MDS). I was treated for that with a stem cell transplant. Since then my platelets have taken a nose dive (I receive platelets every week) and my PSA has steadily…
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Nerves spared on one side = impotence ?
I am new to this forum . Having nerve sparing robotic surgery in a few weeks . Dr said can only spare nerves on the left side . Biopsy report was 7 out of 12 . Gleason scores were 7 in all core samples . 6 of the 7 were on my right side . Dr feels like he can get all the cancer but I am concerned about ED . Is it possible…
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After Robotic Surgery
crazy question I know But really don't know answer. After prostate is removed will that be the end of having kids?
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Neuropathy after HDR Brachytherapy and 25 dose IMRT
I recently finished up my course of IMRT to close out the radiation therapy end of my Prostate Cancer treatment, and have started experiencing neuropathy in my feet. I met with my Neurologist yesterday and he basically said that the radiation has effected the nerve bundle called the Lumbar Plexus. I've seen numerous other…
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Doctor ordered a bone scan and mri after my radiation therapy because of pain in neck and spine
Finished seven weeks of my radiation therapy treatments and a doctor's appointment month after. Radiation Oncologist asked me how I feel and I tell him about all the pain in my neck and left shoulder and arm and my lower back sciatic pain in left hip and feels like a couple of ribs out of place on left side and been very…
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Posting again on the danger of Xofigo treatment
Well, after my husband endured 6 treatments of Xofigo what life he did have at the time went steadily off the cliff. Now, 6 months later, the onocologist is calling it quits. The promise of this wonder drug is a lie. They test your blood before each poison injection, and the bloodwork clearly shows deteriation of the red,…
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low Lymphocytes after radiation anybody else experince this?
My blood Dr have been watching my Platelet counts for a while.. Due to beinging under 100.. After prostate radiation the are now down to 75.. Which still isn't too gets down to 10 or 20 I will satrt worring.. But I have noticed my Lymphocytes went down during radiation and are still low 15% almost 3 months later. Has…
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9 Days Until Surgery. Any tips?
Hi Guys, Is there a sticky with tips on how to prep for robotic surgery? I've been doing my kegels, bought several sweat pants, gone Vegan, got various lotions...What else should I be doing? The first few days, how mobile are you? Do you lay in bed? Sit in a chair and watch TV? Zonked out on pain killers? Thanks, Nick
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Quote of the Day (Thanks to Grinder)
"Life is not a matter of holding good cards, but playing a poor hand well." ...Robert Louis Stevenson. Embrace it and be the storm!
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Agent orange Gleason 9 open surgery prepubic radical prostatectomy and pelvic lymph node dissection
I'm sorry I don't know if this is properly way to seek information from other prostate cancer members. It doesn't matter how old you are or if you are a southern Vietnam veteran exposed to agent orange herbicides. I am 68 / 69 December 12. My little dog Buddy, thirteen half years old Westie died December fifth after having…
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Comparing Male Slings for Incontinence
I am a mid-sixties male that underwent a prostatectomy approximately ten years ago. I remain cancer free but have required 1-2 pads per day for the urinary incontinence that resulted from this surgery. I did not require radiation or chemotherapy due to early detection. This made me the perfect candidate for male sling…
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I'm Still Around
It's been over a year since my last post, so let me reintroduce myself to the new members of the forum. My story is here: https://csn.cancer.org/node/264905. Cyberknife treatment September 2014. Understandably, I'm thrilled to report continued great numbers as of March 2017, at 64yrs: Ultrasensitive PSA less than .1,…
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New PT Scan Available
In May of 2016 the FDA approved a new tracer for PET SCAN to help detect recurrent Prostate cancer. It is Axumin and is approved exclusively for “imaging in men with suspected prostate cancer recurrence based on elevated blood prostate specific antigen (PSA) levels following prior treatment. For more information you can…