Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

Need advise - Gleason score 4+4 = 8 on post operative biopsy
Hi My father was diagnosed with prostate cancer. Age : 76 years ; Physically active sportsman The preoperative biospy report said : Gleason score : 3+4=7 ( both lobes involved) ; 12 out of 12 cores were positive. We went in for robotoc surgery and the final biopsy report post surgery reads: Gleason score : 4+4 = 8 for both…
Update - Advanced Metastatic Prostate Cancer
Hello everyone, Recently my neighbor, 59 years old, received this diagnosis. He lives alone. No support system. He does not understand what is happening to him and asked me to step in and help with doctor's visits, managing meds, and generally helping him understand what he is facing. He recently was discharged after at 18…
New member with Gleason 4+4
Greetings to everyone. Please allow me to introduce myself as a new member here. I am 70 years old in good health with controlled type II diabetes. I am an active cyclist and ride 20 to 30 miles daily. Last year's physical revealed no lumps on prostate but PSA rose to 6.5. Uro scheduled 6 month PSA in February 2017.…
Incontinence
Finished CyberKnife Surgery for Prostate Cancer in January and bladder control seems to be getting worse. Have to go repeatedly and there is often leakage. Am taking .4mg of Tamsulosine (Flomax) which helps with actually going. But it's the lack of control that is bothering me. Received no helpful advice from radiologist…
PSA reading of 8.5
I know it may sound weird, but at 68 years old, last Friday was the first PSA test I have ever had it was 8.5 and when I started reading up on prostrate cancer and what a normal PSA reading should be, 4.0 I wonder if there are any survivors out there that can relate to my situation, I go to a urologist today to discuss my…
Active Surveillance continues
Diagnosed 3/2009 Medical history on about me page...click my name to the left. 8/17 has PSA 5.7: Free PSA 18 and targeted biopsy.....two cores positive, both 3+3=6....I requested the pathology sent to me, so I am not sure of the number of targeted cores taken. This was part of a fusion biopsy, based on an MRI taken last…
MP-MRI in Bellingham/Seattle of Washington State
Folks: I was givign PSA of 25 with prostate cancer in family (father and older brother). Digital showed enlarged (BPH) but no lumps. Urologist here in Bellingham wants a TRUS biopsy before anything else. I am considering to try to have MP-MRI done first so that my initial biopsy would be assisted with the MP-MRI results. I…
My cancer, my journey, my learnings at one month!
A month ago, I sat in a urologist’s office, whom I had only one brief meeting with prior, and he said, “we have mixed news… you have cancer.” Not sure I heard too much after that. Unfortunately, my wife was out of town, as we expected it to be nothing. I did hear the Urologist quickly review the options and clearly thought…
Bicycling After Biopsy
Folks: I have appt for initial biopsy after PSA of 25. Biopsy is TRUS. What I wonder from you folks who do bicycle; how long should I expect to stay off an upright bicycle? If I cannot ride my upright, could I ride my recumbant bicycle? This is very important to me as my bicycle is my sole form of transportation. I do not…
PSA Finally Under 1
Well, 2 years and 9 months following CyberKnife treatment i n Sep 2010 (and widely varying PSA readings since then), my PSA score has finally dropped under 1 at 0.995!!! That's only 5 1000th's under 1 but it's under 1 just the same. Here's a(nother) recap of the history of my PSA readings since I received treatment:…
Multiple Opinions Added to the Confusion
Dad is 69 years old. Had urinary retention. PSA 144. Gleason 3 + 4 = 7 on all cores. Bone Scan and MRI all clear. On hormone treatments (just did secon round, PSA down to 17) Last week I traveled from VA to FL to be with my dear father to go gather our second, third, and fourth opinions. If you are newly diagnosed take…
Gleason 7 (4+3) Considering surveillance VS radiation
Husband has Gleason 7 4+3, No evidence of tumor on CT although enlarged/hardened on DRE and minimal symptoms. 72 yo Vietnam Vet. Highest PSA 5.84 (slow increase over past 3 years from 2.3) Had hormonne therapy and now PSA .66. Any informed feedback for Not doing radiation? OR, results of radiation. How do you hold that 20…
PSA Getting down by Hormone Injection: Requesting Advice from Experienced People
Dear, I am Asaduzzaman Lipton, age 45 years old. In February 2017, I found my PSA Level is 6.83 ng/ml and Gleason’s Grade 3+3=6/10. According to doctor's advice, I was taking hormone injection (Zoladex). Now My PSA Level is 1.37 ng/ml. Am I safe now? Please advise me What should I do? Kind Regards, Assaduzzaman Lipton
My dear Dads diagnosis.
I find myself here with great remorse as my Dad (78 years) has been newly diagnosed Adenocarcinoma of prostate - Gleason 9 (4+5) prostate cancer. His Nuclear Medicine Report shows there is extensive large volume intensely PSMA avid disease(SUV max 9.3) localised to almost the entire gland from apex to base with some…
Just completed biopsies
Thank you all for your contributions to this site. I have gleaned consdierable information from the first hand experiences I have read here. My story is just begining. Have a family history of prostate cancer with my father undegoing RP and subsequently radiation therapy for Gleason 4+4. I have had some obstructive…
Radiation about to start
I will be meeting w/ radiology on the 30th and will probably start radiation mid Sept. Right now, I am incontinent. I can hold some, but if I walk, bend, etc, I leak. The Dr gave me a foam clamp to wear during radiation, so I can keep something in my bladder to protect it. I am planning to start PT for kegels soon. Since…
Scans and Imaging - how do doctors handle possibility of false negatives or false positives ?
I realize this might be obvious to some but its just not clear to me; I have not gone thru this yet but need to very soon. I am asking at a very high level - my questions are about how oncologists or other doctors handle the possibility of false positive or false negative results of an image scan (and perhaps how they make…
FOCI SUSPICIOUS FOR LYMPHOVASCULAR INVASION? Anyone know much about this?
Found out I had prostate cancer in February...had just turned 50 and went in for a physical..one thing led to another and after the biopsy I found that I had cancer in 8 out of 12 biopsy...initial report showed mostly 3+3 on one half and 3+4 on the other...had robotic surgery 4 weeks ago to remove the prostate. After…
Nerve sparing and realistic results
Hi my name is Scott and I'm 42 years old and about to have surgery to remove prostate. Was diagnosed in march. I opted to wait it out and see how it would progress. My PSA has doubled very month since march. I am having the robotic surgery on 16 August doctor says it's contained to prostate and feels confident on…
How valuable was this thread to you?
Maybe I am just a grumpy old man, but this recent add-on (at the bottom of a first post) adds no value at all to our discussions. Just my opinion, of course. Any other opinions out there? PS: I do wish that the software that runs the forum would be improved, but the powers that be at the ACS have heard that before.
Prostrate issue
Hi..I am age 44 Michigan..I was diagnosed with bladder cancer at age 40..I have had three reoocurrences since.at age of 43 I needed baseline PSA test doctor said.it was .70 I just had other PSA at hospital lab and it was a 1.1....I am scheduled to see doctor on Aug 30 for exam.i went to hospital to view my record of…
Is Active Surveillance an option?
Ok, two weeks into this journey; read many books, articles, and posts by others. I am 65 years old, excellent health, diagnosed PC Gleason 6, 3-4 positive cores, all less than 30%. The reason for saying 3 to four cores, is the urologist wasn't sure if there was overlap in the lesion area. This along with other things…
First Post
Hi I am 55 and live in Maine. I had my first and only PSA test at the end of June, came back at 12.4 I have a appointmenmt with a Urologist (associated with Maine Medical Center, so probably as well qualified for medical in the area) on Tuesday. I am in good general health, only thing concerns me is sometime I have pain in…
Differentiating bone pain from other types of pain?
results after my first Biopsy
hello forum i'm a 54 year old hispanic male i have been very healthy and try to keep in physical condition Milatary and Law Enforcement career i have actively been getting psa blood work for the last 8 to 10 years because of a Family history with 2 Brothers from my Fathers side that had Prostate Cancer. my numbers began…
Is genetic testing ready for prime time?
I would be interested in opinions on whether genetic testing is ready for prime time and useful for selecting a treatment plan/AS. It certainly is getting marketing effort and promotion the real quesation is should the results steer our choices. The answer to this question will probably be different depending on where you…
CAR T THerapy (Time Magazine Article)
The focus of this article is on fighting leukemia but it also noted potential applications for PCa and many others: http://time.com/4895010/cancers-newest-miracle-cure/?xid=homepage
Combined Therapy Side Effects
I am 76 years old. I have hypertension and type 2 diabetes, both under control with medications. I was diagnosed with prostate cancer after a biopsy in November, 2006. My PSA was 8.5 at that time. I went to MD Anderson in January of 2007 for a second opinion and had consultations with a surgeon and a radiation oncologist.…
Celebrate
Back from 1 year checkup... PSA still undetectable. Huzzah. RP last year after biopsy Gleason 6 3+3, but was dealing with recurring Staph infection that inflamed prostate. Finally got prostate size down so when the final pathology report came out after the RP, it was down to 197.7 grams. FYI... Normal prostate weight is 20…
Need Incontinence Advice
Is this normal? I had my RP surgery 20 days ago and was told “the reconstruction went exceedingly well”. Since he has done over 4000 operations I believe him. I had the cath removed 14 days ago. I did my kegels for weeks before surgery and started doing them immediately after the cath was removed. Here is where I’m at and…

Prostate Cancer

Discussion List

Discussion Boards