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Testosterone recovery after ADT
Hi there, I thought this new publication would add to the knowledge of members. It seems that testosterone recovery after ADT takes some considerable time and after a time around the nineteen months that I received recovery can take up to two years, but the chance of recovery is better than I thought! You will have to copy…
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Metformin and statins
Hi there, I thought that I would bring this paper to everybody's attention. It seems to show that there is a distinct link between taking metformin and a statin and the progress of PCa. If you have metastatic prostate cancer or you think that you might then if you can persuade your doctor to give you some metformin and a…
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Show of Hands Please
Hello Everyone, This may start as a vent then a questionaire, so my apologies for being all over the place but I am still in the initial shock phase and still seeking out professional opinions. I am a very active, in good shape, 52 year old who just found out last week that I have stage 2TC Prostate Cancer with a Gleason…
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This is why you don’t do radiation as primary treatment
As you all know I did a combination of radiation treatment and I had many bad side effects and I'm still bitter about it below I will is my one and a half your follow up and when I asked the DR how low should my PSA get so I will know if the treatment was successful what is the nadir to be so I can proclaim that I am…
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Pathology after RP on 11/25
Hi everyone! 57 year old who had surgery on 11/25 and recently received pathology results. Grade Group went from 4 to 2 with a final Gleason score of 7 (3+4), with 20% being a 4. Tumor was less than 2% of prostate gland. No lymph node involvement, all negative surgical margins and 90% of right side nerves were spared along…
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Deuxième anniversaire
Hi there, Today's the day, two years ago I had a prostatectomy. I am celebrating with a couple of Belgian gin and tonics. HTK gin is OK, plenty of juniper but the coriander and lemon are just a bit too floral for my tastes. Long live Bombay Sapphire! I am a long term Schweppes, not Slimline, Tonic abuser :-) Hic, Georges
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Long Term Psychological Effects - Coping
Had my prostate surgically removed about seven years ago. Experienced urinary control and ED issues. Eventually had 98% recovery from urinary control. ED continued despite many attempts to improve. Sex life became non-existent, so wife moved to another bedroom to escape my snoring and tossing and turning. Unfortunately, my…
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Raised PSA 7 weeks after biopsy
Hi All Thanks for your valuable information. My brother had a PSA test recemtly at about 7 weeks after biopsy. It had a reading of 5.5. He was 3.2 on the day of the biopsy. He has Gleason 3+4 in one core of 16 that were sampled. Does PSA go up by that much after a biopsy?
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Post Your Lupron Experiences
At age 59 my original 8/2010 Gleason score was 9 but post DaVinci (10/2010) it was lowered to 7 (4+3). I was fully functional after surgery with no leakage and sexually active in a few weeks with help of vitamin V. Post surgical report showed capsule contained with no sign of spreading. For the last nine years PSA held…
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Bizarre or lucky patient
Hi there, I thought I would share this publication with you as it shows just what a bizarre or lucky patient I am. When I look at my diagnosis at age 55 with a PSA of 133 -142, BMI of 24, stage 3 disease with a Gleason of 7 (4+3) I realise that I am in a tiny minority. Really I should be looking at heavy metastases and…
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Proton Therapy - In treatment
I just finished 9 of my 40 treatments. Had some minor side effects this weekend but nothing to serious. Jump in if you are treating and lets share.
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lupron and supplements
I am new to this site. I made it through raditation treatment last summer and my PSA remains below 1. My Gleason was 9 before the radiation began. My physician order Lurpon injections. I am on my third injection. So far doing okay. Here is the issue: My physician recommended that I began taking supplements - 1200 mg…
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PSA Result 2/6/2020
Well, went for my PSA test the other day and got the results back. Less than <0.1, undetectable. My appointment at Levine Cancer Institute is 03/02/2020. I should only have to have this test annually now. My status is fully continent; I am intimate with my wife. I have recovered from the inguinal hernia surgery that was…
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First sign of life
Just want to report new development. Two days ago, Sunday morning, I experienced first sign of life from my penis. Two twinges were felt , similar to those before RP, when penis opens arterial valves and starts engorgment. Engorgment did not happen but feeling reminded me of old days before RP when everything was…
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Casodex+Avodart instead of Lupron?
The leader of a local support group suggested this given dad is 83 and has other conditions. Oncologist wants to start with "two shots in abdomen" then the 3 month Lupron. Dad's pc is also in many spots on his bone but no symptoms at all right now. Goal is to do less harm. Da is afaird to lose his little muscle mass which…
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I Was Diagnosed With PCa Gleason 4+3=7
hello, good people. i'm a 45 yr. old black male who was diagnosed with PCa gleason 4+3=7. i had an mri that found 3 lesions on my prostate. i'm depressed, scared and don't know how to take all of this in. i'm not sure if i caught it early, or if whatever treatment i choose will be right for ME here is some pathology…
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In the beginning - Confused and Scared
Hi everyone my name is Mike. Please let me thank you in advance for any guidance you may be able to give me. I would be lying to say that I am not incredibly confused and scared, but also hopeful. Any insight you might be able to give me from the info I have listed below would be so appreciated. I have been trying to read…
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Frequent Urination at night as symptom of PC
I am new to all of this and I understand I might be jumping the gun but recent test results have me very anxious so please bear with me. I am 57 and had my first PSA in 11/17. The result was 3.8. My MD said it was fine and no follow up. Around 11/19 I started to have frequent urination at night. I got another PSA which…
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Husband psa 55
My husbands is 63 years old his Psa has been risen every 2 weeks. First it was 4 then 9 then 16 and now 55. He is getting a biopsy on Thursday. Has anyone here had there psa go up that fast? He's brother died last year from aggrasive prostate cancer. They have an appointment set for February 12 to go over the results. I'm…
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Prostate Cancer starts to move to the bones
Hello, I am new here and have been scouring the internet looking for info. I am here looking for some help or information about what I can expect from my father’s prostate cancer situation. I will start with some background. He was diagnosed with prostate cancer about 17 years ago and shortly thereafter he had the prostate…
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Most recently published research findings.....
Prostate Cancer: Adverse Effects Favor Less Invasive Tx Over Surgery
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xofigo(radium223) bad side effects
I am new here.My husband was dx with stage 4 prostate cancer back in 2016.started out with hormone therapy then zytiga,docetaxel and jevtana.he was doing really well on chemo but his psa levels went up to 190 so his onco sugestet the current wonder drug xofigo.Allmost from the start he was not feeling to well and after…
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Introduction
Hi, everyone. I am a 65 year old and was diagnosed with Prostate Cancer back on October 24th. I'll offer a little background on my case. I had experienced, about a year an a few months ago, a puzzling PSA increse and decrease. I had held steady at about 2.4 for a long while, when it suddenly jumped to 5.8. A subsequent…
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PSA 32 Gleason 3+4=7 Localized
Hi gang, Really appreciate all the great info I have recently received on this forum. You all rock !! My situation is below. RP lined up for mid Dec. Thankful for the clean scans of course which found no obvious spreading. Still, I can't help but to think that once I'm past the RP, I may very well be in line for follow-up…
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My Robotic Prostatectomy Experience
I was diagnosed back in Aug with PCa, I'm 41, healthy, Gleason score of 3+3 and 3 of 12 biopsy cores positive. I made the decision to go with the robotic prostatectomy, mainly due to the positive outcomes of rapid return erectile function and incontinence improvements being touted by most robotic surgeons, as well as the…
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So what is an undtectable PSA
In a few weeks I will 1.5 years done with combo radiation treatment ..anxiety is starting to build ..3 months back PSA was 2.0 ..this is why I'm seeing the surgeon /urologist.he is a specialist.i know the radiologist won't be concerned if it is still dropping even if it drops to 1.5 ..but the surgeon will be more concerned…
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PSA TEST
I was dx with PCA when i was 52 in 2005. I was successfully treated with radiation therapy and have an undetectable PSA. My question is that I have my yearly physical coming up next week. My yearly blood test has always included a test for PSA. Now my family doctor does not want to test my PSA because in his words "You…
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Active Surveillance Biopsy Frequency
I was diagnosed three years ago as a low risk PCa patient. First biopsy was two cores of 12, <5% of each core, Gleason score 3+3. Oncotype DX testing incidates low risk of progression. A confirmatory biosy and a third biopsy a year ago yielded the same results. Throughout, my PSA has remained stable to 3.5-4. I just had a…
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XTANDI dosage question
Last winter about February I was able to get a GRANT to help pay for my XTANDI medication. I had STAGE THREE PROSTATE CANCER my COUNT WAS 20.9 after a long period of treatments my PROSTATE CANCER came back not long after my treatments stopped. My CANCER specialist prescribed XTANDI for me however it cost with our plan etc…
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Help! On the other end of a prostatectomy and it's all hitting me now.
Condensed Background: Had the procedure on 10/10/19. Post op pathology showed 55% of my prostate was tumor, so this had to be taken care of sooner than later. Now that the procedure is done, working through the recovery piece. Unfortunately I have not taken any time to work through the emotional impact of this whole thing.…