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New cancer diagnosis
Hi all my name is Daniel and have been recently diagnosed with prostate cancer by my urologist through a biopsy of 12 cores. Here are the following particulars Age - 62, 63 in May 8/2016 - PSA= 3.8 7/2017 - PSA= 6.31 2018 - PSA= n/a. No test 1/2019 - PSA= 7.60 1\2020 - PSA= 6.19 Biopsy 3\2020 Prostate Volume = 83 grams PSA…
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Gleason score of 9
My husband is 63 and was just diagnosed with aggressive prostate cancer. His Gleeson score is 9,grade 5. They gave him 2 shots of degarelix in his stomach. We just saw a surgeon today who said not to remove prostate. He told us to go to a cancer institute. We have an appointment on Monday for a bone scan and a cat scan.…
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External beam radiation side effects
well most everyone knows me in my story. I am almost 21 months out of radiation therapy managing with these nasty side effects. So here's a new one about one week into radiation therapy I developed diarrhea. Had a lot of urgency couple months of rectal leaking but the loose bowelsAnd having gas never went away. I had a…
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AUS 800 Problem
Hello Friends, Had AUS installed in 2007 It was a real game changer, went from 6-8 pads a day to barely 1. Unfortunately, leaking has been slowly increasing over the last 10-12 months and now up to 2 full pads a day. Initial thought was that there was a leak, so Doc ordered an ultrasound. Reservoir looks full, so no leak.…
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going Veggie and Conjugated Whey Protein
I have given up fish and shrimp and am now pure Veggie. There are two reasons for this. First, fish and shrimp are now raised in pens commercially and fed only God knows what. Also mercury levels are high. Secondly, it is a higher conscious decision to choose not to eat any kind of living animal. I believe that for me,…
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Radiation and BPH
I just finished reading The Decision by Dr. John McHugh. One of the things he emphasizes in his decison path on choosing a treatment option for PCa is that if you suffer from voiding problems before radiation therapy, radiation will cause voiding problems caused by BPH to get worse. I was disappointed to read this because…
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Vitamin K3 & Vitamin C IV Apatone Therapy
Hi. This is my first post on this forum. Searching on google i found a lot of evidences about these two vitamins. '' The Association of Vitamins C and K3 kills Cancer Cells" they call this therapy ... Apatone My question is ... has anyone tried this therapy? Reviews...Clinics... Laboratories? In my opinion it is worth…
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Post-Surgery Path Question (Cribriform)
Greetings, it's been awhile but I am one week past my RALP which seems to have gone well notwithstanding current Covid risks and anxiety, and from which the recovery to date has been as expected. I've already received the pathology results and was greatly cheered to learn there were negative margins and no EPE or SVI. I…
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Nervous Introduction
Hello, I am a fairly frightened 53-year-old. Generally healthy and no family history, but I had a routine physical with my GP this fall (after no doc appointments for several years...); he ordered standard blood work that included a PSA test--which returned a result of 12.3. Referral to a urologist (for whom the wait for…
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AMS800
I am 75, physical fit and very active with some type of physical exercise 5 days a week. I had a prostatectomy in 2015, 6 weeks of radiation in 2016 and now suffering for incontinence. My doctor said I have two choices. Do nothing and live with the incontinence for the rest of my life or get the AMS 800. Since living with…
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Active surveillance prostate cancer.
I have prostate cancer. I am under active surveillance. I am deeply concern about it possibly spreading. I see both an Oncologist and Urologist every 3 months to check my PSA level. However, they do not seem too concern about doing anything. I do not know what to do? Please advise. I am deeply concern. How long should I be…
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Heart Surgeon with prostate cancer surviving for many years
A friend of mine has survived for 25 years with three types of cancer including prostate cancer. He is a 98-year-old former heart surgeon who is a member of his local Cancer Connection to give younger people, who think cancer means a death sentence, hope that they can live a long time. He describes what it was like to find…
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Seminal Vesicle invasion
I am 54, in good shape and a year ago I had a routine blood test done. Six months later i went to my doc again and was told that my PSA was 4.8 and had to go see a urologist. Two blood test later my PSA went to 6.0 and 7.4. In one year my PSA went from 4.8 to 7.4. Three weeks ago i had a 3T MRI done and it doesnt look…
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Post Proton Therapy penis pain
I chose Proton Therapy at UF PTI in Jacksonville, FL for early stage prostate cancer. Started in Jan. 2008 and ended Mar 6, 2008. In late Feb. I developed a burning sensation in the penis. I could not say if it was internal or external, but I was also super-sensitive to the touch of my underwear or bedsheets. At home I…
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How will ADT change my life
Hello: I am new to the site. I am 71 and had a radical proctectomy 3 years ago. Cancer stage 3, Gleason 9. This was followed 1 year later by radiation. PSA went to zero briefly. Now after 3 years PSA is 0.12. It appears to be doubling every 6 months. A very recent CT scan showed an 8mm lesion on vertebrae T10. Not yet…
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Cyberknife Diary
Hello All After my diagnosis and subsequent due diligence I found that this forum was the best place to get educated opinions and help from others. I truly appreciate all of the time and help received and in that spirit have decided to start a new thread since my Cyberknife process has just commenced. It is my hope that…
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1-2 point PSA rise
Been on this forum quite a bit many of you know .in may I will be 21 months since completing regretful radiation treatment ..last PSA was 2.0 at 18 months .5 change from 15 months ..hoping it goes lower if not I'm thinking my Dr will want another MRI ....what concerns me extremely bad is everything I read about how a 2…
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Chinese are studying Sildenafil as a CVD antiviral
Gents It was a passing comment on a list of ongoing studies but... It is now the public service duties of our lovelies to help us in this study and protect our health (for those of us who take this)
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Post hormone and brachytherapy
Hi Newbie here! I am 6 months post last luepron shot to treat my prostate cancer. Like many, you think that's not going to happen to me. I should have known better. I lost my first cousin at 39 to metatstatic breast cancer and my best friend at 44 to metastatic breast cancer 3 months apart. To give a little history, I am…
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Immune system and COVID-19
Hi. I finished a course of 44 days of radiation therapy for Stage II prostate cancer in October. How soon until my immune system is back to normal?
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Annually
Well, I went to my checkup, the PA told me that I only needed to be tested once a year now because my PSA has been undetectable for 2 years now. For you new folks, I came into this "The Emperor of all Maladies" with a Gleason of 4+3 = 7. I am fully continent; intimate with my wife. To tell you the truth, I feel good. So…
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SCARED
Hello everyone, I just been diagnosed with prostate cancer. I received the results of my biopsy two weeks ago. For the last two weeks my head is been spinning! The more I read more confused I become. My Gleason score is a seven. I made an appointment with an oncologist surgeon and a radiologist that I go and see in two…
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Pathology after 3/2/20 RP. Some questions.
62 years. Pathology shows 3+4 ISUP group grade 2 disease with perineural invasion, focal EPE on left posterolateral region, and focal lymphovascular space invasion noted. Seminal vesicles negative. All surgical margins negative. 5 lymph nodes removed, all negative. My main question is what does "focal lymphovascular space…
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Progress Report Just After Prostatectomy
I'm 59 and after receiving elevated PSA tests had a biopsy done which found Gleason 6 (3+3) cancer. This was around April of last year. After spending a lot of time reading up on prostate cancer and weighing the various options (RP, RT, and AS), I finally decided on radical prostatectomy. Operation was about 2 weeks ago,…
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Coronovirus
Hi there, I have decided to open this new topic where I hope that people will post information on how the coronovirus affects men with prostate cancer. Already it seems that; Restrictions on travel eg from the USA to Europe and vice versa may affect men that are seeking testing and treatment overseas. Men that are immune…
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Testosterone recovery after ADT
Hi there, I thought this new publication would add to the knowledge of members. It seems that testosterone recovery after ADT takes some considerable time and after a time around the nineteen months that I received recovery can take up to two years, but the chance of recovery is better than I thought! You will have to copy…
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Metformin and statins
Hi there, I thought that I would bring this paper to everybody's attention. It seems to show that there is a distinct link between taking metformin and a statin and the progress of PCa. If you have metastatic prostate cancer or you think that you might then if you can persuade your doctor to give you some metformin and a…
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Show of Hands Please
Hello Everyone, This may start as a vent then a questionaire, so my apologies for being all over the place but I am still in the initial shock phase and still seeking out professional opinions. I am a very active, in good shape, 52 year old who just found out last week that I have stage 2TC Prostate Cancer with a Gleason…
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This is why you don’t do radiation as primary treatment
As you all know I did a combination of radiation treatment and I had many bad side effects and I'm still bitter about it below I will is my one and a half your follow up and when I asked the DR how low should my PSA get so I will know if the treatment was successful what is the nadir to be so I can proclaim that I am…