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Prostate Cancer

New to the game
I was recently diagnosed after a PSA of 54. Had CT and bone scan yesterday and results next week. In a quandry as I do not know what to expect. Hope i can obtain some info from discussion board after I know more what I'm dealing with.
Kegel
I have a lot of posts as I help the Newbies with Kidney Cancer. It will be 18 years in 3 days. Last September 30 my Prostate was removed by Mr Robot. It was a Gleason 8 before and a Gleason 9 after Patho;ogy. On New Year's Eve about 5PM I had my Gallbladder removed and held off on the Kegal for 3 months. When will my…
Incontinence and swimming
Anyone with incontinene know how to go swimming in a pool leak free? I had DaVinci surgery in 2016 at age 64. Gleason 9. Have been incontinent from day one. Depending on level of activity 1-3 pads a day, one at night. Had sling surgery earliy 2018 didn't take. I've learned to deal with the leaking. However, I have grand…
has my cancer returned?
quick back story...diognosed with prostate cancer at 50 back in 2012. Gleason score 4+3. Had Di Vinchi surgary at MD Anderson. Clean margins (but not by much) but did have possible seminal vessal spread. was undetectable PSA for several years...then kind of forgot about cancer...ended up not getting a PSA for 2…
Maintaining Continence?
Had a prostatectomy about 4 months ago and continence is mostly recovered. Have been doing Kegel exercises daily (three to four sessions daily involving 15 repetitions of 5 seconds each) and I figure I'm at about the "99% continence" level. Just occasional spurts when coughing or exercising. So my question is if it's OK to…
My daily video "Prostate Cancer Recovery Diary"
Hello, all. I'm new to this community. Indeed, this is my first post. I'm 65 years old, live in Connecticut, USA, and first feared that I had prostate cancer in February 2020 upon viewing my 17.6 prostate score in my medical records. On July 1, I underwent a radical robotic laparoscopic prostatectomy at Yale/New Haven…
Weight loss & chronic Fatigue
Hi My husband who is 87 years old has prostate cancer (enlarged)for several years and Dr.checkups each year.No worries. Last summer he suddenly started to lose weight without trying and lost over 20lbs over a 2 month period. His doctors regular had him exrayed, scans ,blood tests, and sent to heart doctor, skin doctor (he…
Still looking good
I just had my latest PSA ultrasensative test (a few months late because of Covid precautions) and after 33 months still showing <0.01ng/mL I have my 6 month follow-up/MRI after a partial nephrectomy this past January coming up in 3 weeks and hoping for more positive news. Just thinking that the term "new normal" is nothing…
Incontinence Question
I had a nerve-sparing DaVinci prostate surgery in 2015, Gleason 7, PSA 19. I was 51 at the time, and in exceptional health. After the catheter was removed about a week after the surgery, I was completely incontinent. I only saw marginal improvement in the leaking in the months after the surgery, despite almost a year of…
How are you guys coping with the other C word?
It is well wierd over here. Online people are bricking themselves. Outside in RL people are going alomng like nothing is happening. "Its just the flu" is all I hear.
Incontinence Recovery Period
58 and had Prostate removal via Da Vinci device. Recovery is amazingly fast, I would say day 2 is the worst day and the best day is after catheder removal which for me was 4 days later. Then I discovery the new common problem... Incontinence. They have me going to a Pelvic Floor therapist doing the kegels among other…
Brachytherapy + IMRT Report
Hi All, I’ve been lurker on this forum when my dad was diagnosed with Stage 1 prostate Cancer. Your experience has helped me so much. I feel it would only be fair for me to return the favor by reporting on his condition and progress to help other guys going through the same thing. Basic Info: Age: 77 General Heath: Active,…
Xofigo-Don't believe their lies!
I posted earlier about Xtandi vs. Xofigo. Now i will give the latest update for information to whoever needs some answers to this New Wonder Drug. As i posted previously, we have been blessed with my husbands prostrate cancer, diagnosed in 1999, in that we have been able to shoulder the costs associated with all of the…
MRI Claustrophobia
PSA LEVELS Dec 2016 4.0 Oct 2017 4.50 Apr 2018 5.0 Apr 2019 4.6 Apr 2020 5.5 May 2020 5.5 (retest after 21 days of Cipro) 70 year old white male. No previous testing done other than digital and psa until now. Doctor scheduled me for an MRI this morning. I couln't do it due Claustrophobia. When I was put into the machine it…
Ongoing constant pain post Proton radiation
I have a similar problem, but its ongoing. I was diagnosed in 2008. Did watchful waiting until 2014 when I opted for Proton treatment at MD Anderson. It all went well until about 3-4 weeks after finishing treatment. The the pain and "other" problems started. I have very strong pain during urination. It was like having a…
10 Year Anniversary
10 years ago I was half way through radiation at Loma Linda University Medical Center. Gleason was a 5+4. Positive margins into the bladder neck area. It was mentioned I had a 50/50 chance of recurance. I am still here!! AUS 800 and all. Life is Good!
Proton Radiation Therapy - any experience?
Have any of you had any Proton Radiation Therapy for PCa and if so, what were your outcomes? Also, if any of you have had consultatations about it, what were your thoughts? I have posted before, but as a refresher, I have Gleason 6(3+3) in 3 cores with 2%, 2% and 5% tissue involved. Stage T1c with PSA of a little over 10…
5 year test results
Hi all, Just heard back from the doctor on my latest PSA test and for the fifth year it was undetectable. My diagnosis: PSA was monitored for several years and increased .5 to 1 point every year to a point of about 6.1 MRI performed with 17ml multihance contrast fluid with suspicious areas Biopsy: Right base biopsy 80%…
New to Forum
New to site. Recently had radical prostate surgery. Post surgery gleason was 9. I must admitt that I'm frieghten yet hopeful I can slow the spread of cancer for the forseeable future. The cancer has not spread as tests show no cancer found in other parts of my body and none in my bones. I've done a psa test that showed my…
Incontinence-Male Sling System
I had my RP about 3 years ago and thank God I've been cancer free ever since. I do have a low to moderate problem of incontience averaging 2-3 pads a day. I've tried Kegels, diet and exercise and I think it's as good/bad as it's going to get without some form of surgery. I would like to be dry once again. I have Cystoscopy…
New diagnosis in Hawaii
Hi everyone, Sorry if I sound a little scater brianed but was just diagnosed. PSA 15 (in Sep. 2019 PSA was 3) I have had CT scan April 9th nengative, MRI a week ogo showing something insde the prostate and two spots on my tailbone, A Bone scane showing two hot spots on tailbone but no wear else on skeleton. Did prostrate…
Recently Diagnosed
Hello All, Just looking for some input. Over the last 2 years my PSA has went from 3.06 to 5.5. My GP sent me to an urologist and he did a DRE. He informed me that all felt normal and my prostate was slightly enlarged but, he felt i should have a ultrasound biopsy. Two weeks later he performed the biopsy and again said he…
New PCa treatment option
INNOVATION Prostate cancer treatment trial uses gold nanoparticles
New cancer diagnosis
Hi all my name is Daniel and have been recently diagnosed with prostate cancer by my urologist through a biopsy of 12 cores. Here are the following particulars Age - 62, 63 in May 8/2016 - PSA= 3.8 7/2017 - PSA= 6.31 2018 - PSA= n/a. No test 1/2019 - PSA= 7.60 1\2020 - PSA= 6.19 Biopsy 3\2020 Prostate Volume = 83 grams PSA…
Gleason score of 9
My husband is 63 and was just diagnosed with aggressive prostate cancer. His Gleeson score is 9,grade 5. They gave him 2 shots of degarelix in his stomach. We just saw a surgeon today who said not to remove prostate. He told us to go to a cancer institute. We have an appointment on Monday for a bone scan and a cat scan.…
External beam radiation side effects
well most everyone knows me in my story. I am almost 21 months out of radiation therapy managing with these nasty side effects. So here's a new one about one week into radiation therapy I developed diarrhea. Had a lot of urgency couple months of rectal leaking but the loose bowelsAnd having gas never went away. I had a…
AUS 800 Problem
Hello Friends, Had AUS installed in 2007 It was a real game changer, went from 6-8 pads a day to barely 1. Unfortunately, leaking has been slowly increasing over the last 10-12 months and now up to 2 full pads a day. Initial thought was that there was a leak, so Doc ordered an ultrasound. Reservoir looks full, so no leak.…
going Veggie and Conjugated Whey Protein
I have given up fish and shrimp and am now pure Veggie. There are two reasons for this. First, fish and shrimp are now raised in pens commercially and fed only God knows what. Also mercury levels are high. Secondly, it is a higher conscious decision to choose not to eat any kind of living animal. I believe that for me,…
Radiation and BPH
I just finished reading The Decision by Dr. John McHugh. One of the things he emphasizes in his decison path on choosing a treatment option for PCa is that if you suffer from voiding problems before radiation therapy, radiation will cause voiding problems caused by BPH to get worse. I was disappointed to read this because…
Vitamin K3 & Vitamin C IV Apatone Therapy
Hi. This is my first post on this forum. Searching on google i found a lot of evidences about these two vitamins. '' The Association of Vitamins C and K3 kills Cancer Cells" they call this therapy ... Apatone My question is ... has anyone tried this therapy? Reviews...Clinics... Laboratories? In my opinion it is worth…

Prostate Cancer

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