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Leakage after Levoquil?
I have gone through proton therapy back in 03..cancer came back. Cryosurgery in 06...cancer came back. Salvage cryosurgery in 07..cancer came back. Another salvage cryosurgery in early 09..PSA this August at 1.17. I'm handling all this fairly well except for the partial loss of bladder control. Changing diapers and pads…
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New diagnosis - just had first hormone shot
I was diagnosed about two weeks ago. PSA 5.6 and Gleason 8/9. CT scan and Bone scan were fine. Based on Gleason scores and large volume of tumor doctors did not think surgery was the best option. T2b or T2c tumor. Started hormone shots and will have IGRT in a couple of months. Has anyone had a similar situation? Any…
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Partial loss of vision after da Vinci robotic prostate removal
Has any one encountered this? I had my prostate removed June 30th and after the 6 hour operation and 4 hour recovery, I finally made it to my hospital room. It was then that I noticed that my right eye wasn't responding too well. I could only see black/gray shades. The following morning, my colors had returned. However,…
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Batter up
In the morning my wife and I head up to Vanderbilt in Nashville, Tn for my appointment for the DaVinci Surgery with Dr. Smith at the controls. Tomorrow is spent with all the hospital pre-op questions, tests, forms etc. Wednesday morning at 6am I actually check into the hospital with surgery scheduled to begin at 9am. Seems…
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Test to see if catheter is ready to be removed?
I have my appointment to remove the catheter Tuesday. Is there a specific test the surgeon uses to determine that catheter is ready to be removed? Do all docs use it? Thanks. Bill
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Jon 11
Hi I was reading back and saw your post in I believe it was June. I am also from NE pa and in the geisinger system with bc/bs. i was wondering what your final decision was and which doctor you had ...Hope this finds you ...Nick
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Cat and bone scan negative
Hi I just got my scans back and I think it means no spreading outside the prostate yet gleason is 3+4=7 . Also scans said prostate is normal size no tumors. I am meeting with a surgeon on Monday from Danville Pa. I hope hes good at Davinci as hes the second one I will have met. First one just didnt feel comfortable. Hope…
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4 days
Well in 4 days I will be having my surgery. I am concerened about the after effects, especially the incontance. But I look at it as I want the cancer out of my body, and I will do everything possible to help myself. I have been doing the excerises for the last 2 week, and will keep on doing them. I have faith in my dr. and…
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Incontinence Recovery Question
I got really great response to this question under different subject: Incontinence Recovery Question. Please read. Thanks. Has anyone had an LRP after previously having had a TURP (about 2 years before LRP)? I am 8 weeks post op and still have no bladder control. I'd appreciate response.
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My Doctor
I am almost laughing about this but not sure I should. My wife called for an appointment per doctors orders and was told I(after he ordered a cat scan and bone scan)by his secretary I couldnt get an appointment until Sept. I wonder now about whether i should seek advice elsewhere as he himself said make an appointment as…
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I hope someone can help me!!!
My cousin who has prostate cancer and is 46 years old is so embarrassed about having radiation on his penis. Is this normal?? I don't want him dieing with being so embarrased about this situation. I have volunteered for the American Cancer Soc. for years and would love to beable to help people out more! I have told him…
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Post surgery burning/pain while urinating
I continue to work my way through the first ten days following da Vinci surgery. Did any of you experience some pain and/or burning each time you urinated? Likewise, did you experience an ache in the pubic area or mild burning in the penis? I have felt this since catheter removal four days ago. For the first few days I did…
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Adjuvant Radiation
Had RALP surgery on April 2 & have no complaints regarding my recovery. My issue is that mine was a small tumor in a 'not so great' location and the doctor is recommending that I consider adjuvant radiation. Some of my post-op pathology results: Staging: T2aNXMX Perineural Invasion: Yes Surgical Margins: Carcinoma involves…
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Penile Prosthesis
After years of trying different options for the treatment of erectile dysfunction - none of which worked very well - I have decided to have the penile prosthesis. The surgery is scheduled for July 20. On August 3, I will observe the 8 year anniversary of my radical prostatectomy - my PSA results remain stable. The last…
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Open vs Da Vinci Surgery
I am trying to help my husband gather information. After much thought about whether to have surgery or radiation my husband has finally decided to go with surgery. His urologist likes the open surgery better, probably because that's what he performs. After reading many of your stories it seems like most of you have had the…
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Advance Prostate Cancer at 51
Hubby continues to be special and has now failed doxetaxol chemo and will be starting mitoxantrone plus a drug trial next week. I understand some folks have better luck with mit instead of dox since it is non taxol based. Keep your fingers crossed he will have a positive response to the trial and mit.
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Sonny- Just got back from my trip to Henry Ford Institute in Detroit
Well I just got home from my trip to the Henry Ford Medical Complex and the Vattikuti Urology Institute. Had a great trip and left feeling very confident that this is the place for my surgery. The have a great team assembled there and have a great patient first philosophy set up. In all I met --- different members of the…
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Tomorrow is the big day
Hello all, Tomorrow is my robotic prostatectomy. It seems like a long time since I was diagnosed in late May but I am ready for surgery and beyond. This forum has been ever so helpful in getting me to this point. Thanks to all of you and good luck on your decision making and/or healing. Bill
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hope??
Hi all I have been here before and theres 1 question I must ask. Is there anyone here who has had davinci and not had incontience issues? I hate the idea of a diaper (sorry no offense meant) and I have to work a heavy lifting job and from what I read here and elsewhere i have to deal with this issue. i know this sounds…
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grlinfl are you out there?
Have not seen a post from you in a few weeks. Wondering how you were doing with your Social Security disability issues? Have you checked it out? Sheila
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new patient
found out yesterday I have prostate cancer. doctor discovered problem thru blood work Im 45 with no other symptoms. my psa was 7. had biopsy 2 weeks ago and got results yesterday. doctor is recomending robotic removal,but ordered ct scan and bone scan. is this normal or should i be more worried. sorry i dont have more imfo…
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Out Of Surgery II, Days 4-6
(note: I have my first post-robotic surgery report on the forum dated 7/29). Well, days 3-6 (Thursday through Saturday) have been about both less and more discomfort for me. The shoulder nerve pain I wrote about seems resolved as does the healing pain in three-quarters of my incision sites. I still have a deeper pain in my…
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Newly diagnosed - Need Second Opinion
I found out about 1 1/2 months ago that I have Prostate Cancer. Just had a consultation session last week with the Radiation Oncologist and he gave me the results of my bone scan and CAT Scan. The bone scan showed a couple of things which I was x-rayed for. I will get the results this week. The Oncologist did not think…
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Long shot here but who knows
Hi to all. My name is Nick and I just first want to thank all who have posted here. You all dont realize how much it helps hearing from others who have this insidious disease. Ok my long shot is does anyone here know anything about Mercy Hospital in Scranton and a Dr. named Robert Ramey? I had bone scan and ct scan friday…
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Out of Surgery
First thanks for all of your wishes as I went into surgery on Monday. I thought I would share some of my experience throughout the last three days (before I forget or need to rest again). I started a full liquid diet two days before surgery and went from hungry to not so hungry. I kept myself real busy on Saturday and…
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Prostate Cancer Screenings Essentially Useless
Regular prostate cancer screening has no effect on the risk of death from the disease, according to a large-scale, long-term study conducted by researchers from the National Cancer Institute and published online in the New England Journal of Medicine. "There was little or no scientific evidence that it saved lives," said…
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Cat scan and nuclear bone scan
Hi I am a fairly newly diagnosed prostate cancer patient and this Friday I go for a cat scan and a nuclear bone scan. It is to see if my cancer left the prostate and if not I am going to go for the Davinci so my fingers and toes (yes both) will be crossed until then. I seem to be edging closer to a conclusion and am…
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Proton Beam therapy
I have a web acquaintence that I have spoken with on the phone recently who underwent Proton Beam therapy at Loma Linda last summer. He is in his early fifties and has done real well following the therapy. I don't seem to find much information on this forum about Proton Beam therapy, and haven't seen many posts here from…
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can't sleep
I can not sleep, getting 3 maybe4 hours a night .Have had rad prostatectomy in Nov. 2009, followed by lupron had a 4 month shot and a 3 month shot the last one ends Aug.13. Also completed 45 radiation treatments. Still have some cancer cells. PSA 3. considering not having 3rd shot in Aug want to wait 3months see what…
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Leaning Now towards External Beam Radiation
Today I saw my Urologist and he confirmed that the cancer looks to be contained within the prostate. I was leaning towards traditional surgery, but since I have a weak heart due to Congestive Heart Failure and a gaft implanted in my left leg due to Vascular Disease the Urologist said there may be complications and high…