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Hormone therapy
I have prostate cancer, had a radical prostatectomy in 1999, then 13 wks of radiation in 2004 with a serum PSA of 0.26 ng/mL. As of July 2007, my PSA is 3.3 ng/mL. I know that hormone therapy is my only treatment option, but when should I start?? I have gotten 4 different opinions, ranging from now, to waiting until the…
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Arizona Help - Treatment Options
I am looking at treatment options in Arizona (I live in Tucson). I was recently diagnosed when my PSA went from 3.9 in June 08 to 6.0 in May 09. The biopsy showed 3 of 12 with RLB: 35%, RLM: 75% and RA: 50%. My Gleason were all 3+3. RLB and RLM showed perinueral invasion. My urologist is optimistic for either surgery or…
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MY Turn
Hi all thanks to all who have prepared me for this and I have learned so much here. My Davinci is scheduled for Sept 3rd. I must be slightly insane because I am more worried about missing work than the surgery. My pre op takes place nest week blood word and a chest x ray. A quick note in this short time I have switched…
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Journey Begins
I was diagnosed with PC on July 8. I am 63 years old. My PSA was 5.66 and I had three cores out of 12 in my biopsy with a Gleason grade of 8 (3+5). Unfortunately, after the biopsy I developed a severe E-coli infection, despite the fact that I had pre-biopsy anti-biotics. The E-coli was resistant to two anti-biotics and I…
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Hyper-continence
Tomorrow is my four week anniversary since robotic assisted surgery. Two days after my catheter was removed (seventh day following surgery), I could no longer urinate and was in terrible pain. So it was off to the emergency room at 2 AM to have another catheter inserted and get relief. Seven days later the catheter was…
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New Resource for PCa survivors www.franktalk.org
About me - 46 at diagnosis. Had davinci in Jan of 2008. Joined the local PCa support group in Danbury Ct - thank you ACS! Anyway, in working with the guys in my group as well as my own research, I discovered that there were no internet sites dedicated to helping men fighting ED after surgery. There are several good cancer…
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Incontenance Recovery Question
This question goes out to anyone who has beaten the incontenance. I am only 2 months since the catheter was removed so I don't necessarily have any expectations of beating the incontenance yet, however I am curious as to what to expect when I do gain control. I feel that my incontenance varies day by day. I do my kegals…
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Home Juicing- save a little $
Lewvino has posted some great info on Pomegranate juice having a lot of promise in slowing down PC's advance. My urologist concurs: he was involved with the Stage 2 trials at UCLA that are showing great promise. It is pretty expensive off the shelf, so I thought I would mention the use of juicers. I have two: Jack La Lanne…
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Sorry Guys, Back to work
Hello All.....I am still alive,just missing in action... I went back to work on the 4th of Aug...been a struggle to say the least....not so much the work, although I need help lifting a motor yesterday, but the incontinence issue raised it's ugly head again. The Doc had me wait 10 weeks before he released me for work, said…
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daVinci and Gastro Prep
My daVinci will be on 30 Sep. I have to start a clear liquid diet the morning of 28 Sep with nothing by mouth after 10:00 on 29 Sep. Plus a Fleets at 5:00 on 29 Sep. My surgeon is acknowledged as one of the top 10 in the world (by volume) with over 1700 procedures so if he told me I had to stand on my head for the last 36…
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85 Year old with metastatic prostate cancer... chemo or hospice...
Hey i had been on here awhile back about our 85 year old dad who has prostate cancer that metasticized and was also in the bone... Since then it has spread to the liver and lungs... He still drives, plays the guitar, cooks, cleans and is very full of life... The doctor has now told us that the only choice left is Chemo...…
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Patholgy Report
Dr. Office just called. Today is one week post surgery. Final report showed 20% of the prostate was involved with Cancer. Overall Gleason score given of 3+4 (7) POSITIVE SURGICAL MARGIN noted on the right apex. Does anyone know if this means that I have to now start radiation or will they just do PSA tests for awhile To…
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Proton Therapy
I have recently been diagnosed - PSA 5 Gleason 6 (3-3) in two out of 12 cores. I am 67 and was nearly 90% sure I wanted robotic surgery until I learned about proton therapy. I am now interested in learning all I can about that process. I have visited the websites, read the book by Bob Marckini and want to talk with men who…
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Just Nailed Down the Schedule for MY da Vinci
Hi guys. Haven't posted for a while, been trying to clean up the loose ends before my surgery. My wife has been home from the hospital now for two weeks and her rehab is moving along nicely. I have been trying to complete the long dang list of home projects before I go so I don't have them hanging over my head when I get…
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Larry King tonight
Tonight's show is on prostate cancer. Here is the teaser: What are Colin Powell, tennis champ John McEnroe and L.A. Dodger's manager Joe Torre doing together? Saving lives! They're teaming up to fight one of the deadliest cancers for men...surviving and preventing prostate cancer!
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Prostate spread to lungs
About 2.5 years after radical prostatectomy followed by radiation and Zoladex, PSA up a bit. Went on Lupron spring 09. Had routine chest xray June 09 showing possible lesion. Long story short, it's "metastatic adenocarcinoma of prostatic origin" in both lungs. Doesn't seem to be in bones. Oncologist says surgery, radiation…
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cancer metastic
had cat and bone scan have nodule on right lung but not in bone starting chemo this week scared stiff heard of it going to bone but not lung help
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Leakage after Levoquil?
I have gone through proton therapy back in 03..cancer came back. Cryosurgery in 06...cancer came back. Salvage cryosurgery in 07..cancer came back. Another salvage cryosurgery in early 09..PSA this August at 1.17. I'm handling all this fairly well except for the partial loss of bladder control. Changing diapers and pads…
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New diagnosis - just had first hormone shot
I was diagnosed about two weeks ago. PSA 5.6 and Gleason 8/9. CT scan and Bone scan were fine. Based on Gleason scores and large volume of tumor doctors did not think surgery was the best option. T2b or T2c tumor. Started hormone shots and will have IGRT in a couple of months. Has anyone had a similar situation? Any…
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Partial loss of vision after da Vinci robotic prostate removal
Has any one encountered this? I had my prostate removed June 30th and after the 6 hour operation and 4 hour recovery, I finally made it to my hospital room. It was then that I noticed that my right eye wasn't responding too well. I could only see black/gray shades. The following morning, my colors had returned. However,…
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Batter up
In the morning my wife and I head up to Vanderbilt in Nashville, Tn for my appointment for the DaVinci Surgery with Dr. Smith at the controls. Tomorrow is spent with all the hospital pre-op questions, tests, forms etc. Wednesday morning at 6am I actually check into the hospital with surgery scheduled to begin at 9am. Seems…
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Test to see if catheter is ready to be removed?
I have my appointment to remove the catheter Tuesday. Is there a specific test the surgeon uses to determine that catheter is ready to be removed? Do all docs use it? Thanks. Bill
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Jon 11
Hi I was reading back and saw your post in I believe it was June. I am also from NE pa and in the geisinger system with bc/bs. i was wondering what your final decision was and which doctor you had ...Hope this finds you ...Nick
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Cat and bone scan negative
Hi I just got my scans back and I think it means no spreading outside the prostate yet gleason is 3+4=7 . Also scans said prostate is normal size no tumors. I am meeting with a surgeon on Monday from Danville Pa. I hope hes good at Davinci as hes the second one I will have met. First one just didnt feel comfortable. Hope…
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4 days
Well in 4 days I will be having my surgery. I am concerened about the after effects, especially the incontance. But I look at it as I want the cancer out of my body, and I will do everything possible to help myself. I have been doing the excerises for the last 2 week, and will keep on doing them. I have faith in my dr. and…
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Incontinence Recovery Question
I got really great response to this question under different subject: Incontinence Recovery Question. Please read. Thanks. Has anyone had an LRP after previously having had a TURP (about 2 years before LRP)? I am 8 weeks post op and still have no bladder control. I'd appreciate response.
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My Doctor
I am almost laughing about this but not sure I should. My wife called for an appointment per doctors orders and was told I(after he ordered a cat scan and bone scan)by his secretary I couldnt get an appointment until Sept. I wonder now about whether i should seek advice elsewhere as he himself said make an appointment as…
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I hope someone can help me!!!
My cousin who has prostate cancer and is 46 years old is so embarrassed about having radiation on his penis. Is this normal?? I don't want him dieing with being so embarrased about this situation. I have volunteered for the American Cancer Soc. for years and would love to beable to help people out more! I have told him…
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Post surgery burning/pain while urinating
I continue to work my way through the first ten days following da Vinci surgery. Did any of you experience some pain and/or burning each time you urinated? Likewise, did you experience an ache in the pubic area or mild burning in the penis? I have felt this since catheter removal four days ago. For the first few days I did…
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Adjuvant Radiation
Had RALP surgery on April 2 & have no complaints regarding my recovery. My issue is that mine was a small tumor in a 'not so great' location and the doctor is recommending that I consider adjuvant radiation. Some of my post-op pathology results: Staging: T2aNXMX Perineural Invasion: Yes Surgical Margins: Carcinoma involves…