-
Husband's PSA is now .18 post RP 8.5 years ago
My husband Paul is now 71.5 years old and had a regular RP 8.5 years ago and the doctor said the pathology reports said the cancer had penetrated his urethra, but that is was possible since it was on the border all it may have been cut out due to where he had to cut. For the past 8.5 years, Paul's PSA tests have come back…
-
Support groups in Philadelphia, PA area
Does anyone know of any support groups local to me here in Philadelphia, PA?
-
Just Starting Lupron
My 48yr old Husband started Lupron Shot 6/26 after radical prosectomy 5/14/09. path stage T3c N1 MX..Post Operation PSA 1.0. Radiation is sheduled Late Aug/ Early Sept.. So far no real side effects.. Also using Trimix with some success - a little leaking with that otherwise, completely dry even with heavy lifting and…
-
ELEVATED PSA
I HAVE AN ELEVATED PSA AFTER RADIATION OF THE PROSTATE. IT HAS NEVER GONE DOWN. THE FIRST WARNING WAS 14 AND ELECTED TO HAVE TOMOTHERAPHY (41 TREATMENTS). SINCE THEN THE PSA HAS NOT BEEN BELOW THAT AND IS NOW AT 56. I HAVE HAD BONE SCANS AND MORE BIOPSIES THAT ALL ARE REPORTED AS CLEAR OF CANCER. DOES ANYONE HAVE SIMILAR…
-
Read replys and ????
Hi and good luck to all those patients who have made a decision either way. I havent got that far down the road yet and am sorting through this mountain of information both here and elsewhere. I had some bad side effects with my prostate biopsy and am therefore more scared than I should be. Seeds or surgery? I only want 1…
-
Is Hormone Treatment after Radiation What Most Get?
Currently, I am at the end of the staging phase. And about to pick a treatment. I am 54 years old, have a PSA of 6.4 and Gleason Score of 7 (3+4). I am leaning towards surgery. But still open. Talking to the Radiation Oncologist he says with the External Beam Radiation hormone treatment is generally required afterwards.…
-
Artificial Sphincters
I posted yesterday about being newly diagnosed and received some very useful information. It would seem the most often encountered side effect of the da Vinci operation is incontinence. I am a sports official umpiring baseball and softball in High School through College. I umpire 200+ games a year. An average game behind…
-
radiation and colon damage
I was diagnosed with prostate cancer in January 08. I had 40 radiation treatments in Feb. and March of 08. Before the treatments were over, I was bleeding from the rectum. My doctor said not to worry. But I have gotten worse. I had surgery in April 09 to burn the bleeding points. It has not helped. I am looking for…
-
How to pick a doctor
Hi i live in northeastern Pennsylvania and have a problem, it seems I cant figure out a way to find an experienced doctor in my blue shield network. They wont recommend a doctor and the specialist I have I really dont trust. He seems to want to rush me and never told me the doctors name that he wants me to see. If any of…
-
What is perineural invasion Posted by NM
I have this phrase throughout my cancer report and am confused as to its meaning. Any help would be appreciated. Also my dad had PC and choose radiation, And his cancer went to the bone i believe 7 years later. Is this normal for radiation? Right now i am leaning to removal of mine but am as yet undecided. I would like to…
-
Patience, Discouragement, call it what you will . . .
It has been 2 months post radical robotic for me. I am 55 years old. I have read the postings by kreinholt, tpelle, lion1 and others. How do you measure improvement? I soak 4 depends type diapers every day. I do the Kegels as often as I can. I hate the results!! I am tired of wearing and feeling a wet diaper. My check up…
-
Just getting started
Hi I am new to all this as having been just diagnosed and seem to be rushed into a quick decision by my urologist (he wants robotic surgery for me) My gleason scores all seem to be 3+4=7 and some segments say positive for perineural invasion. I am trying to research all this and am now completely lost. Any advice from…
-
1st PSA after surgery
Got my first PSA result today after Davinci a month ago. It was 0.3 which worry's me. The doctor said it should go down in another month. Any of you guys have a similar situation? Cheers, George
-
vacuum pumps
I'm seeking information on vacuum pumps for ED. Had surgery 3 weeks ago and looking at options if needed. Any replys are appreciated. Regards, George
-
Radiation and the Immune System
I had 25 radiation treatments this summer and have recovered. But I have noticed with the cooler weather that I now contract colds, sinus infections, allergies and respiratory disorders more easily and that they appear to be more severe than usual. Does anyone know anything about the effects of radiation on the Immune…
-
Treatment Decided And Date Set
I have decided to proceed with robotic radical prostatectomy and will have surgery on July 27. Although I am sometimes anxious about the recovery period in the first few weeks following the surgery (and beyond), I'm ready to move on with this next phase. My wife and I had a nice vacation planned to Maine and the…
-
Just found out Wed
Was just told Wed. that I have prostate cancer. Not really feeling anything at this moment. My wife asks on daily basis how I am doing and I tell her fine. My dr want to see me on the 30th, to sort of decied what way to go, either radiation or surgery. I've decided on surgery. Not sure on the date yet, that will be…
-
My journey with prostrate cancer.
I found this forum during my search for more and more info on prostrate cancer. I hope this story will help someone else the way stories have helped me. Mine began last october, with a company health screen, which we do every year. My PSA jumped from 3.91 in 2007 to 5.71 in 2008. Yes, hind sight is twenty twenty, I should…
-
High Intensity Focused Ultrasound
Have any of you heard of HIFU (High Intensity Focused Ultrasound)? From the research online it looks very promising...look forward to comments.
-
Radiation Treatment for Side Effects
I am a 5 year survivor. I am 63 years old. I've been visiting this site for close to 5 years. It has really helped me through all of this. To those that maintain this site; "My hat is off to you!" This is a great service and I hope everyone appreciates it as much as I do. I've been through surgery, then a rising PSA, then…
-
Homone Therapy Before da Vinci Procedure
My doctor tells me that I would need three to four months of hormone therapy to shrink my prostate to the point where I would be able to have a da Vinci (robotic) surgery. I was told this by a leading doctor in the field and I have no reason to disbelieve him, but I cannot find anything, anywhere about prostates being too…
-
23 days post-op
Well I got back my first PSA results, it has been 23 days since surgery date with Di Vinci...results were psa< 0.01..... thank God!!!! What a great feeling!!! ED is a non issue for me, incontinence is improving, only the dripping when I walk. I still use my depends, but soon hope to go to only pads. But, one day at a time,…
-
Prostate Cancer at 39
I was accidentally given a DRE during a physical last year and was just told last week that I have prostate cancer. PSA went from 2.7 to 5.3 in a year, Free PSA was 8%, and the Gleason Score came in at a 3+3+6. Bone Scan was negative, so all the dogs are still in the yard. I'm leaning towards the robotic proceedure, but am…
-
Recovery Question
My surgery is set for Aug. 12. On Sept. 27 we leave for a cruise to Bermuda for my Son's wedding at Bermuda. While at a bridal shower yesterday they discussed renting mopeds on the island for an island tour. Some of the brides family still live in Bermuda and were going to take us to the non tourist places to see the real…
-
Choosing a Treatment Procedure
I had prostate cancer in 2003 - psa 4.7 - gleason score 6 prior to surgery and gleason score 7 after surgery - positive margins. After doing my own research and speaking to doctors - I chose radical prostatectomy (open - not robotic) - as robotic surgery was very new in my area and my doctor did not perform them at the…
-
Moods, up and down, my husband only had one hormone therapy shot, seed implants, 5wks. radiation, ho
Just when I think my husband is doing better, he seems to have the moods pop up again, is this normal? Does the testosterone start to produce again and do we even wish for this until we know cancer is completely gone? Could it be something else?
-
Advanced PC and disability
Has anyone had any luck with applying for disability and being approved? It is getting harder and harder for my husband to work. His doctors and other people have told him to apply for disability. But we have heard that it is very hard to get approved, and we can't afford to take the chance and get denied. His cancer has…
-
Using Ditropan, Vesicare, Detrol LA--Incontinence
My Doctor recently has been treating me for a contracting bladder. After URO testing it was evident that my sphincter was still functioning but my bladder was way overactive. So as I climb the staircase of treatment, he prescribed Ditropan to see if this would help my bladder. It's been 4 weeks and it just doesn't seem to…
-
Just found out...what do we ask?
I found out last week that my Dad has prostate cancer...Gleason 8. It doesn't seem entirely real at this point. I only cry when I hear that my Dad has just heard something that has shook him about his PC, or when I read posts from people who are going through similar things, or when I talk to my family, because it makes…
-
Robotic Treatment in Tampa
I'm trying to decide between 2 Da vinci surgeons in Tampa, FL... Dr Frank Mastandrea with St Joesph's and Dr.Julio M.Pow-Sang,MD. with Moffit. Both seem to have done a considerable amount of surgery's. Does anyone have any experience with either one of these guys?