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Back on board
Been a while since I posted. I am doing well but am still dealing with some side effects. I continue to freak out every three months when I have my CA125 and have experienced a great deal of stress with hair loss and nerve damage. However, when I read how brave my teal sisters are on this site it brings be back to reality…
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Anxiety 3 years post Ca
Hi Everyone it has been a while since I have posted a 'forum topic' and I have mainly been a lurker for the past year or so but I feel that I need a sounding board so to speak. Basically I am now 3 years post dx for Stage 2C ovca, debulking, dense does taxol/carbo last chemo Dec 2010. I have been doing really well and to…
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Artificial Ovaries
A proof-of-concept study suggests the possibility of engineering artificial ovaries in the lab to provide a more natural option for hormone replacement therapy for women... http://www.sciencedaily.com/releases/2013/03/130326151131.htm Once they hit the market, who is with me for the "Group Buy"?
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"Drug Interactions Checker" - a neat tool...
http://www.drugs.com/drug_interactions.php Type in a drug name and select a result from the list. Repeat the process to add multiple drugs. When complete, save your list for future reference or check for interactions immediately. Also check for interactions with food and alcohol. I just found out that taking Premarin with…
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Hello Beautiful Ladies!
Hi all-- I haven't posted here in a while. I come from the breast cancer forum (dx at the age of 32). I check up on you ladies sometimes. You're in my prayers. For those of you who don't remember me, I lost my grandma to ovarian cancer in 1998. She was my mother. I miss her dearly. I pray for all of you to see the light at…
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Carbo/ Doxil
Whom has been on this combo and what success have you had also what side effect. I am getting very nauseated on this combo which is driving me nutty . Days of feeling sick are kinda frustrating I don;t mind being tired but vomits is no fun. I am taking an it vomit meds but they don;t seem to be working, I am going to ask…
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scan
So I had a follow up with my oncologist after having a ct scan and was declared cancer free. That is the best thing to hear so relieved. My doctor brought up the subject of genetic testing especially for breast cancer now that I have had ovarian cancer. He told me that if it comes back positive I should consider having a…
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Anne Behymer
A long time friend to this site passed away this morning. God bless her and her family...val
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Genetic testing
Today after nine long months my mom got a good word from the doctor "No evidence of cancer" I haven't been this happy in such a long time. Genetic testing was first brought up by her surgeon and I was all for it. It was again brought up today and it really kind of scared me this time, he was saying things like "double…
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Well ladies, some good news to share: My daughter is getting married!!
Hi Ladies, My 22 year old daughter is getting married July 19. Yes, 11 days from now. She and the young man intended to become officially engaged this summer, and marry in December. However, they have decided to proceed on with the wedding when my son is visiting next week. For nearly two years the two of them have been…
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Pierce Brosnan's daughter Charlotte (41) dies of ovarian cancer
http://www.bbc.co.uk/news/entertainment-arts-23145075
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Just got home from the Teal run
You were all there with me! 700 runners this year, all decked out in teal or their own team shirts. My Onc is a runner and he and his whole office participate. If you have any of these events near enough to your homes, I hope you'll try to attend. I met so many survivors and their families. I spoke to one husband whose…
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One week out from double mastectomy
Dear Ones, Sorry I didn't post sooner, but had a very hard time gettting onto this site. A week agao I went in for my double mastectomy, with DIEP rectonstruction and reparir of hernias. As it turned out I did not have 2 hernias, but 3 from the ovarian debulking. They repaired them and then placed a large sheet of mesh…
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One Y ear Ago Today
I had my last cancer treatment.. It is great but scarey. Now that I have gone a year without any cancer I wonder if I am going to wake up tomorrow and find out it is back...I will take every clean day I can get
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I have chemo
at eleven today. I haven't recouped from the last one on May 29th. I still feel tired and when I try to do anything I have hot flashes or cold sweats. My blood work from yesterday improved but some of the red blood counts are still low and one white blood count is at the minimum. I didn't hear from the doctor so I guess I…
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chemo update
I am done.....again! Decided against the maintenance clinical trial. I would have to have anoyher infusion of Taxol. My neuropathy is already bad and that would make it worse and permanent according to my oncologist. Plus with my luck I would get taxol in the study instead of the no side effect drug. My doctor said that…
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the Acid-alkaline Myth
One of the first things a cancer patient will hear from people giving them advice beyond conventional treatment is that they need to keep their body alkaline, with diet and alkaline water. The science, however, does not support this concept: http://chriskresser.com/the-ph-myth-part-1…
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Teal There's A Cure Walk/Run. July 4th
Hi loves, a quick note to let you all know about the annual OVCA walk/run. There are so few of these as compared with ones held for breast cancer, etc. and this one happens to be in my home town! My whole Onc's office attends and takes part. I wish I could walk it, but just had chemo yesterday, so I'll cheer instead.…
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Just looking for advice...
I am four days out from chemo and feel horrible. How do you ladies cope? I don't want to eat or drink. I feel so sick. The time drags. I just want to sleep it off but only do that in spurts. Thankfully I slept well last night so I didn't have to be awake those long, lonely hours. I have so much to be happy about but right…
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"The Cancer Ward" recommended reading
The Cancer Ward is a semi-autobiographical novel by Aleksandr Solzhenitsyn, first published in 1967, and banned in the Soviet Union in 1968. The novel tells the story of a small group of terminal patients in the hospital "cancer Wing # 13" in 1955 in the post-Stalinist Soviet Union. This is not an easy beach read by any…
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My wife needs your help
Ladies, I am an almost 70 year old 11 year survivor of Stage 1 Kidney Cancer and regularly help the Kidney Cancer newbies on the Kidney Cancer discussion Board. Ovarian Cancer however is above my paygrade so I am turning the keyboard over to my wife so she can ask the questions. Hi All! I am very confused as to what my…
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ca125 up again!!
I was shattered to hear this week that my CA125 has jumped another 102 points to 525 (my 6th consecutive rise!). I am continuing on with Topotecan but my Oncologist wants to add Avastin so that is planned for tomorrow. Has anyone else had this combination? Another complication - this week at chemo discovered my portocath…
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Pets
I have been having a conversation with Iceman about our similar-looking pets, and I thought it might be a nice, lighthearted topic for the rest of the board. Tell us about your pet! This is my Hugh Jackman. He came to live with us the day I learned I had cancer. Didn't need a dog; wasn't looking for a dog; can't say I…
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Neuropathy
How bad is your neuropathy and how do you handle it? I quit IP chemo after four and a half rounds because of neuropathy in my hands and feet. My oncologist was afraid it would become permanent if I continued. He was convinced I had enough, scans are 100 percent clear and my ca125 is 6. But the oncologist/gynecologist who…
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Tuesday mastectomy
Tuesday, early at the crack of dawn, I will be at the hospital having my double mastectomy with DIEP reconstruction. Also, my plastic surgeon is going to repair 2 hernias from my ovarian cancer debulking surgery. I will be at the hospital 3 to 5 days depending on blood flow to the transfered tissue. Prayers appreciated!
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The beast is back!
Was six months into my second remission. (CA 125 in May was 16.) Had a great weekend and golfed 36 holes and took a trip to go to a funeral. Had a good dinner Monday night and got up nauseated on Tuesday. Off to ER and the CT showed partial bowel blockage and the yucky NG was placed. My CA was 83! Was given the choice of…
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To start targeted radiation
And same chemo given every other month..radiation to start next week everyday foa a few weeks. There is still one 2cmTry tumor left inthe pelvic region. Can't wait for this to be over. I never had radiation before.they say it isn't painful,but has side effects. I am ready..bring it on.Feeling good other wise.Enjoy the…
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CFI-400945 ("sharpshooter" drug)
The drug, known for now as CFI-400945, is a new class of cancer agent that targets an PLK4 enzyme involved in some malignancies, among them some types of breast cancer and ovarian, colorectal, pancreatic and prostate cancers. Phase 1 trial is to start in September.…
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Research
Sounds promising. just wanted to pass it on to teal sisters. http://bkoffman.blogspot.sg/2013/03/ash-2012-dr-tom-kipps-ror1.html
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New Endpoints Proposed for Chemotherapy in Ovarian Cancer?
Quality of life (QoL) and symptom benefit should be accepted by clinicians and regulators as additional coprimary endpoints in clinical trials of chemotherapies for platinum-resistant and refractory ovarian cancer, according to a group of experts. These measures are "the most important aims of treatment" in these patients…