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Kikz (Karen) - how are you?
I hate to bug you if you want to lay low, but I was wondering how you are doing? It's been a while since we've heard from you but I know you have a lot of challenges and a heck of a lot of crap to deal with. Please post when you can. Kelly
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New member
Hello, I'm from rural Illinois, straight west of Chicago. I was diagnosed in Jan. 2008, at age 57, with stage IB ovarian cancer. I actually felt my tumor and had surgery only. I'm a retired elementary school librarian, married for 44 years (to a husband who has had 3 different cancers). We have 2 adult sons. One son is…
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surgery and dx worries--help!
Hello, new here and my mind is just reeling with the possibility im dealing with ovarian or some other cancer based on symtoms, family history, and a suspicious growth near an ovarian cyst. I am recently post-menopausal--a year and a half with no period. I started having a lot of indigestion, gas, belching, bloating and…
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New member
Hi, I'm new to your discussion board, but not new to ovarian cancer. in fact, I'm a 12 year survivor. I used to belong to the ACOR discussion board, but it has closed, and we were sent to a site called SmartPatients. I joined it, but I don't really like the format there. I was dx with stage Ic endometriod orca in 4/01. I…
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1 year NED
Today I celebrate one full year of NED!! Thank you Lord! If that were not enough, today is my 22nd wedding anniversary. I am married to the most wonderful husband, he is kind caring and so supportive. I have known him since I was 9 years old. We have been through thick and thin and always the best of friends. Feeling…
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Photos
Hi Ladies, I posted some photos of me parasailing on my expression page. Lisha
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Taxotere
Just started Taxotere on Thursday to be given on a weekly basis , I forgot to ask for how long. Has anyone been on this ? They told me I might not have any side effects but I did feel pretty queasy for a couple days but nothing like after the Carbo/Taxol. Does anyone know if the effects are cummalative ? I will ask the…
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1 year since DX
Hello Ladies, It's been a very long year since my most recent dx. I have been trying to keep the fear in the back of my life, but find it a real challenge at times. I am doing better but increasing pain has me worring a little more. The last ct looked good, but there were some new issues that I need to deal with. My ca 125…
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Castor Oil For Adhesions and Scars
I've used castor oil packs to get rid of adhesions. Another bonus is that they make scars disappear.
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1 year on CSN
Exactly 1 year and 500 posts ago I joined CSN. 2 months after OVCA diagnosis, 1 month after BRCA+ test result, in the middle of my second round of chemo; 2 months before debulking surgery. I was overwhelmed, emotionally broken and suicidal. I was fortunate enough to find this board and meet all of you wonderful "teal…
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Ovarian Cancer Conference in Boston
Hi, I am going to the conference in Boston this weekend put on by the Foundation for Women's Cancer at the Wyndham Hotel on Saturday. Is anyone else going? Kelly
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Had chemo and radiation today
Radiation at 7:00. ...then visit to MD. She told me my markers were up.,but wants not going to get chemo because it wasn't good for my bone marrow She checked with my Radiologist and he said it was ok to get the chemo since I am getting very low dosage of rads. I was glad cause markers went from 19 to 38 ..this tell me I…
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CA125 question
Hi All, Got my CA125 results today and it came in at 8.9. After 3 rounds of chemo and debulking surgery, my CA125 went from 2200 to 4 and stayed there through the rest of chemo and for about 9 months after that. Then I got a 6.9, last time a 5.1 and this one was almost 9. My head tells me it's going to fluctuate but my…
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If you knew 20 years ago???
My gram was diagnosed with multiple cancers. One being ovarian. Which from what I understand that cancer is very dangerous and has the highest death rate due to how quickly it grows and the lack of accurate testing. With that my mom is most likely going to have her ovaries, tubes and uterus removed now as she is already…
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What to expect/ be prepaired for
My Gram has been diagnosed for 3 totally seperate cancers. Anal, esophgis (SP) and ovarian. she had surgery to remove some but a lot was still in there. She is 75 and does not want to do any treatmetns and letting nature take it course. Our family does not know what to expect during this time and how to help her. She has…
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Book: " Proof of Heaven" , Eben Alexander, M.D.
My husband get a book for me on line. I finished read it a same day I resieved it by mail ! If some body interesting in topic like this, you can go to www.eternea.org.
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Been MIA and in pain
Welp, I am back again. I ended up back in the hospital, again. I am having so much trouble just trying to find a compassionate doctor who doesnt tell lies!! I had to go have my ostomy stent changed, and it turned into a three day ordeal; one day was surgery BUT: they never knocked me out!! They were trying to remove the…
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Update
I enjoyed a wonderful 6 mos remission but have been battling bowel obstructions the last 3 weeks. Mostly in the hospital with NG tubes! Ugh! So the plan now is to send me home on TPN and have chemo to shrink the cancer and open blockages. I really think things are getting better but am afraid to take a chance without the…
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Leesag
This is in response to your post on another thread. Welcome back and I am very happy to hear that you're NED and doing well. You are the definition of "survivor". I just can't get over what you wrote about your husband. Unbelievable! How can someone be so selfish and self-absorbed after everything you went through with…
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3 Month Check Up Today
Today was my 3 month check up. It was also the first appointment with my new gyno since we moved. I was there for an hour. She is super nice and wanted every detail of the last year of my whirlwind ride with ovarian cancer. Se was very thorough and I love her. All went well. Everything is normal. I guess I am off for 3…
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brand new questions
I just found out I have Ovarian Cancer on July 12th. I should first say I live on Maui. It was a strange thing on June 20th I thought I had a bladder infection after a vaginal sonogram and a ct scan my OB/Gyn decided I needed an emergency hysterectomy because my ovary had flipped. After opening me up they decided it was…
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Update
I enjoyed a wonderful 6 mos remission but have been battling bowel obstructions the last 3 weeks. Mostly in the hospital with NG tubes! Ugh! So the plan now is to send me home on TPN and have chemo to shrink the cancer and open blockages. I really think things are getting better but am afraid to take a chance without the…
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Been absent for awhile
except for posting on someone else's thread. Have felt crappy since I started chemo on May 7th but even worse since chemo on June 25th. I had to skip my scheduled chemo on July 18th because I had diarrhea for five days, extreme fatigue and low blood counts; platelets were 58 and neurophils were 4. I am anemic and…
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Of interest to those who are NED with BRCA mutation
New trial NCT01847274, sponsored by Tesaro, Inc. not yet recruiting. A Maintenance Study With Niraparib Versus Placebo in Patients With Platinum Sensitive Ovarian Cancer Niraparib, formerly known as MK-4827, is an orally active and potent poly (ADP-ribose) polymerase, or PARP inhibitor. A Phase 1/2 monotherapy study has…
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new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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Amazing Technology
http://gizmodo.com/this-smart-scalpel-can-smell-cancer-as-it-cuts-818330933?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed:+gizmodo/full+(Gizmodo)
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Hearty Pioneer
Just wanted to know how you are feeling. Hope you have a speedy recovery...we are all here for you.Post when you can....Val 2013-07-01
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Back on board
Been a while since I posted. I am doing well but am still dealing with some side effects. I continue to freak out every three months when I have my CA125 and have experienced a great deal of stress with hair loss and nerve damage. However, when I read how brave my teal sisters are on this site it brings be back to reality…
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Anxiety 3 years post Ca
Hi Everyone it has been a while since I have posted a 'forum topic' and I have mainly been a lurker for the past year or so but I feel that I need a sounding board so to speak. Basically I am now 3 years post dx for Stage 2C ovca, debulking, dense does taxol/carbo last chemo Dec 2010. I have been doing really well and to…
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Artificial Ovaries
A proof-of-concept study suggests the possibility of engineering artificial ovaries in the lab to provide a more natural option for hormone replacement therapy for women... http://www.sciencedaily.com/releases/2013/03/130326151131.htm Once they hit the market, who is with me for the "Group Buy"?