-
Unwanted hair
Ok. I'm not sure why the original post was deleted, perhaps the powers that be who deleted it could enlighten me? I realize this a little bit frivolous and vain, but darnit I survived chemo, I'm entitled to a little frivolity and vanity. (Yes, I'm irritated that this post was deleted with no explanation, especially…
-
I got good news yesterday!
Met with the cardiologist yesterday regarding the atrial fibrillation I had been experiencing. He says it looks like my heart converted. Since this was my second espisode, he said I may be one of the people who go in and out on their own. He said my heart looks good. His exact words, "Your heart looks pretty good for a…
-
That look we get....
Hi Ladies. When someone learns you have OVCA, do you receive that "scared" look? I usually just reply with, "well, we're living longer with it today than a few years ago. I'm sure you've all seen that look. Carla
-
Here we go again. Low platelets delays Doxil treatment.....again
Platets were only 69 for scheduled doxil treatment. He said we'd check it every week and "wait it out" as we did last time. He had reduced the dosage by 20% last time. He said that this is not at all unusual with as much chemo as I've had over the past nearly two years. He said he would reduce the the dosage more next…
-
Olaparib 2 month results
Hello teal ssisters Just wanted to report 2 month results from clinical trial. My ca 125 has went from 247 to ...........39!!! My lymph nodes have shrunk 25% . I am so pleased!
-
Help
About three weeks ago my 59 year old mom was diagnosed with Stage 3C Ovarian Cancer. She had surgery a few days later when the GYN Oncologist removed a basketball sized tumor as well as 4 others. He believes he optimally debulked. (not completely familiar with all of the terms) She did amazing after surgery. She started…
-
Alexandra
I just wanted to tell you that your new profile picture is beautiful... Is that by our hair? I love the dark hair on you..... Looking kick **** my friend.
-
Topotecan
Hi everyone, I started two years ago with chemo for about 9 months, i was free of treatment for 6 months and cancer came back I satrted with Avastin Doxil and Platinol for 5 months, I as ok until 2 weeks ago and My oncologist just told me that the cancer again is back and bad, he usgested to start with Topotecan daily…
-
COMMERCIALS
I've noticed this past week, several commercials speaking to the signs and symptoms of OVCA. One was from the mother of a prominent eye doctor here in Michigan. Saw two more, but I didn't catch who they were. Just wondered if anyone else has noticed OVCA awareness ads in their area. I'm so happy to see this! (((HUGS)))…
-
HRT?
Have many of you had Hormone Replacement Therapy, either bio identical or synthetic, and do you suspect it had any impact on getting ovarian cancer?
-
Ovarian Cancer Urban Legends
If you disagree with any of the statements below, please don't kill me. I copied and pasted them from PubMed, that's all. These are not recommendations for survivors' diet or lifestyle. These are studies of ovarian cancer risk factors in general population.
-
More Commentary on the BRCA Mutation
This article contains some pretty scientific comments, but it again reflects the issues related to the BRCA mutation. My practitioner has taught me to understand the mechanisms behind cancer, including the content of this article.…
-
Does anyone know a specific donation charity for Ovarian Cancer?
Hello All, My little sister just passed away this Tuesday 6/4/13 , when making funeral arrangements I've been asked from several people is there a place they could donate to the memory in her name. I was really hoping to find something more specifically for ovarian cancer or Dysgerminoma the actual type of cancer she had.…
-
outlook is good
So I had a appt on Friday and everything looks good my numbers are good. He cleared me to go back to work have to have a ct scan then back to see him in a month. But everything is good and I am feeling good about everything
-
shortness of breath & fatigue
Am having shortness of breath and fatigue. Getting a break now from chemo but all tests done for sob are negative. Getting to be a problem especially with the fatigue. First I have had this; anyone else?
-
outlook is good
So I had a appt on Friday and everything looks good my numbers are good. He cleared me to go back to work have to have a ct scan then back to see him in a month. But everything is good and I am feeling good about everything
-
Mwee (Maria), how are you doing?
Maria, I was wondering how you are doing these days? Can we do anything for you? How's the family? Kelly
-
Our caregivers
In your opinion who got the short end of the stick, who is more anxious and depressed, who is going to suffer longer: you or your caregiver? Next time I feel sorry for myself, I will remember these Australian studies. Let's go and do something nice for our caregivers: parents, children, spouses, other family members,…
-
Votrient (pazopanib)
Glaxo drug shown to delay ovarian cancer relapse (Reuters) - A cancer drug sold by GlaxoSmithKline was shown in a clinical trial to extend by several months the length of time ovarian cancer patients lived without their disease worsening. The findings suggest that the oral drug, Votrient, could be used as a "maintenance"…
-
2nd chemo down and onc gave me good news!
I was a few hours into my 2nd infusion when my onc appeared. She was beaming and asked if I had seen my numbers. I said no, what is it? 25 she said. I said, 25! You mean down from 171. She said no the result before my first chemo was 191. I guess I didn't get that result. I asked jokingly, can we stop with this chemo? She…
-
Low White Cell Counts with Carbo/Taxol second line Therapy for Recurrence.....Anyone else had or hav
Hi am currently trying to get treatment for a recurrence of stage 3A Ovarian Cancer. I was supposed to have treatment once a week for three weeks then one week off however I have been unable to complete a full cycle because my White Cell counts keep dropping very low and Neupogen injections work and then a few days later…
-
rollcall-2013
Age:61 Diagnosed: April 2012 stage 3c. Ovarian or PPC, doctors are not sure where it started. Treatment: Debulking, followed by 6 rounds of carbo\taxol by I\V. Then 4 rounds of cisplatin by I\P along with 4 more rounds of taxol by I\V. I've been on Avastin as a maintance drug since Dec. 2012. Current status: CA-125 started…
-
Dose Dense Taxol
Have just been put on this plus Avastin regimen for a recurrence. Anyone else been there? What should I expect? Thanks!
-
How To Be A Overcomer
I am a survivor of ovarian cancer for seventeen years. I had stage four and a tumor was attached to my upper bowel. Anyone can be a survivor if you have the faith that Jesus is our healer. I had 37 years of day care and just retired. I am starting a support group for cancer and i cant wait to see how many people will be…
-
Olaparib
Olaparib in Patients With BRCA Mutated Platinum-Sensitive Relapsed Serous Ovarian Cancer: New Data Presented at ASCO A retrospective subgroup analysis of a Phase II study (Study 19) shows the effect that an investigational drug, olaparib, has on progression-free survival (PFS) compared with placebo in platinum-sensitive…
-
Stage 3C.....Celebrating 5 Years Cancer Free!!!!
When I was first diagnosed 5 years ago, I frantically searched for survivors... hoping to find some that battled this horrible disease and Won! I could not find many. Recently I realized that I haven't written on this site in a long time. I would like to share this good news with you so that it might encourage someone. I…
-
Recurrence for stage 1a clear cell
I was just diagnosed with Stage 1a Grade 3 clear cell carcinoma. The oncologist recommended 6 rounds of Chemo even though the cancer was confined to one ovary. Has anyone experienced recurrence with stage 1a? Did you have chemo? Thanks!!
-
Bald is beautiful, part II
Well ladies, my hairdresser is coming to my house tomorrow to give me a buzz cut. Thirteen days from my first chemo infusion, like clockwork my hair is falling out. Exact number of days as 2010. My scalp started hurting over the weekend so I knew what was coming. There is no hair on my pillow but today I pulled on my hair…
-
how long for hair to grow back
how long after your chemo does hair grow back i was doing bep for one week switch over to carbo and etopiside?
-
dysgerminoma?
I had a concerning ultra sound. I am due to have a total hysterectomy at the end of July for adenomyosis and pcos so my Ob/Gyn decided to do a ultrasound. My right ovary was normal but my left ovary was significantly bigger. No one wants to hear a ob/gyn say "What is that? I wonder what that is? I've never seen this…