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maintenance chemo?
Just when I thought it was over my oncologist is encouraging me to join a clinical trial for a maintenance dose of taxol for one year. There goes my hair again! I would get low dose IV taxol once a month, or a new and improved taxol with fewer side effects, or nothing as the control group. Has anyone heard of this or is on…
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Guanabana anyone heard anything about this
my daughters brother in law gave her 2 cans of this guanabana nectar juice. He said suppose to help rid of cancer cells. looked up on internet it did say used in treating breast cancer and others. I was just wondering if any of you heard this or know of this. Can also get in tea leave form dont know what store can get it…
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A little confused
Hello all, I am new to this forum and wanted to know reach out to those who have been dealing with this and know a little more. My mother is 60 years old diagnosed with Stage IIIC Ovarian Cancer. Prior to surgery her CA125 was 70.6, after surgeryon 6/14/13 she was down to 45.5 and then yesterday when they checked again…
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I Was Just Thinking.
As I sit here having my coffee I was thinking of all I had on my to do list for today.. One thing - hair appointments for the boys and I. Then I thought hair appointments. Something most people do every 6-8 weeks... Something I did not do for 7 months... Now my hair grows like a weed. I have to go every 6 weeks. I am…
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Chemo postponed
I had bloodwork yesterday and it showed my white and red counts are low. Went in to my pre-chemo appointment and found my blood pressure is also low. I am on a blood pressure medication to keep my heart rate in check. My blood pressure is always normal so I think the meds is bringing it down. The PA put in a call to my…
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Good news!
Good news, I am now in complete remission! I didn't realize there was partial remission but apparently there is. I don't know how long it will last but I plan to live each day to the fullest while I can (as soon as I figure out just how to do it......If you have it figured out please let me know. ) I still have a few more…
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Mom2greatkids (Carla) - How are you?
Hi Carla, Just wondering how you are doing? Are you still on the Doxil treatments? Kelly
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70!
I am proud of turning 70 today, and I know that you wonderful members of this board understand my feelings better than anyone. I was 67 when I started this journey, and there have been times along the way when I wasn't sure I would make it this far. So I am very grateful for this "Wow!" moment. What breaks my heart,…
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6 months post-chemo
Guys check out my curly grow-up. I crave compliments and it's OK to lie...
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Miss USA
Did anybody watch the MissUSA pageant on TV last night (Sunday)? I did not but was reading online this morning that Miss CT and she will be touring the world talking about the miss USA organization as well as spreading awareness for breast and ovarian cancer..
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Ovarian Cancer Patient Education Day in Toronto
Today I attended Ovarian Cancer seminar organized by Ovarian Cancer Canada and Sunnybrook Odette Cancer Center in Toronto. About 100 patients and caregivers came to this event. Agenda was quite intense and plenty of time was allowed for questions: - Ovarian Cancer and You - by gyno-oncologist with emphasis on hereditary…
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Worthwhile Quote.
Thought this quote was worthwhile sharing and applied to the discussion board. "Some of the most comforting words in the Universe are "ME TOO". That moment when you find out that your struggle is also someone else's struggle, that you're not alone, and that others have been down the same road." ~Unknown~
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Misinformed Headlines.
Today a headline in the paper stated that Christine H. had died after losing a long battle with ovarian cancer. When a pedestrian is run over by a truck we don't read -pedestrian killed after losing battle with a 10 ton truck! When cancer comes into our life it is like a home invasion, or an invasion by a force that…
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Bizarre... Dogs trained to sniff out ovarian cancer
http://www.philly.com/philly/health/cancer/At_Penn_dogs_will_sniff_out_ovarian_cancer.html http://www.oprah.com/relationships/Dogs-Who-Can-Sniff-Out-Cancer-Canine-Ovarian-Cancer-Detectors I wonder if they can train guys to do this.
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Unwanted hair
Ok. I'm not sure why the original post was deleted, perhaps the powers that be who deleted it could enlighten me? I realize this a little bit frivolous and vain, but darnit I survived chemo, I'm entitled to a little frivolity and vanity. (Yes, I'm irritated that this post was deleted with no explanation, especially…
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I got good news yesterday!
Met with the cardiologist yesterday regarding the atrial fibrillation I had been experiencing. He says it looks like my heart converted. Since this was my second espisode, he said I may be one of the people who go in and out on their own. He said my heart looks good. His exact words, "Your heart looks pretty good for a…
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That look we get....
Hi Ladies. When someone learns you have OVCA, do you receive that "scared" look? I usually just reply with, "well, we're living longer with it today than a few years ago. I'm sure you've all seen that look. Carla
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Here we go again. Low platelets delays Doxil treatment.....again
Platets were only 69 for scheduled doxil treatment. He said we'd check it every week and "wait it out" as we did last time. He had reduced the dosage by 20% last time. He said that this is not at all unusual with as much chemo as I've had over the past nearly two years. He said he would reduce the the dosage more next…
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Olaparib 2 month results
Hello teal ssisters Just wanted to report 2 month results from clinical trial. My ca 125 has went from 247 to ...........39!!! My lymph nodes have shrunk 25% . I am so pleased!
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Help
About three weeks ago my 59 year old mom was diagnosed with Stage 3C Ovarian Cancer. She had surgery a few days later when the GYN Oncologist removed a basketball sized tumor as well as 4 others. He believes he optimally debulked. (not completely familiar with all of the terms) She did amazing after surgery. She started…
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Alexandra
I just wanted to tell you that your new profile picture is beautiful... Is that by our hair? I love the dark hair on you..... Looking kick **** my friend.
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Topotecan
Hi everyone, I started two years ago with chemo for about 9 months, i was free of treatment for 6 months and cancer came back I satrted with Avastin Doxil and Platinol for 5 months, I as ok until 2 weeks ago and My oncologist just told me that the cancer again is back and bad, he usgested to start with Topotecan daily…
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COMMERCIALS
I've noticed this past week, several commercials speaking to the signs and symptoms of OVCA. One was from the mother of a prominent eye doctor here in Michigan. Saw two more, but I didn't catch who they were. Just wondered if anyone else has noticed OVCA awareness ads in their area. I'm so happy to see this! (((HUGS)))…
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HRT?
Have many of you had Hormone Replacement Therapy, either bio identical or synthetic, and do you suspect it had any impact on getting ovarian cancer?
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Ovarian Cancer Urban Legends
If you disagree with any of the statements below, please don't kill me. I copied and pasted them from PubMed, that's all. These are not recommendations for survivors' diet or lifestyle. These are studies of ovarian cancer risk factors in general population.
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More Commentary on the BRCA Mutation
This article contains some pretty scientific comments, but it again reflects the issues related to the BRCA mutation. My practitioner has taught me to understand the mechanisms behind cancer, including the content of this article.…
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Does anyone know a specific donation charity for Ovarian Cancer?
Hello All, My little sister just passed away this Tuesday 6/4/13 , when making funeral arrangements I've been asked from several people is there a place they could donate to the memory in her name. I was really hoping to find something more specifically for ovarian cancer or Dysgerminoma the actual type of cancer she had.…
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outlook is good
So I had a appt on Friday and everything looks good my numbers are good. He cleared me to go back to work have to have a ct scan then back to see him in a month. But everything is good and I am feeling good about everything
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shortness of breath & fatigue
Am having shortness of breath and fatigue. Getting a break now from chemo but all tests done for sob are negative. Getting to be a problem especially with the fatigue. First I have had this; anyone else?
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outlook is good
So I had a appt on Friday and everything looks good my numbers are good. He cleared me to go back to work have to have a ct scan then back to see him in a month. But everything is good and I am feeling good about everything