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18 weekly carbo/ taxol chemo treament - did anyone have to take neupogen vaccines to do the 18 wk re
New to CSN. Just got port put in yesteday. Taking pain medication due to the discomfort and pain from the install. No fever or anything. Just sore and having trouble turning my head. Want to see if anyone has experience or is going through the 18 weekly chemo regimen. Side effects. Can you work? I am a mother of 2 young…
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Checking In
Hi All.. Just wanted to check in and let you know I did not fall off the face of the earth. Things have been CRAZY. I got a new job, school started, sports are in high gear, etc. First the job...While sick, as you all kno, we spend AlOT of time in doctor's offices. I grew to like all the woman who worked in each of the…
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So many questions
Hello its been awhile since ive had so many questions and concerns. Im currently in treatment again i made it 11 months before having to start over. I started on carboplatanum for 1 treatment then i had severe reaction im currently taking Avastin, ive done 5 rounds of that and at the 4 round my numbers went from 28 to 86.…
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Olaparib update
Just checking in with 4 month results of being on olaparib. Ca 125 has went from 247 to 16! Never got that low with frontline chemo. I'm thrilled it is working. I will continue to stay on it as long as it is working. Thanks for reading and your support:).
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New member and searching for answers
I'm new to this site, found it while researching for answers to better understand the tests my dr is ordering and what he is telling me. Basically I am at the point of having a ca125 test done. He says it's just a precaution and that he thinks that the 'complex' cyst I have is probably benign. He said if my numbers come…
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Turning 60 today and happy to be getting older!
Hello ladies, celebrating life by turning 60 today. Never thought I would be so happy to get older but it has been a hell of a year! This has already been the most wonderful birthday ever. Thank you all for your support, guidance, wisdom and information along the way. It has helped me navigate through this maze of…
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I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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Happy Labor Day!
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Naturopath Update
For those of you who have seen my posts about my naturopath, the one who is a 22 year survivor of stage IV ovarian cancer, and the one who I credit with keeping me NED for 3 1/2 years, and counting, she will not be taking new patients after November, for an indefinite period of time. So, if you've been thinking…
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Clear Cell 3C- Just finished chemo
Trying to not think about it too much but enjoy life. Totally content with my life before I was diagnoseed in Feb. 2013. Just finished chemo last week and CT Scan in 2 weeks. It stinks that everything I hear or read is so negative and extra grim with clear cell. Holding on hope that I am not a statistic. I am in God's…
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2 years in Remission for ovarian cancer 3c
Hi ladies! Its been a really long time since I have been on here. There are only a few faces that I know. And so many new names. I just want to say hi and pass some hope and inspiration for those of you going thru chemo now or those of you Recently in remission. It has been two years on June 28th that was when I had my…
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Test analyzes chemotherapy effectiveness for ovarian cancer
Test analyzes chemotherapy effectiveness for ovarian cancer Pittsburgh Post-Gazette (PA) 08-26-13 Aug. 26--Despite the many chemotherapy drugs for ovarian cancer, none is fully effective, which means the cancer commonly recurs. That poses challenges for physicians, who must use knowledgeable guesswork to figure out a drug…
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STILL STABLE!!!
Hi Ladies. I had ct scans yesterday. Disease remains stable. I've had 8 rounds of Doxil. He said we will continue on this same treatment schedule and scan again after 3 or 4 more treatments. So thankful. Hope all of you have a great day and upcoming holiday weekend!! Carla
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God?
Love this post from another site so much I wanted to post it herHop hope istrengthens someone today!
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You know you're growing old when...
- Your friends compliment you on your new alligator shoes and you’re barefoot. - Your doctor doesn’t give you x-rays anymore but just holds you up to the light. - A sexy guy catches your eye and your pacemaker opens the garage door nearest you. - You remember when the Dead Sea was only sick. - Your husband says, “Let’s go…
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Bummer
My computer won't boot up. I am writing this from my phone, I'm on my third try. I went online on my kindle and found suggestions to check power zource. Had my son check but nothing. He says it"s time for a new one but it's less than five years old. I don't know what to do. The computer is my biggest form of entertainment.…
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New member and looking for new dr/2nd opinion
Hi, I am really afraid I have ovarian cancer. I have a cyst that is 2cm? But I am so bloated and have been for over 6 weeks! And my periods are so heavy and irregular. And I have pain after sex and I have to pee suddenly. my dr thinks I am crazy. I am searching for a new dr. she wouldn't even tell me what kind of cyst and…
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Not feeling so good - advice?
Hi, my name is Tia, I'm turning 20 in September. For about a month now, I've been bloating, can't poop, I am always exhausted, CONSTANTLY have indigestion...which has NEVER happened to me before until all of this, and I have some pain in my left ovary area from time to time. Some days it's worse than others. I think I can…
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Tumor blueprint done through Clarity Foundation
A good article from UT San-Diego on genetic profiling: something to consider when you are out of options http://www.utsandiego.com/news/2013/Aug/14/clearity-ovarian-cancer/?#article-copy
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September is Ovarian Cancer Awareness Month
Be ready to don your best teal wardrobe and accessories for North America’s Wear Teal Day on Friday, September 6. Go shopping!!!
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Clearity Foundation
Interesting article on the Clearity Foundation. I found it on a former ACOR member's blog, Ovarian Cancer and Us. link to article: http://tinyurl.com/ky6umn2 link to Ovarian Cancer and Us: http://ovariancancerandus.blogspot.com/ Barb P.
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August roll call
Lynda is here for August and feeling pretty good. How are all of you doing today?
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Today is my birthday
I am a year and a half NED and am turning 47 today! Thank God for prayers answered......I will never, ever complain about growing old again lol
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ca125 question
Have you felt different physically when you have a high ca125 vs a moderate or low score?
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Frustrated, but hopeful
Hi Ladies, I really need some advice/guidance/suggestions... I was diagnosed w/micropapillary serous carcinoma 3C in 9/11, finished chemo just this past February 2013 (I was part of a clinical trial of Avastin, that's the reason it went on for so long) My CA 125 did get down to 9 but started creeping up since past…
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Oncologist/gynecologist Nashville or south
I recently moved and am searching for new doctors. I have in the past gone to an Oncologist and a gynecologist. If I find a gynecology oncologist does this doctor do all of my checkups? Or do I need a separate gynecologist? Also does anyone have a recommendation for a doctor in the Nashville area or south to Pulaski.…
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A better result for me!
I am thrilled to be able to tell you that finally, after 7 consecutive rises in my CA125, I have had a drop!! Just a small one of 28 points but at least it is now heading in the right direction! This week I had my 6th cycle of Topotecan over three days and my 4th infusion of Avastin. I believe the addition of Avastin has…
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Question
Hi everyone. Hope all is well. I was just curious of how quickly symptoms escalated. The past 3 days I've been feeling worse and worse. Cramps, bloating, backache. I am about to get my period as well, does that make it worse? I typically never have SMS symptoms. I just feel so weak and exhausted that even the act of eating…
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Hi Loves
Just a quick note to say "hi" and let you know that I'm on a month break from chemo.... 3 1/2 years straight, I thought I deserved a break! I'm having a ball. We're taking our two older granddaughters to Maryland this weekend to see their younger cousin, planning a memorial golf tournament in honor of my brother, who…
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This is FANTASTIC
Hi ladies, I posted this on the Uterine board but thought you all would enjoy as well if you didn't stroll over to that page. I love this and hope you all enjoy this too. News Release: A Call to Action on Behalf of Women with Below the Belt Cancer We know women’s lives are saved when we look at cancer through a pink lens.…