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One down, five to go.
First I was pleasantly surprised to find out I am having 6 infusions. Since my onc had said it was six months, I counted 8 or 9 at three-week intervals. Of course the six have to do the trick. It went pretty well. The first IV placed under my left index finger began to hurt after a couple of hours so she started another on…
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Doxil and sleep
Hi Ladies, Does Doxil make anyone else really sleepy? I took round 3 on Wednesday. All I want to do is sleep. Drives me crazy to have so little energy. Thanks, Carla
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Anyone get a ventral hernia after debulking/TAH?
I had my debulking surgery and total abdominal hysterectomy in December 2011. Since then, the tiny hernia near my belly button has gotten bigger and bigger. It is now the size of a small football...no pain, but it is continuaing to grow. My oncologist said that because of the OVCA it would be unwise to use mesh to repair…
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Smart Patients
There is a new web-site for cancer patients and caregivers called www.smartpatients.com. It is migrating users from ACOR.org - Association of Online Cancer Resources and so far is mostly populated with kidney cancer patients and parents of children with pediatric cancers. However site owners have larger plans for ACOR Jr…
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HUGS TO YOU ALL!
Hello, Ladies: Haven't been here in quite a while. Life has been throwing us a few curve balls, and there have been many challenges since just before the new year began. But I wanted you all to know I think of you often and pray for you always. I see many new 'faces' here, and it saddens me that so many women continue to…
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Happy Mother's Day
Hello Dear Ladies Wishing all the mothers, grandmothers and greatgrandmothers a very Happy Mother's Day. May your day be filled with peace and happiness and love.... Great big hugs to all Lisha
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15 yr old develops 3 Cent Detection of Pancreatic, Ovarian and Lung Cancer
Jack Andraka is a fifteen year old freshman in Maryland high school. He developed a paper sensor that could detect pancreatic, ovarian and lung cancer in five minutes for as little as 3 cents. He conducted his research at John Hopkins University. This research could change the face of cancer and promote early detection. He…
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Happy Mother's Day to All
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Cost for Chemo Therapy
Hello All I am still recovering from the shock that my sister has been diagnosed with stage 1C ovarian cancer a week back. She noticed abdominal bloating and post CT scan was operated for the same. The onco surgeon found a 7 kg tumour on her left overy. There was a small rupture and the fluid inside it was flowing out so…
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Its been a while.....
I just wanted to stop by, check on everyone. I often think of this board, of the love and hope all of you gave me while my mother was fighting. Your kindness when she suddenly passed in September 2011 was wonderful. Its amazing how things have settled, how the pain while always with me, has become something Im learning to…
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We Moved.
We are moved and setteling in... After a very emotional night last Friday we are here safe and sound. A bunch of our friends and neighbors came to help us pack the truck.n All was fine and dandy untill we had to start saying our good byes. The boys grew up with my best friend's girls. When they moved into our neighborhood…
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Today is World Ovarian Cancer Day
Get out and spread the word...little symptoms ,awareness ,just talk about to your friends and family......and wear you teal. Stay strong.....Val
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Hello, Dear Ones
Hi All, It's been quite a while since I've posted and I thought I'd check in. For those who I haven't met, I was diagnosed 3C in May 2006, had a terrific 3 year remission and have been chemoing again for the last 3 years. I know that sounds very scary, especially to those who are now in chemo treatment and counting them…
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Port a Cath
Hello Everyone, Am new here and I'll be brief. I woke up from surgery and already had a Port a Cath inserted into my lower abdomen. Not happy that I did not have a choice in that. Dr. keeps saying it's "nothing" and minimizing the idea of an alien form in my body. He is resistent to removing it. I have questions about…
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Back to chemo...
Just got "the" call from my onc. I will be scheduled for chemo starting next week. I don't know the particulars yet. It will be taxol/carbo. I knew it was coming so I am ok. Well, maybe not ok but dealing. I told my mom I feel like I already served my penance; why do I have to do it again? But I know I am in such good…
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New to This
Quick history: The last few years I have had extreme cramping (keeps me up at night until I over medicated) and heavy bleeding accompianed by fatigue and a period that lasts 5 to 7 days. It stops for a day or two and then returns for another day. At the begining of this month I became ill. I had blood in my stool, I…
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chicago area NOCC walk
We did our walk today!! It was a run/walk. Half of my team ran and the other half walked. We were at cellular field in Chicago. It was great. My team was able to get 27 members and $1,670. 00. We are proud and glad to have been a part of making awareness for ovarian cancer. I hope our money contributes to research to get…
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For BRCA1/2+ ovarian cancer survivors
This article was published on April 1, 2013 in Cancer magazine volume 119 issue 7 pages 1344-1348. To read full text go to Wiley Online library. It's food for thought for those of us with hereditary ovarian cancer considering prophylactic mastectomy to reduce risk of breast cancer. Risk of metachronous breast cancer after…
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World Ovarian Cancer Day
26 ovarian cancer organizations from 17 countries around the world will unite to educate their communities about ovarian cancer and its symptoms.
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Lymphedema after hysterectomy - compression garment question
Hi all, Shortly after my complete hysterectomy for the ovarian cancer, I developed lymphedema. I curently have it under control with compression stockings, manual lymphatic drainage and walking for exercise albeit minor given I'm still on chemo. The edema extends from my hips to just above knees and I need 20-30…
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Doxil delay due to low platelet counts: they're up and down
HI Ladies. My monthly doxil treatment was delayed yesterday for the 3rd consecutive week. I have had 5 treatments, on schedule. Last week they were up to 88. Dr. felt confident they would be in the 90's by this week. Nope! Down to 73. He is certain that it is because I have had so much chemo. 6 rounds of…
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last chemo
So today was my last chemo treatment. Have to do the next 6 days of neupogen injection. Then follow up with my dr at the end of the month for bloodwork, ct scan to see where i stand. Hopefully i will be NED. Keeping my fingers crossed.
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IP, Round 4, Hit the fan!
Thought I was getting through rounds 1-3 way too easy. Just fatigue for a day or two and slightly fuzzy brain. Finished round four last week and am still fatigued, fuzzy, and now have the dreaded neuropathy in my feet. The fatigue comes and goes. Is this normal for IP treatments? Usually it was just a day or two after the…
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Can anyone help a ovarian cancer patient in third world country?
Hello everyone. My mom has been diagnosed with third stage ovarian cancer last week. We are from a third world country of Nepal and are below poverty line. We do not have money for treatment and diagnosis so my mom is saying to let it go she is really depressed and has lost hope. I was wondering if there were any charities…
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Doc visit update
Hello ladies, Had a very nice and long , hour and a half visit with my doc. We went over a multitude of things. Most of my lab values were really good. Still have low white count but not drastic. he was concerned about me being dehydrated and that it is now showing up in my labs. I promised to try and drink more water and…
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Top Ten Ways To Know You Are A Cancer Survivor
10. Your alarm clock goes off at 6 a.m. and you're glad to hear it. 9. Your mother-in-law invites you to lunch and you just say NO. 8. You're back in the family rotation to take out the garbage. 7. When you no longer have an urge to choke the person who says, "all you need to beat cancer is the right attitude." 6. When…
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The beat goes on...
Saw my onc today for regular appt which I almost cancelled since I had spoken to her after last CA 125. I didn't cancel because I began having rashy areas on my arms and chest and itching almost everywhere else even with no sign of rash. I also had been experiencing pain on the right side of my stomach in the waist area.…
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Chemo #15 was thurdat
Ca-125 up a little but still normal ..I have one more to go...yippie!! Been having thrush after Chemo and rinsing with swish and swallow four times daily. Trying to stay focused and never give up hope. Today usi going to be a nice warm day...I may sit on my patio for awhile with my IV fluids and enjoy the day. Hope it is…
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Hi Forme (Lisha)
How are you doing these days? Kelly
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Best Ever Marigold Hotel
Sonny Kapoor: Everything will be all right in the end and if it's not all right, then it's not yet the end. Best Ever Marigold Hotel This is my favorite quote lately! I just wanted to let everyone know that after OVCA Stage IIIC (2010) was bumped up to OVCA Stage IV by brain mets(2011). I'm still here! I'm still NED, as…