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doxil is scareing me
everything I am reading on here is just scary about the doxil and sounds very painful and it seems like everyone I read about it didn't work. is that true ? any good stories about it? Laura
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Clinical trial/Phase 1 and problems
Hi- I'm participating in a Phase 1 clinical trial at University of Chicago. My cancer returned May/09. The combination of the two drugs has left me with horrible neuropathy and spasms and restless leg syyndrome. I am walking approx. 3-4 hours at night because my legs will not stop moving. I had this after my first surgery…
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Itchy, Itchy skin-any sugestions
I am 3 months out of IV and Peritoneal chemo and have some neuropathy in my feet. The past couple of days I have had alot of itching on my legs. Especially my left leg and hip. There is no rash or bumps or redness. I have tried a few lotions, and Aveeno moisturing body wash. It is a very deep itch and nothing seems to…
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New with ?
I had a full hysterectomy on May 7th and since the surgery there has been a spot at the top of the incision sight that looks aherniated. It poaks out quite a bit when I stand and gets real hard. The Dr's don't seem worried about it they say they will keep an eye on it even though since then I go up to 4 days with no bowl…
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Colace, Biotene, Extra Strength Tylenol, what am I missing for my Mom's Chemo care package?
She starts her chemo Thursday and is very apprehensive. I filled her car with gas today and brought her the colace, tylenol, and mouthwash. What else will she need in the house? Are there any hints I can pass on? I want her to have everything here so she can just get it. We pick up her prescription meds tomorrow and meet…
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$6,600,000 federal grant for Ovarian Cancer Research
I thought of you all today. Many of you know that I am a grantwriter by trade. In my work I check the Federal Register every day to see what new grant opportunities are available from the federal government. You'll be happy to know that $6,600,000 was announced for ovarian cancer researchers this week from a surprising…
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Beware of a Miss Yak- using cancer site
I received a home email from a Rose Yak who said she found me on the Cancer.org discussion site. I replied a short message - something did not seem right- and then checked online for a membership. There is none. I received a message from her today (she's in Sudan with bad Spelling!) I have blocked it - but wanted to tell…
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After surgery...
I had my surgery wednesday and today is the first day I've been able to sit at my computer. The surgery was twice as long as predicted and the incision much bigger! The cyst had grown since the last ct scan and was about the size of an orange. But the amazing news is that the pathology came back today and it was benign! It…
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Update on Mom
Hi :) I know I haven't been posting much on here, but I do still look around the boards. I just wanted to update everyone on my mom's status. She will be receiving her 6th and final chemo on September 1st. After that, she will be having another CT scan on September 21st that determines if she needs to have surgery again.…
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Finishing Chemo on Thursday!
Hi : I am new to this board. I am so glad that I found it because I have so many questions. In October I had a total hysterectomy because I had a tumor on my left ovary. I was diagnosed then with Stage 1 ovarian cancer. On Thursday I will have my sixth and final Chemotherapy treatment. I am very anxious about it. I am so…
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Raging Doxil Rash
I've had my 3rd treatment of Doxil. I had 8 treatments of Carbo/Taxol.Has anyone had a bad reaction to Doxil. I am sunburned, blistered and sore all under my armpits, on my breast and under my breast. Also on my elbows.I don't dare put a bra on.I take short luke warm showers.I also use ice when I'm getting treatment.I've…
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Low platelet count, so chemo postponed for 2nd time. Anyone else have this?
I don't have ovarian cancer, but none of my UPSC Sisters have experienced the same challenge I've been having with my chemo. I know that some of you have experienced delays in scheduled chemo and could advise me. I am supposed to be getting 6 rounds of paciltaxol/carboplatin every 3 weeks, and have 4 rounds in me to date.…
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Cisplatin/Gemzar
I just returned to Japan from surgery in the US (second debulk) and will be going on cisplatin/gemzar at the end of the week. I have heard so many negative reports about the combo. Just wondering if anyone did not have harsh side effects? I am bracing myself and at the same time trying to relax. How do you do both? I have…
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Hormonal imbalances?
Hi, Brief reminder....I had a full hysterectomy & debulking on the 17th, thankfully I am classified as 'Borderline'. Now that I have had some time to consider all that happened in a matter of days, I am curious if anyone knows whether or not your hormones make you nutty when your body is going through all that it does…
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Avastin/Cytoxan
Hi...I'm new here. My wife is a 5 year Stage 4 Survivor. 2 major operations, 3 Liver RF ablations, 3 rounds of different chemotherapy regimes, 1 round of radiation and now with her 125 number back at 95 she is just started Avastin and oral Cytoxan. I guess I'm starting to get scared. My wife told me she had a dream that…
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Getting agitated, another cancer? (sorry, venting)
*sigh* I'm muddling through the darn chemo, and now dealing with Neulasta injections to save myself another week long hospital stay with Neutropenia. And to add to it all, I have to sit and talk with another oncologist (this time a urologist) tomorrow. Before I even had the darn ovarian cancer, I had a pretty large cyst on…
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Mirilax
I know a lot of you said you use mirilax I could only find it in a powder form to put in a drink. My question is for those that have used it is what drink do you suggest and does it have a bad taste? I have had problems with senocot and the others I have used.
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My Mom´s time has come
I`m so so sad, frustrated, don´t have words to express the pain I feel right now. My Mom has been in the hospital the past 14 days with an intestinal blockage due to the cancer implants. She has a tube from her nose to her stomach to drain the fluid accumulated, Her abdomen is bloated like if she were 5 months pregnant.…
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Tomorrow
Monday is the day that my mom goes into the Seattle Cancer Care Alliance to get her CT scan done. She has completed 6 cycles of chemotheraphy and this scan will determine if she needs more surgery done. Her abdomen has gone down A LOT compared to what it was back in April of this year. It has been a long, hard road.. these…
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My News
Hello Ladies...I have my latest report to share with you all..... My labwork is back and my CA125 level is at 15. I have also been switched from Evista to Tamoxphen, because of the terrible leg cramps I had. I am pretty excited about this! We will be doing a CT scan to check on my hernia in a month or so. And also, my…
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Waiting for the comparison Pelvic Ultrasound results ....
My begging and persistance paid off yesterday when I called to see if they had set a date for my second pelvic ultrasound so they could check to see if the cyst and node had grown or not - please let it be 'not'. Anywho I was told it wouldn't be til mid Oct. WHAT????????????????? that I could have the pelvic ultrasound but…
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High CA125
This week's CA125 was 166 after the false report of less than one. I have appointments with doctors and new tests in July and we'll wait and see what the tests show then. Could still be the imflammed bowel that is causing the higher numbers. Hopefully, with the new probiotics and no wheat or dairy products that will calm…
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i dont even know which cancer my mom has...im really scared and i feel alone
I am an only child. I'm twenty two now so you would think i'm strong enough to handle such things but i feel like as time gets by i get more and more scared of what might happen to my mom. when she first got a call from the doctor, the said it was just a lump and that it was close to cancer but it wasnt and it's good that…
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Has anyone tried alternative treatments here in U.S. or Mexico?
Please let me know whether the treatment made a difference and include the name and address (if possible) of the treatment place. Thanks
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leydig cell tumor
I had surgery a week ago today to remove a leydig cell tumor that was growing inside one of my ovaries, had both ovaries removed. The oncologist said that there is no treatment for this kind of tumor is necessary. I am a three year colon cancer survivor. I go back in two week for a follow up visit with my gyn/oncologist at…
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CA125 anxiety
Good morning Teal Warriors. Tomorrow I go for my three month check up with my oncologist and find out my CA125#. Today I can hardly breathe, I am so anxious and teary. I know you will tell me this is normal but I want to know if the fear ever lessens? I am taking an anti-anxiety medication but I don't think it's working.…
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Found out today and need to know what happens next please...
I am 48, pre-monopausal and have been having bleeding and ovarian problems for a few months. My GYN said my ultrasounds are of concern so did a uterine scope and biopsy and it was ok although lining very thickened. Toda I saw the oncologist and my CA-125 has doubled in 2 weeks and now is right at 90. I have a blood…
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They are gone
My ovaries and fallopian tubes are gone. No cancer. great news. Mom's surgery is the 15th. Her doctor seemed very happy at her response to chemo. Yeah. The Twins win! Overall it's a good day. Never thought this is what would constitute a good day. Best wishes to you all. I think of you everyday.
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Question on Neuropathy
I don't think this subject has really been discussed, but I am wondering if anyone else suffers from nueropathy of the colon. I was diagnosed with this back in 06, or I think that is when I had another colonoscopy and he said that and recommended a colostomy. My oncologist said "if you decide to that lets get a second…
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More good news
My oncologist called yesterday with the CA-125 from Thurs' blood test. It is down to 71 after two chemo's. Started in Aug. at 434, Sept. at 288 and now 71. He was really excited and now I am too. Maybe I can get another chemo vacation to celebrate my Golden Anniversary in January with a cruise!!! Saundra