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Disability Payment Info for Ovarian Cancer Stage IV patients that may B helpful 4 N E One to know wh
“Hello again SUNshine” "Sandaravalli" - Referencing your letter for info on how to go about applying for Disability payments~~Not having any experience in applying for Disability payments, I can’t speak personally. But I think the references I've provided below my name will be a helpful start. And since this is a…
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social security disability
I am diagnosed with OVarian cancer stage 4. MD states that incurable but tretable.. I am planning to apply for social security disability...Please I need guidance and information pls. I am 53 years old....
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Lymph Nodes, How Many Taken
Hi Everyone, If you have a few minutes for this and you are able, would you give me the following data on your cancer? I am most interested in learning about your own experience with regards to cancer type/stage and number of lymph nodes dissected. I am sending these questions to a few of the discussion boards concerning…
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Ovarian cancer stage 4 - Need suggestions to keep WBC up
Hi, Newly diagnosed ovarian cancer stage 4... Undergoing chemotherapy with dose dense carbo and taxol. First cycle went well. Second cycle after day 1 carbo-taxol I devloped low counts.. It took two weeks for counts to come up. Now on 3rd cycle, after day 1 counts went down again and unble continue chemo.. waiting for the…
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Did U know U might qualify 4 help with travel 2 a medical facility ?
Had some good info about help with travel if you live in the Northeastern region of our beautiful country. But for some reason, I sent a letter to Jodi, and it went with no problem. Now I want to give you some info about free air travel if you qualify, and it simply will not post. Sometimes all the treatment we need isn't…
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Stage 4 Ovarian cancer - Scared for my mom
My mother was diagnosed with stage 3 ovarian cancer at 52 years old about a year and a half ago. After surgery (hysterectomy) and chemo (taxol) she improved by almost 95% Until a couple of months ago... her oncologyst put her on Cytoxin and she complained of pains and breathing problems but nothing was done. Her leg…
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A Little Gallows Humor
In the spirit of our departed friend, Alexandra....oh, how I miss her humor and wisdom!...a little competition. Can anyone top a CA125 of 18,300 ?
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Unexpected call from chaplain at MDA
My sister got an unexpected phone call/voicemail from a chaplain at MDA last night which was followed up by an email asking her to call back and participate in a spiritual intake. She has late stage cancer but has weathered through this battle and is going through a new chemo regime. Her first thought was OMG, I'm dying.…
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Microsoft now branching out into cancer research - sounds great!
Hello friends: Now we “won’t hold our breath, but only God knows where any of us will be 10 years from now, but it’s okay to DREAM. I found this article intriguing. I copied it off the web so you’ll have to tolerate some “side bars” which you can just ignore, but this is the kind of “stuff” science is made of. The whole…
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Just a personal "CHAT with PAT"~hope heart checkup will turn out OK!
Good afternoon Pat: I’m glad “KIKZ” was able to give you a more direct and helpful answer to your heart problem. So it seems that it might only be an “on and off” thing relative to your cancer diagnosis. I see she’s been here since 2010. That’s encouraging, although we know that there are lots of “rough patches” along the…
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No news, good news, right?
I'm 15-16 weeks post-front line. My oncologist ordered a pet scan, because my CA-125 was 91 at my first post-cancer appointment (it was going down from treatment). Anyway, I had my pet scan on Friday. I was told that the radiologist would read the scan on Friday, and my doctor would have the report Monday. I called today,…
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Do U need to B treated in Northeastern region of our country and need help with transportation
This may be something that some of our sisters may be in need of and didn’t know about. If you live in the Northeastern part of the region there is a charitable organization called “Patient AirLift Services that provides free air transportation for needy individuals. The treatment we need isn’t always “close to home.” The…
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Travel info -flights in Northeastern region if U qualify
This may be something that some of our sisters may be in need of and didn’t know about. If you live in the Northeastern part of the region there is a charitable organization called “Patient AirLift Services that provides free air transportation for needy individuals. The treatment we need isn’t always “close to home.” The…
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Travel info that may be helpful for some of you!
Hello friends - This may be something that some of our sisters may be in need of and didn’t know about. If you live in the Northeastern part of the region there is a charitable organization called “Patient AirLift Services that provides free air transportation for needy individuals. The treatment we need isn’t always…
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Patient AirLift Services is a charitable organization providing travel assistance if U qualify
Hello Friends, This may be something that some of our sisters may be in need of and didn’t know about. If you live in the Northeastern part of the region there is a charitable organization called “Patient AirLift Services that provides free air transportation for needy individuals. The treatment we need isn’t always…
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Best treatment centers for clear cell
My mother was just recently diagnosed with ovarian clear cell stage 2b. Looking at getting a second opinion since her dr has never seen this particular type of ovarian cancer. What are the best centers for treatment? She's located in sc but willing to travel.
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Hello have not checked in here for a long time
I have not been here for a long time how is everyone doing here?? I am still doing great and feel good most of the time Hugs Azgrandma
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Ovarian Cancer and my Wife's Brain Mets
New here.... My wife, who is 59, was diagnosed September of 2014 with Stage IIIc ovarian cancer (BRCA 2 positive). Treated with the standard frontline chemo and was NED after the debulking surgery from 1/2015 through 7/2016. She started having balance issues and trouble writing July 2016. Her oncologists thought maybe a…
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Endometrioid Cancer - question about chemo treatment for Grade 1-2
Hi, I'm so glad to have this forum here. Last week I had surgery for an ovarian mass. The final pathology report says that I have grade 1-2 endometrioid cancer of the ovaries. The entire mass was removed without spillage, and a lymph node dissection was negative for metastases. Grade 1 lesions are not treated with chemo,…
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Borderline OC: Fertility, Cryo freeze
My story starts out similar to the other Borderline OC survivors whom share their stories here... I'm 33. I went in to the GYN in April for pain, hormonal fluctuations and infertility. They found a large cyst 14cm And 4 smaller cysts on one ovary.They told me I had endometriosis.( I was told specifically not to worry…
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UPDATE - Did you know that SEPTEMBER is National Ovarian Cancer Awareness Month - TEAL is our color!
Dear Friends, I've tried to post to this site all day. It will not accept my posts. I had listed several web links that are so helpful for research on Ovarian Cancer. So guess it will get cleared up sometime. I've complained to Security, but haven't heard back. This is aggravating. I'm "not out here FOR my health!" I'm…
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SEPTEMBER is National Ovarian Cancer Awareness Month - TEAL is our color!
Good afternoon OC friends, Hope you have some beautiful “TEAL” pieces of clothing in your closet. Did you know that September is NATIONAL OVARIAN CANCER AWARENESS MONTH? Wish there would be a few football teams wearing “TEAL” once in a while. There are other colors in our crayon box besides “pink”. Today, I have a…
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ASCO and SGO Issue New guidelines for treament of Stage IIIC and IV Epithelial Ovarian Cancers
Hello everyone For all of us that have been diagnosed with some stage of Ovarian Cancer, we naturally hope and pray that some new “breakthrough” will come along that will help us. But for the time being, although immunotherapy treatments have been shown to be successful for some other types of cancer, there has yet to be…
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Recent Pet scan what does it mean?
Hi. I was diagnosed with a mixed germ cell cancer. I finished my chemo in March and currently had a 2nd follow up Petscan. I went to the hospital to get a copy of the results. My dr. is currently on vacation so I can't discuss results for over a week from today. I have my own idea of what the results mean but want to be…
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Hernia and CA125 level
I have a hernia on the side of my stoma. Apparently it's not unusual, but it is quite big. The hernia happened in June and so did my rise of CA level to 27 July 38 August 43 Is it likely the two are connected or am I looking at a recurrence? I finished chemo in March for stage 1C, first recurrence. LA
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Time for wig soon.Any advise please
will be starting Chemo Tuesday.I got a wig from Acs. And it don't fit or look good.nice wig just not on me.cant exchange it.where is a good place to buy a wig?would like to try it on.Thank you.God bless.
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Caregiver Support
Any input? This is my first visit on this site. Tks.
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Newly Diagnosed
Hi all, I just learned that I have stage 3 oc, low-grade, serous carcinoma. Was told the grade was 3c after surgery, but new oncologist says it's 1c. I've had a full hysterectomy with ovaries removed (had cervical cancer, too, but it's gone now), and they unexpectedly found oc when they went in. They scraped my intestines…
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Lost My Fiancée on June 2 to ovarian, stage 4.
Hi, My name is Chris. Just lost my Love on June 2nd. Hoping to find some people who understand what I'm going through... Thanks...
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granulosa cell tumor
A friend has this type of tumor which is aggressive. Looking for others with the same and type of treatments you have had or will have....