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too long until we can see a specialist - ovarian CA?
My wife and I are in limbo right now, so I thought I would turn to people instead of Dr. Google. My wife tried invitro in 2006 and ended up losing her left ovary due to a "nick" during retrieval that caused a hemorraghic cyst that cut off the blood supply. She hasn't had normal menstral cycles since. Over the past 6 months…
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Mother just diagnosed stage 4
My Mom just got diagnosed with stage four ovarian cancer . Looking online, I don't see many great statistics for stage 4. She is only 53. I am 27. I guess I am just looking to hear from stage 4 survivors. Looking for some hope.
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need help understanding MRI report
MY HISTORY I'm still waiting for diagnosis and see the gyn-oncologist on the 22nd but have elevated CA125 and a TVUS found a 2cm solid, vascular nodule on my right ovary. I have most of the symptoms of OC daily and am BRCA+. I'm 39 and premenopausal. As the US tech had suggested an MRI in the report, my family dr requested…
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DIM INSTEAD OF EXEMESTANE?
Hi, Everyone: Hoping you can tell me if anyone is taking DIM instead of Aromasin? Getting tired of the myriad of side affects. Currently in year 2, 3 more to go, according to my oncologist. Considering taking DIM instead. I eat broccoli, do other things to limit any estrogen, as my BC was 100% estrogen receptive and only…
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Update and question-- is it too soon?
Well, I got my BRCA study back and I am BRCA negative. I know that there is a small difference in outcomes between positive and negative results... I did my first round of Doxil two weeks ago. I have minimal side effects :) ... Anyway here's my question. I had a pleural effusion. It came back after my hysterectomy and…
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what questions should I ask gyno-oncologist at 1st appointment?
So my first appointment with the gyno-oncologist has been scheduled following a suspicious mass found via TVUS on my right ovary and elevated CA125 blood test. I am also BRCA+. Both the CA125 and the TVUS will be repeated just before the appointment so we should know if things are changing at that time. I am trying to…
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Ovarian Cancer~Questions I need 2 ask re my cancer diagnosis~Helpful "Homework" links~Put your Dr. o
In particular, Madeline236 wants to know what questions she should ask prior to being seen by a gynecological oncologist. http://csn.cancer.org/node/306176 Since I have spoken to her on a separate posting, I think it would be beneficial if every one of us knew what questions to ask when we are seeing a doctor and we…
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Concerned..cancer?
Hello all, I want to thank you in advance for taking the time to read this. This is my first time posting in such a forum so please bare with me. I am a 29 yo female with a history of severe endometriosis, adenomyosis, and ovarian cysts. I have had 2 laprascopic surgeries to remove endometriosis lesions (2011 and 2014.)…
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Cancer stem cell theory
Seems like no one talks about cancer stem cells on this board (not that I have seen)--maybe because the concept is only a theory or maybe because no one is offered the cancer stem cell treatment. Anyway, if you do some research on ovarian cancer and cancer stem cells (just Google it), it looks like there are two pathways…
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Getting us all on the same page....
It's hard to keep everyone's info straight sometimes, so I thought it might be helpful to start a thread where we all share our "numbers". When were you diagnosed? (Sept, 2009) What stage? (IIIc) Are you the patient, or a caregiver: (patient) OVCA, clear cell, or PPC? (OVCA) What was your highest CA125? (4000) What was…
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Taxol and Carboplatin Side Effects
Hello my name is Debra, I had Fallopian Tude cancer a hysterectomy in December and started chemo in January 2016. A month into Chemo I developed the pain in my groin and upper thigh. Pain pills do not work. As time when on, when I walk I feel unteady on my feet and the pain is not any better. Has anyone experienced muscle…
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Information Sharing
Hi, if anyone has new information about new treatments I would like for you to share. I watched a show a few weeks ago about an IBM computer called Watson being used at some hospitals to help oncologist pick the best treatment for cancer patients. The show said Watson was correct more times than the oncologist because it…
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First Doxil Dose Yesterday
My first Doxil dose was yesterday. There was one minor hiccup. I had a "reaction" to the steroids. I think it might have been the sensation from the power port they installed on Wednesday. I got flushed, my blood pressure was high, and I felt like my heart was rushing. I did end up finishing the dose, though they added…
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Are there any alternatives to caboplatin and Paclitaxel
My mother underwent her cyto reduction surgery and the Hystopath reports says poor response to Chemo. How much of a significance Hystopath report has vis-a-vis clinical symptoms. She underwent 3 rounds of Chemo before surgery with a combination of Caboplatin and Paclitaxel. Doctor is thinking of altering/changing the Chemo…
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Scared - Bad luck
So I had low grade stage 1A endometrial cancer and everything was removed except for one ovary. I was 40 and opted to leave one behind. In the last 4-6 months, I've felt bloated at first but I thought I was just gaining weight. Then the bowel issues started to happen enough for me to want to get myself checked out. I just…
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chemo brain
check this out. I haven't tried it but neurologists can prescribe for the chemo brain http://abcnews.go.com/Health/Healthday/story?id=4507456
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Chemo drugs
The chemo I am taking is Carbopltin and Paclitaxel.for Ovarien Cancer.Any imput about these drugs please?
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Half way through Chemo now another Issue
I was so happy today.Done my Chemo treatment.I am now 9 down out of 18.Half way their.The nurse went and got Dr. Because my heart was acting up.It did this during second treatment.But had not since until today.I had a port put in 3 weeks ago.I know it goes into main artery of heart,I wonder if that could make heart act up…
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So confused.Help
I am half way through Chemo now.I have gained a lot of weight.this week I cut back on sweets and snacks.I lost 4 pounds.I was so happy.But my nurse said that's not good.they don't want me to loss.i am my heaviest right now.Does anyone know why they don't want you to loss any even though your over weight?I am thinking…
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Lonliness
I'm dealing with loneliness right now. Precancer I dated, had boyfriends and a life! Now I sit in my apartment with my bald head and just feel ugly and lonely. I would live to date again but how does one date after cancer? I wouldn't even mind a pen pal. Just someone to talk to. Yes, I have friends, family and my daughter…
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I was told I am incureable, I may not do chemo or surgery
Yesterday I met with the new hematology oncologist as well as my original gyno oncologist. After explaining that they are not 100% certain of the cancer origin, but most likely it is the appendix, which is extremely rare, due to how much it has spread throughout my abdomen, that I am a stage 4. They described the plan to…
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Starting Doxil for first recurrent/refactory disease...
I get my port installed on Wednesday and my first chemo is Friday :) . Oddly I'm excited to get started. Since my cancer live through carbo/taxol, my doctor is being cautiously optmistic, we should know by December/January if the chemo is working.
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Disability Payment Info for Ovarian Cancer Stage IV patients that may B helpful 4 N E One to know wh
“Hello again SUNshine” "Sandaravalli" - Referencing your letter for info on how to go about applying for Disability payments~~Not having any experience in applying for Disability payments, I can’t speak personally. But I think the references I've provided below my name will be a helpful start. And since this is a…
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social security disability
I am diagnosed with OVarian cancer stage 4. MD states that incurable but tretable.. I am planning to apply for social security disability...Please I need guidance and information pls. I am 53 years old....
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Lymph Nodes, How Many Taken
Hi Everyone, If you have a few minutes for this and you are able, would you give me the following data on your cancer? I am most interested in learning about your own experience with regards to cancer type/stage and number of lymph nodes dissected. I am sending these questions to a few of the discussion boards concerning…
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Ovarian cancer stage 4 - Need suggestions to keep WBC up
Hi, Newly diagnosed ovarian cancer stage 4... Undergoing chemotherapy with dose dense carbo and taxol. First cycle went well. Second cycle after day 1 carbo-taxol I devloped low counts.. It took two weeks for counts to come up. Now on 3rd cycle, after day 1 counts went down again and unble continue chemo.. waiting for the…
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Did U know U might qualify 4 help with travel 2 a medical facility ?
Had some good info about help with travel if you live in the Northeastern region of our beautiful country. But for some reason, I sent a letter to Jodi, and it went with no problem. Now I want to give you some info about free air travel if you qualify, and it simply will not post. Sometimes all the treatment we need isn't…
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Stage 4 Ovarian cancer - Scared for my mom
My mother was diagnosed with stage 3 ovarian cancer at 52 years old about a year and a half ago. After surgery (hysterectomy) and chemo (taxol) she improved by almost 95% Until a couple of months ago... her oncologyst put her on Cytoxin and she complained of pains and breathing problems but nothing was done. Her leg…
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A Little Gallows Humor
In the spirit of our departed friend, Alexandra....oh, how I miss her humor and wisdom!...a little competition. Can anyone top a CA125 of 18,300 ?
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Unexpected call from chaplain at MDA
My sister got an unexpected phone call/voicemail from a chaplain at MDA last night which was followed up by an email asking her to call back and participate in a spiritual intake. She has late stage cancer but has weathered through this battle and is going through a new chemo regime. Her first thought was OMG, I'm dying.…