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Muscle pain after radiation
I finished 30 radiation treatments for ovarian cancer in December. A few weeks later, I developed pain deep in my buttocks. Recently learned it is probably piriformis muscle. Have had PT for past two weeks and pain persists - can't walk w/out it. Noticed on another forum that this could be a side effect of pelvic…
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Muscle and joint pain after chemo
i am 3 weeks post chemo. I had 18 chemo cocktails, six rounds - carboplatin and taxol and then 2 weeks of just taxol, and then start all over again. I experienced terrible neuropath, it was so painful I thought my fingers and toes would fall off. The last month knocked me for a loop. I had problems with low white blood…
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One year ago today...
One year ago today, I was officially diagnosed with cancer. I had gone in for a routine appointment, and they ordered an x-ray. On the x-ray they found fluid on my lungs. I was sent to the ER to have the fluid drained. They thought I had pneumonia. I was given a CT Scan, and the radiologist noticed a small spot near my…
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After Chemo Steroids....
Hey all....I have had 2 of 6 treatments. Each time they pump me full of steroids during the infusion and the side effects are a red face and INSOMNIA. I have never taken the oral steroids that are prescribed for the 3 days post chemo. Does anyone know what the purpose of these steriods are? If it would lessen the bone pain…
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Update...
I just had my fourth infusion (about a week ago). My CA-125 is still not lowering, though my symptoms are lessening. I still have fatigue-- though I am in chemotherapy, so it doesn't really surprise me, and the aches are the weirdest things. My aches/pain seems to move to different parts of my body each round. At first, I…
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Talcum powder causes ovarian cancer?
Hi, I recently came across this article that caught my attention, http://thelawfirm.com/talcum-powder-lawsuit/. Is this really true. I have been using talcum powder since quiet some time now. It is said that there is an association between talcum powder and ovarian cancer, and it may increase the risk of ovarian cancer…
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Atlanta GYN Oncologist
I need to find any onclogist in Atlanta who takes care of ovarian cancer. I was referred to Dr. Joseph Boveri at gyn Atlanta and didn't like him. Are there any doctors who are compasionate or this doesn't happen anymore?
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Neoadjuvant chemo effectiveness
My mom is diagnosed with ovarian 3c (we are still in shock coz she's supposed to be the healthiest & fittest in the family) is advised 3 chemo-surgery-chemo.Now she's done with first chemo & her stomach is still distended. Anyone with Neoadjuvant chemo had this experience? Did the tumour start shrinking from first chemo…
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Ovarian Cancer and Diet
For some reason, many patients do not want to hear that if they make some lifestyle changes, it may reduce their risk of cancer, recurrance or even help fight cancer. But for those who are interested this sounds like a very interesting trial, which focuses on the approach I have been taking with regard to my diet.…
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Daughter has questions about moms dx
my mom was just dx with ovarian cancer in December she had her first chemo tx six days ago and is having trouble with legs cramps and coNstipation..... what can we do to help her over this obstacle?
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questioning my decision for hysterectomy
so my surgry is Dec 15 and they need to take ovaries and tubes. The uterus and cervix were 'optional' (unless of course they see something when they open me up). I agreed for them to remove them for three main reasins: (1) so I can take HRT as I have BRCA, (2) I have adenomyosis, and (3) I don't heal well so thought I'd…
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I have some good news :)
I went for my fourth appointment. The doctor is going to go ahead and give me the fourth Doxil treatment. He thinks that if my CA-125 doesn't go down that it's likely from scar tissue or any number of things. He said that if my cancer was progressing, I would be a whole lot sicker, instead of getting better. He is going to…
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Low WBC
Is it normal to still have a low WBC one year after chemo completion? I am trying not to worry before my repeat blood work in two weeks
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One More Doxil Question
I'm just curious... If you achieved NED on Doxil, how long was your NED? I have very few symptoms after starting Doxil and my pleural effusion has cleared up, and remained clear.
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Happy Holidays-- small update :)
I had my third appointment for my recurrence. My third round of Doxil is Friday. Just minor mouth sores, that's it. My CA-125 "ticked up" a bit. I "look" good according to the doctor. My pleural effusion is finally GONE (like completely gone), he could not find my largest tumor, and no more fluid near my liver (that he…
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Nivolumab(Opdivo) for ovarian cancer
Has anyone gotten into a trial or used this drug off label for ovarian cancer? My mom has stage iv ovarian cancer and we are thinking to try this immunotheraphy drug for her. It is FDA approved for a few other cancers and I know it's in trials for ovarian and other cancers. Just seeing if anyone has tried it or known…
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Needing your opinions, please?
I'm new to this forum and have already gained a wealth of knowledge regarding my situation. I'm 57 years old and had a hysterectomy 30 years ago, but still have my ovaries. In the last few months I've experienced cramp-like symptoms in my right ovary that extends across my pelvic area. In the beginning I thought it was…
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Roll Call October 2016
We haven't had a roll call in a long time. Age: 61 Diagnoses: 1. February 2010 stage 3C low-grade papillary serous carcinoma and high-grade serous ovarian cancer. 2. May 2010 stage 2B invasive ductal carcinoma breast cancer. 3. September 2012 malignant neoplasm of colon. 4. 2012 platinum resistant, restaged to stage 4 ovca…
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when is OVCA actually diagnosed? how often should CA125 be done?
Hello everyone, I don't know if I have a right to post here as I don't have an official diagnosis of ovarian cancer. That is actually one of my questions - since it cannot be diagnosed until surgery as biopsy is not recommended, is that the only time I will get a diagnosis of OVCA or do people get one sooner? I am 39 and…
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Hormones
Hello! I am 34 years old. I am an ovarian cancer survivor of almost 12 years now (yay!). I was diagnosed at age 24 with stage 3c. I had a total hysterectomy and did chemo for a year. I am so happy to be cancer free and alive, but my health and mood struggle every day. I went in to menopause quickly and I have no hormones…
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Lost mom to stage 4 ovarian cancer...now to find out my risks
My name is Heather Im 32 years old and I just took my mom off life support and she passed yesterday from complications of stage 4 ovarian cancer with lung, liver and bowel mets. It was less than a month from diagnosis to her death. I met with her oncologist yesterday and got the definitive diagnosis that it was in fact…
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Topotecan
I just started Topotecan, 3 weeks on, one week off for recurrent ovca. Looking for anyone with experiance with this drug. Side effects, effectivness, ect... Thanks.
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Cancer Pain question...
I am currently using Doxil for a recurrence. The first round about two weeks after that round, I felt better-- the heaviness in my chest was gone, the pain in my back. I had my second round about a week ago, and all my cancer symptoms I was complaining about before I started Doxil are back (except the chest heaviness-- my…
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Surgery recovery question
wife was diagnosed in Sept 2016, surgery scheduled then postponed due to blood clot in lung. So started chemo, and will have surgery after 3 cycles of dose dense chemo. it looks like surgery will be some time between W/O Dec 19 and Dec 26. our daughters wedding is scheduled for first week March. what should I expect in…
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update: surgery scheduled
so I met with the gyno-oncologist yesterday and somehow really, truly expected she'd say this was all a false alarm and nothing is likely wrong. I thought she'd offer preventative, elective BSO as I'm BRCA+ and we'd talk about doing it sometime in spring maybe or after I turn 40. Instead, she said she's really concerned…
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too long until we can see a specialist - ovarian CA?
My wife and I are in limbo right now, so I thought I would turn to people instead of Dr. Google. My wife tried invitro in 2006 and ended up losing her left ovary due to a "nick" during retrieval that caused a hemorraghic cyst that cut off the blood supply. She hasn't had normal menstral cycles since. Over the past 6 months…
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Mother just diagnosed stage 4
My Mom just got diagnosed with stage four ovarian cancer . Looking online, I don't see many great statistics for stage 4. She is only 53. I am 27. I guess I am just looking to hear from stage 4 survivors. Looking for some hope.
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need help understanding MRI report
MY HISTORY I'm still waiting for diagnosis and see the gyn-oncologist on the 22nd but have elevated CA125 and a TVUS found a 2cm solid, vascular nodule on my right ovary. I have most of the symptoms of OC daily and am BRCA+. I'm 39 and premenopausal. As the US tech had suggested an MRI in the report, my family dr requested…
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DIM INSTEAD OF EXEMESTANE?
Hi, Everyone: Hoping you can tell me if anyone is taking DIM instead of Aromasin? Getting tired of the myriad of side affects. Currently in year 2, 3 more to go, according to my oncologist. Considering taking DIM instead. I eat broccoli, do other things to limit any estrogen, as my BC was 100% estrogen receptive and only…
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Update and question-- is it too soon?
Well, I got my BRCA study back and I am BRCA negative. I know that there is a small difference in outcomes between positive and negative results... I did my first round of Doxil two weeks ago. I have minimal side effects :) ... Anyway here's my question. I had a pleural effusion. It came back after my hysterectomy and…