Lynch Syndrome

angiedryden
angiedryden Member Posts: 58
edited March 2014 in Ovarian Cancer #1
Was wondering if anyone was familiar with Lynch Syndrome. Mom has to have a genitic test next month to see if she may have it. Her oncologist believes she may...due to her having colon cancer at such a young age then the reoccurance of the colon cancer then the ovarian cancer. He also stated if she had it then all of her children would have to be tested due to having a 50% chance of us having it if she tests positive. Thanks in advance for any info.

Angie

Comments

  • lindaprocopio
    lindaprocopio Member Posts: 1,980 Member
    #2
    I know Deanna, on the Uterine Cancer Board, has this.
    I remember a thread on Lynch Syndrome where a number of ladies posted about their experience with it. If you the Search feature of this board on the Uterine Cancer Board (and also try it on this board) you should be able to pull up the archived thread on it. I know that Deanna, from the Uterine Cancer Board has Lynch Syndrome, and that she is in a prolonged remission with no recurrence or spread for over a year now!

    If you have trouble finding it, please post again and I will try and find it for you.
  • angiedryden
    angiedryden Member Posts: 58
    #3
    lindaprocopio said:

    I know Deanna, on the Uterine Cancer Board, has this.
    I remember a thread on Lynch Syndrome where a number of ladies posted about their experience with it. If you the Search feature of this board on the Uterine Cancer Board (and also try it on this board) you should be able to pull up the archived thread on it. I know that Deanna, from the Uterine Cancer Board has Lynch Syndrome, and that she is in a prolonged remission with no recurrence or spread for over a year now!

    If you have trouble finding it, please post again and I will try and find it for you.

    Thanks
    Thanks so much.
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #4
    angiedryden said:

    Thanks
    Thanks so much.

    The genetic link between
    The genetic link between OVCA and Colon Cancer (Lynch Syndrome) is easily determind via DNA testing, but it's expensive unless you meet your insurance company's criteria. I didn't have it done because of the cost ($700 my part) but I did elect to have my regularly scheduled colonoscopy moved up a year. My first colonoscopy, at age 55, showed 8 polyps, so I had to go back in every year for a while and each scope revealed polyps. This last one though.....zero polyps. Lynch Syndrome is rare, according to my gastro guy.

    Carlene
  • angiedryden
    angiedryden Member Posts: 58
    #5
    Hissy_Fitz said:

    The genetic link between
    The genetic link between OVCA and Colon Cancer (Lynch Syndrome) is easily determind via DNA testing, but it's expensive unless you meet your insurance company's criteria. I didn't have it done because of the cost ($700 my part) but I did elect to have my regularly scheduled colonoscopy moved up a year. My first colonoscopy, at age 55, showed 8 polyps, so I had to go back in every year for a while and each scope revealed polyps. This last one though.....zero polyps. Lynch Syndrome is rare, according to my gastro guy.

    Carlene

    Thanks for info
    They already checked with her insurance and it isn't costing her anything. She mainly wants to do it for us...due to the fact that if she has it we have a 50% chance. Mom was 32 when she had her first colon cancer. Then 10 yrs. later she had so many polyps they had to go in and remove a large portion again. Then 1 and a half yrs. ago the colon cancer returned and less then a yr. later she was diagnosed with stage IV ovarian. Right now her white cell count is really low and she has a infection she is fighting. She has 1 more chemo treatment left. I believe they plan on doing another PET scan when she completes the last chemo treatment. She has stayed so positive through the whole thing. I have a 36 yr. old sister with Downs Syndrome who has always been at home with mom. Holly doesn't talk and is still in diapers. Mom cares for her everyday. I don't see how she does it. I know her faith gets her through.

    Angie

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