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Vaccine Trial
Number two shot is behind me!!! I'm at MSKCC, waiting out my post-injection observation period. We had a great time last evening with Joni. She took us via subway to Times Square. Then today I met Annie in the waiting room. She stRts her trial next week. It's been worth the trips to meet these two cuties! Carlene
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Not well enough for treatment
I went for my 2nd chemo infusion this morning to be told by the oncologist that there is a problem with my kidneys and my treatment will be postponed for a few days until the results of my blood tests are back. Also she seems to think I'm not fully recovered from an infection I'd had whilst in hospital a couple of weeks…
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port trouble
hello today i had my 2nd treatment of carbo taxol. first half - carbo infusion went very well, i actully brought my computer and worked all the time - maybe it was my mistake as i worked out the muscle.. but when we have started taxol - it was not coming in and machine was beeping all the time every 2 minutes nurses have…
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Something odd
Hi Ladies, I am wondering if any of you have problems with phlegm? Mom has always had acid reflux but nearly every night after dinner she feels like her dinner is stuck in her chest and she has a large buildup of phlegm. If you have dealt with this please let me know what to do about it. This has been going on for months…
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Just found another "sister"....a shockingly young one
My daughter just told me today that a young woman she went to school with has OVCA. I have friended her on FaceBook, and will try and get her to join us here. She can't be more than 36 or so. This reaffirms my decision to participate in the vaccine trial. It's sad and awful to lose your mom to this crappy disease, even as…
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I didn't want to take off my hat!!!
Today I felt vunerable, I was at our local credit union and the teller would not buzz me in the door until I took off my hat. I hesistated a minute and couldn't believe what I was hearing. I did take off my hat and I got very cold it was 19 degrees outside. I went to the teller who saw I was upset but didn't seem to care.…
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Time for some fun postings: What are your favorite Guilty Pleasures?
For me, it's Red Wine, Chocolate and paranormal romances. I love Pinot Noir or Shiraz (tend to prefer the New Zealand Pinot and Australian Shiraz) and Hazelnut Chocolate bars from Lindt! YUMMMM! as for the romance novels... Charlaine Harris, Christine Feehan, and the Arcane Society series from Amanda Quick, Jayne Castle…
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new weird type of pain
I don't know what this is and I'm wondering if anyone has experienced anything similar. I'm hoping its adhesions or muscle. I've been having pain/discomfort around and above the area where my ostomy was. My ostomy was reversed 1 yr ago this month. The pain is worse when I go to stand up or sit down. Almost like a surgical…
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It's back :( it never even left her.
I am numb, it is all I can feel at the moment. Mum received a letter today the results from her first ct scan after finishing her treatment, it is showing some cancerous deposits in her omentum and some fluid in her tummy. I have got so many questions , what next? Is this beast carbo platinum resistant or can she have more…
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I am officially a lab rat
My 10:45 appointment got underway right on schedule but by the time they did EKG, blood draw ( LOTS of blood), vitals, etc it was 2:00. It took a long time (over an hour) to get the vaccine compounded. I posted on Face Book that it had to be done by elves specially trained in alchemy. LOL My next injection is Feb 11, then…
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Rise in ALT/AST during Avastin/Cytoxin treatment
I've been on 2 cycles so far of Avastin/cytoxin and my blood levels has been pretty good. I had blood taken at my primary care physician last week and the range with his lab for ALT was 7-52, mine came in at 56. He said it was still ok because it was only slightly over the top of the range. I noticed that the high and low…
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student learning
My daughter is an RN student. She has to give an education lecture on any topic and choose a target audience. I told her she should do it on ovca awareness. She needs to list a specific number (I forget how many) of educational objectives for her target audience. I suggested her target audience be nursing students or…
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treatment change
Spoke with the oncologist. My treatment will now be changed to Taxol/Avastin. Believe it or not this time around I am upset about losing my hair. I go next week for my first Taxol infusion. Since it is almost 2years since I've last had Taxol I am hoping it will work well for me again.
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GI Symptoms Scaring Me
I've been having GI symptoms since New Years Eve. I hardly slept that night, and started having pure liquid BM's in the early morning. Stayed in all day and felt fine the next day, even went to a pot luck and ate whatever I wanted. I felt pretty good for about a week, then started to have diarrhea, and had a repeat…
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Has anyone experienced shingles with their ovarian cancer diagnosis
Has anyone had shingles during their OC diagnosis? Has anyone taken the shingles vaccine?
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Newbie--advice
Hi Ladies, I have been lurking around here for awhile and just couldn't get myself to post, as it is made it seem more real. I have seen all of the support you provide one another and feel I certainly could benefit (by both being supported and supporting). My mom (age 73) was diagnosed in March/April 2009 with Stage 2C…
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I don't know how to support my mom
My mom is losing her second battle with ovarian cancer. Doctors have told her that she has, at best, a few months left. Her CA125 levels keep going up, despite aggressive chemo. I don't know what to say to her... She's scared and she keeps telling me that she's not ready to leave the earth. I have no idea what words to…
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Response from American Cancer Society re: discussion board topics on search engines
Hi everyone, I did receive a response from the ACS and I noticed today on the page where they list all the various types of cancer, there is now a disclaimer. I feel that they should have had this originally. I don't mind sharing my experiences but I thought that a discussion group was confidential between their members.…
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LindaP
In reply to your post under my original post regarding treatment. I think my onc wanted to start with avastin/cytoxan because it is gentler. If that worked I'd still have Taxol in my pocket. I am still not 100% it wasn't working. I didn't have a beginning treatment ca125 drawn. My lastest ca125 was 2wks prior to starting…
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Vacation if Florida
My wife and I want to go to Florida this spring but we need to find a place that can do blood tests. Does anyone have any suggestions for the St. Petersburg, Clearwater area?
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2nd Line treatment questions
I am on my 2nd line treatment of carboplatin & doxil. I only had a 4 month remission with the taxol. Could anyone tell me if there will be hair loss or any differant side effects with this combination of drugs? My hair is just starting to come back & I don't know whether to have it styled , if I'm going to lose it again…
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Wish we could post pics
Had a great time - drinks, dinner and Starbucks - with Joni. She is so cute and FUN! Carlene
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I made it!
I am in Manhattan and have already made plans to meet up with Joni for dinner. My appointment is tomorrow morning, first vaccine injection. I have never seen so many people in such a small area. And the cars....wow. Even Dallas does not come close. Carlene
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Link between diabeties and Ovca
Was listening to the newa and they say there may if you have dm you may very likely get ovca. I never heard of this before but it makes sense since ca. cells thrive on sugar. Are any of you diabetic, I am unfortunately. I keep my aic at 6, which is well controlled but during chemo it is high due to decadrone. I still have…
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need urgent advise
hello Ladies! i need your advise on 3 issues. #1 -2 weeks ago i had my first carbo/taxol and next week i am due again. last tonight i have developed toothache and feels like my cheeck is swallen.it is my problem tooth. i know for sure there is no nerve - r.canal was done long time ago. most likely it is some infection. i…
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Wife is Scared
She gets CA125 results on Wednesday and gets her 5th Taxol maintenance treatment on Thursday. She is really worried this time because she has felt some abdominal cramping starting late last week and has experienced some side pain for the last two days. She told me today she thinks the monster is back. Question: She had a…
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Mom's PET scan showed
NO cancer. I'm so elated and over the moon, but, at the same time freaked out and scared to death. Also, somewhat confused....she had a PET scan done after seven infusions of carbo/taxol because her last CA125 went up a few points instead of down. Started at 1700 and last one was in the low 80s. It's not reached the "NED"…
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Is there any examples of women in their 90's being treated for ovarian cancer?
My 94 year old mother was unfortunate enough to suffer undiagnosed stage 3 or 4 ovarian cancer when she died. We did not know it until after death by autopsy. She had a 2.5 inch tumor in her right ovary that had spread. I would like to know of the experiences of other women in their 90's that have had surgery and…
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Location Location Location
Making hot spicy herbs as part of the diet can be beneficial. For instance, in Indiana, a Hispanic male is 6 times less likely to die from cancer as a black male even though blacks are only 30% more likely to get cancer in IN. (All stats in this comment are computed on an aged-adjusted basis from the CDC - Center for…
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Posting of my discussion and appearing on a search engine
Hi everyone, I just got off of the phone with the American Cancer Society. I was doing a ASK.com search last night and I noticed that a discussion I posted on the ACS network appeared. I wasn't sure what it was, so I clicked on it and was surprised it was, in fact a discussion posted by me. I advised the ACS that I did not…