multiple myeloma diagnosis
Comments
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MM diagnosis
Like your case, I was healthy, etc. until diagnosed June, 1999 @ age 57. Slow, painful diagnosis after many compression fractures and loss of 3" in height. But I responded well to 6 months chem, a stem cell transplant, and was very fortunate to have a complete remission (CR) that continues to this day. I'm active in our local support group, editing a monthly newsletter for members.
I would suggest spending some time on line at the International Myeloma Foundation website (myeloma.org). Learn as much as you can there. Check out the 'newly diagnosed' tab. Look for a MM support group in your area. Use the IMF's help line for any questions you have, as they seem to do a very good job. Keep medical records of all your tests so you and your doc can be aware of the trends in key measures.
The disease is strange, but if you do not have chromosomal abnormalities (ask your Oncologist about this), there are a lot of newly developed treatments that did not exist when I was diagnosed and many of our group's members have lived 5, 10, 15, even over 20 years. However, it seems everyone is different, and what works for some doesn't work for others. Research is progressing toward a cure, but not in the immediate future.
Best of luck.
Phil0 -
Multiple Myeloma
I have just completed a stem cell transplant, I am now over 50 days post transplant. I am feeling great, it was worth all I had to go through with the transplant. I have 9 Lytic Lessions, thru my bones. I will have my 3rd bone marrow biopsy, 24 hour urine and intense blood work at day 100 of transplant. I was referred to an awesome oncologist that I love and trust. I am back at work part time and feel I have been given my life back. I was walking with a cane a yr ago. I was also on serious pain meds. Keep the Faith, things do get better. Take Care,0 -
Questions 30 days after Stem Cell Transplant
Can someone please help? At 75, my healthy and fit brother was diagnosed with Myeloma. No pain associated so caught in very early stage. He is 30 days out from Stem Cell Transplant and continues to suffer with lack of energy, appetite and worst symptom of all is experiencing nerve damage in his feet (neuropothy) that seemed to begin after initial chemo treatment with Velcade. Any recommendations, advice or similar experiences? This website was extremely helpful to me when I was diagnosed with breast cancer 6 years ago.
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