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Does anyone have mantle cell Non-Hodgkins Lym
I would love to speak with anyone who has MANTEL CELL Lymphoma. WHat treatments did you do? and when were you diagnosed. My husband was diagnosed sept. 11, 08 and has undergone 5 out of 6 rounds of RCHOP. Now the Pet scan show "no cancer" and yet the doctors say " IT WILL COME BACK" So what treatments are people doing…
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Newbie but not new to cancer.....
Hi everyone, Please forgive me if this topic has been discussed previously....I hope I can get something to help my over active mind. Ha! I tested positive for mono yesterday after I "encouraged" my GP to do the blood test given that I felt like a truck has hit me even though I've not had the flu. I was in bed Sun-Tues,…
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Site Issues - I emailed Greta
FYI: I emailed Greta politely about issues with this site. They are genuinely concerned and are making efforts to improve things. I just wanted to share the message with you and offer my thanks to Greta for her response. (Paste of message) ================================ Hi Jim, It's very disappointing that the site…
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suggestions? thoughts? guesses?
hi everyone thanks in advance for any replies ok here goes, about six years ago i noticed a hard immovable lymph node under my left ear right beside my jaw. it didnt seem to be changing size so the dr and i agreed to try the wait and see approach. fast forward to a few weeks ago when my husband noticed it was now visible,…
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Autologous Stem Cell Trasnplant
My mum (age 56 y) I will need this for here treatment following relapse of grade iiia FNHL ( onc says its simiar to DLBCL). Anyone here knows what to expect in Asct? And after asct? Would appreciate any response. Thanks.
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Question about CLL symptoms
I have just begun chemo (BR) treatment for CLL which was diagnosed after I went in three months ago with an knawing discomfort in my upper abdomen, center, right under my rib cage. I was also experiencing stomach bloating and couldn't (still can't) wear any pants that put any pressure on my abdomen. CT scan discovered…
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Lymphoma ?
Last June I started coughing and lost my appetite. I lost 30 lbs. in about 6 weeks. Violent nausea without feeling sick, just violent wretching. My chest started to burn in the back inside. I sweat at night, not drenching mostly around my neck. I was xrayed 3 different times and had my esophagus and stomach scoped and 2 ct…
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Stage 4 NHL- Aggressive B
Hi just looking for R-Hyper-CVAD fellows out there! I am in round 3. I am 51 in great health except for this cancer crap!! Doing ok. The treatment is rough for 2 weeks and then the third week I feel really good. Just in time to check back into the hospital for 5-7 days. Have had neutropenia fevers that land me back into…
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Fatigue
Does fatigue worsen as you progress through RChop? My father is to receive #4 tomorrow with a follow up pet scan on Friday. It seems he is still losing weight, despite eating pretty decent. Also, his fatigue seems to be worsening. He is good when on prednisone but then once he stops it he crashes. I am nervous about the…
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Interesting...
Hi guys, I watch 2 weekly T.V shows...CSI New York,(Fri) and The Good Wife,(Sun). Both shows this week featured a small part of the episode around someone having Non Hodgkins Lymphoma. One of the main actors in CSI New York..Sid, the coroner is the one with NHL, don't know if it's for real or just part of the show, but I…
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Shanghai, how appropriate
What's up with all these advert jerks posting on the forum lately? And I thought I made too many inappropriate comments! ;) we've been shanghaid!
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Maggie..
Hi Maggie, I couldn't reply to your post because of the new changes in the site, so I had to start a new topic. I'm not happy with the changes on CSN, but maybe they will get things straightened out soon. Anyways...I want to wish you a very Merry Christmas and a Happy (healthier) New Year. Hopefully after your surgery you…
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Coronary Artery Disease (CAD) linked to Radiation Therapy for Hodgkins
If you had radiation therapy in the chest area to treat Hodgkins, please ask your doctor to monitor you for CAD and order a stress test every year with your physical. Scarring from radiation can cause coronary artery blockage. If you have any of these symptoms, do not wait: Shortness of breath, dizziness, pain in left arm,…
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Christmas pics of Lizzy...
Hi guys, I can't help myself....had to share! Expression page. Love....Sue
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When Will it End?
I have been in remission for the last 2 years (HL, IIA). I went through 4 rounds of ABVD and 20 rounds of radiation. For the most part, I have been feeling pretty good. However, whenever I get a cold or I feel fatigue my first thought is relapse or possibly another blood cancer. Going through the treatment and handling the…
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Dixie Girl
Has anyone heard from Dixie Girl lately ? I admit I do not read every thread that gets put up, so I may have missed recent notes from her. Iknow her journey has been one of the toughest discussed here. Bless everyone's recovery in this New Year. max
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Hi Sharlene
Hey Shar, how's it going? I hope your final treatment went well mine is coming up on Tuesday. I sent you a pm a few days ago so I'm looking forward to hearing from you. Hope all is well. Aaron
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Thinking of you
Hello Dearhearts, I just wanted to say that I am thinking of you all and hoping that this holiday season brings you peace and love. This time of year can be wonderful, but also can be so difficult for so many. My wish is that everyone has some amount of joy in their lives and that you are surrounded and comforted by love…
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Funding a stem cell transplant
Hi all-- I have been making slow progress towards a possible stem cell transplant, undergoing salvage chemo right now in the hospital as I write this message. I received an unexpected phone call yesterday from my "transplant coordinator" that I am in an exclusion period, and my insurance will not pay for the transplant…
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Happy New Year!
I hope the new year brings health, joy and personal growth to all my friends here! Thank you all. Jim ABBA - Happy New Year
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more platelelets
i had more plateles todaqy they were back down to 22300o do you think that means the cancer is still there blessings denise
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Merry Christmas and a blessed new Year
I haven't posted in a long time. Most of you do not know me. I had Follicular Stage 3, diagnosed 4 years ago in January. I am feeling well and thank God everyday for that. I wanted to wish you a wonderful Christmas or Holiday time with your family. Family, spending time and loving each other is the most important thing as…
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Wondering about your treatment regimen for relapse NHL
Dear members - I am new to this community and am seeking your input for understanding the treatment regimen for a relapsed B cell (aggressive) or marginal zoneNHL (MZL/indolent). My mother (age 56y)was diagnosed with B-cell NHL in March 2011. She finished 6 rounds of R-CHOP followed by radiation therapy (30 rounds) and was…
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Happy Holidays!
I just wanted to wish everyone a wonderful Christmas and upcoming new year. May we continue to love, learn, and grow on our journeys and never give up! Thanks to all of you for your support and kindness. And oh yeah, big GOrilla hugs.... ☺ Merry Christmas Jim
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SLL Last treatment B&R sooo tired! Is this normal?
I had the last treatment for my SLL (Small Lymphocytic Lymphoma) on December 14th and here I am 2 weeks later sooo tired all of the time I can barely function. I was being treated with Bendamustine and Rituxan and will continue with a maintenance dose of rituxan every other month for 2 years. One dose every other month. I…
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Waldenstrom's
I received chemo and stem cell transplant in Aug 2006 and have been in remission. It seems now that my counts are on the rise again. Anyone had the same experience? Would like to hear from you.
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Wondering how people are coping with muscle deterioration after radiation.
I am new to this site. I posted a question to people with muscle deterioration about a month ago on here. How are you coping? How do you manage everyday life? I had to quit working about a year ago. I am waiting for hearing with the judge for disability. I don't know if anyone answered. How do I find out if they answered?…
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have questions looking for advise
a friend of mine was diagnosed at 21 years old with stage 3 non-hodgkin lymphoma. she was diagnosed over the summer, and began taking the chemo pill. the chemo pill was not working so she began taking shots at home. since then there is now a tumor on her spine and her lymphnodes are affected. This week she will be going to…
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THE NEW LOOK
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Blessed Holidays
To all my old and new friends, First, I wish for all of you, a blessed Christmas, and a healthy, happy, and New Year 2013. Forgive me, it might seem I am no longer around. But, here I am. This is not an excuse. My thoughts are always, always with all of you. Aside from being busy as all of you are. I am sure the medication…