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Lymphoma (Hodgkin and Non-Hodgkin)

When Will it End?
I have been in remission for the last 2 years (HL, IIA). I went through 4 rounds of ABVD and 20 rounds of radiation. For the most part, I have been feeling pretty good. However, whenever I get a cold or I feel fatigue my first thought is relapse or possibly another blood cancer. Going through the treatment and handling the…
Dixie Girl
Has anyone heard from Dixie Girl lately ? I admit I do not read every thread that gets put up, so I may have missed recent notes from her. Iknow her journey has been one of the toughest discussed here. Bless everyone's recovery in this New Year. max
Hi Sharlene
Hey Shar, how's it going? I hope your final treatment went well mine is coming up on Tuesday. I sent you a pm a few days ago so I'm looking forward to hearing from you. Hope all is well. Aaron
Thinking of you
Hello Dearhearts, I just wanted to say that I am thinking of you all and hoping that this holiday season brings you peace and love. This time of year can be wonderful, but also can be so difficult for so many. My wish is that everyone has some amount of joy in their lives and that you are surrounded and comforted by love…
Funding a stem cell transplant
Hi all-- I have been making slow progress towards a possible stem cell transplant, undergoing salvage chemo right now in the hospital as I write this message. I received an unexpected phone call yesterday from my "transplant coordinator" that I am in an exclusion period, and my insurance will not pay for the transplant…
Happy New Year!
I hope the new year brings health, joy and personal growth to all my friends here! Thank you all. Jim ABBA - Happy New Year
more platelelets
i had more plateles todaqy they were back down to 22300o do you think that means the cancer is still there blessings denise
Merry Christmas and a blessed new Year
I haven't posted in a long time. Most of you do not know me. I had Follicular Stage 3, diagnosed 4 years ago in January. I am feeling well and thank God everyday for that. I wanted to wish you a wonderful Christmas or Holiday time with your family. Family, spending time and loving each other is the most important thing as…
Wondering about your treatment regimen for relapse NHL
Dear members - I am new to this community and am seeking your input for understanding the treatment regimen for a relapsed B cell (aggressive) or marginal zoneNHL (MZL/indolent). My mother (age 56y)was diagnosed with B-cell NHL in March 2011. She finished 6 rounds of R-CHOP followed by radiation therapy (30 rounds) and was…
Happy Holidays!
I just wanted to wish everyone a wonderful Christmas and upcoming new year. May we continue to love, learn, and grow on our journeys and never give up! Thanks to all of you for your support and kindness. And oh yeah, big GOrilla hugs.... ☺ Merry Christmas Jim
SLL Last treatment B&R sooo tired! Is this normal?
I had the last treatment for my SLL (Small Lymphocytic Lymphoma) on December 14th and here I am 2 weeks later sooo tired all of the time I can barely function. I was being treated with Bendamustine and Rituxan and will continue with a maintenance dose of rituxan every other month for 2 years. One dose every other month. I…
Waldenstrom's
I received chemo and stem cell transplant in Aug 2006 and have been in remission. It seems now that my counts are on the rise again. Anyone had the same experience? Would like to hear from you.
Wondering how people are coping with muscle deterioration after radiation.
I am new to this site. I posted a question to people with muscle deterioration about a month ago on here. How are you coping? How do you manage everyday life? I had to quit working about a year ago. I am waiting for hearing with the judge for disability. I don't know if anyone answered. How do I find out if they answered?…
have questions looking for advise
a friend of mine was diagnosed at 21 years old with stage 3 non-hodgkin lymphoma. she was diagnosed over the summer, and began taking the chemo pill. the chemo pill was not working so she began taking shots at home. since then there is now a tumor on her spine and her lymphnodes are affected. This week she will be going to…
THE NEW LOOK
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Blessed Holidays
To all my old and new friends, First, I wish for all of you, a blessed Christmas, and a healthy, happy, and New Year 2013. Forgive me, it might seem I am no longer around. But, here I am. This is not an excuse. My thoughts are always, always with all of you. Aside from being busy as all of you are. I am sure the medication…
Aaron, haven't seen you online . . .
Hey Aaron, I haven't seen you on line for a while. I hope you are doing okay. When do you have your next treatment? Tomorrow or Wednesday? I'm down to one left and so thankful! The last couple have been getting a bit tougher. I've been taking my anti-nausea meds, but still have a bit of an icky feeling until about day 5 or…
pnumonla again
well i have pnumonia again this time was the worst i had to bagged6 times and i was on the vent for 9 days pray for me denise
Migranes / neuropathy
Hi all, New to this forum, I was wondering if there are any folks out there who had ABVD chemotherapy who suffer from migraines, neuropathy or both. It has been over 18 years since I had my treatment. About two weeks after the last treatment, I developed a ‘shimmering’ in my field of vision. I had a week or two of terrible…
CSN - planned outage tomorrow night
CSN will be down from 9 pm Eastern Time Thursday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff
Now on Treanda
Hope it works. Been thru the ringer. Not much of a typer :)
Heartbroken
Well my friends, my husband will not win his fight against cancer. I am utterly hearbroken. The lymphoma is just so aggressive it is breaking through the chemo. Will try to have a nice holiday season. I wish you all season greetings and all the best in 2013! Hugs - Katie
Diarrhea
Any tips on how to control this? My father is at the point where he is having accidents despite several doses of Imodium. He is very Discouraged now. Any tips or advice would be greatly appreciated
Rituxan scheduled
I had an appt with my Hemotologist Onc. today and he gave me two options. I could do watchful waiting or 4 wks of Rituxan once each wk. He said if I wanted to wait to decide until the first of the year that would be fine. My Dr. is very young so I asked him what he would recommend if I was his mother, and he said Rituxan.…
Vomiting
My father is 10 days out from his second cycle of rchop. He has started to vomit small amounts but has no nausea. he says he gets a foul taste in his mouth then he just vomits. has this ever happened to anyone? I am not sure whether to call his doctor or not. He isn't drinking a lot because he is afraid he will get sick
Patient advice wanted for acute t-cell lymphoma
Hi, my 26-yr old grandson was recently diagnosed with acute T-cell Lymphoma. July was the date of diagnosis. He has been having lots of seizures, and can't hold food down. Both before being treated with chemo, he throws up food. He is very weak. He is at the Thunder Bay Regional cancer center. I heard from a friend here in…
Remission
Hello Everyone, Well I saw my Onc today and he gave me the most wonderful news ever! I'm in REMISSION!!!! YAHOOOOO Thank God, he is giving me more time with my kids and hubby! I also want to give thanks to all of you that have giving me your support! I am still to finish two more rounds of Rituxan but hey I can difinetly…
Dogs in love
This is such a cute picture I couldn't help but put it up. My neighbor sent it to me. My Sam is a blueheeler and Kota is my neighbors sweetheart lab mix. Sam LOVES Kota as you can see. A friend of mine says Sam is glowing LOL We have 2 heelers (boys) and a border collie retriever mix Gidget. The baby heeler is Brody. Let…
Neupogen
Hi everyone, I'm set to start Neupogen shots on Friday and I was just wondering for those of you who have done them, how bad are the aches and pains from it? Shar
Rash with NHL??
Does anyone know about a rash that might be associated with Rituxan and/or with marginal zone NHL? Or maybe prednisone? I was outside enjoying the nice weather the other day and wearing a racer back tank top. That evening I noticed what looked like some sunburn on my shoulders and thought it was odd, since I'd had on…

Lymphoma (Hodgkin and Non-Hodgkin)

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