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Question?
Hello everybody, I have a question to anybody that may know or may have an idea about it...question? I was told by my onc that I was in remission in Nov. at that time my white blood cells were in the normal range. I have been doing Rituxan treatment this past 3 weeks and today I saw my onc, and he mentioned that my wbc…
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Has anyone experienced an "IMMUNE REACTION" (ENLARGED NODES IN GROIN) after 4 yrs. of remission for
Feb. 2008, went thru 8 rounds of R-CHOP, then a total of 26 treatments of Rituxan (2 1/2 yrs after radiation). Have been in remission; however, in mid-Nov., noticed a pea-size lymph node in right groin (always check under arms and groin areas), as last time enlarged nodes were in left arm-pit. Because I always had terrible…
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Any advice on Bone Morrow in office?
Hi, I am shedulled for Bone Morrow, Not sure if it's the Asperation type or the biopsy or what the different. All i know the DR said it will be done in the office with a littile uncomfort and prusser. Ant suggestion on how to go through itwith less pain possiable?
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FIRST DAYS OF HD-- FINDING OUT, PRE TREATMENT, AND FIRST ROUND CHEMO
PLEASE HELP ME HELP MY FRIEND....... My friend was diagnosed 2 weeks ago after finding this lump under her arm, at first we thought it was just a bump....then it got bigger. After dealing with it for a week and a half she went to the hospital, completed the blood test, then received the news. She was EXTREMELY emotional…
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New to site and just rambling I guess...
Hello, my name is Amanda. I am 23 years old and just recently diagnosed with an aggressive t-cell/b-cell NHLymphoma. I am struggling with what to write, or how to even navigate this site. In all honestly I have no clue what I'm doing. All I know is that it no longer helps just trying to talk to my family and friends. They…
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Over active sympathetic nervous system???
I'm hoping someone can help. I have been cancer free for 1 year now and I have been getting very sick anytime I over exert myself ie.shaky, nauseous, vomiting, light headed. Etc. I went to my onc and she didn't know what was going on so I just went to my primary care. He told me he believes it's a sympathetic nervous…
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My blog about beating HL
http://langfordbooks.com/2013/01/cancer-and-the-orlando-magic/ I needed something to hold on to and a magical season from my favorite team was just what I needed.
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Depressing
I am going thru a period of depression. I have new lumps and increased leg pains and headaches. Lumps are small and may well be from something other than lymphoma so I am waiting till my next infusion in January to get it checked out. My neurologist wants to do a spinal tap to see if lymphoma may have infiltrated my spinal…
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share with me?
How many folks have a Facebook page? I have fighting this cancer battle for quite some time. (my story is on my profile) and of all this time, I have done a poor job at reaching out to others affected by my same disease. Stupid, right? I have an over-all positve outlook, but I always seem to fall into this "no one gets it"…
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1St PET scan after treatment
Hello everyone. My dad is having his first PET scan after 4 cycles of R- CHOP for stage 3 B cell lymphoma. does anyone know tthe statistics of how well the treatment works? I know this sounds like a dumb question but I need to prepare myself as I am afraid that if he is not responding, then he will not continue the…
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symptoms
Hi I have non-Hodgkins Lyphoma, stage 3. I finished my last treatment 7 months ago and I would like to know what kind of symptoms people have from the after effects of the drugs. I tend to feel dizzy(for a better word) now and then. I don't have any trouble standing and feel like I could fall it is just a sensation. I feel…
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Carol (cpbgill26)
Just sharing an email I got from Carol today. I responded to her and told her I would post. She goes for PET scan tomorrow. Sending her positive thoughts for great scan results! Jim I have lost out on this site. Can't recall passwords etc. Think I have it straight but who knows. I finished chemo Aug. 14, 2011 I had a PET…
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Cat Scan
I had my cat scan two weeks ago. Saw my Oncologist. And they found some mesentery nodes in the midabdomen So they want me to do the cat scan again in 3 months instead of 6 month. So will see. Hope you all are doing well. I have been in remission for three years and had this diagnosis since 04. I am stage 4 , and had it in…
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Oral mucositis
Since the fourth cycle of treatment, I've been battling to keep oral mucositis at bay... ulcers flare up at the tip and margins of the tongue... thanks to the effects from the mega doses of chemo. This typically occurs a week after treatment and goes away temporarily before the next round (so long as it is treated). I also…
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STAY AWAY FROM CHEMOTHERAPY AND RADIATION
What you think about this? Is it TRUE? Any Comment is appreciated http://www.newswithviews.com/Howenstine/james189.htm
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two for two
Hey everyone, had awesome news twice yesterday, had my bi yearly tumor surveillance of my head and neck, and all was clean, received my PET scan results no evidence of lymphoma! Really surprised me the way my neck has been aching lately. Wishing everyone well..... Vinny
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Types of Biopsy's?
Can someone tell me a little about Biopsy's. Is the FNA as accurate as a full removal? If you are very nervous and have quite a few symptoms, what is the best route to go?
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What's the worst scenario of having NLPHL ?
HI, I'll be 46 next month and just got Diagnosed this morning with NLPHL, DR says "to have a cancer this the one you should have". and he set me up with oncologist for next week, and he said the Oncologist will answer all my questions and I can't wait. Can someone help answer mine 'really appreciated'. -What to expect at…
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Lymphoma symptoms / leukemia symptoms??
I noticed that Lymphoma symptoms seem to be very comparable, almost the same really as leukemia symptoms. Did anyone or their doctors also suspect leukimia before they were diagnoced?
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Here I am
Hello Dearhearts, I will make this brief, just in case the site starts to fail. I have had a heck of a time getting through, so mostly I have just read the posts, not logging in. Belated Happy New Year Everyone! I miss you all so much and sure hope that this site gets its' act together soon. I have really needed you all. I…
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Maybe faster way to load Lymphoma Discussion
1. Go to the Lymphoma (Hodgkin and Non-Hodgkin) board under Discussion Boards. 2. Once at the main screen for the lymphoma board, click on "Add to Favorites" near the top of the page. 3. Fill out the form that comes up (title your favorite, etc.) and click on "Save". 4. Now and in the future when you login, click on…
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PET SCAN
Well after being denied for three months, I finally got approved for my Pet Scan, it didn't hurt that I have had a stiff neck for over a month now! lol...... I go Monday the 14th...... fingers and toes crossed! Vinny
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31 years old with Small Lymphocytic Lymphoma. Really need to talk with someone who is in the same si
Hey there, Seamus Riley of Arlington, Va. 31 years old and just found out I have Small Lymphocytic Lymphoma. I know this is normally found in older people so I am trying to find people under 50 who are in the same boat. Posting here is fine or email works great. sriley2@hotmail.com
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Positive thoughts please
Hey everybody Tomorrow is my six month scan since my auto SCT for my diffuse large b cell lymphoma that has since been cleared. My three month scan came back clean and im hoping for the same results with this scan. Ill have the scan at 830 am EST and will get the results fri. This group was and is such a great support…
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Tough times
Hello everyone Going through some tough times. My mom was scheduled for chemo and developed an infection and a blood clot. Things are not going well. She did have chemo today but there is a good chance she won't pull through. This disease is very difficult to fight if you are elderly. Too many complications. Thank you to…
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Joint pain
Anyone else deal with joint pain when it's cold.
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30 months NED after Treanda/Rituxan
I haven't posted in over a year, but wanted to let everyone know that I'm still NED after Treanda/Rituxan treatments 30 months ago. It took almost two years after treatment for the achy/stiff knees and ankles, that made me feel 90 when I'm 55, to finally subside. The SED rate in my blood-work was off the charts for two…
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Has anyone been in remission for Diffuse B for more than 4 yrs then suddenly developed enlarged lymp
Feb. 2008, went thru 8 rounds of R-CHOP, then a total of 26 treatments of Rituxan (2 1/2 yrs after radiation). Have been in remission; however, in mid-Nov., noticed a pea-size lymph node in right groin (always check under arms and groin areas), as last time enlarged nodes were in left arm-pit. Because I always had terrible…
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Scared more this time
I finally received my lab results andI am being told my follicular lymphoma has reaccurance in several places this time around I'm quite scared this time around I had it 11 yrs ago and thank god radiation did the trick but now returning 11 yrs later and worse I'm really scared I refused back then to tell a living sole and…
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Hello from South Carolina
I just found this web site and read some of your stories, which compeled me to register and say hello. I am in remission from stage IV folicular B cell non-Hodgkins Lymphoma. Mine was in my small intestins and required surgery upon diagnosis in August 2011. This was followed by six months of Retuxan and Trenda. I thank the…