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1St PET scan after treatment
Hello everyone. My dad is having his first PET scan after 4 cycles of R- CHOP for stage 3 B cell lymphoma. does anyone know tthe statistics of how well the treatment works? I know this sounds like a dumb question but I need to prepare myself as I am afraid that if he is not responding, then he will not continue the…
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symptoms
Hi I have non-Hodgkins Lyphoma, stage 3. I finished my last treatment 7 months ago and I would like to know what kind of symptoms people have from the after effects of the drugs. I tend to feel dizzy(for a better word) now and then. I don't have any trouble standing and feel like I could fall it is just a sensation. I feel…
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Carol (cpbgill26)
Just sharing an email I got from Carol today. I responded to her and told her I would post. She goes for PET scan tomorrow. Sending her positive thoughts for great scan results! Jim I have lost out on this site. Can't recall passwords etc. Think I have it straight but who knows. I finished chemo Aug. 14, 2011 I had a PET…
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Cat Scan
I had my cat scan two weeks ago. Saw my Oncologist. And they found some mesentery nodes in the midabdomen So they want me to do the cat scan again in 3 months instead of 6 month. So will see. Hope you all are doing well. I have been in remission for three years and had this diagnosis since 04. I am stage 4 , and had it in…
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Oral mucositis
Since the fourth cycle of treatment, I've been battling to keep oral mucositis at bay... ulcers flare up at the tip and margins of the tongue... thanks to the effects from the mega doses of chemo. This typically occurs a week after treatment and goes away temporarily before the next round (so long as it is treated). I also…
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STAY AWAY FROM CHEMOTHERAPY AND RADIATION
What you think about this? Is it TRUE? Any Comment is appreciated http://www.newswithviews.com/Howenstine/james189.htm
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two for two
Hey everyone, had awesome news twice yesterday, had my bi yearly tumor surveillance of my head and neck, and all was clean, received my PET scan results no evidence of lymphoma! Really surprised me the way my neck has been aching lately. Wishing everyone well..... Vinny
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Types of Biopsy's?
Can someone tell me a little about Biopsy's. Is the FNA as accurate as a full removal? If you are very nervous and have quite a few symptoms, what is the best route to go?
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What's the worst scenario of having NLPHL ?
HI, I'll be 46 next month and just got Diagnosed this morning with NLPHL, DR says "to have a cancer this the one you should have". and he set me up with oncologist for next week, and he said the Oncologist will answer all my questions and I can't wait. Can someone help answer mine 'really appreciated'. -What to expect at…
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Lymphoma symptoms / leukemia symptoms??
I noticed that Lymphoma symptoms seem to be very comparable, almost the same really as leukemia symptoms. Did anyone or their doctors also suspect leukimia before they were diagnoced?
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Here I am
Hello Dearhearts, I will make this brief, just in case the site starts to fail. I have had a heck of a time getting through, so mostly I have just read the posts, not logging in. Belated Happy New Year Everyone! I miss you all so much and sure hope that this site gets its' act together soon. I have really needed you all. I…
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Maybe faster way to load Lymphoma Discussion
1. Go to the Lymphoma (Hodgkin and Non-Hodgkin) board under Discussion Boards. 2. Once at the main screen for the lymphoma board, click on "Add to Favorites" near the top of the page. 3. Fill out the form that comes up (title your favorite, etc.) and click on "Save". 4. Now and in the future when you login, click on…
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PET SCAN
Well after being denied for three months, I finally got approved for my Pet Scan, it didn't hurt that I have had a stiff neck for over a month now! lol...... I go Monday the 14th...... fingers and toes crossed! Vinny
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31 years old with Small Lymphocytic Lymphoma. Really need to talk with someone who is in the same si
Hey there, Seamus Riley of Arlington, Va. 31 years old and just found out I have Small Lymphocytic Lymphoma. I know this is normally found in older people so I am trying to find people under 50 who are in the same boat. Posting here is fine or email works great. sriley2@hotmail.com
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Positive thoughts please
Hey everybody Tomorrow is my six month scan since my auto SCT for my diffuse large b cell lymphoma that has since been cleared. My three month scan came back clean and im hoping for the same results with this scan. Ill have the scan at 830 am EST and will get the results fri. This group was and is such a great support…
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Tough times
Hello everyone Going through some tough times. My mom was scheduled for chemo and developed an infection and a blood clot. Things are not going well. She did have chemo today but there is a good chance she won't pull through. This disease is very difficult to fight if you are elderly. Too many complications. Thank you to…
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Joint pain
Anyone else deal with joint pain when it's cold.
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30 months NED after Treanda/Rituxan
I haven't posted in over a year, but wanted to let everyone know that I'm still NED after Treanda/Rituxan treatments 30 months ago. It took almost two years after treatment for the achy/stiff knees and ankles, that made me feel 90 when I'm 55, to finally subside. The SED rate in my blood-work was off the charts for two…
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Has anyone been in remission for Diffuse B for more than 4 yrs then suddenly developed enlarged lymp
Feb. 2008, went thru 8 rounds of R-CHOP, then a total of 26 treatments of Rituxan (2 1/2 yrs after radiation). Have been in remission; however, in mid-Nov., noticed a pea-size lymph node in right groin (always check under arms and groin areas), as last time enlarged nodes were in left arm-pit. Because I always had terrible…
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Scared more this time
I finally received my lab results andI am being told my follicular lymphoma has reaccurance in several places this time around I'm quite scared this time around I had it 11 yrs ago and thank god radiation did the trick but now returning 11 yrs later and worse I'm really scared I refused back then to tell a living sole and…
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Hello from South Carolina
I just found this web site and read some of your stories, which compeled me to register and say hello. I am in remission from stage IV folicular B cell non-Hodgkins Lymphoma. Mine was in my small intestins and required surgery upon diagnosis in August 2011. This was followed by six months of Retuxan and Trenda. I thank the…
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Does anyone have mantle cell Non-Hodgkins Lym
I would love to speak with anyone who has MANTEL CELL Lymphoma. WHat treatments did you do? and when were you diagnosed. My husband was diagnosed sept. 11, 08 and has undergone 5 out of 6 rounds of RCHOP. Now the Pet scan show "no cancer" and yet the doctors say " IT WILL COME BACK" So what treatments are people doing…
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Newbie but not new to cancer.....
Hi everyone, Please forgive me if this topic has been discussed previously....I hope I can get something to help my over active mind. Ha! I tested positive for mono yesterday after I "encouraged" my GP to do the blood test given that I felt like a truck has hit me even though I've not had the flu. I was in bed Sun-Tues,…
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Site Issues - I emailed Greta
FYI: I emailed Greta politely about issues with this site. They are genuinely concerned and are making efforts to improve things. I just wanted to share the message with you and offer my thanks to Greta for her response. (Paste of message) ================================ Hi Jim, It's very disappointing that the site…
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suggestions? thoughts? guesses?
hi everyone thanks in advance for any replies ok here goes, about six years ago i noticed a hard immovable lymph node under my left ear right beside my jaw. it didnt seem to be changing size so the dr and i agreed to try the wait and see approach. fast forward to a few weeks ago when my husband noticed it was now visible,…
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Autologous Stem Cell Trasnplant
My mum (age 56 y) I will need this for here treatment following relapse of grade iiia FNHL ( onc says its simiar to DLBCL). Anyone here knows what to expect in Asct? And after asct? Would appreciate any response. Thanks.
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Question about CLL symptoms
I have just begun chemo (BR) treatment for CLL which was diagnosed after I went in three months ago with an knawing discomfort in my upper abdomen, center, right under my rib cage. I was also experiencing stomach bloating and couldn't (still can't) wear any pants that put any pressure on my abdomen. CT scan discovered…
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Lymphoma ?
Last June I started coughing and lost my appetite. I lost 30 lbs. in about 6 weeks. Violent nausea without feeling sick, just violent wretching. My chest started to burn in the back inside. I sweat at night, not drenching mostly around my neck. I was xrayed 3 different times and had my esophagus and stomach scoped and 2 ct…
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Stage 4 NHL- Aggressive B
Hi just looking for R-Hyper-CVAD fellows out there! I am in round 3. I am 51 in great health except for this cancer crap!! Doing ok. The treatment is rough for 2 weeks and then the third week I feel really good. Just in time to check back into the hospital for 5-7 days. Have had neutropenia fevers that land me back into…
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Fatigue
Does fatigue worsen as you progress through RChop? My father is to receive #4 tomorrow with a follow up pet scan on Friday. It seems he is still losing weight, despite eating pretty decent. Also, his fatigue seems to be worsening. He is good when on prednisone but then once he stops it he crashes. I am nervous about the…