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Dumb question
I read that mumps is one of the diseases which relapse because of Rituxan. Does anyone know of an actual case where that happened? Just hoping for mumps I guess.
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Blood tests
If you don't mind me asking, was anyone's diagnosis lead to originally from an abnormal blood test? What was that abnormality and what type of Limphoma caused it?
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Neupogen self-shots
Hey guys, I was just released from the hosptal from R-ICE #4 and I'm in the mobilization stage. Luckily, my doc has agreed to let me give myself the Neupogen shots at home each day. I've never really done this before, and I practiced on a little flap of skin all day before they released me. (Also-- the lovely nurse…
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Bone Marrow Transplant or Not
My brother has non-hodgkin lymphoma and leukemia. They want him to have a bone marrow transplant and I am being checked to see if I am a match. He doesn't think he wants to go thru with it and his wife really wants him to. I would like to locate some people to either email/talk to him who has walked in his shoes and share…
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Blood clot in neck
My son, age 27, recently successfully completed chemo for Hodgkins Lymphomia. However, as a side effect, he has a lot of swelling in his kneck and shoulder area and a large knot or clot on the side of his neck. Dr's believe it is a blood clot, and have him on Warfarin (blood thinner). We are not sure what caused the clot,…
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Unsure
Hi everyone, frist can I say that I haven't be diagnosed with anything or might not be. I am experiencing some symtoms that I would like to share with you all and maybe get your feed back. I went to the doctor back in November with flu like symtoms and a lump on each side of my neck. She told me to come back after six…
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Same title as many I'm sure, I'm scared...very
I came to a very real realization last night, and I can barely breath from my anxiety since. I decided to type some symptoms I have been having into a search. Every link, link after link, Lymphoma on every one that came up. I have had cysts on my neck since I was a girl, maybe 12. They never changed much, I never worried.…
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Anal Burning
My father has finished 3 rounds of chemotherapy for stage 4 T-cell NHL. Since the initial treatment, he has experienced severe rectal pain and blood with bowel movements. The inside and outside skin has been effected. He has undergone many tests (all negative) and 2 scopes. GI doctor said everything looked better with 2nd…
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long-term radiation survivor
My husband is a 19-year survivor of lymphoma. He was treated in 1994 with both chemo and radiation, not whole-brain but focused. In recent months, we have seen significant deteriorization of walking and cognition. The consensus is radiation damage. Has anyone else run into this? Suggestions for "treatment" or…
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DON'T WANT TO BE A BAD FRIEND
I have tried and tried and tried to be as supporting as possible to one of my closest friends diagnosed recently w/ Hodgkins Lymphoma. It's EXTREMELY draining and I feel really discouraged. Just the other night I was away from the phone and I guess chemo has resulted in some shortness of breath, she lost her breath…
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Zevalin or Bexxar
Has anyone been treated with Zevalin or Bexxar?
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Feeling Insecure and Broken
Hi, I'm a 26-year-old female who was recently diagnosed with HD Stage 2A last October. I have currently completed 4 of 12 ABVD chemo treatments but this last week have experienced a significant amount of hair loss. When first diagnosed, I cut off a few inches of my hair in anticipation of treatment, but now I'm really…
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Final diagnose NLPLHL 3A, treatment starts almost a month from now, is it wise?
Hi All, I like to take your opinion on my final diagnose status, I got a call from DR today that BM biopsy is clean, and I am at stage 3A. I asked DR to have some time to visit with family (parent) living outside united states. The DR said NO problem we can start as soon you get back starting on 2/18 with Heart and lung…
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Enlarged lymph nodes
the otehr day I went to my family doctor for few reasons: * sever night sweats * weakness and being tired at all time * loss of appetite * random itch all over my body she wanted to do a blood test and she checked my neck and groin and she said i'd like to send you for ultrasound. i did the ultrasound and after a week went…
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help my computer is messed up
does anyone knoe how i can fix the favarites bar i lost mine blessings denise
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are we allowed to give phone numbers to speak to CSN members or send emails for support?
I've been trying to find out if members are allowed to contact each other. Never do I see this in messages, so I am assuming no. It would be nice, however, to actually speak to those who are experiencing the same feelings - support is so needed at the critical time. I tried to enter the CSN "Chat", but the page isn't…
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Hi to all.
To all of my friends who know me hi and I have missed you. To those of you I do not know I am glad to meet you and hope you are finding what you need here. To everyone I hope this finds you well and staying strong. I am hanging in there but now am doing the pre followup anxiety. I will go to Rochester tomorrow for…
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Just diagnosed yesterday with "Marginal Zone" Lymphoma
Just diagnosed yesterday. A year ago I started having a burning sensation in both of my eyes. I was treated for dry eyes and then 5 months into treatment I started having double vision. They did a CT scan and found a 2.8 cm tumor behind my left eye. A biopsy was performed and it was confirmed as lymphoma. Yesterday I was…
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Neupogen and Bone Pain
Hi, I am a longtime NHL survivor. I am on my 2nd occurance, last year, and had treatment. However, my wbc's/rbc's/platelets failed to recover last november and I have been on neupogen and epogen for the past year. My bone pain is severe and I take Vicodin ES for the pain. My question is...do others have this pain also or…
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CSN update
I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that has yielded…
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Hodgkins Horsburgh is back
Hello everyone. I am back. I hope everyone is doing the best they can with their given circumstances. I have went through a auto bone marrow transplant. I was in the Hospital for 30 days. I was released the 26th of November. Boy what a process for me. Very hard to do that procedure but it is do able. My body has been…
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Question?
Hello everybody, I have a question to anybody that may know or may have an idea about it...question? I was told by my onc that I was in remission in Nov. at that time my white blood cells were in the normal range. I have been doing Rituxan treatment this past 3 weeks and today I saw my onc, and he mentioned that my wbc…
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Has anyone experienced an "IMMUNE REACTION" (ENLARGED NODES IN GROIN) after 4 yrs. of remission for
Feb. 2008, went thru 8 rounds of R-CHOP, then a total of 26 treatments of Rituxan (2 1/2 yrs after radiation). Have been in remission; however, in mid-Nov., noticed a pea-size lymph node in right groin (always check under arms and groin areas), as last time enlarged nodes were in left arm-pit. Because I always had terrible…
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Any advice on Bone Morrow in office?
Hi, I am shedulled for Bone Morrow, Not sure if it's the Asperation type or the biopsy or what the different. All i know the DR said it will be done in the office with a littile uncomfort and prusser. Ant suggestion on how to go through itwith less pain possiable?
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FIRST DAYS OF HD-- FINDING OUT, PRE TREATMENT, AND FIRST ROUND CHEMO
PLEASE HELP ME HELP MY FRIEND....... My friend was diagnosed 2 weeks ago after finding this lump under her arm, at first we thought it was just a bump....then it got bigger. After dealing with it for a week and a half she went to the hospital, completed the blood test, then received the news. She was EXTREMELY emotional…
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New to site and just rambling I guess...
Hello, my name is Amanda. I am 23 years old and just recently diagnosed with an aggressive t-cell/b-cell NHLymphoma. I am struggling with what to write, or how to even navigate this site. In all honestly I have no clue what I'm doing. All I know is that it no longer helps just trying to talk to my family and friends. They…
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Over active sympathetic nervous system???
I'm hoping someone can help. I have been cancer free for 1 year now and I have been getting very sick anytime I over exert myself ie.shaky, nauseous, vomiting, light headed. Etc. I went to my onc and she didn't know what was going on so I just went to my primary care. He told me he believes it's a sympathetic nervous…
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My blog about beating HL
http://langfordbooks.com/2013/01/cancer-and-the-orlando-magic/ I needed something to hold on to and a magical season from my favorite team was just what I needed.
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Depressing
I am going thru a period of depression. I have new lumps and increased leg pains and headaches. Lumps are small and may well be from something other than lymphoma so I am waiting till my next infusion in January to get it checked out. My neurologist wants to do a spinal tap to see if lymphoma may have infiltrated my spinal…
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share with me?
How many folks have a Facebook page? I have fighting this cancer battle for quite some time. (my story is on my profile) and of all this time, I have done a poor job at reaching out to others affected by my same disease. Stupid, right? I have an over-all positve outlook, but I always seem to fall into this "no one gets it"…