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Lymphoma (Hodgkin and Non-Hodgkin)

Still waiting
Hello Dearhearts Well, I am still waiting to hear about the results from last weeks scan. This is hard, not knowing anything. I am used to receiving my results fairly quickly. But this new doc, well I just have to wait. This has been such a hard week. I am hoping that next week will be better. Between Thanksgiving, the…
mabey pnumonia again
i am having symtoms low grade fevor that comes and go shortness of breath lungs ache. i see my onc tommrowand then they will decide if i need to be transported back to wvu i really need your prayers. and i think my platelets are dropping again i am getting the same little red dots under my skin like befor. blessings denise
First Haircut in 16 months!!!
Hi All Wanted to share some encouraging news! June 12 2011 I was diagnosed with Diffuse large b Cell lymphoma. Did 9 rounds of chemo and then ultimately had to undergo an auto stem cell transplant on June 11 2012. Today I am cancer free and for the first time in 16 months I had my first haircut! I know that its small and…
interferon vs chemo in lymphomatoid granulomatosis
about 8 months ago my 28 yr old husband was diagnosed (after about a yr of misdiagnosis)with lymphomatoid granulomatosis grade 3.he has already endured one 6 month course of chemo ( r chop)with minimal results.his dr. changed his chemo regiment to r-ice. only recently have i found out about the use of interferon as…
Decadron and loss of taste and smell
Anyone else experience this ?
Cancer and Relatives
Re: Cancer and Relatives Just wondering whether anyone has experienced this. I have close relatives who would help me in a bad situation. However, they always seem to "hang tough" when it comes to illness; play it down. One is busy with family and children; the others retired and busy. They do not live nearby and we do not…
HELP-friend in need
I, personally, have not, nor do I have cancer. My best friend in California was diagnosed last week with stage 4 lymphoma. I'm not sure if it's Hodgkins or non. He has 5 tumors, one on his kidney, one on his liver, 3 in the pelvic region. He is currently at UC Davis hospital undergoing aggressive chemotherapy. I imagine it…
Dehydration
My mom is in her third week of her first treatment. Yesterday when she went for her regular appointment she was very dehydrated. They gave her fluids and today she will need to receive more. Is anyone else experiencing this? She has also had to take a strong Antibiotic called ZoVax for a VRE infection which they want gone…
SIADH Syndrome of Inappropriate Antidiuretic Hormone Secretion
My mom has been suffering for the last week with dehydradion and low sodium. It got to a point where the cancer center was giving her too many fluids to raise her sodium and then when they gave her a dieretic, her sodium would drop. She became very tired and disoriented so off to the ER we went. After a few days of trying…
PET Scan
I finished my RCHOP chemotherapy (six treatments) on October 30th. Now I am set to have a PET scan, MUGA heart exam, and echocardiogram. I saw my oncologist on November 15th and he wants the PET scan four weeks from the time I saw him. The scan is scheduled for December 18th and the other two exams for December 20th. The…
Had 12 rounds of radiation
How long before I get my taste buds back does anybody know?
ANYONE had stem cell transplant who ended up with disease in different location during/post stem cel
Diagnosed with diffuse large b cell non hodgkins lymphoma... Nothing in lungs or chest area, only in abdominal prior to sct... Post stem cell ~8th day went back with low fever what they thought to be pneumonia was finally diagnosed with same lymphoma in chest and lungs few days later... Passed away less than a month post…
My Onc rocks
Instead of waiting until Monday for our appointment she decided to call me today with yesterday's pet scan results. She told me there is no uptake in any of the tumor sights so I asked "does that mean complete metabolic response?" and she said yes. Bless her heart she felt the need to call me before thanksgiving " so we…
last PET scan (i hope)
i had my last chemo infusion on wednesday and my last Neulasta shot today. now i have to go through chemo-hell one more time, and then on Dec. 13 i have the PET scan that will determine my fate--if i'm clear of lymphoma, then i just have to check in periodically to make sure it's gone. if there's still a little bit left,…
Life after treatment
I would really like to chat with someone that has had Hodgkins Lymphoma. I'm a 5 year survivor and my family and friends whom mean so much to me can't relate to what I've been through and continue to go through. I have so many questions and I would like to chat with someone who knows what I've been through and continue to…
Rituxan with follicular lymphoma
Hi, my name is Lisa, I am 27 and was diagnosed with stage 4 FNHL February 2011. I received 8 treatments of r-cvp and completed treatment September. I am currently in remission and am still receiving ritux every two months. Since I finished treatment in September I have been experiencing other health issues in the ovaries…
Sloan Kettering Second Opinion
Yesterday I went to my second opinion, Dr. Carol Portlock, a lymphoma specialist, at Sloan Kettering. My husband and I didn't expect that she would do anything too different from my local oncologist at Yale, but in anticipation of the appointment, I postponed the starting of rituxin and prednisone which my Yale oncologist…
Labs after RCHOP
My father just had his first treatment with RCHOP for large b cell lymphoma. He had the neulasta shot and his white count dropped to one. he ended spending 3 days in the hospital as he was dehydrated despite large amounts of water and gatorade. Is this something that I can expect with his next treatment? Day 6-8 following…
can a cancer center refuse you treatment?
Hey everyone. My name is Jeffrey and I have been recently diagnosed with diffuse large b cell lymphoma. In New Hampshire where I received my first 2 infusions of R-CHOP. The place where I was residing in went to foreclosure and I had to move to Florida. My question is, is that the center in NH I was going to was working…
Thanksgiving at Mayo
Hi all! Hope you all had a good Thanksgiving. I was up at Mayo with my husband. He decided to have his second round of OFAR so we went ahead with that. This round was a little rougher on him but he is doing OK. We need his spleen to go down so we are sending strong vibes to all the drugs to make this work. I guess at the…
Belated Thanksgiving Wishes
Hello Dearhearts, I truly hope each and every one had a warm and loving Thanksgiving. I did my best to try and enjoy myself. It was very hard. My youngest daughter and her boyfriend came over, so I cooked for the four of us. It was a difficult day without my mom. My other daughters were elsewhere as were my grands. So all…
ANYONE had stem cell transplant who ended up with disease in different location during/post stem cel
Diagnosed with diffuse large b cell non hodgkins lymphoma... Nothing in lungs or chest area, only in abdominal prior to sct... Post stem cell ~8th day went back with low fever what they thought to be pneumonia was finally diagnosed with same lymphoma in chest and lungs few days later... Passed away less than a month post…
Depression and Anger
I am a 24-year-old Hodgkin's lymphoma stage 4b survivor. I just finished my treatments/stem cell transplant on October 10, 2012. It's been a month since I left the hospital after my transplant and all of a sudden I am feeling very depressed, anxious and just angry. I was pretty fine throughout my whole treatment (which…
Burping
My father is day 15 out from his first rchop treatment. He is exhausted but in no pain and has had no nausea. Yesterday he started with uncontrollable diarrhea a d very foul burps. Is this normal for this type of chemo? Any ideas how to control either
First Post - Advice
I'm sorry this is so long. My mom recently had a biopsy on a rapidly growing lump she discovered on her back (2-3 months ago it was the size of a pimple and now it’s about 5 cm). Earlier this week, she returned to hear the results but was not given much in the way of answers. Instead, the doctor made an appointment for her…
Lymphoma Transformation
Hi everyone. Have any of you had FNHL that transformed into aggressive B cell? If so what were the symptoms? Did it happen while you were undergoing treatment or post treatment? Do you know if that means that the FNHL is gone or do you have both? The aggressive B cell is considered curable while the FNHL is not. One of my…
This Thanksgiving
I wanted to stop by to wish everyone a blessed Thanksgiving. God Bless all of you. You are never far from my thoughts and heart. Hugs and love from me to all. Love Maggie
more good news
i seen my transplant onc today and he said everything looks good, im really happy with my blood counts before the transplant they would not come up, even with a viral infection that is making me feel compleatly draned i still am glad i went thru with it. i hope everyone is good blessings denise
Happy Day!
Hi my friends, Today I am thankful for all of you for your caring support and understanding during my continuing journey with this dreaded disease. Have a Blessed Thanksgiving. We all don't need one day a year do we? Being grateful each and every day for the sunrise and all the things each day my bring! I pray that you…
Thinking of you Shar
Hey Sharlene, only 3 more after today (woohoo) and I'm only a week behind. I hope the neupogen is getting the job done and keeping you on schedule, I got stepped up to 4 shots now for the duration. I'm off to get a pet scan today so I'll keep everyone posted on the results. I sure hope Santa gives us our lives back for…

Lymphoma (Hodgkin and Non-Hodgkin)

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