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Aaron, haven't seen you online . . .
Hey Aaron, I haven't seen you on line for a while. I hope you are doing okay. When do you have your next treatment? Tomorrow or Wednesday? I'm down to one left and so thankful! The last couple have been getting a bit tougher. I've been taking my anti-nausea meds, but still have a bit of an icky feeling until about day 5 or…
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pnumonla again
well i have pnumonia again this time was the worst i had to bagged6 times and i was on the vent for 9 days pray for me denise
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Migranes / neuropathy
Hi all, New to this forum, I was wondering if there are any folks out there who had ABVD chemotherapy who suffer from migraines, neuropathy or both. It has been over 18 years since I had my treatment. About two weeks after the last treatment, I developed a ‘shimmering’ in my field of vision. I had a week or two of terrible…
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CSN - planned outage tomorrow night
CSN will be down from 9 pm Eastern Time Thursday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff
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Now on Treanda
Hope it works. Been thru the ringer. Not much of a typer :)
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Heartbroken
Well my friends, my husband will not win his fight against cancer. I am utterly hearbroken. The lymphoma is just so aggressive it is breaking through the chemo. Will try to have a nice holiday season. I wish you all season greetings and all the best in 2013! Hugs - Katie
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Diarrhea
Any tips on how to control this? My father is at the point where he is having accidents despite several doses of Imodium. He is very Discouraged now. Any tips or advice would be greatly appreciated
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Rituxan scheduled
I had an appt with my Hemotologist Onc. today and he gave me two options. I could do watchful waiting or 4 wks of Rituxan once each wk. He said if I wanted to wait to decide until the first of the year that would be fine. My Dr. is very young so I asked him what he would recommend if I was his mother, and he said Rituxan.…
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Vomiting
My father is 10 days out from his second cycle of rchop. He has started to vomit small amounts but has no nausea. he says he gets a foul taste in his mouth then he just vomits. has this ever happened to anyone? I am not sure whether to call his doctor or not. He isn't drinking a lot because he is afraid he will get sick
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Patient advice wanted for acute t-cell lymphoma
Hi, my 26-yr old grandson was recently diagnosed with acute T-cell Lymphoma. July was the date of diagnosis. He has been having lots of seizures, and can't hold food down. Both before being treated with chemo, he throws up food. He is very weak. He is at the Thunder Bay Regional cancer center. I heard from a friend here in…
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Remission
Hello Everyone, Well I saw my Onc today and he gave me the most wonderful news ever! I'm in REMISSION!!!! YAHOOOOO Thank God, he is giving me more time with my kids and hubby! I also want to give thanks to all of you that have giving me your support! I am still to finish two more rounds of Rituxan but hey I can difinetly…
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Dogs in love
This is such a cute picture I couldn't help but put it up. My neighbor sent it to me. My Sam is a blueheeler and Kota is my neighbors sweetheart lab mix. Sam LOVES Kota as you can see. A friend of mine says Sam is glowing LOL We have 2 heelers (boys) and a border collie retriever mix Gidget. The baby heeler is Brody. Let…
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Neupogen
Hi everyone, I'm set to start Neupogen shots on Friday and I was just wondering for those of you who have done them, how bad are the aches and pains from it? Shar
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Rash with NHL??
Does anyone know about a rash that might be associated with Rituxan and/or with marginal zone NHL? Or maybe prednisone? I was outside enjoying the nice weather the other day and wearing a racer back tank top. That evening I noticed what looked like some sunburn on my shoulders and thought it was odd, since I'd had on…
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Kidney damage from CT scan injected contrast, study on drug to protect kidneys
I now have mild kidney damage on top of everything else (fnhl, BC x2) and no family history of kidney problems so I went looking and found that CT scan contrast can damage your kidneys. I have had 9 full body scans in the last 32 months which means contrast injected twice each time, my GFR has been slowly falling and is…
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Still waiting
Hello Dearhearts Well, I am still waiting to hear about the results from last weeks scan. This is hard, not knowing anything. I am used to receiving my results fairly quickly. But this new doc, well I just have to wait. This has been such a hard week. I am hoping that next week will be better. Between Thanksgiving, the…
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mabey pnumonia again
i am having symtoms low grade fevor that comes and go shortness of breath lungs ache. i see my onc tommrowand then they will decide if i need to be transported back to wvu i really need your prayers. and i think my platelets are dropping again i am getting the same little red dots under my skin like befor. blessings denise
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First Haircut in 16 months!!!
Hi All Wanted to share some encouraging news! June 12 2011 I was diagnosed with Diffuse large b Cell lymphoma. Did 9 rounds of chemo and then ultimately had to undergo an auto stem cell transplant on June 11 2012. Today I am cancer free and for the first time in 16 months I had my first haircut! I know that its small and…
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interferon vs chemo in lymphomatoid granulomatosis
about 8 months ago my 28 yr old husband was diagnosed (after about a yr of misdiagnosis)with lymphomatoid granulomatosis grade 3.he has already endured one 6 month course of chemo ( r chop)with minimal results.his dr. changed his chemo regiment to r-ice. only recently have i found out about the use of interferon as…
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Decadron and loss of taste and smell
Anyone else experience this ?
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Cancer and Relatives
Re: Cancer and Relatives Just wondering whether anyone has experienced this. I have close relatives who would help me in a bad situation. However, they always seem to "hang tough" when it comes to illness; play it down. One is busy with family and children; the others retired and busy. They do not live nearby and we do not…
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HELP-friend in need
I, personally, have not, nor do I have cancer. My best friend in California was diagnosed last week with stage 4 lymphoma. I'm not sure if it's Hodgkins or non. He has 5 tumors, one on his kidney, one on his liver, 3 in the pelvic region. He is currently at UC Davis hospital undergoing aggressive chemotherapy. I imagine it…
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Dehydration
My mom is in her third week of her first treatment. Yesterday when she went for her regular appointment she was very dehydrated. They gave her fluids and today she will need to receive more. Is anyone else experiencing this? She has also had to take a strong Antibiotic called ZoVax for a VRE infection which they want gone…
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SIADH Syndrome of Inappropriate Antidiuretic Hormone Secretion
My mom has been suffering for the last week with dehydradion and low sodium. It got to a point where the cancer center was giving her too many fluids to raise her sodium and then when they gave her a dieretic, her sodium would drop. She became very tired and disoriented so off to the ER we went. After a few days of trying…
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PET Scan
I finished my RCHOP chemotherapy (six treatments) on October 30th. Now I am set to have a PET scan, MUGA heart exam, and echocardiogram. I saw my oncologist on November 15th and he wants the PET scan four weeks from the time I saw him. The scan is scheduled for December 18th and the other two exams for December 20th. The…
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Had 12 rounds of radiation
How long before I get my taste buds back does anybody know?
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ANYONE had stem cell transplant who ended up with disease in different location during/post stem cel
Diagnosed with diffuse large b cell non hodgkins lymphoma... Nothing in lungs or chest area, only in abdominal prior to sct... Post stem cell ~8th day went back with low fever what they thought to be pneumonia was finally diagnosed with same lymphoma in chest and lungs few days later... Passed away less than a month post…
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My Onc rocks
Instead of waiting until Monday for our appointment she decided to call me today with yesterday's pet scan results. She told me there is no uptake in any of the tumor sights so I asked "does that mean complete metabolic response?" and she said yes. Bless her heart she felt the need to call me before thanksgiving " so we…
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last PET scan (i hope)
i had my last chemo infusion on wednesday and my last Neulasta shot today. now i have to go through chemo-hell one more time, and then on Dec. 13 i have the PET scan that will determine my fate--if i'm clear of lymphoma, then i just have to check in periodically to make sure it's gone. if there's still a little bit left,…
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Life after treatment
I would really like to chat with someone that has had Hodgkins Lymphoma. I'm a 5 year survivor and my family and friends whom mean so much to me can't relate to what I've been through and continue to go through. I have so many questions and I would like to chat with someone who knows what I've been through and continue to…