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Patient advice wanted for acute t-cell lymphoma
Hi, my 26-yr old grandson was recently diagnosed with acute T-cell Lymphoma. July was the date of diagnosis. He has been having lots of seizures, and can't hold food down. Both before being treated with chemo, he throws up food. He is very weak. He is at the Thunder Bay Regional cancer center. I heard from a friend here in…
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Remission
Hello Everyone, Well I saw my Onc today and he gave me the most wonderful news ever! I'm in REMISSION!!!! YAHOOOOO Thank God, he is giving me more time with my kids and hubby! I also want to give thanks to all of you that have giving me your support! I am still to finish two more rounds of Rituxan but hey I can difinetly…
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Dogs in love
This is such a cute picture I couldn't help but put it up. My neighbor sent it to me. My Sam is a blueheeler and Kota is my neighbors sweetheart lab mix. Sam LOVES Kota as you can see. A friend of mine says Sam is glowing LOL We have 2 heelers (boys) and a border collie retriever mix Gidget. The baby heeler is Brody. Let…
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Neupogen
Hi everyone, I'm set to start Neupogen shots on Friday and I was just wondering for those of you who have done them, how bad are the aches and pains from it? Shar
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Rash with NHL??
Does anyone know about a rash that might be associated with Rituxan and/or with marginal zone NHL? Or maybe prednisone? I was outside enjoying the nice weather the other day and wearing a racer back tank top. That evening I noticed what looked like some sunburn on my shoulders and thought it was odd, since I'd had on…
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Kidney damage from CT scan injected contrast, study on drug to protect kidneys
I now have mild kidney damage on top of everything else (fnhl, BC x2) and no family history of kidney problems so I went looking and found that CT scan contrast can damage your kidneys. I have had 9 full body scans in the last 32 months which means contrast injected twice each time, my GFR has been slowly falling and is…
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Still waiting
Hello Dearhearts Well, I am still waiting to hear about the results from last weeks scan. This is hard, not knowing anything. I am used to receiving my results fairly quickly. But this new doc, well I just have to wait. This has been such a hard week. I am hoping that next week will be better. Between Thanksgiving, the…
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mabey pnumonia again
i am having symtoms low grade fevor that comes and go shortness of breath lungs ache. i see my onc tommrowand then they will decide if i need to be transported back to wvu i really need your prayers. and i think my platelets are dropping again i am getting the same little red dots under my skin like befor. blessings denise
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First Haircut in 16 months!!!
Hi All Wanted to share some encouraging news! June 12 2011 I was diagnosed with Diffuse large b Cell lymphoma. Did 9 rounds of chemo and then ultimately had to undergo an auto stem cell transplant on June 11 2012. Today I am cancer free and for the first time in 16 months I had my first haircut! I know that its small and…
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interferon vs chemo in lymphomatoid granulomatosis
about 8 months ago my 28 yr old husband was diagnosed (after about a yr of misdiagnosis)with lymphomatoid granulomatosis grade 3.he has already endured one 6 month course of chemo ( r chop)with minimal results.his dr. changed his chemo regiment to r-ice. only recently have i found out about the use of interferon as…
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Decadron and loss of taste and smell
Anyone else experience this ?
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Cancer and Relatives
Re: Cancer and Relatives Just wondering whether anyone has experienced this. I have close relatives who would help me in a bad situation. However, they always seem to "hang tough" when it comes to illness; play it down. One is busy with family and children; the others retired and busy. They do not live nearby and we do not…
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HELP-friend in need
I, personally, have not, nor do I have cancer. My best friend in California was diagnosed last week with stage 4 lymphoma. I'm not sure if it's Hodgkins or non. He has 5 tumors, one on his kidney, one on his liver, 3 in the pelvic region. He is currently at UC Davis hospital undergoing aggressive chemotherapy. I imagine it…
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Dehydration
My mom is in her third week of her first treatment. Yesterday when she went for her regular appointment she was very dehydrated. They gave her fluids and today she will need to receive more. Is anyone else experiencing this? She has also had to take a strong Antibiotic called ZoVax for a VRE infection which they want gone…
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SIADH Syndrome of Inappropriate Antidiuretic Hormone Secretion
My mom has been suffering for the last week with dehydradion and low sodium. It got to a point where the cancer center was giving her too many fluids to raise her sodium and then when they gave her a dieretic, her sodium would drop. She became very tired and disoriented so off to the ER we went. After a few days of trying…
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PET Scan
I finished my RCHOP chemotherapy (six treatments) on October 30th. Now I am set to have a PET scan, MUGA heart exam, and echocardiogram. I saw my oncologist on November 15th and he wants the PET scan four weeks from the time I saw him. The scan is scheduled for December 18th and the other two exams for December 20th. The…
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Had 12 rounds of radiation
How long before I get my taste buds back does anybody know?
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ANYONE had stem cell transplant who ended up with disease in different location during/post stem cel
Diagnosed with diffuse large b cell non hodgkins lymphoma... Nothing in lungs or chest area, only in abdominal prior to sct... Post stem cell ~8th day went back with low fever what they thought to be pneumonia was finally diagnosed with same lymphoma in chest and lungs few days later... Passed away less than a month post…
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My Onc rocks
Instead of waiting until Monday for our appointment she decided to call me today with yesterday's pet scan results. She told me there is no uptake in any of the tumor sights so I asked "does that mean complete metabolic response?" and she said yes. Bless her heart she felt the need to call me before thanksgiving " so we…
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last PET scan (i hope)
i had my last chemo infusion on wednesday and my last Neulasta shot today. now i have to go through chemo-hell one more time, and then on Dec. 13 i have the PET scan that will determine my fate--if i'm clear of lymphoma, then i just have to check in periodically to make sure it's gone. if there's still a little bit left,…
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Life after treatment
I would really like to chat with someone that has had Hodgkins Lymphoma. I'm a 5 year survivor and my family and friends whom mean so much to me can't relate to what I've been through and continue to go through. I have so many questions and I would like to chat with someone who knows what I've been through and continue to…
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Rituxan with follicular lymphoma
Hi, my name is Lisa, I am 27 and was diagnosed with stage 4 FNHL February 2011. I received 8 treatments of r-cvp and completed treatment September. I am currently in remission and am still receiving ritux every two months. Since I finished treatment in September I have been experiencing other health issues in the ovaries…
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Sloan Kettering Second Opinion
Yesterday I went to my second opinion, Dr. Carol Portlock, a lymphoma specialist, at Sloan Kettering. My husband and I didn't expect that she would do anything too different from my local oncologist at Yale, but in anticipation of the appointment, I postponed the starting of rituxin and prednisone which my Yale oncologist…
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Labs after RCHOP
My father just had his first treatment with RCHOP for large b cell lymphoma. He had the neulasta shot and his white count dropped to one. he ended spending 3 days in the hospital as he was dehydrated despite large amounts of water and gatorade. Is this something that I can expect with his next treatment? Day 6-8 following…
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can a cancer center refuse you treatment?
Hey everyone. My name is Jeffrey and I have been recently diagnosed with diffuse large b cell lymphoma. In New Hampshire where I received my first 2 infusions of R-CHOP. The place where I was residing in went to foreclosure and I had to move to Florida. My question is, is that the center in NH I was going to was working…
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Thanksgiving at Mayo
Hi all! Hope you all had a good Thanksgiving. I was up at Mayo with my husband. He decided to have his second round of OFAR so we went ahead with that. This round was a little rougher on him but he is doing OK. We need his spleen to go down so we are sending strong vibes to all the drugs to make this work. I guess at the…
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Belated Thanksgiving Wishes
Hello Dearhearts, I truly hope each and every one had a warm and loving Thanksgiving. I did my best to try and enjoy myself. It was very hard. My youngest daughter and her boyfriend came over, so I cooked for the four of us. It was a difficult day without my mom. My other daughters were elsewhere as were my grands. So all…
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ANYONE had stem cell transplant who ended up with disease in different location during/post stem cel
Diagnosed with diffuse large b cell non hodgkins lymphoma... Nothing in lungs or chest area, only in abdominal prior to sct... Post stem cell ~8th day went back with low fever what they thought to be pneumonia was finally diagnosed with same lymphoma in chest and lungs few days later... Passed away less than a month post…
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Depression and Anger
I am a 24-year-old Hodgkin's lymphoma stage 4b survivor. I just finished my treatments/stem cell transplant on October 10, 2012. It's been a month since I left the hospital after my transplant and all of a sudden I am feeling very depressed, anxious and just angry. I was pretty fine throughout my whole treatment (which…
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Burping
My father is day 15 out from his first rchop treatment. He is exhausted but in no pain and has had no nausea. Yesterday he started with uncontrollable diarrhea a d very foul burps. Is this normal for this type of chemo? Any ideas how to control either