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Lymphoma (Hodgkin and Non-Hodgkin)

White blood cells
Hi everyone, I was refractory to R-CHOP, and now am working towards R-ICE salvage therapy and an auto transplant. However, I'm in this dubious holding pattern that is keeping me from starting my R-ICE. My white blood cell counts are too low! The strangest thing is, I haven't had chemo since September. I just had my…
good report
i seen my onc that did the transplant today, he said i looked better than he thought i would he cut down 1 on the prednisone, and said i will feel weak for a while my blood counts are coming up good, my platelets that wouldnt come up over 23 is now 101 white count is good a big warm hug for all the prayers hugs and well…
Dreams
Does anyone taking long-term Rituxan maintenance have trouble with dreams? I dream of snakes most every night. They are not scary dreams but I am wondering if the Rituxan can stimulate such dreams. I am also using Cymbalta so it could be that.
CLL and follicular and clueless
Wow I am clueless as to what I have and what might be in my future. Jan 2012 felt sick went to emergency room was sent home told I had cancer or lymphoma (or?)and I should contact my GP. After weekS of blood work and scans (no pet scan) I was sent to oncologist who told me with a simple blood test and 15 min later I had…
Stem cell transplant
So scared about my appointment on Tuesday with my appt. with the specialists at the James Cancer Center. My family and close friends are pushing me to go ahead with the transplant,but it's the biggest decision I will ever make in my lifetime. As you can see it's very late, but blessed sleep just wont' come, mind is racing.…
Aaron, how are you doing?
Hey Aaron, Haven't seen you post for a bit. How are things going? Did you get chemo last Tuesday as you thought?
Auto cell transplant
Saw my oncologist yesterday and while my PET scan showed no cancer in my vital organs, found hot spots on my right hip. I have been having pain but thought it was from the two biospies I had earlier. He wants me to meet with drs. at the James Center at OSU about an auto cell transplant. As I stated earlier I have…
Hi CathyP
Dear CathyP, I am pasting a copy of a message I sent you. There was some problems replying to your message. Therefore, I am re-sending my response. Thank you so much for passing on your knowledge to me. I would never have thought about a fellowhip trained doctor. Please believe me, I am not jumping into any surgery. I live…
Anthem refuses to pay for MRI reading
Have stage 4 cancer and had a MRI in July, just received a bill for $407.00 because Anthem denied claim 2 times. They will not pay for the reading of the MRI. Have another one this Friday, and now afraid that this will not be paid either. Has anyone else encountered this problem.
Help
Hodkins Lymphoma Stage 4. I've been told I've relapsed and I'll be on a chemo to control it but it's in curable. SGN stopped working
Holidays Approaching - Recipe Sharing ☺
Hello everyone. It's that time of year again and the holidays are fast approaching. Last year I set up a website to allow us to share recipes and it is still around but not much activity in awhile :) . Many of you contributed recipes and maybe have some new items you would like to add. Also, we have lots of new folks on…
Mantle Cell Lymphoma Support for Loved Ones and/or Spouses/Partners.
Hi, if you would like to join a Facebook Support Group for Loved Ones of... and/or Spouses/Partners of those afflicted with MCL, please contact me (by message) on Facebook at ‘Mcl Lymphoma Spouses.’ To join our groups (one is Caregivers and Loved Ones, the other is specifically for Spouses/Partners of those with MCL) you…
"HAPPY HALLOWEEN"!
Hi guys, I posted a new picture on my Expression page of our sweet Lizzy in her Halloween costume. This kid is a trip and keeps me laughing constantly! Have a great day everyone....don't let the witches and goblins get you tonight! :) Love ya...Sue
Lisha...Where are you????
Hi Lisha, I called your house and left a message, but still no word from you. I am hoping your silence is due to you feeling better and that you are out and about doing more activities. We miss not hearing from you! I will call again this weekend and hopefully catch you at home. Take care my dear and know you are in all of…
Hurricane Sandy
For those of you in the path of Sandy, please keep safe. We expect rain here but we are south of the main impact so don't expect a lot of trouble although we are getting snow in the mountains/higher elevations (western NC). Hopefully, Sandy will be kind. Sandy Updates (ABC) Hugs, Jim
Methotrexate Injections?
I finished my 6 rounds of R-Chop for my large B-Cell Non-Hodgkin lymphoma. The Pet scan showed all clear though the doctor said sometimes it can't show if every single lymphoma cell is gone. Oncologist is setting me up for a set of 4 shots (1 a week) of Intrathecal Methotrexate (type of chemo) which will be shot into my…
what to do?
Hello cancer family, I'm waiting patiently for my second opinion next Friday, and my oncologist seems to think it's okay to wait for the second opinion before starting up chemo again. (though he sounds nervous) Pesky "B symptoms" have been starting to crop up.. mild fever for about a week, night sweats.. not so sure if I'm…
Husband's Auto Transplant
Hi guys...my husband is scheduled to start BEAM on Thursday for his auto transplant. I am nervous but excited to have reached this point. He is still feeling weak from the stem cell collection last week. I hope it is normal that his blood counts have not recovered yet. I know his body has been through a lot. He had a PET…
hi everyone
im so so i am so slow at getting back to everyone, my hands shake so bad now i can ha it makes sensfadly type, its like they flap. if it makes sense it feels like i can get up and do more but i feel weaker. has anyone ever had a bone marrow transplant, my memory is even worse. blessings denise
LISHA
Lisha, are you our there???? I see you haven't been online. Is everything OK??? First it was Denise, now you. Please just post a few words. Let us know you're OK PLEASE. Very worried and concerned. Sue, I know you;re in touch with Lisha, is she OK?????? Maggie
Praise God- Cancer's in remission after bone marrow test
It's been 7 months now with no chemo and I'm doing well thank God. Blood count is up and am walking without walker and getting stronger each day. I have nothing but praise for my oncologist and his RN wife who took me step by step with 6 rounds of chemo and two months of aftercare chemo. I'm going to be 71 next month and…
Update on SGN 35
It is now an approved treatment for recurrent Hodkins Lymphoma. Now me since I'm on clinical I'm thinking they need to follow protocol. Got a call from ONC at Kaiser, who I'm changing , that I'm gettin treatment at City of Hope then follow up at Kaiser, since it's now approved I'm praying this is a work around.
im so
so gghad to wait for home nursing care to help me next week i have to help fiHT IT I WILL I I HAVE TO TAKEDENISE TTXHE E
Light the Night
Hey everybody Tomorrow I will be partaking in the Leukemia/Lymphoma society's Light the Night Charity. This charity is to provide a number of sources of aide for those going through these diseases. I am so blessed to say that I am now a survivor of lymphoma but I swore that if I could beat this disease I would pay forward…
Bone Marrow Biopsy
On Wednesday I had my BMB with sedation. I was given Propofol and I was completley out. I am so glad to have that over with. I was just a little sore for one day, not to bad at all. I will learn the results and also treatment plan at my next appt. Nov 1. From what the doc has said to me so far I think the plan will be…
NHL Large B-cell--I want feedback on bone marrow transplants!
The scoop: Diagnosed with Diffuse large B-cell aggressive NHL with bulky tumor in lung in May. Received 6 treatments of CHOP-R. Lymphoma responded very well at first. Now the follow up PET scan on Oct. 22 showed greatly increased cancer activity in part of original tumor. Had that area biopsied on Oct. 25 to verify that…
Newbie with Concerns UPDATE-1?
About a month ago I noticed some sensitive lumps in my armpits. They didn't go away so I went to the doc and was put on antibiotics for a week and now I did blood work and go for a ultra sound next week. I've noticed more sensitive lumps appear lower in my armpits and also a lump raise on the right side of my neck. I also…
How are you doing Aaron?
Hey Aaron, How are things going? Did you go for round 7 yesterday? I had quite the day. My pick line wouldn't return blood so I had to get Altaplased again. That took an hour. I was scheduled for chemo at 10. Got a call at one that my count was too low again, but doctor said I could to Neupogen and so got chemo at about…
Big Picture
Prior to getting lymphoma I had never been in the hospital and in fact tried to avoid Doctors. I am a bit naive about how to handle this jumble of Drs., symptoms and treatments. The big picture is missing. I need what we would call in my profession a good "systems engineer" to find exactly what is going on. I went to MD…
Primary bone lymphoma?
Hi folks, I'm one of those with early symptoms that most likely will turn out to be something benign and simple. I'm also one of those who hasn't felt these symptoms before and am scared. So I wonder if anyone here has any experience with this rare form of lymphoma. It mainly hits men in their 40's from what I've read. I'm…

Lymphoma (Hodgkin and Non-Hodgkin)

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