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Thinking of you Shar
Hey Sharlene, only 3 more after today (woohoo) and I'm only a week behind. I hope the neupogen is getting the job done and keeping you on schedule, I got stepped up to 4 shots now for the duration. I'm off to get a pet scan today so I'll keep everyone posted on the results. I sure hope Santa gives us our lives back for…
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Return to Work Problems: Disability & FMLA
I am presently trying to work with my oncologist and my work company on a time BOTH can agree when I can go back to work. As of now, I am taking spinal shots (which is my last treatment circuit - PET was clear) until December that land me in the pain clinic at times. Company policy is 26 weeks disability. HOWEVER, the…
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"YEAH" for John!!
Hi guys, Got an e-mail from John saying his scan came back totally CLEAR! This is his first scan since finishing his Rituxan maint. His son and grandaughter are visiting for the holiday so I'm sure he's busy enjoying their company, so I'm posting the good news without his permission. I'm thrilled everything is clear and…
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Biting the bullet
Hello everyone, I saw my orthopedic doctor on Monday Nov 12. My right hip has gotten worse. Not unexpected. Anyway, I am having hip surgery in Feb 2013. My good friend will be staying at my home when I have surgery and go for rehab. She loves animals and I know she will take very good care of my 2 cats, Portia and Lucien.…
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is it a good sign?
Hi, I am new to all of this. I found a lump in my groin area about 2 months ago and finally went to the dr who refered me to a surgeon. They are going to take out my affected lymph nodes and test them for lymphoma, but he said they had little vascular flow. Does anyone know if that is a good sign or does it matter?
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Missing you / update
Hi All, First let me say that I have really missed you and your wonderful supportive ways. I have tried to read the posts from time to time, but mostly I am just too tired. I'll try to bring you up to speed on all the different things going on right now. First, I went to the cardiologist about the chest pain. I had another…
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Intervascular White Cell Lymphoma
My mom was recently diagnosed with Inervascular White Cell Lymphoma. I know that it is rare, but is treated with R-CHOP. She is feeling much better since her first treatment. Is anyone currently being treated for this type of Lymphoma?
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More good news
I had my scans today - was there forever and had little sleep since I watched election returns until 1:00am and then woke up at 4:30am with "scanxiety". My appointment was at 8:00am so I showed up baggy eyed and sleepy ;) . I'm officially one year in remission now! My blood pressure was another story but we're gonna work…
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Other options
http://www.burzynskiclinic.com/
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Wondering
I have not seen Donald 51 here for a long while and wondering how he is doing. I am still in remission but have my ups and downs. My blood work still has not gone back to normal since the Zevalin in December of 09. I am also wondering how do Oncologist know that it is not still in your bone marrow. I am so wondering about…
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Depression
I am a 41 year old woman with stage 3a hodgkins lymphoma. I just finished my 4th chemo treatment out of 12. Until the last month I was doing pretty well but the last few weeks I have become so depressed that I'm practically not functioning. Crying a lot , no interest in anything, not leaving the house, unable to sleep…
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Scared
My husband and I are going up to Mayo tomorrow and meet with the doctor on Thursday to see how the Medrol/Rituxan is working. He is having night sweats which obviously is not a good thing and is not feeling good. I am truly afraid of what's next. I am trying to stay positive knowing I have Sloan Kettering's 2nd opinion…
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all good!
OK I took everyones advice, (and my wife's lol), and made my appointment for today. Great news my oncologist said that it is lipoma, just fatty tissue that settled in my shoulder. She is not concerned, as these never turn out to be cancer. Thanks for all the support as always!!!! Vinny
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good news
i had a PET scan on thursday, and my oncologist called me later in the day to give me the results. i am almost completely clear of lymphoma, just a couple of patches in my abdomen. i have two more chemo sessions to go and then the final PET scan t n=make sure that the residue is gone, and then i'm good to go! i'll have to…
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Non-Hodgkin's Lymphoma
I am a 6 yr. survivor of Non-Hodgkin's Large B Cell Lymphoma, I would love to hear from anyone who has or has had this type of cancer.
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So confused after my visit with my SCT doctor at The James Cancer Center
Was diganoised with aggressive B cell Non-Hodgkin's Lymphoma w/bone marrow involvement. After my chemo treatments I had 2 pet scans and both came back clean. Oncologist (whom I do trust)wanted me to get a consultation with the SCT dr. She told me that she had reviewed all my paperwork including lab results. She said that I…
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Missing my Dad sooooo much...
It really hurts a lot
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Lisha??????????????
Sue or anybody, Sue, I hate to bother you. Or even intrude on Lisha. I was hoping at least, since you and Lisha are close, that she would send a private message to you. Have you or anyone heard anything from Lisha or her family?? Please Lisha, send a few words to us. I miss you and am sick with worry. Maggie
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Hi Cathy
Dear Cathy, Here we go again. Since you also live in PA, please stay safe and warm. I am keeping my fingers crossed this new storm won't impact me or too many of those already suffering. It is so wonderful I have the option and relationship with my doctor (internist) to email my concerns to him. Today I received an email…
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Great news! I am so thankful!
I had had a PET scan 2 weeks ago that seemed to show that I had failed the frontline treatment of CHOP-R for my DLBCL because it showed much increased cell activity. So I was scheduled for a biopsy a few days later. Just on Monday I got the biopsy results. And all it showed was necrotic B cell tissue and highly active T…
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Need Info
Can anyone tell me how good the PET scansarre at finding indolent lymphomas? I am convinced I have something going on in my left leg. Nothing showed on a PET in March or a Ct in April. I am wondering about the skill of the radiologist as a factor. My onc said PET is not always good at finding small indolent lymphomas,…
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Happy, happy,happy!!!
Hi all, Just got home from oncologist follow up visit. NO Maintenance Chemo!!! Just watchful waiting for now. Calling it partial Remission. I don't see her until January!! She originally thought maintenance Ofatumumab was the way to go, but my numbers are looking SO GOOD she is more comfortable with waiting. It's a bit…
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White blood cells
Hi everyone, I was refractory to R-CHOP, and now am working towards R-ICE salvage therapy and an auto transplant. However, I'm in this dubious holding pattern that is keeping me from starting my R-ICE. My white blood cell counts are too low! The strangest thing is, I haven't had chemo since September. I just had my…
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good report
i seen my onc that did the transplant today, he said i looked better than he thought i would he cut down 1 on the prednisone, and said i will feel weak for a while my blood counts are coming up good, my platelets that wouldnt come up over 23 is now 101 white count is good a big warm hug for all the prayers hugs and well…
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Dreams
Does anyone taking long-term Rituxan maintenance have trouble with dreams? I dream of snakes most every night. They are not scary dreams but I am wondering if the Rituxan can stimulate such dreams. I am also using Cymbalta so it could be that.
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CLL and follicular and clueless
Wow I am clueless as to what I have and what might be in my future. Jan 2012 felt sick went to emergency room was sent home told I had cancer or lymphoma (or?)and I should contact my GP. After weekS of blood work and scans (no pet scan) I was sent to oncologist who told me with a simple blood test and 15 min later I had…
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Stem cell transplant
So scared about my appointment on Tuesday with my appt. with the specialists at the James Cancer Center. My family and close friends are pushing me to go ahead with the transplant,but it's the biggest decision I will ever make in my lifetime. As you can see it's very late, but blessed sleep just wont' come, mind is racing.…
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Aaron, how are you doing?
Hey Aaron, Haven't seen you post for a bit. How are things going? Did you get chemo last Tuesday as you thought?
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Auto cell transplant
Saw my oncologist yesterday and while my PET scan showed no cancer in my vital organs, found hot spots on my right hip. I have been having pain but thought it was from the two biospies I had earlier. He wants me to meet with drs. at the James Center at OSU about an auto cell transplant. As I stated earlier I have…
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Hi CathyP
Dear CathyP, I am pasting a copy of a message I sent you. There was some problems replying to your message. Therefore, I am re-sending my response. Thank you so much for passing on your knowledge to me. I would never have thought about a fellowhip trained doctor. Please believe me, I am not jumping into any surgery. I live…