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Lymphoma (Hodgkin and Non-Hodgkin)

We are strong... ♥
A couple videos reminding us just how strong we are: I have cancer but cancer does not have me (About 3 1/2 minutes) About cancer changing my life - my fight back... (About 6 minutes)
High Blood Levels Post-spleenectomy
Hi all, I am wondering if anyone else has had continued high platelets and or white cell counts after having their spleen removed? HD Survivior 1987 ABVD Treatment
One ABVD down and 11 to go. :(
Hi all, I started my first dose of ABVD yesterday and so far i am doing good. Max, Aaron I know you both have the same HD I got at the same stage (NLPHL IIIA) and I noticed that you both have Chemo and RT. My onclogist said yesterday the RT is not on the table for treatment, only chemo. Was not sure if RT used only if it's…
Sue's last infusion! Add hugs here :)
Tomorrow is Sue's (allmost60) last Rituxan infusion. Two years (I think) of this and she's been a trooper through it all and a great support to us all! So, sending a warm hug of congratulations and wishes that this is completely over for you Sue forever! So "woohoo and party!" . Add your hugs here...
Platelet transfusion
Had my transfusion yesterday,had a allergic reaction right before the fusion was about done. My body is so full of bruises due to the Zevalin tratment i had, sure would like to know if all i have been thru is working,thought i would never say this but i cant wait for my next CAT scan, have to get my blood taken Monday, im…
Pcp pneumonia
Well one cycle from completion of my fathers r- chop regimen and he was recently diagnosed with PCP pneumonia, community acquired. His last chemo has been postponed for 1 week and he is on 3 weeks of double dobahri trim along with oxygen with exertion. My father has no resp history. Has anyone ever had this while in chemo…
Dry Mouth
No matter how much my mom drinks and uses her mouth rinse she has her days that her mouth and throat feel very dry. Does anyone experience this? She tends to dehydrate very easily so I get worried. We make sure she drinks plenty of fluids.
new avatar
i'm feeling soooo much better!!! doing exercise of several different types, and feeling stronger every day. my 3-month checkup with the onc is next month and my next PET scan is in june, but i feel confident that my lymphoma has gone away. better living through chemotherapy, indeed! i feel singularly fortunate in my…
Oh, Oh. New Question
I got a question. It may sound dumb but it may clear up a lot of things for a lot of us. I know when we get CAT scans they are checking for any uptake that may be present in the lymph nodes. The question is will it show any activity in other organs of the body as well. I am refering to cancers such as pancreatic,…
I just can't stop worry. Waiting on BM biopsy. Is it Possible ?
Hi All, I have been diagnosed with NLPHL stage IIIA so far, one under armpit , one in nick and one lymph in the pelvic area. Did Bone Morrow last week and waiting for biopsy results. My anxiety growing by the hour that the disease have spread to the bones. And even getting more worry that the chance of having different…
My girlfriend has just been diagnosed
Hello, Sadly my girlfriend has been told she has Lymphoma. She had a large Lymph node swell in her groin. It was removed and we have been told it's cancer. The node has been sent for more tests (at the moment they think it is either HL or T-Cell NHL). She has also had bone marrow and CT tests. We get the full results in 2…
I have Uterine cancer but they also found Lymphoma
I was recently diagnosed with uterine cancer. And of course when you are diagnosed with cancer you must get a CT scan then a PET scan to see if it has spread. While investigating the Uterine cancer, Lymphoma was also found. I have had a CT fine needle biopsy to diagnose the Lymphoma. They biopsied a small Mesenteric Mass…
I have a few more questions...
So I was talking with my younger sister today about everything and she rose a good question. Which was even if my lump in my lymph node is 2.2cm, that doesn't mean I have cancer correct? Or after a certain size that's when they worry? I am not sure...Also I did not know that my doctor ordered a CT scan for my entire body?…
Info on a new clinical trial for lymphoma
Was reading an article on a clinical trial was very intersting and very hopeful sounding you may have to copy and paste in your browser http://fhcrc.org/en/news/releases/2013/02/high-dose-vorinostat-effective-treating-relapsed-lymphomas.html Chris
Watching and Waiting
Hi I am new to this board. I am a 46 year old female who was diagnosed with low grade lymphomia in January 2002. I was scheduled for 6 months of Chemo but only completed 5 as my small intenstine ruptured from the site of a tumor and I had emergency surgery to correct this. My main problem is that during the last CT scan my…
Mom just diagnosed b cell lymphoma non germinal
Hi everyone my mother was just diagnosed with lymphoma b cell thats non germinal she is 69 has a lot of health problems diabeet,s 3 heart attacks , high blood pressure ,are the main ones So i am wondering what this means i have heard people say that lymphoma is very treatable but the dr said that a non germinal diagnosis…
Happy Hugs Day!
Happy Valentines Day! I won the "Hugs Lottery" and though I won't be able to take everyone to France for chocolate crepes I do have more hugs than I need so I'm sending them out to you guys! Warmest and positive thoughts to everyone! Hug someone you love today! They're free and contagious - in a good way . Hug yourself…
Me too, it's been a long time
I am so very sorry for not keeping in touch. I don't mean to whine. I really haven't been myself lately. Forgive me, especially to those who have every reason to whine. My problem isn't my dx of NHL in Sept Oct 2009. I saw my oncologist Feb 4, and there is no reason for concern. I will know more when the results of my…
Hi, still here
Hi all, Just wanted to take a few minutes to stop in and say hello. I know it's been way too long. I still try to catch up and read through the posts every few days or so. We are now in wedding crunch time. lots of last minute details to work on, plus dealing with my sometimes / a lot of times bridezilla daughter, well I…
funeral assistance?
My dad died this morning. He had leukemia and was diagnosed 10 years ago, he overcame a lot of obsticles but found out only few months ago he had lymphoma which they say can manifest as leukemia and it overtook him, he was only 45. We are trying to find some place that can help with funeral costs but no luck. I tried the…
Life after Hodgkins
Hi! I just found this site today and I'm glued to it reading everyones stories, most of which are a copy of my own. I had HD in 1982 and had a stageing operation, spleen removed as well as a 12 week fetus, I was then treated with 3 months of chemo followed by 3 mo. radiation to my neck/chest/abdomen followed by 5 more…
Hi to all.
To all of my friends who know me hi and I have missed you. To those of you I do not know I am glad to meet you and hope you are finding what you need here. To everyone I hope this finds you well and staying strong. I am hanging in there but now am doing the pre followup anxiety. I will go to Rochester tomorrow for…
Dumb question
I read that mumps is one of the diseases which relapse because of Rituxan. Does anyone know of an actual case where that happened? Just hoping for mumps I guess.
Blood tests
If you don't mind me asking, was anyone's diagnosis lead to originally from an abnormal blood test? What was that abnormality and what type of Limphoma caused it?
Neupogen self-shots
Hey guys, I was just released from the hosptal from R-ICE #4 and I'm in the mobilization stage. Luckily, my doc has agreed to let me give myself the Neupogen shots at home each day. I've never really done this before, and I practiced on a little flap of skin all day before they released me. (Also-- the lovely nurse…
Bone Marrow Transplant or Not
My brother has non-hodgkin lymphoma and leukemia. They want him to have a bone marrow transplant and I am being checked to see if I am a match. He doesn't think he wants to go thru with it and his wife really wants him to. I would like to locate some people to either email/talk to him who has walked in his shoes and share…
Blood clot in neck
My son, age 27, recently successfully completed chemo for Hodgkins Lymphomia. However, as a side effect, he has a lot of swelling in his kneck and shoulder area and a large knot or clot on the side of his neck. Dr's believe it is a blood clot, and have him on Warfarin (blood thinner). We are not sure what caused the clot,…
Unsure
Hi everyone, frist can I say that I haven't be diagnosed with anything or might not be. I am experiencing some symtoms that I would like to share with you all and maybe get your feed back. I went to the doctor back in November with flu like symtoms and a lump on each side of my neck. She told me to come back after six…
Same title as many I'm sure, I'm scared...very
I came to a very real realization last night, and I can barely breath from my anxiety since. I decided to type some symptoms I have been having into a search. Every link, link after link, Lymphoma on every one that came up. I have had cysts on my neck since I was a girl, maybe 12. They never changed much, I never worried.…
Anal Burning
My father has finished 3 rounds of chemotherapy for stage 4 T-cell NHL. Since the initial treatment, he has experienced severe rectal pain and blood with bowel movements. The inside and outside skin has been effected. He has undergone many tests (all negative) and 2 scopes. GI doctor said everything looked better with 2nd…

Lymphoma (Hodgkin and Non-Hodgkin)

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