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Lymphoma (Hodgkin and Non-Hodgkin)

Hope for those of us with PCNSNHL
Hi, I have been battling primary central nervous system non-hodgkins disease for the last four and one-half years. Mine was large B cell diffuse with from what I've read includes most if not all of us. I have been receiving chemo, high dose MTX and Rituxan at least every 4 months after the inital nine months when the…
neuropathy from vincristine
My dad has been in remission now since April 2004, after he finished his last chemo is June he started to feel numbness and tingling in feet. Has anyone had this experience and can it go away. My dads taste buds fully recovered from radiation it took a good month. (FYI) He is sceduled to have a cat scan soon. He hates…
Appt with doc
I have an appt with Onc Friday morning, she wouldnt discuss results over the phone like she usually does, so i will post Friday what she says.
Shoopy (Karl)
It breaks my heard to share this but I just got this message from a friend of Karl (Shoopy): "I am a friend of Karl. I know how much support he felt from this site and I think he would want you to know that he passed away on Saturday. He was loved by so many and I know he died feeling that love. His plan was to live…
Extreme mental decline issues with Neulasta ?
Hi just signed up here trying to find any information on mental issues after taking Neulasta. My father was recently recieving chemo treatments through a chest port for lymphoma. He was doing great with it. Then this morning he had to go in for a shot of Neulasta. He walked to the car just fine with very little…
Got scan results
Got the results of my CAT scan and it shows that it has progressed and it looks like a new area has started too, my lymph node has enlarged quite a bit in 5 months as well, am waiting to hear from Onc. and see what she has to say, i feel fine for now, just tired of all of this, i keep telling myself it can be worse, there…
confused by biopsy results.
hi my name is angie, my husband has been told that he probley has non hodgkins lymphoma. he has this tumor growing on the side of his neck. its huge. now the other side has one growing. he went to an ent they did a niddle biopsy it showed lymphoma. we went to the oncoligist he had a pet scan ordered and another biopsy. so…
Life is just full of surprises.
Well, I've never done this before but I am to the point of serious anxiety about this. So here it is: I am a healthy 22 yr old, white male. I am 6'1" and apprx. 190lbs. About four weeks ago I had a really bad bout of strep throat. Since then and before that point I have been in good health. Anyway, about two weeks ago I…
It's been awhile
It has been awhile since my last post, i am now working full time, i decided that since my last Dx that since the tumor is small i would work to keep myself busy, and to keep me from thinking too much, after 3 times of being diagnosed and it being a small tumor that i would not stress as i know i have beaten it twice…
Treatment Options
I was just curious if anyone would be kind enough to post their thoughts and feelings on alterior treatment options for lymphoma. Is their any way to eliminate lymphoma besides undergoing chemo/radiation? Thanks.
Long term psychological problems
Cancer survivor for 41 long years. Met my wife when I was 38 and she was 26.after marriage she wanted a child and I didn't. This was because I did not want to leave a young wife and child fearing eventually regturn of cancer given the treatment I received. But I saw thow much it meant to her so we had a daughter when she…
Thin hair & thin facial hair
I'm a 26yr old male and I was diagnosed w/ Nodular Schlerosing Hodgkin's Lymphoma 2B (nightsweats) in my upper chest (both sides - size of a softball). I had 12 chemo treatments over 6 months and my last treatment was on 5/12. Still need to have a last PT scan before my doctor let's me take my port out. Mu question is if…
Lumps on neck - been there on/off take or give 6-7 years. Worried.
Hi all I've had 2 lumps on each side of my neck, right side lump is bigger, both lumps are movable and squishy. I have no pain or any other sypmtom that I know of, just these darn lumps that won't go away :( Been to the doctor when I first noticed it, she dismissed it as nothing and gave me cream to use on the scab on my…
CMR yet Radiotherapy
Hello Folks, I have been getting my RCHOP since Jan and had a PET scan. I was told there isnt any cancer activity and in complete metabolic remission. The doctor told last time that they dont recommend radiotherapy as they would want to leave one treatment method free so that it could be effective for any future treatment.…
I DID IT!
Today I will be graduating from The University of New Mexico with a Bachelor of Science in Nursing and a Minor in Psychology Even after getting cancer thrown in our faces, every single part of last year has truly made this very moment worth it. Thank you to all of you who sincerely made this day possible. I thank God each…
Tumor fever
hello, my brother was just recently diagnosed about 6 weeks ago with DLBCL NHL. He was a healthy individual before the diagnosis but since past 6 weeks nothing is going right with him in terms of his health. He was intially admitted as he had fever which was accompanied by a seizure and since has been diagnosed with NHL.…
"Deserves a Thread"
Grandma runs from Florida to Maine after four fights with Hodgkin's Disease. (I can barely run across the kitchen ! -- Max) http://abcnews.go.com/Health/cancer-survivor-runs-florida-maine-68-days/story?id=24451847 .
Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
Maybe back in chemo chair.
Wednesday was my one year checkup since I finished my ABVD, and it appear that a node in the neck grew 2mm in size within the last 6 months. Also the CT pathologist finding thinks and I quote him "this node morphologically has a benign appearance" but how he knew without biopsy. I remember the CT finding before I…
My 2 year old son has lumps I am very worried
Hi, my name is Jessica and my son's name is Jacob. around feb of this year I noticed a lump on my son's neck just close to his ear on the left side... I wasn't to worried then it wasn't very big it was a cause for concern.. by march it was more noticeable so I took him to my gp and they told me its noting to worry about,…
HL Causes
I thought I already posted this and maybe it was removed. The question I have is why aren't Dr.s asking more about what we did before finding the HL? It seems like they would want to know all of my activities, medicines and habits and then compare to all others with HL. I hope that finding the cause is just as important as…
Just not myself
I don't even know where to begin.. I am new here but not new to cancer. I was diagnosed stage 3 non hodgkins diffuse large cell b back in Jan of 2012 and I've had the Chop X , 32 days of radiation and I'm on 10 out of 12 of the rituxan maintenance due in August. I am 46 years old and mother of an 8 year old daughter and 14…
PTCL NOS Remission!
Just wanted to check in and let you all know that I am 155 days post allogenic SCT. I was declared in remission at 100 days! A year ago this week I started chemo, had radiation in November and December, and the stem cell transplant in January. There have been many ups and downs, but more ups. Summer has been pretty good so…
Happy July 4th Everyone!
Hope everyone is doing well and warm hugs and wishes for those in the battle. Jim https://www.facebook.com/photo.php?v=10202338970866080
Rituxan Maintenance #8 - Interesting Day
If I count the 8 times I had Rituxan as part of R-CHOP, my 8th maintenance infusion yesterday made the 16th time I've had this drug. I don't feel very good today, as I knew I wouldn't, but it is temporary and certainly worth it. There were 2 women sitting across from me having Rituxan for the first time. One woman starting…
newbie
just had port put in yesterday was rougher than expected
Quick update...
Hi, Sorry for the lack of posting, but it's been a very hectic last 3 months for me. I finished radiation on my eye and all went well. My check up last Thursday showed there is still a small amount of cancer in the eye, but we will watch it closely for new growth before anymore radiation will be done. 2 weeks ago today I…
Radiation
I am 7 years in remission could radiation still be effecting me. Like having shortness of breath. Feels like asthma. I had radiation on the chest area.
Anyone heard from Matt or Karl (Shoopy)?
Foxy wants to hear from you! :)
Sue, Jeff, Karl, Matt, Lisha, others/anyone not posting in awhile or anyone for that matter.... How are you doing? Foxy wants to know :) . Foxy is coming along. She knows how to sit now and we're working on some more. Pretty soon I'll have her doing laundry and washing the car - LOL. Just wanted to know how folks are…

Lymphoma (Hodgkin and Non-Hodgkin)

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