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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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Maybe back in chemo chair.
Wednesday was my one year checkup since I finished my ABVD, and it appear that a node in the neck grew 2mm in size within the last 6 months. Also the CT pathologist finding thinks and I quote him "this node morphologically has a benign appearance" but how he knew without biopsy. I remember the CT finding before I…
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My 2 year old son has lumps I am very worried
Hi, my name is Jessica and my son's name is Jacob. around feb of this year I noticed a lump on my son's neck just close to his ear on the left side... I wasn't to worried then it wasn't very big it was a cause for concern.. by march it was more noticeable so I took him to my gp and they told me its noting to worry about,…
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HL Causes
I thought I already posted this and maybe it was removed. The question I have is why aren't Dr.s asking more about what we did before finding the HL? It seems like they would want to know all of my activities, medicines and habits and then compare to all others with HL. I hope that finding the cause is just as important as…
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Just not myself
I don't even know where to begin.. I am new here but not new to cancer. I was diagnosed stage 3 non hodgkins diffuse large cell b back in Jan of 2012 and I've had the Chop X , 32 days of radiation and I'm on 10 out of 12 of the rituxan maintenance due in August. I am 46 years old and mother of an 8 year old daughter and 14…
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PTCL NOS Remission!
Just wanted to check in and let you all know that I am 155 days post allogenic SCT. I was declared in remission at 100 days! A year ago this week I started chemo, had radiation in November and December, and the stem cell transplant in January. There have been many ups and downs, but more ups. Summer has been pretty good so…
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Happy July 4th Everyone!
Hope everyone is doing well and warm hugs and wishes for those in the battle. Jim https://www.facebook.com/photo.php?v=10202338970866080
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Rituxan Maintenance #8 - Interesting Day
If I count the 8 times I had Rituxan as part of R-CHOP, my 8th maintenance infusion yesterday made the 16th time I've had this drug. I don't feel very good today, as I knew I wouldn't, but it is temporary and certainly worth it. There were 2 women sitting across from me having Rituxan for the first time. One woman starting…
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newbie
just had port put in yesterday was rougher than expected
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Quick update...
Hi, Sorry for the lack of posting, but it's been a very hectic last 3 months for me. I finished radiation on my eye and all went well. My check up last Thursday showed there is still a small amount of cancer in the eye, but we will watch it closely for new growth before anymore radiation will be done. 2 weeks ago today I…
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Radiation
I am 7 years in remission could radiation still be effecting me. Like having shortness of breath. Feels like asthma. I had radiation on the chest area.
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Anyone heard from Matt or Karl (Shoopy)?
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Foxy wants to hear from you! :)
Sue, Jeff, Karl, Matt, Lisha, others/anyone not posting in awhile or anyone for that matter.... How are you doing? Foxy wants to know :) . Foxy is coming along. She knows how to sit now and we're working on some more. Pretty soon I'll have her doing laundry and washing the car - LOL. Just wanted to know how folks are…
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Can't seem to get it together
Hi, I've been cancer free for 1.5 years now, and I still can't seem to find joy. I am afraid of everything, and I'm sabotaging my life. When does the joy return? Please help, I feel like I'm going crazy.
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10 years clean
I am a 10 year survivor of Hodgkins Lymphoma, 8 months of chemo, I am doing wonderful, I had ABVD chemo, some times are rough, but am doing well, just want to let people know that there are long term survivors out there, have faith and God Bless
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Hi all, I have some worrying symptoms and signs, was wondering if anyone can shed some light?
Hi everybody, Everytime I google my symptoms, lymphoma comes up and I'm starting to worry about my body. I have a doctor's appointment for a biopsy on Monday but I was wondering if anyone with lymphoma recognizes my symptoms in themsevles. A little more than a month ago, I got this abscess below my ear lobe. I noticed my…
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Funny Cat Video... Chemo #2 this week... No Sleep for me!!
16 days after my 26th birthday I was diganosed with Stage 2B Hodgkin's Lymphoma. I had Chemo #1 on June 5th. ABVD in my right arm (3 of the 4 drugs). I had a bad reaction to the "A" and they switched the IV to my left arm and slowed it down so the normally 1 hour drip took 4. It felt like my entire arm was on fire from the…
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Hepatosplenic T Cell Lymphoma (HSTCL)
Hello everyone, My fiance and I just found out the news yesterday that he has this very rare disease Hepatosplenic T cell lymphoma. We are from Albuquerque, NM and are being sent immediately today to the MayoClinic in Rochester, MN. I told myself, not to read the internet about this type of cancer. However, I could not…
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A Story - Feelings of Cancer [non-hodgkins Lymphoma]
Once you’re in it, it’s like: All right, I can do that. I did it. I had that sense of accomplishment for my part, as microscopic as this was stacked up with the efforts of my Doctors and Caregivers. I felt as though I had been conditioned for that situation, as weird as that may sound. Much of my parents' strict…
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malt lymphoma
friend of mine just diagnosed with 2 primary cancers. Adenocarcinoma invasive of the colon and malt lymphoma. Never heard of 2 and since my dad had colon cancer i am familiar (unfortunatley) with that. Anyone here know more about malt lymphoma? thanks Louann
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primary flat lesion lymphoma and adenocarcinoma invasive of the colon
has anyone ever heard of having 2 primary cancers at the same time. one is adenocarcinoma of the colon and malt lymphoma originating in the colon?
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New Family Member
I adopted this little girl yesterday. Haven't decided what to name her yet. She's about 6 months old and a bundle of energy and already mostly housebroken (been a couple of excited pees). She likes to dip her front paw(s) in her water bowl before she drinks. At certain angles, she looks fox like. She moves so much, it's…
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Recipe Added
Member "Mardigras" recently added a recipe for "Mardigras' Turkey and Ginger". That's the first activity in about two years. It took awhile for me to figure out/remember how I set this up but I got it. Below is the link to the site and a list of recipes. I set this up almost 3 years ago for our members, caregivers and…
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Swollen Lymph nodes neck/groin
Hello, wondering if anyone has any comments on my health as the doctors seem to think everything’s normal? i have had for the past year swollen lymph nodes in the groin area...no pain, i am quite thin so they are noticeable without having to touch. id say a bit bigger than a marble, cant really move them and they are hard.…
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GI Pain during RCHOP
Hi all, New to this network. Stage 3 DLBCL in nodes and T CELL in bone marrow. After first RChop infusion 1 1/2 weeks ago I continue to experience lower GI pain and cramping. Not really constipated, although that was problem at first. Resolved for the most part, but the severe cramping remains. Any comments on this would…
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Depression and anxiety
I had my one year check up and at this time I am in remission from stage 4 NHL. Instead of check ups every 3 months i dont have to see my oncologist until 6 months. While I am very happy for the news i find myself more depressed and anxious than ever. I will be 67 next month and that may be part of my problem. The cancer…
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Interesting Article (Skin Cancer)
New drug evidently cures man of advanced skin cancer: http://www.belfasttelegraph.co.uk/news/health/skin-cancer-patient-is-cured-by-new-drug-30323149.html
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Recurrent HL
Hello, everybody! I first was diagnosed with classic HL in 2011, 2A with a mass in the right supraclavicular node, and another mediastinal mass. I must have joined this network then, because my email was registered when I went to "join" tonight. I just don't remember posting here. I think I read a lot, but didn't feel I…
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Cake
In honor of the retreat I just attended, and to celebrate summer, my favorite season; to debut the kooky and festive cake stand that followed me home from an estate sale, may I present my lemon poundcake with blueberry cream cheese frosting decorated with sugared blueberries.
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Am I An ABVD Failure?
As soon as I was diagnosed with Hodgkin's Lymphoma my oncologist (who had previously treated me for anal cancer) started me on a course of ABVD chemotherapy. The results have been disastrous. Aside from the expected side effects (hair loss and metal mouth) I began to waste away until my appetite disappeared, my weight…