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Lymphoma (Hodgkin and Non-Hodgkin)

MRI shows normal brain but...
My oncologist had me do an MRI of my brain. My brain came back normal but it also said there was an isolated defect about 4mm and my oncologist said your good there is no cancer there. I also had a pet scan from my head to mid thighs which showed no activity in my brain. My oncologist told me that for my cancer which is…
Mantle Cell Lymphoma Diagnosis
Hello All, My 59 year old husband was recently diagnosed with Mantle Cell Lymphoma. Small lump on the right side of his neck started the whole process. We live on the outskirts of Houston and have been blessed to arrange an appointment with Dr. Hun Lee at MD Anderson in the Lymphoma and Myloma Clinic on October 31. He will…
Pet scan results!!!! Even more scared!!!!
Has anyone had a pet scan done show low activity and still be relapse??? My pet scan show border line activity and now I need a biopsy again!! This time they are gonna do a biopsy in my chest ! Does anyone know if his is painful??? The acticity shows like a level 5 which my doctor said it’s borderline and that’s why she…
Has anyone ever had a lymph node chest biopsy??
So I just found out after finishing 12 rounds of abvd for classic Hodgkin’s lymphoma, I need a biopsy on one of my lymph nodes in my chest since it like up on a pet scan. Has anyone went for this biopsy before??? Was it always cancer back? I have no idea what to think I was told this is the most curable cancer and now I…
Has anyone ever had a lymph node chest biopsy??
So I just found out after finishing 12 rounds of abvd for classic Hodgkin’s lymphoma, I need a biopsy on one of my lymph nodes in my chest since it like up on a pet scan. Has anyone went for this biopsy before??? Was it always cancer back? I have no idea what to think I was told this is the most curable cancer and now I…
Very Afraid with Symptoms PLEASE HELP ME
Here is some background and a timeline: Last year after a bout of the flu I was diagnosed with an Autoimmune disorder named Parsonage Turner Syndrome, which left me paralyzed for a few months. Since then I have recovered my muscle strength. Timeline: 1.5 months ago- Following a spider bite I got a mild 99 degree fever for…
Lymphoma aggravating during Chemotherapy - 2 Cycles done
Hi all, my father being diagnosed of DLBCL - with mediastinal mass - covering lymph nodes above and below diaghpram , has received 2 rounds of R-CHOP - Since his symptoms are continously getting worse - his medical team at a general hospital suggested to change the oncologist - we changed the oncologist and newer one…
Very weak after 2nd chemo treatment-need some support
I have been diagnosed with large b cell lymphoma and just finished my second round of 5 day chemo treatment 2 days ago. I have been prescribed the R-EPOCH treatment. This 2nd time I am so much weaker and my stomach is quite sick in spite of taking the meds. I am also having to fight the insurance company to cover the…
DLBCL - pet scan post treatment showing activity
Hi there, I have never posted on here until now. My fiancé finished 6 rounds of dose adjusted repoch in early April. He had a Pet scan done 6 weeks after his last treatment that showed a 6cm mass with an active spot. We have a biopsy on Monday. has anyone had an experience like this where it was a fluke and not cancer that…
Mantle cell lymphoma stage 4
My husband was diagnosed with stage 4 MCL a month ago. Treatment is chemo plus Rituxan once a month for 6 months. Then bone marrow transplant if needed. Can chemo and Rituxan treat the bone marrow issue too or is it a given that he'll need the BM transplant? I am in shock over this whole diagnosis. He is in great shape. 56…
Still waiting
is it possible to relapse from classic Hodgkin’s lymphoma so quickly after chemo finished if I had such good scans within 2 cycles the cancer was gone. I’m so worried about my scans since a ct showed a slight increase of the lymph nod in my chest. Just wondering if anyone else relapse that quickly after chemo!!??
Finally diagnosis
My daughter had a pet scan and CT done on Tuesday. She had port put in on Wednesday and her 1st round of chemo(ABVD). Doctor called me yesterday and said she had classical Hodgins lymphoma, stage 3 with symptoms. She has a 9cm mass in chest. They going to send her to radiation for consultation after she's done with chemo.…
Wait & Watch continues:) NHL (follicular)
Hello all. Just returned from oncologist visit and results of my CT scan show the 2 nodes in groin and hotspot in pelvis same size since May. No symptoms, will continue "Wait and Watch" for another 3 months. Some of you know I live in No. California and just experienced the horrific fires. My heart goes out to all…
CAR-T Gene Therapy Approved this Week
http://www.dana-farber.org/newsroom/news-releases/2017/fda-approves-car-t-cell-therapy-for-non-hodgkin-lymphoma/
Chest infection in third week - Second Cycle of R-Chop
Hi all, My father being diagnosed of advanced NHL - Dlbcl aged 55 has gone through 2 cycles of R-Chop so far. First two weeks after treatment are always good and can say quiet "Normal", but third week of his first cycle and now again in second cycle is very tough. He has caught diarrhea - doc has provided Flagyl and other…
Deauville Score 2
Well I posted inside a thread but thought I would post it in a new discussion because threads sometimes get old or jumbled. Finished RCHOP July 3 ,2017. PET scan in early September showed some activity and a Deauville Score of 4. My local Oncologist wanted me to go out to MD Anderson since my spleen was so enlarged and the…
Allogenic Stem Cell Transplant
I have friend who has a niece who will be getting an allogenic stem cell transplant.can anyone tell me what is the most critical time during this process. He is in another state and was wondering when he should be there for support. Sandy Ray
R-ICE and Autologous Stem Cell Transplant experiences?
Hi, my name is Kaitlyn, I just found out that my cancer has returned. My Oncologist is scheduling another biopsy to make sure of the type of cancer, which less than a year ago I was going through R-CHOP for stage 4b NLPHL. He has already told me what the treatment plan will be no matter what it comes back as. He wants to…
Rituxan maint done
Today was my last Rituxan maintenance treatment. All went well plus I met my new oncologist. (The Dr I had retired at the end of Aug.) She is very young and very enthusiastic. We went over my treatments and such. My prev Onc wanted to do a CT scan and bone biopsy before the end of the year. My new Onc told me that she…
Systematic or hypochondriac?..... help
I could go on all day, I’m 41 yr., healthy mother of two, was doing cross fit 3 to 4 Times a week, but I’m just gonna go ahead and type up my symptoms Again I am sorry. Over the past year I’ve been experiencing multiple ear infactions (right ear only)every 2 to 3 months. finally after the 4 one my doctor sent me to an…
DLBCL with involvement in testes: What is the risk of a local recurrence without radiation?
Hello everyone, I'm almost done with 6 rounds of R-Chop and 6 rounds of intrathecal methotrexate. My doctor (a hematologist) ata public hospital in San Jose, Costa Rica said he doesn't think I need radiation. I am stage 1, localized to the teste with a tumor that measured 3x2.5cm (which is too small to be considered a…
My 10 year son has swollen groin lymph node
Hello! I am a worried Mom of a 10 year old boy. He has a swollen groin lymph node. I noticed it about a week and a half ago by accident. I walked in on him getting ready and bam it was right in my face. I don't know how long it was there for. We immediately went to the doctor and they had him start on antibiotics. It's…
Is there a case to support no radiation?
How many of you have declined radiation and why? Have your doctors been reluctant to give you radiation? I will talk to my dr.this week. I think because I'm getting 6 rounds of R-chop, my tumor in the testicle was small, no infiltration, my lactate dehydrogenase is normal plus no other activity in ct scans he doesn't…
DLBCL: My Dr. said a PET Scan is not necessary
Hello everyone I am almost finished with R-Chop and intrathecal therapy. I didn't have a PET Scan at the beginning of treatment. My Dr. said unless there is something suspect he won't give me a PET Scan. How do I know I am in full remission without a PET? Have others gone through treatment with no PET Scans? Your advice…
Who do I see?
I have a somewhat complicated situation and I'm not the best at communicating my issues but, I'll try my best. A little over two years ago I was undergoing a series of test, after going to my doctor for lumps (which turned out to be lymphnodes), night sweats, severe fatigue, constant fevers and trouble focusing. I had…
DLBCL, Testicular lymphoma, CNS relapse
I just got diagnosed with DLBCL. I'm not sure yet where it started but I did have an orchiectomy because of testicular swelling. I'm a 35 years old and I guess this is rare. Seems like it is very treatable but the chances of CNS relapse is greater in testicular lymphoma. If my cancer started in the lymph nodes and spread…
lymphnodes
Hi i was wondering if anyone could help answer some questions. I recently had a pet/ct scan and lymphnodes were shown that had a suv up as high as 6.9. Does inflamation go that high. I am having a biopsy monday and not sure about any of this. Please someone respond???
New to forum
Well I'm sure just like everyone else here you never expected to be here. Prayers go out to each of you. I have a few questions. My 24 year old daughter had swollen lymph nodes couple months back. She went to her PCP who thought was infection and put her on antibiotics. She is a single mom of a year and half year old and…
Chemo delayed for 1 week
My father 55 years old been diagnosed of NHL and been given first cycle of R-CHOP on 12th Sep 2017 . The three weeks he has coped well with chemo and side effects - there was an improvement in his eating habits as before the tumor was pressing his food pipe and he could not eat or swallow. He did'nt develop any fever or…
Diffuse Large B Cell Lymphoma
My husband has been recently diagnosed. Stage II A. He has had one R-CHOP infusion so far. I'm very curious about other people's experience with the same diagnosis. How are you? Any advice?

Lymphoma (Hodgkin and Non-Hodgkin)

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