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Does Abnormal Lymph Node Ultrasound Mean Cancer?
I went in for what I was hoping would be my last appointment for my lymph node. I had an ultra sound done that showed my lymph node was abnormal, and will be scheduling surgery on Friday to have it removed for biopsy. I had a CT scan done two weeks ago that they said everything looked normal, so I was kind of surprised to…
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Subcutaneous Panniculitis-Like T-Cell Lymphoma
I am searching for someone who has the same kind of non hodgkin's as me. I have Subcutaneous Panniculitis-Like T-cell lymphoma stage 4a. This is a rare cancer and I have not been able to find much information on this disease let alone anyone who also has this.
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New Oncologist
A couple of weeks ago I had received a letter informing me that my oncologist was retiring at the end of August. So yesterday at my Rituxan treatment I had my last meeing with my oncologist. She is a wonderful woman and I am going to miss her. However she did point out that I have only 1 or 2 more treatments left for the…
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"Stars"
Open Question: What are these "star ratings" on posts now ? Are they from CSN, or added by the writer ? I see them occassionally "backfitted" on to older posts, that did not have them when originally submitted. I find them tasteless and inapproppriate myself, a gimick. max .
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Weird worried
Hello , I had some concerns about my enlarged lymph nodes Here is myhistory I have a chronic epididymitis/orchitis in my left testicles that comes and goes not permenant and I have had a permenant enlarged right groin node that is normal I think bean.shaped small soft smooth pretty movable , and.once before.I had a swollen…
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R-Epoch treatment
Is anyone currently on R-Epoch treatment for large B Cell Lymphoma?
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Don't officially belong here yet, but......
I posted a topic the other day about my biopsies being sent to Dr. Elaine Jaffe at the NIH. We sent her three. An inguinal, epichoclear, and supraclavicular. The inguinal and epichoclear were read as "benign " and/or due to some sort of inflammatory process. She said she didn't care, she wanted them anyway. The…
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Chemo cap
Hello All, Has anyone used chemo cap? A nurse told my brother about it, but not sure if it works. Thank you!
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IT or intravenous methotrexate; which is better?
Hello again, I am receiving IT methotrexate. I read in a study or 2 that showed no protective results from IT methotrexate. The studies claimed it didn't distribute evenly in the cns, nor did it penetrate well the cerebral parenchymal. The studies showed protective results from intravenous methotrexate. What is your…
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Unsure, Uncertain, ready to buckle seatbelt
Hello everyone, I've been reading this forum since April, when I discovered my NH Follicular Lymphoma has returned. 8 years ago (2009) an encapsulated tumor was found in my abdomen (was having serious pain and vomiting for a year then got bowel blockage). This tumor was removed, Stage 1, no chemo, no radiation, nothing.…
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Chemo & Teeth Problems
I've just finished my 3rd chemo treatment (R-Chop) for B-Cell Lymphoma. I had a filling fall out on my tooth (no pain) a few days ago and went to the dentist with onocologist's ok. It was on a baby tooth that was just hanging on and I will need it pulled. I got a "consultation" appointment with the oral surgeon Monday,…
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Can Someone Diagnose Me Please?
Hey Everyone! My name is Catherine and I'm 28 years old. 2 weeks ago I went into the doctor's office to have a cough that just wouldn't get better and a collection of cyst/wart-looking red bumps that started on my feet and slowly started growing on my upper legs looked at. The doc dianosed the red bumps as Mullescum…
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i need an urgent help
Please what is the process for diagnosis of stage 3 nasal lymphoma and/or a description of the treatment and a summary of the costs involved? Any idea will be appreciated.
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URGENT! Help please!!! Relapsed/Refractory NHL ALK+ ALCL
My husband is 23 years old. He is active duty military, we have two boys ages 4 & 6 years old. He was diagnosed with stage 4 anaplastic large t cell lymphoma alk + last October 2016. He started CHOEP, did 6 rounds and showed great response. Unfortunately 4 weeks later after his last treatment, he relapsed. He started…
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Mantle cell lymphoma
Hi Everyone: My husband was diagnosed with mantle cell lymphoma in September. He went through R Chop and had an auto stem cell transplant in February. First Pet scan after stem cell was negative. Are there any stories from long term survivors of mantle cell lymphoma? After going through Rbeam and the transplant we are…
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What to expect post-reatment- Rituxan/Bendamustine
Just found this board and I'm so excited for the oppotunity to interact with other cancer patients/survivors. I was diagnosed in April 2016 with Follicular large B cell Non Hodgkins Lymphoma. It was found by accident during an MRI for hip pain I was having. The cancer is in the bone marrow of my hip and shoulder, but not…
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Lymph Nodes Enlarged
Breast cancer survivor past 5 years after mascetomy of right breast, one node positive, chemo. Last week I was told that my lymph were enlarged. Today during needle biopsy, they said cortex was thickened. I have not felt well for a while. I still get chemo drug Zometa every six months. I also take synthyroid which I have…
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2nd Relapse Hodgkins
Hi Everybody! Been 10 years since I`ve been on the boards..Just found out that my Cancer is back after battling Stage 4 Hodgkins twice with last remission 10 years. I always got such awesome support and advice from people like ourselves that would only know whats its like to be a Cancer Warrior. I`m sad its back for a 3rd…
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Biopsy results
Hi, I am new and have some questions and wanted to see if anyone has had a similar experience. About 5 months ago I started to notice a small lump in my neck, after all things in between my ENT orders an ultrasound guided FNA. The results came back highly suspicious and the doctor told me it was highly probable that I have…
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Day +5
1/2 way through the stem cell transplant! So far so good. The sitting around is soooo hard! I feel like Jabba the Hut! Sit in the chair and have food brought around the clock. Walking space is very limited. Not sleeping much, but I dont do anything to get tired. Thank goodness for electronics. Counts are in the toilet &…
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Question about symptoms
Hello, Not sure if this is the right place to post this but some further insight would be greatly appreciated. About 7 years ago I started getting heavy night sweats. Every morning I'd wake up to a wet pillow and sheets, and my clothes would be drenched. The night sweats would come and go over the years and I thought…
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Need information and insight
Hello everyone, This is lengthy, so I apologize in advance. I found this site today and will confess I’ve already committed the two cardinal sins, but am hoping you will still indulge me and allow me to ask a few questions. My two “sins” are 1) searching the internet regarding symptoms I’m experiencing and 2) presuming a…
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mcl shingles question
My mother who has mantle cell with so far no treatment(watch and wait) has been suffering with a bad case of shingles since the first part of April. She was at the doctor today and they prescribed her another round of anti-biotics but the are also sending her for a bone scan which I dont understand. My question is could…
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What should I except when i go to the ENT doctor?
I found a swollen lymph node on the right side of my neck about a month ago. My doctor had me get blood work done two days ago that showed my white blood cell count was slightly high at 14 when the high normal is 11. I have no symptoms of being sick, so they were slightly concerned, but, said they werent extremely…
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Worried
Starting around Christmas 2015 I had what I thought was a cold/flu. For over 3 weeks I had fatigue, cold chills, occasional night sweats and extreme nasal drainage. I went to the doctor and was prescribed Biaxin. Symptoms mostly improved except I developed a cough which was sometimes productive with mucus and other times…
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Anchorage, Alaska T-Cell Lymphoma Patient Education Forum July 29th
The T-Cell Leukemia Lymphoma Foundation is conducting a patient education seminar/forum in Anchorage, Alaska on Saturday, July 29th, 2017. It will be presented at the Anchorage Marriott Downtown from 8:30 AM to 2:30 PM. As always, registration (required, but free) is easily done online and a continental breakfast and lunch…
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splenic marginal zone lymphoma
I had my spleen removed 2 years ago. The specialist has adopted a wait and see approach. Everything seems to be alright but I am in a continual state of anxiety waiting for something to happen. Has anyone had this experience . How long could I expect to be in remission. My life seems to be on hold and I just can't function…
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Newbie high groin lymph nodes, high calcium and b12 levels please help!
please if anyone had had experience with high calcium levels or highb12 levels please let me here your story. Very sick. Can not get a diagnosis. Going to see oncologist in 2 weeks. My calcium labels are slighly above high but am very sick and weak and have nite sweats but not drenching which my doc says all night sweats…
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Anyone use Dr Elaine Jaffe for second opinion pathology?
New here. Anyone ever have biopsies sent to Dr. Elaine Jaffe at NIH? How long did you wait for a report? I'm trying to get answers. NO ONE can seem to make sense of my biopsies....all the symptoms for 2 years...including "off" blood work and B symptoms. Also, biopsies in not so good places....