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IT or intravenous methotrexate; which is better?
Hello again, I am receiving IT methotrexate. I read in a study or 2 that showed no protective results from IT methotrexate. The studies claimed it didn't distribute evenly in the cns, nor did it penetrate well the cerebral parenchymal. The studies showed protective results from intravenous methotrexate. What is your…
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Unsure, Uncertain, ready to buckle seatbelt
Hello everyone, I've been reading this forum since April, when I discovered my NH Follicular Lymphoma has returned. 8 years ago (2009) an encapsulated tumor was found in my abdomen (was having serious pain and vomiting for a year then got bowel blockage). This tumor was removed, Stage 1, no chemo, no radiation, nothing.…
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Chemo & Teeth Problems
I've just finished my 3rd chemo treatment (R-Chop) for B-Cell Lymphoma. I had a filling fall out on my tooth (no pain) a few days ago and went to the dentist with onocologist's ok. It was on a baby tooth that was just hanging on and I will need it pulled. I got a "consultation" appointment with the oral surgeon Monday,…
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Can Someone Diagnose Me Please?
Hey Everyone! My name is Catherine and I'm 28 years old. 2 weeks ago I went into the doctor's office to have a cough that just wouldn't get better and a collection of cyst/wart-looking red bumps that started on my feet and slowly started growing on my upper legs looked at. The doc dianosed the red bumps as Mullescum…
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i need an urgent help
Please what is the process for diagnosis of stage 3 nasal lymphoma and/or a description of the treatment and a summary of the costs involved? Any idea will be appreciated.
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URGENT! Help please!!! Relapsed/Refractory NHL ALK+ ALCL
My husband is 23 years old. He is active duty military, we have two boys ages 4 & 6 years old. He was diagnosed with stage 4 anaplastic large t cell lymphoma alk + last October 2016. He started CHOEP, did 6 rounds and showed great response. Unfortunately 4 weeks later after his last treatment, he relapsed. He started…
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Mantle cell lymphoma
Hi Everyone: My husband was diagnosed with mantle cell lymphoma in September. He went through R Chop and had an auto stem cell transplant in February. First Pet scan after stem cell was negative. Are there any stories from long term survivors of mantle cell lymphoma? After going through Rbeam and the transplant we are…
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What to expect post-reatment- Rituxan/Bendamustine
Just found this board and I'm so excited for the oppotunity to interact with other cancer patients/survivors. I was diagnosed in April 2016 with Follicular large B cell Non Hodgkins Lymphoma. It was found by accident during an MRI for hip pain I was having. The cancer is in the bone marrow of my hip and shoulder, but not…
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Lymph Nodes Enlarged
Breast cancer survivor past 5 years after mascetomy of right breast, one node positive, chemo. Last week I was told that my lymph were enlarged. Today during needle biopsy, they said cortex was thickened. I have not felt well for a while. I still get chemo drug Zometa every six months. I also take synthyroid which I have…
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2nd Relapse Hodgkins
Hi Everybody! Been 10 years since I`ve been on the boards..Just found out that my Cancer is back after battling Stage 4 Hodgkins twice with last remission 10 years. I always got such awesome support and advice from people like ourselves that would only know whats its like to be a Cancer Warrior. I`m sad its back for a 3rd…
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Biopsy results
Hi, I am new and have some questions and wanted to see if anyone has had a similar experience. About 5 months ago I started to notice a small lump in my neck, after all things in between my ENT orders an ultrasound guided FNA. The results came back highly suspicious and the doctor told me it was highly probable that I have…
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Day +5
1/2 way through the stem cell transplant! So far so good. The sitting around is soooo hard! I feel like Jabba the Hut! Sit in the chair and have food brought around the clock. Walking space is very limited. Not sleeping much, but I dont do anything to get tired. Thank goodness for electronics. Counts are in the toilet &…
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Question about symptoms
Hello, Not sure if this is the right place to post this but some further insight would be greatly appreciated. About 7 years ago I started getting heavy night sweats. Every morning I'd wake up to a wet pillow and sheets, and my clothes would be drenched. The night sweats would come and go over the years and I thought…
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Need information and insight
Hello everyone, This is lengthy, so I apologize in advance. I found this site today and will confess I’ve already committed the two cardinal sins, but am hoping you will still indulge me and allow me to ask a few questions. My two “sins” are 1) searching the internet regarding symptoms I’m experiencing and 2) presuming a…
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mcl shingles question
My mother who has mantle cell with so far no treatment(watch and wait) has been suffering with a bad case of shingles since the first part of April. She was at the doctor today and they prescribed her another round of anti-biotics but the are also sending her for a bone scan which I dont understand. My question is could…
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What should I except when i go to the ENT doctor?
I found a swollen lymph node on the right side of my neck about a month ago. My doctor had me get blood work done two days ago that showed my white blood cell count was slightly high at 14 when the high normal is 11. I have no symptoms of being sick, so they were slightly concerned, but, said they werent extremely…
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Worried
Starting around Christmas 2015 I had what I thought was a cold/flu. For over 3 weeks I had fatigue, cold chills, occasional night sweats and extreme nasal drainage. I went to the doctor and was prescribed Biaxin. Symptoms mostly improved except I developed a cough which was sometimes productive with mucus and other times…
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Anchorage, Alaska T-Cell Lymphoma Patient Education Forum July 29th
The T-Cell Leukemia Lymphoma Foundation is conducting a patient education seminar/forum in Anchorage, Alaska on Saturday, July 29th, 2017. It will be presented at the Anchorage Marriott Downtown from 8:30 AM to 2:30 PM. As always, registration (required, but free) is easily done online and a continental breakfast and lunch…
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splenic marginal zone lymphoma
I had my spleen removed 2 years ago. The specialist has adopted a wait and see approach. Everything seems to be alright but I am in a continual state of anxiety waiting for something to happen. Has anyone had this experience . How long could I expect to be in remission. My life seems to be on hold and I just can't function…
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Newbie high groin lymph nodes, high calcium and b12 levels please help!
please if anyone had had experience with high calcium levels or highb12 levels please let me here your story. Very sick. Can not get a diagnosis. Going to see oncologist in 2 weeks. My calcium labels are slighly above high but am very sick and weak and have nite sweats but not drenching which my doc says all night sweats…
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Anyone use Dr Elaine Jaffe for second opinion pathology?
New here. Anyone ever have biopsies sent to Dr. Elaine Jaffe at NIH? How long did you wait for a report? I'm trying to get answers. NO ONE can seem to make sense of my biopsies....all the symptoms for 2 years...including "off" blood work and B symptoms. Also, biopsies in not so good places....
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Hearing loss/ side effects of R-chop or methotrexate?
Hello everyone, I had 2 cycles of R-Chop ( but instead of doxorubiciin I get epirubicin), 2 cycles of intrathecal methotrexate and I am experiencing increased tinnitus ( buzzing in ears) and mild pain. I have had tinnitus for years but I believe the chemo regime is increasing it. Or I may have an ear infection. I need to…
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Swollen lymphnode in right groin, no diagnosis yet, biopsy done
I don't know how to do updates, so I just added to this one. Had my biopsy done on Thursday. Went well, but before I went in the operating room I showed the Dr another hard lump just below the ones he was going to take out and told him I have this same lump on both sides of my inner groin (left and right) and asked if it…
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Squamous cell carcinoma of the tongue
My daughter has just been diagnosed with squamous cell carcinoma of the tongue. lesion on left side appox. 1.5 cm was diagnosed June 28, 2017. She has been cancer free froma battle with non hodgkins lymphoma for 3 years
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Staying Positive
I have decided to share an entry from my personal journal. I was in the throes of treatment when I wrote this on 7/28/13. I believe a positive attitude helps health. I believe that people who can remain hopeful, determined, and positive have better outcomes when faced with illness. I believe optimism heals. I believe that…
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Questions about my Bone Marrow report
Hello everyone, My hematalogist quickly went over my bone marrow report with me, so quickly I didn´t understand it. He said He didn´t think it was anything to worry about. I will post it here, hoping you can decipher the meaning and give me some feedback: ¨3% of the B lymphocytes are identified as not showing light chains…
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SCT & pets
Does anyone have any information on stem cell transplant recovery & pets? Other than staying away from litter boxes, is it Ok to be exposed to your pet? Thanks! Cat
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PTCL-NOS and Mundesine
I recently saw that Japan has approved the first drug EVER, specifically for the treatment of R/R PTCL-NOS. The articles said they conducted 19 clinical trials and were excited about the results. We're trying to find the trial results, but have been unsuccessful. We've reached out to our oncologist, as well as LLS and a…
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chronic fatigue after remission
hello my friends,first time on the forum im a 3 year stage 3B hodgkins lymphoma survivor, i have chronic fatigue daily,since treatment has been over,haven't been able to find any help..I'm in Nashville Tennessee, would their be any doctor here to help me.Priscilla