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Biopsy results
Hi, I am new and have some questions and wanted to see if anyone has had a similar experience. About 5 months ago I started to notice a small lump in my neck, after all things in between my ENT orders an ultrasound guided FNA. The results came back highly suspicious and the doctor told me it was highly probable that I have…
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Day +5
1/2 way through the stem cell transplant! So far so good. The sitting around is soooo hard! I feel like Jabba the Hut! Sit in the chair and have food brought around the clock. Walking space is very limited. Not sleeping much, but I dont do anything to get tired. Thank goodness for electronics. Counts are in the toilet &…
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Question about symptoms
Hello, Not sure if this is the right place to post this but some further insight would be greatly appreciated. About 7 years ago I started getting heavy night sweats. Every morning I'd wake up to a wet pillow and sheets, and my clothes would be drenched. The night sweats would come and go over the years and I thought…
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Need information and insight
Hello everyone, This is lengthy, so I apologize in advance. I found this site today and will confess I’ve already committed the two cardinal sins, but am hoping you will still indulge me and allow me to ask a few questions. My two “sins” are 1) searching the internet regarding symptoms I’m experiencing and 2) presuming a…
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mcl shingles question
My mother who has mantle cell with so far no treatment(watch and wait) has been suffering with a bad case of shingles since the first part of April. She was at the doctor today and they prescribed her another round of anti-biotics but the are also sending her for a bone scan which I dont understand. My question is could…
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What should I except when i go to the ENT doctor?
I found a swollen lymph node on the right side of my neck about a month ago. My doctor had me get blood work done two days ago that showed my white blood cell count was slightly high at 14 when the high normal is 11. I have no symptoms of being sick, so they were slightly concerned, but, said they werent extremely…
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Worried
Starting around Christmas 2015 I had what I thought was a cold/flu. For over 3 weeks I had fatigue, cold chills, occasional night sweats and extreme nasal drainage. I went to the doctor and was prescribed Biaxin. Symptoms mostly improved except I developed a cough which was sometimes productive with mucus and other times…
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Anchorage, Alaska T-Cell Lymphoma Patient Education Forum July 29th
The T-Cell Leukemia Lymphoma Foundation is conducting a patient education seminar/forum in Anchorage, Alaska on Saturday, July 29th, 2017. It will be presented at the Anchorage Marriott Downtown from 8:30 AM to 2:30 PM. As always, registration (required, but free) is easily done online and a continental breakfast and lunch…
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splenic marginal zone lymphoma
I had my spleen removed 2 years ago. The specialist has adopted a wait and see approach. Everything seems to be alright but I am in a continual state of anxiety waiting for something to happen. Has anyone had this experience . How long could I expect to be in remission. My life seems to be on hold and I just can't function…
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Newbie high groin lymph nodes, high calcium and b12 levels please help!
please if anyone had had experience with high calcium levels or highb12 levels please let me here your story. Very sick. Can not get a diagnosis. Going to see oncologist in 2 weeks. My calcium labels are slighly above high but am very sick and weak and have nite sweats but not drenching which my doc says all night sweats…
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Anyone use Dr Elaine Jaffe for second opinion pathology?
New here. Anyone ever have biopsies sent to Dr. Elaine Jaffe at NIH? How long did you wait for a report? I'm trying to get answers. NO ONE can seem to make sense of my biopsies....all the symptoms for 2 years...including "off" blood work and B symptoms. Also, biopsies in not so good places....
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Hearing loss/ side effects of R-chop or methotrexate?
Hello everyone, I had 2 cycles of R-Chop ( but instead of doxorubiciin I get epirubicin), 2 cycles of intrathecal methotrexate and I am experiencing increased tinnitus ( buzzing in ears) and mild pain. I have had tinnitus for years but I believe the chemo regime is increasing it. Or I may have an ear infection. I need to…
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Swollen lymphnode in right groin, no diagnosis yet, biopsy done
I don't know how to do updates, so I just added to this one. Had my biopsy done on Thursday. Went well, but before I went in the operating room I showed the Dr another hard lump just below the ones he was going to take out and told him I have this same lump on both sides of my inner groin (left and right) and asked if it…
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Squamous cell carcinoma of the tongue
My daughter has just been diagnosed with squamous cell carcinoma of the tongue. lesion on left side appox. 1.5 cm was diagnosed June 28, 2017. She has been cancer free froma battle with non hodgkins lymphoma for 3 years
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Staying Positive
I have decided to share an entry from my personal journal. I was in the throes of treatment when I wrote this on 7/28/13. I believe a positive attitude helps health. I believe that people who can remain hopeful, determined, and positive have better outcomes when faced with illness. I believe optimism heals. I believe that…
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Questions about my Bone Marrow report
Hello everyone, My hematalogist quickly went over my bone marrow report with me, so quickly I didn´t understand it. He said He didn´t think it was anything to worry about. I will post it here, hoping you can decipher the meaning and give me some feedback: ¨3% of the B lymphocytes are identified as not showing light chains…
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SCT & pets
Does anyone have any information on stem cell transplant recovery & pets? Other than staying away from litter boxes, is it Ok to be exposed to your pet? Thanks! Cat
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PTCL-NOS and Mundesine
I recently saw that Japan has approved the first drug EVER, specifically for the treatment of R/R PTCL-NOS. The articles said they conducted 19 clinical trials and were excited about the results. We're trying to find the trial results, but have been unsuccessful. We've reached out to our oncologist, as well as LLS and a…
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chronic fatigue after remission
hello my friends,first time on the forum im a 3 year stage 3B hodgkins lymphoma survivor, i have chronic fatigue daily,since treatment has been over,haven't been able to find any help..I'm in Nashville Tennessee, would their be any doctor here to help me.Priscilla
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Husband with hodgkins
Hello, I am new to this discussion. My Husband was diagnosed with Hodgkins Lymphoma In October of 2016. Dr gave a good prognosis, and Lymphoma is curable, but that is down the road. Getting through the treatment is quite an experience. He is approaching his 6th chemo treatment coming up on Jan 9, 2017. Regimen is set for…
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continous fever after chemo
My brother is undergoing chemo for his lymphoma but since last 2 weeks he is continously having fever, due to which his chemo scheduled for today is also delayed.. But ther are no infections in any of his results. Is this ok?? Can anyone help??
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When is it time to switch doctors??
After my 5th treatment of chemo (R-CHOP/O-CHOP), I had a scary incident that ended with me in the ER. I had a very difficult time with chemo and my symptoms would peak about 2 days after treatment. This time, my symptoms took a downward spiral. I felt terrible as usual, facial pain, stomach pain, extreme sensitivity to…
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Working my way back
Well 6 RCHOP sessions in the books ! 4 IT methotrexate in the books! Last dose of Prednisone done! I am sitting here realizing how blessed I am. I keep hoping that tomorrow I wake up and the fatigue is gone. I know that is unrealistic. I am just so ready to feel good again. The Oncologist was right when he said by round 6…
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Various symptoms, not sure where to start for help
I was diagnosed this time last summer with mono, which took months to recover from and still wonder if I'm being plagued with it. I'm also having additional symptoms that my doctor, as of yet, cannot pinpoint to a diagnosis. Ive had severe drenching night sweats for going on a year and a half, to the point I sometimes get…
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Obinutuzumab?
I was diagnosed with follicular lymphoma, and started with r-chop for the first two cycles. I then switched to obinutuzumab (GAZYVA) for cycle 3-5 (didn't have cycle 6, but that is another story). I am currently in remission and have been told I will have maintenance therapy with the obinutuzumab every 2 months for 2…
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Shout-out for massages
I did 6 rounds of R-Chop starting Jan 2015. August 2015 I started the first of 3 cycles of RICE. Through all of it I managed to work most of the time at a job where I sit a lot. At home I napped and sat. I didn't realize how weak I was until December when I tried to do some Christmas shopping. Feb-Mar 2016 was prep for…
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Vaccines after SCT
Hi All! I have been told by my oncologist that 12 months after a SCT I will need to have my vaccines repeated. I have no problem with that. Is that the norm with autologous SCT? Do I need titers first, or should I just go with the vaccines?
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Our Friend has Lymphoma
Our dear friend and well loved, long time coworker, of my husband has been diagnosed with lymphoma. He wasn't feeling well and was going to his family doctor. I don't know what kinds of symptoms he was having as he is a very private person. I do know that his blood work revealed that he was anemic. His doctor ordered a CT…
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Shortness of breath, Single agent Rituxan
I have been dealing with shortness of breath since my treatment in 2014. I have been seen by cardiology, wore a halter monitor, mutilple stress tests and thankfully my heart is good. Next a pulmonologist and many more tests and scans. Nothing remarkable. Ok, thoracics they will find something. Tests, tears, tests.....…
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What to expect
My mother was diagnosed with lymphoma. She had a node on her leg that kept growing and got infected. The doctor sent her to the hospital immediatly and it was removed. It was sent for diagnosis and came back as lymphoma. She just turned 90. She refused treatment due to her age and being frail. She also has lupus. She now…