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5th round of RCHOP and fatigue!
I just completed my 5th of 6 cycles of RCHOP last Monday. I know I'm supposed to experience fatigue but this is way more than normal tiredness. We live in a 2 story house and I can't make it up to the top floor without assistance on my bad days. My legs feel like lead. My Onc thinks it's fatigue, lungs are fine. Echo is…
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Port removal
Has anybody had their port removed in the surgeons office same day/time as your pre op visit? The reason I'm asking is because when I was contacted by the surgeons office to schedule to have my port removed, the receptionist stated that he needs to see me prior to surgery (seems reasonable) or he might just do it right…
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How to push for excisional biopsy?
Hi all- I'm not sure if it's ok for me to be posting here, as I know a number of boards insist on diagnosis to join etc. My husband is 40 years old and has had a mostly painless lump in his groin for just over 2 weeks now. No other symptoms, although he did have a cold (no fever) for over a week that started before he…
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How long should this take?
Hi all- I have recently ben diagnosed with Mantle Cell Lymphoma. I first visited my primary care the 1st of November due to swollen nodes. Got a Cat Scan, blood tests and X-ray right away and then things really slowed down. My first visit to Moffitt in FL to see a hmatologist as 11/20. Since then had lots of blood tests,…
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Primary CNS Lymphoma
Hi, New here. My Dad has just been diagnosed with Primary CNS Lymphoma. His tumor was taken out last month May it was just about the size of a golf ball (at base of brain attatched to spinal cord). Anyway he is out of rehab today and has to have another MRI asap according to Doc. This is scary stuff and Mom and Dad were…
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For Woman-Menstrual Cycle Irregularity (?)
I was told that chemo ABVD, can throw off a womans cycle. Does this happen to every woman and does anyone know how likely it is? Thanks for reading.
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Picking myself back up
Hey guys, my name is Becca, I'm 24 and I'm recently in remission for type 2 NHL. Underwent 6 sessions of R-EPOCH in 4 months and got the all clear beginning of Jan. I'm having a really hard time trying to pick myself up and get back to my life. I had to quit my job since it was physically demanding and I didn't have enough…
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Supplements During Treatment
I don't know about you but I have been having a lot of non cancer folks telling me I need to take supplements during my treatment.I spent some time researching last night and found this awesome, informational site where a specialist in our field has written great blogs with an amazing amount of information on all kinds of…
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Am I wrong for suspecting Lymphoma?
Hello, writing this out of exhaustion and frustration so bear with me. I've been catching every illness that has come my way Nov 2016 to present. Found a large, painless lump under right side of collarbone 6 months ago, while experiencing hot flashes during the day, sweating even when cold. Waking up too hot/sweating in…
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How long for a diagnosis?
Hi, I've been a member of this group for a few months since i started my evaulation process for a swollen neck lymph node (submandibular) on the left side. I've had blood work, so much blood work, every time its perfect. The only real symptom I have are night sweats. I've had a bone marrow biopsy, nothing in the bone…
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side effects with methotrexate
Hello everyone, I am new to this board. I am diag. with DLBCL with involvement in the testes. I had my first treatment with R- chop and received methotrexate (intrathecal . I have been having pain and tightness in the head and back of the neck. It was so bad one day I was injected with voltaren and dexamethasone. The pain…
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DLBCL with liver cirrhosis
1. I am not a cancer patient but a son of one looking for support and to hear stories from other patients. My mom(65 years old) was diagnosed with diffused large B cell lymphoma(DLBCL, left upper arm) a month ago. DLBCL was discovered during liver transplantation preparation due to liver cirrhosis. So, liver…
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Dad Age 80 Path Report 1st Visit to Onc Tomorrow
We are going to see the oncologist at our local cancer center tomorrow. My Dad age 80 has a mass enircling his messenteric artery. He has lost 30 pounds and had a heart bypass about 6 years ago. Was in good health untl one month ago when pain started. He is fatigued but getting around a bit. Biopsy was done and path…
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Lymphocytes in the bone marrow starting cytoxan and rituxin
i was wondering if anyone out here he’s had just cytoxan and rituxin...with 1000 mg of prednisone (the steroids are only for 5 days) it looks like I will have to do this for 5 times...with 3 weeks in between.... Any feedback will be appreciated !!! They said I have enormous amounts of lymphocytes in bonemarrow and it’s not…
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Cancer is never your friend
Having a diagnosis of cancer can be frightening. A person can be confused or misguided by the plethora of opinions, information and outright lies out there. My opinion is that cancer is an enemy to be defeated. Its that simple. Cancer is never your friend and wants to kill you. Never forget that. Never give cancer an even…
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Is Memory Loss a symptom of R-EPOCH?
My fiancée was diagnosed with stage 3 Diffused Large B Cell Lymphoma. He just completed round 2 of R-EPOCH. I'm concerned that he's is experiencing memory loss and could get hurt. At times he completely forgets where he is at or he losses his train of thought in mid sentence. He's very fatigued and is almost always curled…
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Another person diagnosed with NLPHL
Hello everyone, Former lurker here. It seems like only a small number people on this forum have had NLPHL, but it looks like you can add me to the list. I am a 32 year old male, went to urgent care with a cold 5 months ago and they did a chest X-Ray and found something that looks like scarring in my lung. That then lead to…
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methotrexate
Good morning everyone! I hope you all had a good Christmas. I am posting to hopefully get some feedback from people who have had methotrexate infusions. Mom is about to complete her final round of chemo, which will be followed by methotrexate. Doctor says they will give it to her through her port not spine, which makes me…
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R-CHOP chemo and the after effects
Hello all and I am new here!! I was diagnosed summer 2015 with Diffuse Large B- Cell Non-Hodgkins Lymphoma. Bone-based. I had 6 rounds of R-CHOP chemo and finished my last session in December 2015. I feel I sailed through the chemo and was cleared in January 2016, and April 2016. And still in clinical remission. I am…
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Lymphoma relapse
Plasmablastic lymphoma. Can velcade put it into remission?
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Constipation,bloating
anyone expierence constipation and stomah bloating during and after chemo for abvd chemo?
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Terrified of relapse!!!’ Opinions plz
I’m 28 years old and February 2017 I was diagnosed with stage 2 Hodgkin’s lymphom. In April I started ABVD 12 treatments. ( 6 cycles ) I had clear Petscan within 2 cycles and finished my treatment until September 12th! I was not feeling good the week I went for follow up CT i was having coughing and having minor chest…
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So confused and scared
I am about 6 months out from gastric sleeve surgery for weight loss. Since then I have been having dull abdominal achiness off and on and feeling mildly bloated in my abdomen. Initially I thought it was constipation then I thought maybe I was just pre-menstrual. One day while lying flat on back I was rubbing across the top…
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more good news
We got back from Houston a week ago and just wanted to tell you that Bill is still in remission, His report is NED. At our local cancer center when he reached remission the first time, they called him the Miracle Man, after geting on Ibrutinib he was called the Million Dollar Man, now they are just calling him Ned . Anyway…
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Update
Well my daughter's had her 4th round of chemo. Wipes her outb but so far so good. Her WBC are beginning to drop some but they said she's still within range that they don't have to lower any doses. She just shaved her hair off cause it was falling out. Being 24 she didn't take that well. We all told her it'll grow back. She…
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Mom's relapse
hi, my mom's relapsed already since her bone marrow transplant last year. Follicular/malt/tcell. Looking to connect with others as we approach the next phase. She is my best friend, and in good spirits. I worry she is fatigued and a little confused already. She's having a little radiation and then "we'll see". She is in…
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My mind is wondering again..so worried
Can stage 2 hodgkin's lymphoma be cured with stem cell transplant? From the start it was only stage 2 they did not stage my relapse. I know its borderline activity in 2 nodes. That was 3 weeks ago im still waiting for insurance to approve my chemo. But I read so many storied some people going through this for 7-9 years? Im…
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Seattle T-Cell Lymphoma patient education seminar 2017
Saturday December 16th, 2017, 8:30 AM to 2:30 PM at the Seattle downtown Sheraton. It's that time again. Free breakfast and lunch. A very informative educational opportunity, providing the latest in research data regarding T-Cell Lymphomas, presented by Dr. Andrei Shustov, one of the luminaries in the lymphoma world. A…
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Hepatosplenic T-cell Lymphoma
Hi friends! I was diagnosed with Hepatosplenic T-cell Lymphoma in February of this year. I am currently undergoing chemotherapy and would love to share experiences with anyone else who has this monster! I am a 38 year old mother of two, registered nurse, who before February was the picture of health. I first went to the…
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Discontinued maintenance therapy today
I have FL transformed to large diffuse b-cell lymphoma (stage 1; please note a 19cm tumor around my kidney cutting off function). I completed 6 rounds of R-CHOP, 6/16 through 9/16, followed by 1 year of maintenance rituxan. I have had continued low immunity despite otherwise good quality of life. Last month, I suddenly…