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AITL
April 27, 2012 I was diagnosed with stage 4 AITL went through the chop regiment then in October I did my stem cell transplant. It will be my 5 year mark in November and I have been as healthy as can be the whole 5 years ( some bone aches ). I was wondering what others with AITL think as far as relaps. Do you think it will…
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Extended Treatment
After talking in person with 2 FNHL patients I thought it may be helpful to some people considering Single Agent Rituxan to consider the following when developing a treatment plan with their Doctor: Patients with relapsed FNHL who opted for Rituxan monotherapy and were treated with an initial eight weeks of Rituxan…
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groin node
Good evening. I am 34 and based in England, uk. Nearly 2 weeks ago, I noticed a pain/tenderness to the right groin area. No other symptoms. Though I have felt a bit tired as not a great sleeper and did have a couple minor bouts of cold previously I am pretty healthy, though do have food allergies, hay fever, eczema, and…
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Looking for advice
i have been unhealthy for awhile now with no answers. I had an ultrasound done of lymph nodes in my next a few weeks ago and the results showed enlarged, dense nodes. The doctor wanted a CT with contrast but because of stage 3 renal disease my nephrologist will not sign off on the CT. Now my doc wants me to wait 6 months…
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Maybe premature, but worried for my dad
Good afternoon all. It feel strange to be posting here. I hope no one minds- my dad had a biopsy done yesterday on an "inflammatory rind" surrounding his Abdominal Aortic Aneurysm. We originally were doctoring because my dad has terriblepain in his hip and leg and has bad circulation in his right leg. They can't do a stent…
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Any help for a caregiver for a newly diagnosed Stage IV NH Follicular Lymphoma husband?
My husband was diagnosed with Non-Hodgkins Stage IV E Follicular Lymphoma Grade 3A almost a month ago. He had his first chemo treatment of R-CHOP on Friday, March 24th & has not been showing any signs of side effects. We were both freaked out when his infectious disease dr told us one of the pathology reports came back as…
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long-term effects of radiation
When I was 21 I was diagnosed with Hodgkins. At that time the Drs. told me that I would have to undergo a splenectomy and mantle radiation. They didn't tell me that the treatment would damage my lungs, or cause hypothyroidism. I have now development heart atrial arrythymias requiring an AV Node ablation and pacemaker. What…
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Stem cell treatment
Hi, i have diffuse large b-cell lymphoma. I have had 6 rounds of r-chop. After pet scan showed it's still there I received rice treatment (2 rounds of rice chemo). Last year doctor recommendied stem cell transplant but I didn't want to do it. because I declined the stem cell transplant doctor put me on maintenance chemo…
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Blood clots from port after chemo cessation
I came into ER for swollen and red face. Tests: KEG, x-ray of neck and chest, CT of head and chest and ultrasound of right shoulder and arm. Findings: right venous subclavian blood clot. Put on Hepiron drip overnight. Port removed following morning and kept overnight for observation. Will be on blood thinners for 3 months.…
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Long term survival question regarding shortness of breath
Hello Everyone, I am a Hodgkin's Survivor of approximately 22 years. My treatment consisted of 6 cycles of ABVD and about 6 weeks of mantle radiation. Prior to my diagnosis my lung capacity seemed to be far superior to what it was after. Now, at age 50, I'm wondering if there is much I can do to increase my stamina and…
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How does chemo cause weak legs?
Hi, Many people have commented about weak legs caused by chemo but I haven't found what is actually occurring to make the legs weak. I finished 7 r-chop treatments for NHL in October 2010. My guess to the weakness problem is nerve damage since my feet are still pretty numb. It doesn't make sense to me that my legs are…
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Mees line on nails or toenails?
Has anyone had these on their fingers or toes before diagnosis? I thank anyone who can respond as I have been to and ask many doctors if they know anything about these and they really do not. Thank you
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Rituxan maintenance schedule for follicular lymphoma
I feel that I am at a decision point in my treatment and would appreciate some input from this discussion board to help me to clarify my position. pleae would you let me know about the Rituxan maintenance schedule that you are on for follicular lymphoma and for how long you will be on maintenance. I have been on a 2…
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Does Abnormal Lymph Node Ultrasound Mean Cancer?
I went in for what I was hoping would be my last appointment for my lymph node. I had an ultra sound done that showed my lymph node was abnormal, and will be scheduling surgery on Friday to have it removed for biopsy. I had a CT scan done two weeks ago that they said everything looked normal, so I was kind of surprised to…
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Subcutaneous Panniculitis-Like T-Cell Lymphoma
I am searching for someone who has the same kind of non hodgkin's as me. I have Subcutaneous Panniculitis-Like T-cell lymphoma stage 4a. This is a rare cancer and I have not been able to find much information on this disease let alone anyone who also has this.
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New Oncologist
A couple of weeks ago I had received a letter informing me that my oncologist was retiring at the end of August. So yesterday at my Rituxan treatment I had my last meeing with my oncologist. She is a wonderful woman and I am going to miss her. However she did point out that I have only 1 or 2 more treatments left for the…
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"Stars"
Open Question: What are these "star ratings" on posts now ? Are they from CSN, or added by the writer ? I see them occassionally "backfitted" on to older posts, that did not have them when originally submitted. I find them tasteless and inapproppriate myself, a gimick. max .
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Weird worried
Hello , I had some concerns about my enlarged lymph nodes Here is myhistory I have a chronic epididymitis/orchitis in my left testicles that comes and goes not permenant and I have had a permenant enlarged right groin node that is normal I think bean.shaped small soft smooth pretty movable , and.once before.I had a swollen…
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R-Epoch treatment
Is anyone currently on R-Epoch treatment for large B Cell Lymphoma?
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Don't officially belong here yet, but......
I posted a topic the other day about my biopsies being sent to Dr. Elaine Jaffe at the NIH. We sent her three. An inguinal, epichoclear, and supraclavicular. The inguinal and epichoclear were read as "benign " and/or due to some sort of inflammatory process. She said she didn't care, she wanted them anyway. The…
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Chemo cap
Hello All, Has anyone used chemo cap? A nurse told my brother about it, but not sure if it works. Thank you!
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IT or intravenous methotrexate; which is better?
Hello again, I am receiving IT methotrexate. I read in a study or 2 that showed no protective results from IT methotrexate. The studies claimed it didn't distribute evenly in the cns, nor did it penetrate well the cerebral parenchymal. The studies showed protective results from intravenous methotrexate. What is your…
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Unsure, Uncertain, ready to buckle seatbelt
Hello everyone, I've been reading this forum since April, when I discovered my NH Follicular Lymphoma has returned. 8 years ago (2009) an encapsulated tumor was found in my abdomen (was having serious pain and vomiting for a year then got bowel blockage). This tumor was removed, Stage 1, no chemo, no radiation, nothing.…
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Chemo & Teeth Problems
I've just finished my 3rd chemo treatment (R-Chop) for B-Cell Lymphoma. I had a filling fall out on my tooth (no pain) a few days ago and went to the dentist with onocologist's ok. It was on a baby tooth that was just hanging on and I will need it pulled. I got a "consultation" appointment with the oral surgeon Monday,…
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Can Someone Diagnose Me Please?
Hey Everyone! My name is Catherine and I'm 28 years old. 2 weeks ago I went into the doctor's office to have a cough that just wouldn't get better and a collection of cyst/wart-looking red bumps that started on my feet and slowly started growing on my upper legs looked at. The doc dianosed the red bumps as Mullescum…
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i need an urgent help
Please what is the process for diagnosis of stage 3 nasal lymphoma and/or a description of the treatment and a summary of the costs involved? Any idea will be appreciated.
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URGENT! Help please!!! Relapsed/Refractory NHL ALK+ ALCL
My husband is 23 years old. He is active duty military, we have two boys ages 4 & 6 years old. He was diagnosed with stage 4 anaplastic large t cell lymphoma alk + last October 2016. He started CHOEP, did 6 rounds and showed great response. Unfortunately 4 weeks later after his last treatment, he relapsed. He started…
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Mantle cell lymphoma
Hi Everyone: My husband was diagnosed with mantle cell lymphoma in September. He went through R Chop and had an auto stem cell transplant in February. First Pet scan after stem cell was negative. Are there any stories from long term survivors of mantle cell lymphoma? After going through Rbeam and the transplant we are…
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What to expect post-reatment- Rituxan/Bendamustine
Just found this board and I'm so excited for the oppotunity to interact with other cancer patients/survivors. I was diagnosed in April 2016 with Follicular large B cell Non Hodgkins Lymphoma. It was found by accident during an MRI for hip pain I was having. The cancer is in the bone marrow of my hip and shoulder, but not…
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Lymph Nodes Enlarged
Breast cancer survivor past 5 years after mascetomy of right breast, one node positive, chemo. Last week I was told that my lymph were enlarged. Today during needle biopsy, they said cortex was thickened. I have not felt well for a while. I still get chemo drug Zometa every six months. I also take synthyroid which I have…