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My 82 year old Father had crash after first chemo
Friends: My 82-year old father had a crash after his first chemo. He was diagnosed with T-Cell PTCELL- NOS. Exactly a week after the chemo, he suffered a medical crash. He got hypoxic and had to be put on a ventilator. His liver and kidneys are also impacted. He also experienced encephalopathy. It has been exactly 15 days…
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R-CHOP Pending
Greetings all! Long story short, I am a survivor/fighter for almost 8 years now. Last year no treatment, but prior to that 19 rounds of Rituxan for Non-Hodgkin's, B-Cell, Follicular, Indolent, Stage 3A. Below left ear LN started swelling October 2016 (almost 5 cm. now) and Lymphedema started in right leg in February of…
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CNS Lymphoma
My father diagnosed with CNS Lymphoma ... would like to know more on this
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BvICE, BEAM, and stem cell transplant
Hello, I was just treated for stage IV Hodgkin's lymphoma, my last chemo was December 28th. My final PET showed two new lymph nodes that were hot, turns out I have cancer again already, not one month after my treatment. My onc is planning for a transplant, I was wondering if anyone else has had this treatment and could…
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Newbie with very little support
Hi, my name is Lori. Soon to be 55 years old. I have never posted on any kind of discussions board. I was diagnosed mid Jan. with Non Hodgkins lymphoma Type B intermediate. Everything went so fast after my biopsy and my neck swelled to suffocating dimensions. I was sipping broth for food. I slept wedged between pillows and…
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Off to the races
Well, after six years since diagnosis, my follicular lymphoma, which is both nodal and extra nodal, is back. The swollen glands are deep in my chest near/around my IMA. Its in virtually the same spots as before and they are each about 5 cm long. First go around I had what started as a laproscopic biopsy but turned into a…
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NHL causes?
Did anyone who was diagnosed with NHL had some kind of x Ray test few months before diagnosis? For example breast cancer mammogram? Asking because my wife was diagnosed with nhl and 2 months before that she had 2 mammograms done with x rays. And nhl showed up right between the breasts. Trying to find the connection...
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Still in Shock--Wife Just Diagnosed w/ Non-Hodgkins B-Cell Follicular Lymphoma Stage IV
Wife just diagnosed w/ Stage IV NHL (Subtype: B-Cell Follicular) on 12 Jul 10 and I am a complete mess. Looking for a support system to help get me and my family through this. I've been through just about every emotional state for the past 30 days since she went in for a regular checkup for what we thought was a muscle…
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New phase of NHL for mom: follicular -> B-cell
My mom (71) has been living with follicular lymphoma for about 6 yrs. She’s been treated (rituxin, chemo ie r-chop) and had some remissions. Each remission’s been shorter lived. She had a stem cell transplant about a year ago, but the cancer was back within 6 months. Now with new lumps and bumps, pathology shows it’s…
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Fifth time isn't the charm.
Just wanted to share my current predicament of sorts. I have a very long cancer history going back over 25 years. First with breast cancer in 1992. In Jan. 2008 diagnosed with a very rare NHL, only 200 reported cases in the US at that time. Than 6 months later a breast cancer in my other breast was picked up on PET?CT.…
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Rumatoid Arthritis caused by Chemo?
Hi, Anyone end up with RA after chemotherapy. My past treatments have been two years of Rituxan, then 6 months of Treanda, Neulasta, and Rituxan, now I'm starting another 2 years of Rituxan. I have not been to primary yet but I am getting symptoms of RA in a few of my finger joints. So it hasn't been diagnosed yet but my…
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Rituxin Maintainance
I just finished my fourth Chemo session of R-chop and after a CAT and Pet scan I was told that I was cancer free. I have two more sessions of chemo and then my Dr. wants me to do maintenance treatments of Rituxin. Has anyone had this type of regiment and how did it go?
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Mixed Cellularity Hodgkins Lymphoma
Hello i was diagnosed with Hodgkins in October 2017. i started ABVD in november and my oncologist did a scan after 4 treatments and it showed significant decrease in lymph node size and FDG uptake. i am scheduled to complete my last treatment in late April. does anyone has any experience with Mixed Cellularity Hodgkins?…
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Pleural Effusion - please suggest
Hi, I Have a query - can anyone please suggest, is this happen in such scenarios? My father being diagnosed of advanced NHL - large mediastinal mass and skeletal involvement , went through 2 cycles of chemo - R-CHOP. this week was his third week of 2nd cycle - his next one is due on 31st Oct. Last tuesday night he has been…
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Adult Survivors of Childhood Burkitts from 80s
Hello, I am a 38 y/o female survivor of childhood Burkitts (Early ‘80s). I’m looking for other survivors from this time period. Im not suffering from very adverse effects but also not doing very well in general. Hurting all the time, getting worse over the years. A lot of non-cardiac chest pain (but had full cardiac…
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Peripheral T Cell Lymphoma
My father, 82 has just been diagnosed with Peripheral T Cell Lymphoma late stage. He had his first Mini-CHOP chemo administered to him on Thursday, March 8th, 2018. He is being treated by a fantastic team of folks at University of Colorado, Denver. I read on this forum that someone from Seattle had a father who was 76. I…
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Late onset neutropenia from Rituxan therapy
Hello everyone. I'm wondering if anyone here has had any experience with late onset neutropenia. My husband was hospitalised for 10 days, 8 weeks after completion of chemo for follicular lymphoma, with febrile neutropenia. (fevers and extreme night sweats.) He had been declared in full remission having had a PET scan only…
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Husband being treated for follicular lymphoma
Hello everyone. This is my first post here. My husband has been diagnosed with follicular lymphoma stage IV. His neck, arm pits, stomach, groin and bone marrow are all affected. His lymph nodes were not severely enlarged but his spleen is 21 cm. He lost 20 lbs being unable to eat much because of enlarged spleen. This was…
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Reaction to Rice treatment
Hi I’m Destiny and been Diagnosed with non Hodgkin lymphoma. I’ve done 8 cycles of rchop and just completed my 1st round of rice. I had a reaction to the ifosfamide and wasn’t able to complete that part of treatment. Has anyone else had a reacation? If so how was it? How did it go? Were you able to complete treatment? I’m…
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Rituxan Hycela: Rituximab via injection
Hi - I have never posted before, but thought my recent experience might be of interest to anyone receiving Rituxan therapy. I was diagnosed July 2016 with SMZL - splenic marginal zone lymphoma. My bone marrow, spleen and blood are all involved and my blood numbers were such that my cancer was categorized as stage four…
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"Double-Boarder" Triple ?
Just wanted to tell my friends here that the prostate biopsy came back positive. Very minor, Stage 1. Easily treatable with radiation or surgical removal. I've got to talk to a radiation oncologist and surgeon to make that decision. Chemo is virtually never used on prostate cancer, and is never curative for prostate…
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Chemo and a broken wrist
Friday i slipped on a patch of ice and broke my wrist,i was nutropenic at the time but thats another story(hospital protocol for a notropenic patient with a non cancer related injury was ridiculous). I have an appt. wih an Ortho on Wedensday. Does anyone know if Chemo will affect the healing process?
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Double Hit Stage IV Elderly
My father is starting DA R-EPOCH next week for double hit lymphoma. Has bulky tumor, significant weight loss. He is 80. It is also in his bones. Data on results for DA R-EPOCH for double hit are scarce but I keep reading the phrase grim prognosis/clinically challenging/more studies needed. I paid for an article in Clinical…
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Non Hodgkins T-cell Lymphoma
Hi, My name is Kym and I am 41 in November of 2001 I was diagnoised with Non Hodgkins T-cell Lymphoma. My spleen was very enlarged and it was in my liver. I went through 5 months of (CHOP) chemo and then I had a stem cell transplant in May of 2002. So far so good. But I have never talked with anybody that has had T-cell…
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Chemo fog
I’m dealing with chemo fog and memory issues. How long is this going to last? Worried about working.
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Does anyone else have these joint pains?
This is my first time posting anything on line my whole life so hopefully I do it right! I’m here because I am finding it very hard to find information on after chemo pains online. I was diagnosed with low grade B cell non Hodgkin lymphoma about six years ago and was on “watch and wait” for years. I had six months of chemo…
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Mantle Cell resources
Hi all, This link os to an extensive list of resources and topics directly relatd to Mantle Cell. http://mclpage.com/mcllinks.html Thanks to these folks for putting ths togeather. Henry
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Rituxan just doesn't like me!
Hello everybody, Well the verdict is in and the Rituxan just doesn't like me!!! I got a nasty rash/hives that started on Tue. it started in my arms now its from my hands to my feet except for the face (just please don't touch the face lol). I called my Oncologist on Tue. and he said to take benadryl but it didn't really…
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ABVD didn't work
So I've had a bit a horrible year to say the least. Graduated college with and bachelors of science in May 2016 (at 47- finally!) got a seasonal job doing a federal geological/ soil infiltration study that paid well, thinking my life was finally on the upswing. Then my fiancee of 10 years breaks up with me (she lost her…
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Good eats?
Hi all, So.... hubby is gone long hours. I used to be able to throw a frozen pizza, tv dinner in the oven or a premade bagged salad on a plate. Now I'm told I need to becareful of highly processed, high sodium, premade salads due to e.coli, listeria, etc. and try to eat high protein, healthy foods. What are good, easy to…