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Rituxin Maintainance
I just finished my fourth Chemo session of R-chop and after a CAT and Pet scan I was told that I was cancer free. I have two more sessions of chemo and then my Dr. wants me to do maintenance treatments of Rituxin. Has anyone had this type of regiment and how did it go?
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Mixed Cellularity Hodgkins Lymphoma
Hello i was diagnosed with Hodgkins in October 2017. i started ABVD in november and my oncologist did a scan after 4 treatments and it showed significant decrease in lymph node size and FDG uptake. i am scheduled to complete my last treatment in late April. does anyone has any experience with Mixed Cellularity Hodgkins?…
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Pleural Effusion - please suggest
Hi, I Have a query - can anyone please suggest, is this happen in such scenarios? My father being diagnosed of advanced NHL - large mediastinal mass and skeletal involvement , went through 2 cycles of chemo - R-CHOP. this week was his third week of 2nd cycle - his next one is due on 31st Oct. Last tuesday night he has been…
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Adult Survivors of Childhood Burkitts from 80s
Hello, I am a 38 y/o female survivor of childhood Burkitts (Early ‘80s). I’m looking for other survivors from this time period. Im not suffering from very adverse effects but also not doing very well in general. Hurting all the time, getting worse over the years. A lot of non-cardiac chest pain (but had full cardiac…
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Peripheral T Cell Lymphoma
My father, 82 has just been diagnosed with Peripheral T Cell Lymphoma late stage. He had his first Mini-CHOP chemo administered to him on Thursday, March 8th, 2018. He is being treated by a fantastic team of folks at University of Colorado, Denver. I read on this forum that someone from Seattle had a father who was 76. I…
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Late onset neutropenia from Rituxan therapy
Hello everyone. I'm wondering if anyone here has had any experience with late onset neutropenia. My husband was hospitalised for 10 days, 8 weeks after completion of chemo for follicular lymphoma, with febrile neutropenia. (fevers and extreme night sweats.) He had been declared in full remission having had a PET scan only…
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Husband being treated for follicular lymphoma
Hello everyone. This is my first post here. My husband has been diagnosed with follicular lymphoma stage IV. His neck, arm pits, stomach, groin and bone marrow are all affected. His lymph nodes were not severely enlarged but his spleen is 21 cm. He lost 20 lbs being unable to eat much because of enlarged spleen. This was…
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Reaction to Rice treatment
Hi I’m Destiny and been Diagnosed with non Hodgkin lymphoma. I’ve done 8 cycles of rchop and just completed my 1st round of rice. I had a reaction to the ifosfamide and wasn’t able to complete that part of treatment. Has anyone else had a reacation? If so how was it? How did it go? Were you able to complete treatment? I’m…
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Rituxan Hycela: Rituximab via injection
Hi - I have never posted before, but thought my recent experience might be of interest to anyone receiving Rituxan therapy. I was diagnosed July 2016 with SMZL - splenic marginal zone lymphoma. My bone marrow, spleen and blood are all involved and my blood numbers were such that my cancer was categorized as stage four…
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"Double-Boarder" Triple ?
Just wanted to tell my friends here that the prostate biopsy came back positive. Very minor, Stage 1. Easily treatable with radiation or surgical removal. I've got to talk to a radiation oncologist and surgeon to make that decision. Chemo is virtually never used on prostate cancer, and is never curative for prostate…
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Chemo and a broken wrist
Friday i slipped on a patch of ice and broke my wrist,i was nutropenic at the time but thats another story(hospital protocol for a notropenic patient with a non cancer related injury was ridiculous). I have an appt. wih an Ortho on Wedensday. Does anyone know if Chemo will affect the healing process?
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Double Hit Stage IV Elderly
My father is starting DA R-EPOCH next week for double hit lymphoma. Has bulky tumor, significant weight loss. He is 80. It is also in his bones. Data on results for DA R-EPOCH for double hit are scarce but I keep reading the phrase grim prognosis/clinically challenging/more studies needed. I paid for an article in Clinical…
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Non Hodgkins T-cell Lymphoma
Hi, My name is Kym and I am 41 in November of 2001 I was diagnoised with Non Hodgkins T-cell Lymphoma. My spleen was very enlarged and it was in my liver. I went through 5 months of (CHOP) chemo and then I had a stem cell transplant in May of 2002. So far so good. But I have never talked with anybody that has had T-cell…
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Chemo fog
I’m dealing with chemo fog and memory issues. How long is this going to last? Worried about working.
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Does anyone else have these joint pains?
This is my first time posting anything on line my whole life so hopefully I do it right! I’m here because I am finding it very hard to find information on after chemo pains online. I was diagnosed with low grade B cell non Hodgkin lymphoma about six years ago and was on “watch and wait” for years. I had six months of chemo…
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Mantle Cell resources
Hi all, This link os to an extensive list of resources and topics directly relatd to Mantle Cell. http://mclpage.com/mcllinks.html Thanks to these folks for putting ths togeather. Henry
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Rituxan just doesn't like me!
Hello everybody, Well the verdict is in and the Rituxan just doesn't like me!!! I got a nasty rash/hives that started on Tue. it started in my arms now its from my hands to my feet except for the face (just please don't touch the face lol). I called my Oncologist on Tue. and he said to take benadryl but it didn't really…
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ABVD didn't work
So I've had a bit a horrible year to say the least. Graduated college with and bachelors of science in May 2016 (at 47- finally!) got a seasonal job doing a federal geological/ soil infiltration study that paid well, thinking my life was finally on the upswing. Then my fiancee of 10 years breaks up with me (she lost her…
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Good eats?
Hi all, So.... hubby is gone long hours. I used to be able to throw a frozen pizza, tv dinner in the oven or a premade bagged salad on a plate. Now I'm told I need to becareful of highly processed, high sodium, premade salads due to e.coli, listeria, etc. and try to eat high protein, healthy foods. What are good, easy to…
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Sezary Syndrome and Mantle Cell Lymphoma (in 1 person)
My beloved sister in law is currently fighting 2 lymphoma’s; Sezary Syndrome and Mantle Cell Lymphoma. we live in the Netherlands and here she is the only person diagnosed with these 2 cancers. She feels very alone, because she is probably the only person diagnosed with this combination. My mission is to find another…
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Indolent Mantle Cell Lymphoma
Hi everyone, I was a healthy 57 year old before my diagnosis other than having Rheumatoid Arthritis. I was diagnosed with stage lV Indolent Mantle Cell Lymphoma in September 2017. It was quite a shock as i thought my swollen thyroid might be due to Graves disease, thats what Dr. Google was telling me anyway. I started…
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Quick question about a fever
first off I am not neutropeniic. I developed a mild cough this morning and now have a temp of 100.5. My husband has been sick so I’m sure that I got it from him. Should I just wait until morning and call my Oncologist?
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Becky, Bill and my MCL
Everyone, please note I have posted this twice. OOPs! Becky, Bill and MCL New Well, it is CT time for me which sends me back to MCL board-land. (FYI original dx, 1/5/2012- R-hyper-cvad a and b x 4, BEAM, auto SCT (6/19/12) , 5 years Rituxan Manitenance. Just stopped Rituxan. When Dr asked... why stop Rituxan, he said,…
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Flu Shot ?
Hi ya all, received CT results today all good (PET denied again) Labs good. I'm going on vacation next month yippee.... Dr suggested possibly getting flu shot since I'll be in airports, planes etc. Have any of you had problems with the flu shot while being in Rituxan treatment. I have never had the flu shot ( almost 63 yr…
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Post treatment depression
Hello, I'm here because I was diagnosed with stage IV Hodgkin's at the end of June. I was recommended 6 cycles of ABVD, with an 85% cure chance. I had been sick for a long time, about 2 years. Everything hurt, I was tired all the time, I had low grade sweats. I lost weight, so much so that I managed to gain around 15 lbs…
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Can you receive Rituxan under sedation?
I'm in Stage 4 Waldenstrom Macroglobulinemia and this week completed my 6 months of Bendamustine and that wonderful shot of Nulexa. I'm a severe IBS-D patient along with Chronic Migraines. Needless to say, I am having a blast so far. (We all know it could be a lot worse, so I smile). I have tried on 3 occasions to get the…
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BENDA-R starting Monday
My mom (76) will be starting treatment this Monday after 2 years watch and wait with Mantle cell... Scared and anxious. Scott
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Neuropathy
Hey everyone, I am currently about a month into remission and I've been having a lot of hot flashes which I know can occur with menopause and I'm only 24 so I'm hoping that things will come back to normal in a few months. However the hot flashes have been less frequent one only every couple hours instead of every thirty…
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Follicular lymphoma
Hello, I am new to the forum. I was diagnosed in Sep 2015 with Follicular lymphoma and have a Power Port implanted in my left upper chest. In the last year I have had chronic pain and numbness in my left arm, shoulder and upper back. It seems to be my main side effect other than tiredness. Has anyone else experienced this?…
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Simple Things
After I replied to a new member, yesterday, who was inquiring about alternative cancer treatments (a very popular question), I attended a support group I regularly attend. The group members are blood cancer survivors--leukemia, lymphoma, and multiple myeloma. Our meeting yesterday was on the subject on nutrition,…