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Lymphoma (Hodgkin and Non-Hodgkin)

Finally diagnosis
My daughter had a pet scan and CT done on Tuesday. She had port put in on Wednesday and her 1st round of chemo(ABVD). Doctor called me yesterday and said she had classical Hodgins lymphoma, stage 3 with symptoms. She has a 9cm mass in chest. They going to send her to radiation for consultation after she's done with chemo.…
Wait & Watch continues:) NHL (follicular)
Hello all. Just returned from oncologist visit and results of my CT scan show the 2 nodes in groin and hotspot in pelvis same size since May. No symptoms, will continue "Wait and Watch" for another 3 months. Some of you know I live in No. California and just experienced the horrific fires. My heart goes out to all…
CAR-T Gene Therapy Approved this Week
http://www.dana-farber.org/newsroom/news-releases/2017/fda-approves-car-t-cell-therapy-for-non-hodgkin-lymphoma/
Chest infection in third week - Second Cycle of R-Chop
Hi all, My father being diagnosed of advanced NHL - Dlbcl aged 55 has gone through 2 cycles of R-Chop so far. First two weeks after treatment are always good and can say quiet "Normal", but third week of his first cycle and now again in second cycle is very tough. He has caught diarrhea - doc has provided Flagyl and other…
Deauville Score 2
Well I posted inside a thread but thought I would post it in a new discussion because threads sometimes get old or jumbled. Finished RCHOP July 3 ,2017. PET scan in early September showed some activity and a Deauville Score of 4. My local Oncologist wanted me to go out to MD Anderson since my spleen was so enlarged and the…
Allogenic Stem Cell Transplant
I have friend who has a niece who will be getting an allogenic stem cell transplant.can anyone tell me what is the most critical time during this process. He is in another state and was wondering when he should be there for support. Sandy Ray
R-ICE and Autologous Stem Cell Transplant experiences?
Hi, my name is Kaitlyn, I just found out that my cancer has returned. My Oncologist is scheduling another biopsy to make sure of the type of cancer, which less than a year ago I was going through R-CHOP for stage 4b NLPHL. He has already told me what the treatment plan will be no matter what it comes back as. He wants to…
Rituxan maint done
Today was my last Rituxan maintenance treatment. All went well plus I met my new oncologist. (The Dr I had retired at the end of Aug.) She is very young and very enthusiastic. We went over my treatments and such. My prev Onc wanted to do a CT scan and bone biopsy before the end of the year. My new Onc told me that she…
Systematic or hypochondriac?..... help
I could go on all day, I’m 41 yr., healthy mother of two, was doing cross fit 3 to 4 Times a week, but I’m just gonna go ahead and type up my symptoms Again I am sorry. Over the past year I’ve been experiencing multiple ear infactions (right ear only)every 2 to 3 months. finally after the 4 one my doctor sent me to an…
DLBCL with involvement in testes: What is the risk of a local recurrence without radiation?
Hello everyone, I'm almost done with 6 rounds of R-Chop and 6 rounds of intrathecal methotrexate. My doctor (a hematologist) ata public hospital in San Jose, Costa Rica said he doesn't think I need radiation. I am stage 1, localized to the teste with a tumor that measured 3x2.5cm (which is too small to be considered a…
My 10 year son has swollen groin lymph node
Hello! I am a worried Mom of a 10 year old boy. He has a swollen groin lymph node. I noticed it about a week and a half ago by accident. I walked in on him getting ready and bam it was right in my face. I don't know how long it was there for. We immediately went to the doctor and they had him start on antibiotics. It's…
Is there a case to support no radiation?
How many of you have declined radiation and why? Have your doctors been reluctant to give you radiation? I will talk to my dr.this week. I think because I'm getting 6 rounds of R-chop, my tumor in the testicle was small, no infiltration, my lactate dehydrogenase is normal plus no other activity in ct scans he doesn't…
DLBCL: My Dr. said a PET Scan is not necessary
Hello everyone I am almost finished with R-Chop and intrathecal therapy. I didn't have a PET Scan at the beginning of treatment. My Dr. said unless there is something suspect he won't give me a PET Scan. How do I know I am in full remission without a PET? Have others gone through treatment with no PET Scans? Your advice…
Who do I see?
I have a somewhat complicated situation and I'm not the best at communicating my issues but, I'll try my best. A little over two years ago I was undergoing a series of test, after going to my doctor for lumps (which turned out to be lymphnodes), night sweats, severe fatigue, constant fevers and trouble focusing. I had…
DLBCL, Testicular lymphoma, CNS relapse
I just got diagnosed with DLBCL. I'm not sure yet where it started but I did have an orchiectomy because of testicular swelling. I'm a 35 years old and I guess this is rare. Seems like it is very treatable but the chances of CNS relapse is greater in testicular lymphoma. If my cancer started in the lymph nodes and spread…
lymphnodes
Hi i was wondering if anyone could help answer some questions. I recently had a pet/ct scan and lymphnodes were shown that had a suv up as high as 6.9. Does inflamation go that high. I am having a biopsy monday and not sure about any of this. Please someone respond???
New to forum
Well I'm sure just like everyone else here you never expected to be here. Prayers go out to each of you. I have a few questions. My 24 year old daughter had swollen lymph nodes couple months back. She went to her PCP who thought was infection and put her on antibiotics. She is a single mom of a year and half year old and…
Chemo delayed for 1 week
My father 55 years old been diagnosed of NHL and been given first cycle of R-CHOP on 12th Sep 2017 . The three weeks he has coped well with chemo and side effects - there was an improvement in his eating habits as before the tumor was pressing his food pipe and he could not eat or swallow. He did'nt develop any fever or…
Diffuse Large B Cell Lymphoma
My husband has been recently diagnosed. Stage II A. He has had one R-CHOP infusion so far. I'm very curious about other people's experience with the same diagnosis. How are you? Any advice?
1 Year today
Good Morning all! Today is my 1 year birthday! on September 27, 2016 I had my stem cell transplant. As I sit here I’m not sure whether I should be happy? Be scared? I think I’ll take the happy route with some scared mixed in. I’ve become a bit superstitious and remember the first time I posted that I was NED. That was…
Swollen armpit lymph nodes:
Hello All, I am a 30 year old male. for the past month or so I have been having a mild pain (discomfort) in both my armpits. I went to a Dr and was advised there were two swollen lymph nodes, one under each arm. Left armpit was slightly more swollen. I was given antibiotics. A couple of weeks later the pain was still…
Non-Hodgkins Lymphoma DLBCL
Hi all, My dad has been diagnosed recently of Non-hodgkins lymphoma, stage 4. Its involving skeleton as well. Has someone gone through the skeletal involvement? He can move along or carry out his minimum activities daily or you can say take care of himself - he has no problem in walking etc. other than severe weakness,…
Evaluation process feels like living in a pressure cooker
Hi everyone, I'm looking for some friendly advice on my evaluation process. I started in January of 2017 with a swollen lymph node under my jaw, my PCP and I decided to try antibiotics and give it 6 months to go down. It didn't and when I came back In July for my f/u I told her it was bothering me it was still there, she…
Breakfast
Guess what I had for breakfast? I enjoyed sipping a "Breeza" on an empty stomach. With its splashy label featuring strawberries, banana, pineapple, kiwi, even calling it a fruit flavored beverage, I always want it to taste like a fresh fruit smoothie. And each time, I shudder with the first sip--the artificially flavored…
Radiation after R-EPOCH
I am 78 years old and completing the 5th of 6 sessions of r-EPOCH. My pet scan shows full remission and no cancer anywhere. The suggestions of radiation after completion has come up. My lymphoma was in lymph nodes left side of neck. I've heard it is risky radiating neck and am hesitant . I also wonder at my age does it…
PTCL-NOS Belinostat
As some of you know, my husband has battled PTCL-NOS for almost 2 years. He was refractory to CHOEP. He had an initial response to Brentuximab Vedotin and Romidepsin, but in less than 6 months, had progressive disease We saw Dr Shustov last month and he recommended Belinostat. After 5 infusions (one cycle ), his nodes…
Rituximab-related late-onset neutropenia (R-LON)?
I cannot find this condition discussed here and wonder what others may have experienced with regard to "late-onset neutropenia", i.e., neutropenia that appears weeks or months after completetion of chemo that included Rituxan (R-LON). I do not know that this is what is currently going on with me, but it seems a more…
TERRIFIED to undergo auto stem cell transplant!!!!!!
I am a 28-year-old wife/mother. I was diagnosed over a year ago with a form of Non-Hodgkins Lymphoma. I underwent CHOP chemo and was in remission for one year. I was just told it I have a recurrence and need to have an autologous stem cell transplant! This gives me only a 50% chance of a cure. I am so scared!! I just want…
I need help
I'm so analytical it's almost disgusting. I get anxiety from all the information I've learned and I'm having a hard time dealing with this being I'm 35 I have 2 kids and 1 on the way and I'm getting married in 4 weeks. I was diagnosed with DLBCL. I just got out of the doctors office and the doctor pretty much put…
Question about fevers/chills?
So I have NLPHL and I'm about to do 6-8 months of R-ABVD but I have a question concerning fever/chills? It was 94 here today outside Philly and I was ok most of the day in a tanktop but I swear no matter how hot it is I get chills followed but feverish hot flashes as soon as the sun starts setting. It's like my body has…

Lymphoma (Hodgkin and Non-Hodgkin)

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