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Breakfast
Guess what I had for breakfast? I enjoyed sipping a "Breeza" on an empty stomach. With its splashy label featuring strawberries, banana, pineapple, kiwi, even calling it a fruit flavored beverage, I always want it to taste like a fresh fruit smoothie. And each time, I shudder with the first sip--the artificially flavored…
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Radiation after R-EPOCH
I am 78 years old and completing the 5th of 6 sessions of r-EPOCH. My pet scan shows full remission and no cancer anywhere. The suggestions of radiation after completion has come up. My lymphoma was in lymph nodes left side of neck. I've heard it is risky radiating neck and am hesitant . I also wonder at my age does it…
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PTCL-NOS Belinostat
As some of you know, my husband has battled PTCL-NOS for almost 2 years. He was refractory to CHOEP. He had an initial response to Brentuximab Vedotin and Romidepsin, but in less than 6 months, had progressive disease We saw Dr Shustov last month and he recommended Belinostat. After 5 infusions (one cycle ), his nodes…
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Rituximab-related late-onset neutropenia (R-LON)?
I cannot find this condition discussed here and wonder what others may have experienced with regard to "late-onset neutropenia", i.e., neutropenia that appears weeks or months after completetion of chemo that included Rituxan (R-LON). I do not know that this is what is currently going on with me, but it seems a more…
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TERRIFIED to undergo auto stem cell transplant!!!!!!
I am a 28-year-old wife/mother. I was diagnosed over a year ago with a form of Non-Hodgkins Lymphoma. I underwent CHOP chemo and was in remission for one year. I was just told it I have a recurrence and need to have an autologous stem cell transplant! This gives me only a 50% chance of a cure. I am so scared!! I just want…
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I need help
I'm so analytical it's almost disgusting. I get anxiety from all the information I've learned and I'm having a hard time dealing with this being I'm 35 I have 2 kids and 1 on the way and I'm getting married in 4 weeks. I was diagnosed with DLBCL. I just got out of the doctors office and the doctor pretty much put…
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Question about fevers/chills?
So I have NLPHL and I'm about to do 6-8 months of R-ABVD but I have a question concerning fever/chills? It was 94 here today outside Philly and I was ok most of the day in a tanktop but I swear no matter how hot it is I get chills followed but feverish hot flashes as soon as the sun starts setting. It's like my body has…
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Testicular lymohoma
If a orchiectomy was performed and I was diagnosed with DLBCL after looking at the testicle but it was all confined to the testicle is there a chance that got rid of all cancer cells and I wouldn't have to go through treatment maybe just on a watch. Supposedly I caught it early. Just trying to find the positive in this...
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Neck and Groin Nodes
Hello! A little background, I was diagnosed with papillary thyroid cancer in April or 2017. I had a total thyroidectomy as well as 6 lymph nodes removed for metastasic disease, followed by a dose of I-131 in May. Over the last 6 weeks I have developed some enlarged lymph nodes in the side of my neck, my collarbone and…
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Alkaline phosphatase (ALP) levels
I am currently in remission for large B Cell lymphoma, diagnosed in January 2017, chemo R-CHOP treatments from Feb - May. My bloodwork from May had my ALP level at 62 and this week's ALP level is at 120. Still in "normal" range but doubled since May. I also just finished a round of anti-biotics. How was your ALP after…
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Colon Malt Lymphoma
Has anyone had or have colon malt lymphoma? I had diffuse large b-cell lymphoma in 2011. 8 RCHOP and was done. 2016 my oncologist requires me to go see a regular doctor to prepare me to leave the oncology team. I see my new doctor and he says it is time for your first colonoscopy. I get it done about three weeks ago and…
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Side Effect for Rituximab Maintenance Therapy
I am a NHL patient from 2002 based in New Zealand. Did chemo twice using chlorambucil tablets in 2002 and 2004. In 2008 I had a full chemo with CVP-R followed by a maintenance therapy with R (Rituximab). There were absolutely no problems during the chemo. After a year completing 4 cycles out of 8 cycles planned, I…
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One way to survive three cancers
I posted this at ACS sister site WhatNext?, so I might as well re-post it here for the purpose of encouraging those who are struggling with a new or existing diagnosis. Bear in mind that I am not Superman - I have received tons of help thouroughout this journey. For those who are facing a seeming uphill battle, you are…
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swelling in neck with mcl??
I will try to explain this as best I can. My mother who was diagnosed with Mantle cell Lymphoma over 2 years ago and is still on watch and wait, (no treatment yet). Just had a check up with her breast cancer doctor 2 weeks ago, which consists of bloodwork and he checks her over. He said all looks good. I have not seen my…
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CONTRACEPTIIVES FOR SURVIVORS
I finished my treatment for Hodgkin lymphoma in June and the problem is completely gone. I have a few questions now. Can a survivor take contraceptive pills if needed? Is occasional alcohol consumption fine?
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Spleen involvement
Well went to see oncologist today. I was expecting to hear all looks good still, see you in 3 months. Instead he said showing a small area on my spleen. I had been diagnosed with NLPHL indolent Lymphoma and T cell rich B cell Non Hodgkins very aggressive Lymphoma . I finished treatments 6 rounds of RCHOP on 7/3/2017. After…
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Trying to figure out what is going on with my mom??
Hello everyone!! I am 21 years old and my mother has been sick for about 3 months now. It started close to the end of July. She is a nurse and she was working 2 jobs she used to suffer from high blood pressure but that was 7+ years ago. She has also been suffering with insominia for I think about 2 years, but she has…
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Maintenance decision Looking for Input.
Great news for the new year! Had a PET Scan just prior to my 4th cycle, Rituxan/Benda. Onc says there is no evidence of cancer and the mediastinal tumor has decreased significantly , as have all the other lymph nodes that were enlarged. I had my 5th cycle today and Lord Willing my last will be the end of this month. Now…
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For Fun
I have had trouble sleeping for a couple of weeks, which is not like me; I am usually a great sleeper. There haven't been any particular worries plaguing me at night and no symptoms of illness. I just wasn't sleeping. I am not one to lie in bed awake for an extended time as I think that causes stress. I will give myself…
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My NLPHL diagnosis
Hello! Since I was already commenting another post I wanted to introduce myself officially on this board :-) My name is Stephan, 34 yo and from Frankfurt/Germany and I was diagnosed with NLPHL on 24.03.2017 (details on my page) The stage is still unclear but most likely IA-II when they won't find anything in the bone…
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New NLPHL Diagnosis
Hello, Glad I have found this forum, I have been reading posts on here for a while as I waited for my biopsy results. I have had two mesentric lymph node biopies and the 2nd one has come with a diagnosis of NLPHL. The larger mass was found by accident on an ultrasound in Feb and since then I have had a CT scan and two…
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False-Negative? Other diseases like Lymphoma?
There are several threads alive with fear...fear from people who have had swollen nodes and have been feeling sick for quite some time...I have noticed that these people sometimes don't ever update us on whether their fear was realized or if their biopsies came back negative. My hope is that they are still fighting the…
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First post
Hi all, My name is Eric Edwards, 55 years old, male, located near Albany, NY, and first and foremost I'd like to thank all of you for your timely and supportive posts. I'm also bipolar, suffer from major depressive disorder, controlled hypertension, high cholesterol, borderline but not diabetic, GERD, and am a recovering…
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I hate this
Hi all, I have been vacillating about telling you guys, I don't know why, but I just figured out I have to write. About 3 weeks ago, we found out that Bill has relapsed. It's not too bad, in his last CT scan they found a few very small nodes where his esopagus meets his stomach. He had been having some bad side effects…
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AITL
April 27, 2012 I was diagnosed with stage 4 AITL went through the chop regiment then in October I did my stem cell transplant. It will be my 5 year mark in November and I have been as healthy as can be the whole 5 years ( some bone aches ). I was wondering what others with AITL think as far as relaps. Do you think it will…
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Extended Treatment
After talking in person with 2 FNHL patients I thought it may be helpful to some people considering Single Agent Rituxan to consider the following when developing a treatment plan with their Doctor: Patients with relapsed FNHL who opted for Rituxan monotherapy and were treated with an initial eight weeks of Rituxan…
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groin node
Good evening. I am 34 and based in England, uk. Nearly 2 weeks ago, I noticed a pain/tenderness to the right groin area. No other symptoms. Though I have felt a bit tired as not a great sleeper and did have a couple minor bouts of cold previously I am pretty healthy, though do have food allergies, hay fever, eczema, and…
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Looking for advice
i have been unhealthy for awhile now with no answers. I had an ultrasound done of lymph nodes in my next a few weeks ago and the results showed enlarged, dense nodes. The doctor wanted a CT with contrast but because of stage 3 renal disease my nephrologist will not sign off on the CT. Now my doc wants me to wait 6 months…
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Maybe premature, but worried for my dad
Good afternoon all. It feel strange to be posting here. I hope no one minds- my dad had a biopsy done yesterday on an "inflammatory rind" surrounding his Abdominal Aortic Aneurysm. We originally were doctoring because my dad has terriblepain in his hip and leg and has bad circulation in his right leg. They can't do a stent…
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Any help for a caregiver for a newly diagnosed Stage IV NH Follicular Lymphoma husband?
My husband was diagnosed with Non-Hodgkins Stage IV E Follicular Lymphoma Grade 3A almost a month ago. He had his first chemo treatment of R-CHOP on Friday, March 24th & has not been showing any signs of side effects. We were both freaked out when his infectious disease dr told us one of the pathology reports came back as…