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DLBCL with liver cirrhosis
1. I am not a cancer patient but a son of one looking for support and to hear stories from other patients. My mom(65 years old) was diagnosed with diffused large B cell lymphoma(DLBCL, left upper arm) a month ago. DLBCL was discovered during liver transplantation preparation due to liver cirrhosis. So, liver…
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Dad Age 80 Path Report 1st Visit to Onc Tomorrow
We are going to see the oncologist at our local cancer center tomorrow. My Dad age 80 has a mass enircling his messenteric artery. He has lost 30 pounds and had a heart bypass about 6 years ago. Was in good health untl one month ago when pain started. He is fatigued but getting around a bit. Biopsy was done and path…
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Lymphocytes in the bone marrow starting cytoxan and rituxin
i was wondering if anyone out here he’s had just cytoxan and rituxin...with 1000 mg of prednisone (the steroids are only for 5 days) it looks like I will have to do this for 5 times...with 3 weeks in between.... Any feedback will be appreciated !!! They said I have enormous amounts of lymphocytes in bonemarrow and it’s not…
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Cancer is never your friend
Having a diagnosis of cancer can be frightening. A person can be confused or misguided by the plethora of opinions, information and outright lies out there. My opinion is that cancer is an enemy to be defeated. Its that simple. Cancer is never your friend and wants to kill you. Never forget that. Never give cancer an even…
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Is Memory Loss a symptom of R-EPOCH?
My fiancée was diagnosed with stage 3 Diffused Large B Cell Lymphoma. He just completed round 2 of R-EPOCH. I'm concerned that he's is experiencing memory loss and could get hurt. At times he completely forgets where he is at or he losses his train of thought in mid sentence. He's very fatigued and is almost always curled…
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Another person diagnosed with NLPHL
Hello everyone, Former lurker here. It seems like only a small number people on this forum have had NLPHL, but it looks like you can add me to the list. I am a 32 year old male, went to urgent care with a cold 5 months ago and they did a chest X-Ray and found something that looks like scarring in my lung. That then lead to…
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methotrexate
Good morning everyone! I hope you all had a good Christmas. I am posting to hopefully get some feedback from people who have had methotrexate infusions. Mom is about to complete her final round of chemo, which will be followed by methotrexate. Doctor says they will give it to her through her port not spine, which makes me…
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R-CHOP chemo and the after effects
Hello all and I am new here!! I was diagnosed summer 2015 with Diffuse Large B- Cell Non-Hodgkins Lymphoma. Bone-based. I had 6 rounds of R-CHOP chemo and finished my last session in December 2015. I feel I sailed through the chemo and was cleared in January 2016, and April 2016. And still in clinical remission. I am…
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Lymphoma relapse
Plasmablastic lymphoma. Can velcade put it into remission?
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Constipation,bloating
anyone expierence constipation and stomah bloating during and after chemo for abvd chemo?
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Terrified of relapse!!!’ Opinions plz
I’m 28 years old and February 2017 I was diagnosed with stage 2 Hodgkin’s lymphom. In April I started ABVD 12 treatments. ( 6 cycles ) I had clear Petscan within 2 cycles and finished my treatment until September 12th! I was not feeling good the week I went for follow up CT i was having coughing and having minor chest…
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So confused and scared
I am about 6 months out from gastric sleeve surgery for weight loss. Since then I have been having dull abdominal achiness off and on and feeling mildly bloated in my abdomen. Initially I thought it was constipation then I thought maybe I was just pre-menstrual. One day while lying flat on back I was rubbing across the top…
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more good news
We got back from Houston a week ago and just wanted to tell you that Bill is still in remission, His report is NED. At our local cancer center when he reached remission the first time, they called him the Miracle Man, after geting on Ibrutinib he was called the Million Dollar Man, now they are just calling him Ned . Anyway…
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Update
Well my daughter's had her 4th round of chemo. Wipes her outb but so far so good. Her WBC are beginning to drop some but they said she's still within range that they don't have to lower any doses. She just shaved her hair off cause it was falling out. Being 24 she didn't take that well. We all told her it'll grow back. She…
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Mom's relapse
hi, my mom's relapsed already since her bone marrow transplant last year. Follicular/malt/tcell. Looking to connect with others as we approach the next phase. She is my best friend, and in good spirits. I worry she is fatigued and a little confused already. She's having a little radiation and then "we'll see". She is in…
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My mind is wondering again..so worried
Can stage 2 hodgkin's lymphoma be cured with stem cell transplant? From the start it was only stage 2 they did not stage my relapse. I know its borderline activity in 2 nodes. That was 3 weeks ago im still waiting for insurance to approve my chemo. But I read so many storied some people going through this for 7-9 years? Im…
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Seattle T-Cell Lymphoma patient education seminar 2017
Saturday December 16th, 2017, 8:30 AM to 2:30 PM at the Seattle downtown Sheraton. It's that time again. Free breakfast and lunch. A very informative educational opportunity, providing the latest in research data regarding T-Cell Lymphomas, presented by Dr. Andrei Shustov, one of the luminaries in the lymphoma world. A…
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Hepatosplenic T-cell Lymphoma
Hi friends! I was diagnosed with Hepatosplenic T-cell Lymphoma in February of this year. I am currently undergoing chemotherapy and would love to share experiences with anyone else who has this monster! I am a 38 year old mother of two, registered nurse, who before February was the picture of health. I first went to the…
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Discontinued maintenance therapy today
I have FL transformed to large diffuse b-cell lymphoma (stage 1; please note a 19cm tumor around my kidney cutting off function). I completed 6 rounds of R-CHOP, 6/16 through 9/16, followed by 1 year of maintenance rituxan. I have had continued low immunity despite otherwise good quality of life. Last month, I suddenly…
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chronic pericarditis 8 years s/p chemo radiation.
I am a 37 year old female, with hx of Hodgkins dx in 2005. I received radiation to mediastinum and chemotherapy ABVD regimen (Doxorubicin, bleomycin, vinblastine, and dacarbazine). I started having tightness in my chest, and shortness of breath on exertion around year 8 post treatment. I was sent to the cardiologist from…
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ANGIOIMMUNOBLASTIC T-CELL LYMPHOMA (AITL) -- have to make a serious decision regarding autologous st
Dear Members, I am new to this forum and would very much appreciate your take on my dilemma. My husband of 20 years, now 65 years old, whom I love from the depth of my being, has just gone through 6 cycles of CHOP chemotherapy and we're waiting for the result of the PET scan he had last Thursday. He has been, save for…
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Newly diagnosed and need support
Last Thurday, October 26th I was diagnosed with Follicular Lymphoma. They don't know what stage it is yet. They do know I have enlarged lymph nodes in my neck, both arnpits and groin. Those are the ones they can see. I am getting a port put in on Monday. This type of Lymphoma is not curable but they can at least manage the…
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nodes getting bigger Mantle cell
So my mother just had another check up with her oncologist to go over her recent blood work which all looked good. She actually said her blood work has been getting better her last few check ups. However she said that it appears her nodes to appear to be increasing in size. She has not been treated as of yet. The doctor…
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SUV number of PET Scan
This is my first post here. I was diagnosed Diffuse Large B-Cell Lymphoma (DLBCL) Primary non-Hodgkin of Liver Stage 4 in May 2017. I only had weeks to live, but I complete 6 rounds chemotherapy of Epoch. I feel much better now. I took PET Scan (this is my third PET Scan) after the last chemo - six weeks later. All the…
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Questions - My sister-in-law
My sister-in-law said she had Non-Hodgkins and it was in both armpits and groin [Gland or tumor was the size of an avocado pit]it has also in the bones as well. At this point, let me add my brother was in poor health and in and out of the hospital and care facility most all of 2016. I would guess 80% of the time. During…
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Been awhile
It has been a while since i posted last, finally got this auto immune disease under control after being misdiagnosed for 7 months finally i know what im dealing with, oral lichen planus, which i will deal with the rest of my life. Last scan in Sept showed nothing as far as cancer, so i am 2 and half yrs in remission. Life…
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Biopsy with sedation
has anyone ever done a biopsy with sedation? I had one before without any and it was horrible. Now my doctor is letting me have sedation from the bad experience I had before. Was wondering what they give you? & if Your in pain when you wake up??
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Mets to spleen? Anybody?
I have not yet been diagnosed. I have a diagnostic screening mammogram and ultrasound this afternoon. Currently I'm category 0 because it was my very first mammogram that they found: 1cm mass/focal asymmetry on lower outer right breast. I also haven't had a huge lump in my armpit for quite some time on the same side. But…
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Hepatosplenic T-Cell Lymphoma
My younger brother was just diagnosed with Hepatosplenic T-Cell Lymphoma. This is likely attributed to some meds he was taking for Crones. We want to talk to people who are fighting the same disease or family members of those who have it. His is the alpha-beta type, which we are told is "more treatable", however, we don't…
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Has anyone had rEPOCH cycles for DLBCL ?
Completed 6 5-day cycles of rEPOCH for Diffuse Large B-Cell Lymphoma earlier this year and have not met anyone with this treatment and I know there must be others with this experience. How are you doing and how long did it take you to start getting things together? Would appreciate your response(s).