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Lymphoma (Hodgkin and Non-Hodgkin)

Hepatosplenic T-cell Lymphoma
Hi friends! I was diagnosed with Hepatosplenic T-cell Lymphoma in February of this year. I am currently undergoing chemotherapy and would love to share experiences with anyone else who has this monster! I am a 38 year old mother of two, registered nurse, who before February was the picture of health. I first went to the…
Discontinued maintenance therapy today
I have FL transformed to large diffuse b-cell lymphoma (stage 1; please note a 19cm tumor around my kidney cutting off function). I completed 6 rounds of R-CHOP, 6/16 through 9/16, followed by 1 year of maintenance rituxan. I have had continued low immunity despite otherwise good quality of life. Last month, I suddenly…
chronic pericarditis 8 years s/p chemo radiation.
I am a 37 year old female, with hx of Hodgkins dx in 2005. I received radiation to mediastinum and chemotherapy ABVD regimen (Doxorubicin, bleomycin, vinblastine, and dacarbazine). I started having tightness in my chest, and shortness of breath on exertion around year 8 post treatment. I was sent to the cardiologist from…
ANGIOIMMUNOBLASTIC T-CELL LYMPHOMA (AITL) -- have to make a serious decision regarding autologous st
Dear Members, I am new to this forum and would very much appreciate your take on my dilemma. My husband of 20 years, now 65 years old, whom I love from the depth of my being, has just gone through 6 cycles of CHOP chemotherapy and we're waiting for the result of the PET scan he had last Thursday. He has been, save for…
Newly diagnosed and need support
Last Thurday, October 26th I was diagnosed with Follicular Lymphoma. They don't know what stage it is yet. They do know I have enlarged lymph nodes in my neck, both arnpits and groin. Those are the ones they can see. I am getting a port put in on Monday. This type of Lymphoma is not curable but they can at least manage the…
nodes getting bigger Mantle cell
So my mother just had another check up with her oncologist to go over her recent blood work which all looked good. She actually said her blood work has been getting better her last few check ups. However she said that it appears her nodes to appear to be increasing in size. She has not been treated as of yet. The doctor…
SUV number of PET Scan
This is my first post here. I was diagnosed Diffuse Large B-Cell Lymphoma (DLBCL) Primary non-Hodgkin of Liver Stage 4 in May 2017. I only had weeks to live, but I complete 6 rounds chemotherapy of Epoch. I feel much better now. I took PET Scan (this is my third PET Scan) after the last chemo - six weeks later. All the…
Questions - My sister-in-law
My sister-in-law said she had Non-Hodgkins and it was in both armpits and groin [Gland or tumor was the size of an avocado pit]it has also in the bones as well. At this point, let me add my brother was in poor health and in and out of the hospital and care facility most all of 2016. I would guess 80% of the time. During…
Been awhile
It has been a while since i posted last, finally got this auto immune disease under control after being misdiagnosed for 7 months finally i know what im dealing with, oral lichen planus, which i will deal with the rest of my life. Last scan in Sept showed nothing as far as cancer, so i am 2 and half yrs in remission. Life…
Biopsy with sedation
has anyone ever done a biopsy with sedation? I had one before without any and it was horrible. Now my doctor is letting me have sedation from the bad experience I had before. Was wondering what they give you? & if Your in pain when you wake up??
Mets to spleen? Anybody?
I have not yet been diagnosed. I have a diagnostic screening mammogram and ultrasound this afternoon. Currently I'm category 0 because it was my very first mammogram that they found: 1cm mass/focal asymmetry on lower outer right breast. I also haven't had a huge lump in my armpit for quite some time on the same side. But…
Hepatosplenic T-Cell Lymphoma
My younger brother was just diagnosed with Hepatosplenic T-Cell Lymphoma. This is likely attributed to some meds he was taking for Crones. We want to talk to people who are fighting the same disease or family members of those who have it. His is the alpha-beta type, which we are told is "more treatable", however, we don't…
Has anyone had rEPOCH cycles for DLBCL ?
Completed 6 5-day cycles of rEPOCH for Diffuse Large B-Cell Lymphoma earlier this year and have not met anyone with this treatment and I know there must be others with this experience. How are you doing and how long did it take you to start getting things together? Would appreciate your response(s).
About to get a biopsy and so scared.
Hi, I'm currently laying on my hospital bed and very scared. I have a mass on my back, touching the spine, that has been causing me hell of pains, so now I'm getting to the bottom of it, except that the bottom looks very scary. They have high suspicions that it's lymphoma. Today I get the biopsy done, but it won't be until…
Testing to see if I can post new thread
I keep trying to post a thread and I keep getting an error message saying to try again so I'm just doing a quick little test to see if this one posts.
Last treatment!
First off......Hello!!! My name is Ross and I was diagnosed back in June of this year (2017) with nodular sclerosis Hodgkin lymphoma and have been undergoing the standard ABVD chemo regiment ever since. It's been a long tough journey to say the least but next week is my last treatment!!!! Finally!!! I'm new to this whole…
Mother-in-law, Large B Cell Lymphoma
Déjà vu all over again. I see on the caller ID it’s the Cancer Institute, I pick up the phone to hear the results of the biopsy only this time it wasn’t for me or my father but my mother-in-law. Once again I stand in lymphomas playground. I with follicular cancer NHL, my father with mantle cell NHL and now my…
PTCL NOS
Is there anyone currently being treated for Peripheral T Cell Lymphoma NOS?
Bone marrow biopsy discomfort - long term?
Hello, has anyone experienced chronic discomfort from BMB? I had the procedure in 2013 and still experience sorenness at the site. My oncologist dismisses the connection to the procedure and indicated none of his other patients have had this issue. I'm frustrated and would like to find a solution. It is very uncomfortable,…
Double Expressor Large B Cell NHL
Good afternoon. My mother was diagnosed with Double Expresor Large B Cell NHL about 3 months ago. We found out she is in remission after 2 rounds of da-rpoch. She will continue to get a total of 6 treatments followed by methotrexate infusions. We are aware that the cancer my mom has is very agressive and can potentially…
advise for possible cancer w/no insurance
I rarely go to doctors. When i do, it's usually an emergency. Lost job & have no insurance at the moment. I've been feeling pretty bad for the most part of the past year or so. I finally decided to try to get things cnecked out. I ended up going to an adult medicine doctor at an income based clinic in my area. He & the…
brentuximab
Has anyone ever tried this chemo before? My doctors are giving me this and then stem cells transplan.
Update from paella
Hello all – Sorry to be so silent…been super busy with Mac’s caregiving. No complaints, mind you, but it is, indeed, overwhelming. I think a lot about you all and just wanted to say hi. I’m doing fine and am 16 months in remission now from the return of my Folicular NHL and an autologous SCT. Mac's pancan (Acinar Cell)…
Treatment rash
Did anybody experence a mild skin rash during chemo? and did it stay a little bit after chemo?
Biopsy Reaults!!!!
My results are back my doctor said that it’s the same exact Hodgkin’s lymphoma I was first diagnosed with , it didn’t spread and is in two lymph nodes they biopsies. i might need ice chemo? Or something that starts with a B a out patient chemo and then stem cells in Februar. I’m so scared lost and worried. Does anyone have…
To Port, or Not to Port?
Starting a new thread since this is more of a specific question...My wife just started ABVD. My cousin, a RN who worked an oncology/treatment floor for a year plus, had asked if my wife would get a PICC or a Port...she explained what was meant by using a central line versus standard IV and also the pros and cons of the…
bronchoscopy
Im scheudled this Friday for a bronchoscopy biopsy! Anyone have this Done before? I was told it’s not invasive or anything bu wondering about the recovery of it ? I heard your throat and mouth are numb which is a little scary to me I feel like I’m gonna wake up and not be able to talk? Any info will be appreciated.
Eyebrows,head hair, etc
Hi everyone, I just finished 6 rounds of ABVD chemo and am currently waiting to take my final pets scan. i didnt compley lose my hair but jt thinned quite a bit but i lost my eyebrows, eye lashes, arm pit hair, pubic hair and leg hair. i am a male if that matters. I was jsut curios how long after treatmenr it normally…
Paranoia
Hey guys, i just finisged 6 rounds of abvd chemo and i had a pet scan after 2 rounds and they said eveything looked great, i finished my last abvd chemo 2 weeks ago and i have a pet scan in 2 more weeks. The doctor is talking like everything is going to be fine and really there is no sighns it shouldnt be, basically im…
T-Cell Lymphoma patient education forum, Honolulu, Hawaii September 2nd, 2017
The T-Cell Leukemia Lymphoma Foundation is conducting a patient education forum in Honolulu, Hawaii on Saturday, September 2nd, 2017. It will be presented at the Waikiki Beach Marriott from 8:30 AM to 2:30 PM. As always, registration (required, but free) is easily done online. A continental breakfast and lunch are…

Lymphoma (Hodgkin and Non-Hodgkin)

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