-
Rituxan and Fludarabine
Hello, I'm a 52 year old male who was diagnosed with Non-Hodgkins Lymphoma (Lymphoplasmacytic Lymphoma). I underwent 6 treatments of just Rituxan in Jan/Feb. My bone marrow has gone from 70-75% occupied to 90-95% occupied with lymphoma cells. 5/19 I start Rituxan and Fludarabine for five days straight, three weeks…
-
aulologour stem cell transplant for NHL
in remission for diffuse large B cell lymphoma. PET, CT, bone marrow, clinical exam normal. Just finished intrathecal methotrexate in spinal cord- 6 injections. Trying to decide if I should proceed with stem cell transplant prior to any recurrence. Also interested in side effects from stem cell transplant and recuperation.
-
Side effects
I had a transplant 9 months ago, after chemo and radiation failed for Hodgkins in my neck and behind my chest wall. My thyroid is fried, and I am always tired. I have had no hearing loss but my nose is as good as a dogs(at least that's what my husband says) I can smell things others cannot. Also my memory, and…
-
Non Hodgkins Bone Lymphoma
I was diagnosed with NHL however it originated within the bone in my right pelvis. I know that normally it originates in a lymph node of some sort, but was wondering if anyone out there has had any experience with this. I was wondering also what the different treatments/prognosis are for bone lymphoma vs. regular NHL.
-
A lil about me...
Hey yall, I'm Sarah. I'm new to this, so I figured I would just write a lil blurb about me and my disease, so ya'll can know a lil about me, and maybe weel have something in common! For over a year I was sick with fevers and vomiting and severe back pain. My mother finally demanded the doctor to give me an MRI and they…
-
Do you need to talk to someone who survived stage 4 hodgkin's twice?
I've survived stage 4 cancer twice, first time when I was 25 and it was treated with 6 cycles of ABVD, and the next time when I was 27 and it was treated with chemo, radiation and stem cell transplant. Now, I've been in remission for 6 years. If you need to talk or have any questions, I'll be glad to help you. Thanks
-
Any Advice?
I received a clean bill of health on Monday after receiving chemo and lumbar puntures for Non-Hodgkins lymphoma. I had a malignant tumor behind my tongue. I just finished my chemo in August - 6 treatments and 6 lumbar punctures. I am very blessed to be in remission. However, I wake up everyday thinking is it going to come…
-
Survey
Hey everyone, my name is Paul Hogan and I am currently a psychology student at the California State University in Fresno. I am currently conducting research on the life outlooks of cancer survivors. If you could spare 10 minutes of your time to take a survey, I would greatly appreciate it. I myself am a past cancer…
-
BIOPSY
I go for a biopsy in two days could anyone tell me if this is painful or what to expect from this?
-
In Remission & Nervous
I was diagnosed with Hodgkin's Lymphoma in October of 2006 when I was 15 weeks pregnant. I did 6 treatments of ABVD while pregnant, had my little boy (who is healthly and perfect!), waited a month and did another 6. I opted not to do radiation since everything I read told me I was basically guaranteeing myself breast…
-
WORRIED
I went to the doctor two months ago because I felt a lump in the side of my neck(size of a bean) I had a cold at the time and the doctor said it was just a swollen lymph node due to my cold she told me to come back if this did not go away. So three weeks later it was still there so I went back to see her and she said she…
-
18 when found out that i have Lymphoma now 21 think it is back
hey my name is morgan i was 18 when i found out that i had stage 4 lymphoma..I also had a lump in my neck for at least a year before i got it checked out...The first 2 doctors i went to told me it was nothing then i got a 3rd opinion where they removed the lump and told me i had lymphoma...I had a Cat scan and had tumors…
-
FOLLICULAR NON-HODGKINS LYMPHOMA(OPTIMISM)
HELLO TO ALL AND THANKS SO MUCH FOR THIS WEBSITE... IT HAS HELPED ME VERY MUCH UNDERSTAND MY SISTER'S ILLNESS. I WANTED TO SHARE WITH YOU, THAT AFTER 6 ROUNDS OF RCHOP, MY SISTER(AGE 44 AND A NURSE), APPEARS TO BE IN REMISSION... THER'S A SLIGHT CONCERN, WITH A MARKING NEAR HER PAROTID GLAND OR GLANDS, WHICH WE WILL KNOW…
-
Smoking & Chemo
First let me preface this with the statement that I am NOT a "smoker." At 29, I have a colorful group of friends and about half of them smoke (and we are all intelligent, educated individuals who know the risks). I'm around it a lot and, on occasion, I will partake with a cocktail. I started ABVD (one time 10 days ago) but…
-
numb chin
Has anyone out there got a numb chin from your cancer or lymphoma?
-
Chemo Pain - Meds and new symptoms
I was diagnosed with Hodgkin Lymphoma in August 2003 and finished chemo and radiation in 2004. Very succesful but now I am almost 5 years out and I have terrible neck pain front and back. I did have pain in my legs and feet but am taking neurontin for nerve pain and it has helped but then my neck pain started and I don't…
-
Newly Diagnosed.
Hi, my name is Kaitlin and I am 18 years old. I was just diagnosed with Large B Cell Non hodgkins Lymphoma on Tuesday. I am so new to this and I would appreciate it if anyone would be kind enough to help me learn what exactly I have and explain to me what I will have to go through in the near future. [doctors lingo is a…
-
Temp Chat room
While the chat room is down we are meeting at a temporary site. Please log onto: http://southernhospitality.homestead.com/ChatRoom2.html Delete guest....add your CSN name no password Delete lobby replace with southernhospitality see you there
-
pet ct scans
i just wandered if anyone can give me some feedback on what other onc are saying about scans i had agressive mediastinal non hodgkins with super vena cave syndrome underwent rchop 7 rounds every 3 weeks i finished chemo in oct 07 had 1 scan in dec and i iwill not have another until this oct thats a 10 month wait my blood…
-
Bone Marrow Transplant???
Hi everyone, I need some advice. I'm 22 and have Hodgkins Lymphoma. I went into remmision last October but now it has come back. My doctor wants me to have an autologous bone marrow transplant. I don't know very much about it and everything I seem to be learning scares me. I need to know what to expect. How long do I need…
-
Family History
Last December I was dx with NHL agressive follicuar grade III. I just finished 6 sessions of R-chop and after my 3rd was told I was in remission. Yesterday I received a phone call from my sister who has lived in another state for the past 35 years and was shocked to hear that she was also dx with Lymphoma. That is all I…
-
Have Faith
Well, it's been over 5 years since my diagnosis, surgery, chemo, and radiation. In November 2002 I was diagnosed with a fairly large tumor in my mediastinum. Turns out it was Large B Cell NHL. A CAT scan in February shows no tumors. I've been tumor free for over 5 years. What a blessing. Keep the faith and throw the…
-
Non Hodgkins and Vertigo connection
My husband completed chemotherapy one year ago for Stage IV NHL. Everything has gone great. However, he now has developed severe vertigo that seems to be resisting treatment. Maybe I'm paranoid, but I'm wondering if it's connected to the NHL. Has anyone else with NHL developed vertigo of this persistent nature? Is it some…
-
NHL and Fludarabine
I am a five-year survivor of NHL (follicular). I have been thru two rounds of rituxan, and now my hemonc is recommending i combine with Fludarabine to reduce the tumor load. Anyone else go through this regimen? thoughts? suggestions?
-
NHL and Fludarabine
I am a five-year survivor of NHL (follicular). I have been thru two rounds of rituxan, and now my hemonc is recommending i combine with Fludarabine to reduce the tumor load. Anyone else go through this regimen? thoughts? suggestions?
-
Follicular Lymphoma
Hello all, I am newly diagnosed (3 days ago). I have not seen an oncologist yet and am a bit scared. Maybe some of you who have the same type of NHL as I can share your experiences as to what you've gone through up to this point.
-
recovery time
Hello my name is Jude,I am a 29 year old female. I am a firefighter contractor in Iraq. I had just returned back to the states in Feb after a year over there. I was in process of getting my physical for the next contract when they found a 12 by 8 cm tumor in my chest wraping around my heart. I am currently finished with my…
-
Reduced Therapy Allogenic SCT
Hello, I was wondering if there is anyone out there that has had a Reduced Therapy (Mini) Allogenic (Donor) SCT? I've recently relapsed and gone through treatment for Stage IV indolent NHL. The doctors are saying that I am currently in remission but the cancer will again relapse. They say that at this point, I can either…
-
after 3 rounds my sister is better
hello to all:) i wanted to post another message about my sister... she has had 3 rounds of rituxan, her chemo's, and her neulasta.(cycles of 21 days). she takes allpurinol also. she had a recent repeat pet scan(after 3 rounds) and her onc. "told her that there is dramatic improvement" my sister did not ask all of the…
-
27 years old, and have been in remission for 12 years!
Hi all! When I was diagnosed with Hodgkins in 1990, I was 15 years old. I was in stage 3A, and recieved 6 rounds of both MOPP and ABV, in addition to 3 weeks of radiation. I have been out of treatment for 11 1/2 years, without any recurrance. I know there are some teens out there going through this tough process. If anyone…