anyone else with alk-ana plastic large cell

alclmom Member Posts: 7
I would like
to hear of another case of this said to be rare form of non Hodgkin's


  • kathyh007
    kathyh007 Member Posts: 4
    I have ALCL ALK- and PTCL NOS. Was diagnosed in March 2009. 6 treatments of CHOP and remission for 4 months. Relapsed in October 2009. Admitted to clinical trial of SGN-35 in December. I'm recovering well. Doctors have recommended an allogenic stem cell transplant once I'm in full remission, and I'm nearly there now. SGN-35 works so well that I'm going to check around to see if I can just rely on that and skip the stem cell transplant.

    Allo's have real problems with chronic GVHD (graft versus host disease), so I'm not sure I want to go through with it. I'm feeling so much better now, I don't want to go backwords permanently. I'm 60 years old, 59 years when I was first diagnosed.

    Hope this helps.
  • ace122094
    ace122094 Member Posts: 1
    My son was diagnosed with anaplastic large cell non hodgkin lymphoma in June of 2006. We did 15 months of treatment at MD Anderson. He relapsed after 15 months... We did 7 more months of chemo, and then a transplant. He relapsed again exactly 6 months after transplant. This time we were allowed to participate in a study of SGN35. I can't sing the praises of this drug enough. We were all able to live a basically normal life during treatment. My son Logan just finished treatment last week, so now we are just praying that SGN35 was the miracle drug we have been praying for.

    I would also like to hear about anyone else who has been diagnosed with that type cancer or has tried that research drug.