-
Worried about John
Hi Guys, Steve and I just watched on the news showing the tornado damage in the Carolina's. John lives 14 miles east of Fayetteville N.C. Sure hope he checks in to let us know if he's ok. The whole area around where he lives looks to be having severe storms with tornado warnings and touch downs. Last report said 19 killed.…
-
WOW!
I didn't realize I was AWOL for this long....so many posts and so much going on with everyone. I just wanted to pop in to say hello and try to catch up. There are so many posts I have to do a general message to wish you all well. Wherever you're at stay strong and keep the faith. My good wishes and prayers to all. I am…
-
I'm Bald
Well my hair gave up the struggle this morning. I got out of bed and it was looking so frightening I tried touching it and way too much came out for my peace of mind. So I had Jim shave it off for me. I don't know about anyone else, but my hair was "hurting" and my scalp was very sore from the weight of the hair. I am glad…
-
Sue, thinking of you
Hi Sue, I had started to worry about you , thanks for posting. My thoughts kept going to the scan and then not hearing from you. Thats not your normal to be away without saying so. Of course you can be away any time you like with out letting us know, but I knew something was wrong. I kept thinking that you must be so down…
-
immune system damage
Anyone have permanent damage to their immune system due to treatments for NHL? My family doc thinks that is what is going on with me - have been sick off and on since November - as long as I'm on antibiotics I get / feel better - but as soon as the antibiotics are gone, I'm right back sick again with sinus-like issues.…
-
Labs not so good
Hi All, Well, I received a call this morning form MD Anderson, the nurse for my onc was concerned about my recent lab results. She didn't like the numbers. They are wanting to do some adjustments with my meds. I really hate that. It seems that I just get used to one change and then they get changed again. I am still…
-
Port pain sensations?
Is it normal to feel the port so strongly? I can feel the tubes and everything and it just seems so odd. I wonder if there is a problem with mine?
-
Specialists Visit
Hi Peeps, On Monday I'm supposed to be in SF seeing my Lymphoma Oncology Specialist, staying over night and than seeing my Orthopedic Specialist on Tuesday. I've been having more pain than usual in my left hip so need to find out what's going on. I've had double hip replacement in 2006 so should not be hurting. After…
-
New To Town
Hey all, I've been lurking around the forum for a shortwhile after I was just diagnosed with Stage 4 Hodgkins Lymphoma. I'm not so sure what to say so I'm going to go through my story so far - with telling your story being therapeautic and all. My first symptoms came upon when I was Studying in Japan last year - Tiredness,…
-
Nervous about upcoming appt results
I was diagnosed 5/5/10 with stage IV follicular NHL. 6 rounds of R-chop only got me into "partial remission". I then did a clinical trial drug (Bexxar) in 11/10. I was told I would have a CT/PET scan in early February to see if that had worked. Orders got messed up and February came and went with no tests scheduled. Then…
-
Hey Sue, how are you
Just hoping that this morning went smoothly for you. I know that I have not been posting as much, but do try and read as much as possible. I'm keeping good thoughts in my heart for your scan results. Let us know how your doing.. peaceful healing Lisha
-
Work/Co-workers/Bosses and Cancer?
I got in trouble today guys. For not being 100% while I am at work and the strain it's causing for my co-workers. They would rather me stay home than to do the best I can while I am there. My timing is off. Not staying caught up and then they don't know when to help. I can barely stop crying and don't have the first idea…
-
mechele23
did they get all of your husbands cancer and did he have to have chemo or rads i hope he doesnt have cancer, i really dont think he thinking clear. he things everything is mind over matter iguess all of those yearsinn the marines this is a something you really have fight by yourself my prayers are with you denise
-
Questions to ask Oncologist???
I need advice for things to ask the oncologist I'll be seeing. To give a little insight, I have lymph nodes in my neck that are enlarged. One is just to the right of my throat (jugular node) and the second is a hard mass (retroauricular I believe is what they called it). These were confirmed on CT. I have had a third node…
-
Maint Rituxan cancelled today
Hi guys, Well...got my labs done(looked fine) and after seeing my onc he decided to not do my Rituxan today until a new set of scans are done. He didn't like the swelling under my left arm or the tender area in the left breast tisue. He also checked the left side of my neck and said it was indeed swollen. Between the…
-
CT guided Retroperitoneal Core Needle Biopsy
I do not have a diagnosis of lymphoma, nor am I a survivor, or in remission. Presently going through testing due to abdominal lymphadenopathy, found in the CT scan for appendicitis. ER radiologist said it was lymphoma, I'm hoping she's wrong. Last Monday I had my core needle biopsy. The needle was insert through my back.…
-
Rituxin question
Hi all, Just a question. For those of you having rituxin maint, is it the same dose/strength as when you had it with cvp-r or chop-r. Just wondering. Lisha
-
Happy Birthday Beth!
Hi Beth, I know you don't feel your best right now, but I do hope your day is special, because you sure are. Happy Birthday friend. Much love...Sue (FNHL-2-3A-6/10)
-
hi guys
hello Guy's sorry I have not posted in a while, right now Lisa and I are in Florida enjoying the sun for five days. It was much needed for both of us. Lisa needs surgery to remove a papilloma and a blood clot from her first procedure. The doctor told us that if you leave this in it can cause problems later down the road.…
-
Nose Bleeds
Has anyone had any problems with nose bleeds? It's been 17 days since treatment with R/B. Thank you.
-
I am a wuss
This RICE chemo is kicking me from all directions. I didn't get out of bed till after 3 yesterday. I don't know if I can do this or not. Beth
-
words
be careful what you say, my exhusband has told me a couple of times he wishes he could get cancer so he could show me how its done and how to kick cancers ****. well he went to his doctor last weak and his doctor told him there is one of the moles on his back that, he doesnt like the way it looks, has refferd him to a…
-
waking up
does anyone else feel like they are half way dead for a couple of hours after getting up denise
-
advice
sue i took your advice it was so hard to fix somthing in the morning,but i made myself to make my protien shake, that i try to drink at least one a day. it helped some but it still took three hours before i could take a shower i also had some orange juice picked up for me mabey if i can get a little down it will help. i…
-
meaning of remmision
i never get the same anwser i here its gone it there just no spreading. an anwser to this would be so [appreaticad ]suddenly i forgot how to spell the word. denise
-
Stomach Cramps
Just thought I'd post a note here in case it is helpful to anyone else. I am on the R-EPOCH treatment for a Mediastinal Mass - coming up on round 5 of 6 rounds. I felt OK during my infusion cycle (probably the Predinsone!), but got really bad stomach cramps after Rounds 1 & 2. At first I didn't think it was constipation,…
-
New here. Children after Non Hodgkins lymphoma
Hi, my name is Catherine and I am new to this group. I am an almost 5 year survivor of Non Hodgkins Lymphoma. I was diagnosed in Jan 2006 at the age of 27. I received CHOP+R. I also gave birth to my first child one year ago (a beautiful healthy baby girl). I am looking to hear from others who have also had children after…
-
to cobra666
Dear John, Congrations on you good news i am so sorry i just saw your post i have just had a lot on my mind whenever i have a pet scan i call everyday untill i get my anwser which most of the time i get it on day 2 and remember the chemo keeps working even tho you finished it i hope the retuxan kill the rest andyou will…
-
Please help family to understand
Hello Family---I have lung cancer and on that site, but my Dad has NHL, remission for 3 yrs, then slowly has built up and resisted chemo over this lkast year, he is now 80 yrs old, but in considerly "good" health. He is now in the hospital with a lung infection, unkown currenty, waiting for cultures. His white blood count…
-
Needle biopsy of abdomen
Hi Y'All, Anyone every have a needle biopsy of the abdomen? I have one scheduled for this coming Monday AND Tuesday at MD Anderson. I can't find much about it on the Internet. And Anderson doesn't have much about it either. But they said at my onc's office that it would be scheduled over 2 days. I really don't know what…