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ISO Large Cell Neuroendocrine Carcinoma Survivor--Can You Help?
My sister-in-law has recently started treatment for a stage IIIA large cell neuroendocrine carcinoma of the lung with a tumor in the mediastinum. She is in her early 40s and a mother to three young children. She would desperately like to establish communication with a survivor of her particular kind of lung cancer and who…
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Standard of care stage 1lung cancer
Hi, i am asking this for a friend. He was diagnosed with stage 1 lung cancer 2 years ago. At that time, he had come to the hospital presenting with severe bone pain and he thought that he had arthritis. Instead, it was lung cancer. That they found in a chest x ray. The doctors did not recommend or offer chemo or radiation.…
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Promising approach
As I am waiting to read the full text, I would like to share this: Next Generation Sequencing (NGS) is becoming a reliable approach for molecular profiling and treatment decision for non-small cell lung cancer (NSCLC) patients. At least one genetic alteration was found in 78% of the patients. 23% patients showed mutations…
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chemo and indoor waterpark
I will have my second chemo on Thursday. 6 days later for Thanksgiving, I'm supposed to go to an indoor water park for 2.5 days. I know not to go swimming. But any thoughts on the warm humid air? Thanks.
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side effect taking Keytruda - diahhrea
I have had several treatments and one side effect has been sudden blow out diaharea, usually only once or twice a day. I am taking Immodium after but I am afraid to go away from the house. Had anyone else had this and how are you coping with it or dealing with it. Thanks in advance for your help and advise.
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Understanding follow-up PET scan result
Hello Everyone! My mother had a follow-up ( her 2nd) PET scan for a tumor in her lung and some lymph nodes. Her doctor said that the PET scan showed the cancer is gone, but her NP said it shows that there has been no change in her cancer. It's hard for me to tell what's going on. The report never says whether the tumor has…
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Nervous Anxiety
Taking Keytruda and have terrible nervous anxiety. Wondering if there are others out there with the same and how they are dealing with it. Trying meditation
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Are Ground-Glass Opacity Lung Nodules cancer?
My wife had a CT scan this week and they found at least 35 bilateral ground glass nodules and opacities ranging in size from 0.3 cm to one that is 1.6 cm. They are in all lobes. The report states there are a couple solid-appearing 0.3 cm ground-glass opancities. A biopsy is scheduled in which they go into the lung with a…
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Pet scan report could someone explain?
My husbands pet scan read: thorax findings: hyper metabolic foci: 4x3x1.5 cm residual hyper metabolic malignant soft tissue mass in the superior mediastinum above the aortic arch with maximum suv 5.2 lungs: significant interval decrease size of mass in the left upper lobe which measures 1.2 cm on current exam and has no…
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SCLC with 1 lesion in the brain - going through Whole Brain Radiation
My mom just recently got diagnosed with limited SCLC. After doing MRI, they found 1 small lesion to the brain. The doctor wants her to do 10 sessions of whole brain radiation (she's finished 3 of these already). Then wait a week and then 4 rounds of chemo (3 days in a row each round). I guess my question is... she's 68…
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Lung Cancer Stage 3B
My father was recently diagnosed with stage 3 b lung cancer that is inoperable. He started chemo yesterday (Cisplatin/Etoposide chemo). He is so weak and in a lot of pain and won't eat anything. I am so scared. Is there anyone who has had stage 3b and bounced back where there has been a quality of life. I just don't see a…
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In remission, but not doing great.
I am a new member, and hope to get some information from others. I want to apologize for the length of this post, and hope that you will forgive me. I was diagnosed with non-small cell lung cancer in May. The diagnoses was a complete botch job from the start. I made the mistake of telling my PCP who is also a cardiologist…
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Question
I was dx 9 years ago with stage 1a adenocarcinoma lung cancer. LRL. They have been following me for all this time for a thing that has not changed in 9 years in URL. now they spotted 2 nodules right bye it 8mmand 7 mm. Doing proton therapy. But any thoughts on staging?
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Adenocarcinoma
Hi. I was wondering if there was anyone familiar with Adenocarcinoma of the lung, which has spread to the kidney, hip and back? I was wanting to get some insight on this topic and what anyone else has experienced. My mother was recently diagnosed and we are trying to gain as much knowledge as possible in order to make some…
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Alimta/Cisplatin Treatment
After 4 years of being in remission from stage 3b lung cancer, cancer had returned and now dealing with stage 4 cancer. They found a mass on my left adrenal gland, they moved the mass and adrenal gland back in July. I saw the radiaition doctor and he advised that if he did the radation treatments it could end up destorying…
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Newly Found Lung Mass
I had told Kimberly (kfs52) and Griffithds that I would start a new forum topic. CSN member Loretta had suggested a separate forum, so that it would be easier to find responses. I learned just a few days ago that a CT scan showed a 3 cm mass on my lung and my doctor says is very unlikely that it is NOT cancer. I hope to…
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Immunotherapy-Opdivo
3Hi everyone! My dad was initially diagnosed in 2011 with stage IB lung cancer, which was resected. Totally fine until April 2016, when he underwent CT scan for his heart and found to have 3 enlarged lymph nodes. Sure enough, stage IIIB adeno. Underwent chemoXRT (standard side effects), which worked great but was…
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Sore throat from radiation
Hi all, my husband is getting a sore throat from radiation treatments and his doctor says if it gets to the point where he is having trouble eating they will need to stop the radiation for awhile. Just wondering if you all have found anything that helps with the sore throat so he can get the radiation as long as possible.…
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Blood in Urine (Lung Adenocarcinoma & Anal Canal Cancer, 2+ years in remission)
Hello! First I would like to thank this board for a lot of information and encouragement. It has been extremely helpful. I would like to ask for an information about my mother. Short background: My mother was diagnosed with anal canal cancer (Stage II) in May 2015, during the preparation for the radio/chemo therapy she was…
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What questions should I ask the Dr. about cyber knife?
Hello, my name is Becky and I have lung cancer with brain mets. A little about me, I'm 39 and I was diagnosed on July 1 2017. I've been through a round of radiation on my whole brain and then a round of SBRT on my lung. The encologist has me on Tarceva, this is my 2nd month taking it. Anyways, I have an appointment on…
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What do I do when told to wait and see if it grows
I have been told that I have several spots in both lungs the largest is 10mm the smallest is 4.5mm but that there are several others mostly in the left lung . Have had PET and CT to confirm this and the Doctor said that he wanted to wait 6 months to see if there is growth . I already have COPD and breathing is difficult as…
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lymph nodes
hello all. Hope you are all enjoying life. I had an open surgey partial nephrectomoy on my left kidney. The tumor was 12 cm and apparently that is pretty big. i am 22 and very healthy until this happened. anyway surgery went better than expected but im looking online at my health report and it says this: Lungs: No focal…
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Has anyone else had stage 4 lung cancer with bone, pelvis and spine mets? Need advice
My mom was diagnosed 6 weeks ago with lung cancer with mets to pelvis and spine. No real lung symptoms but 1 smaller mass. A large mass in pelvis with multiple other lesions in spine. Main initial symptom was back pain that turned out to be a sacral mass. Had 12 bouts of radiation and then she fractured her pelvis (no…
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Ladies, Do You Know about the "Look Good Feel Better" Program?
I went to the American Cancer Society's free "Look Good, Feel Better" makeup session for cancer patients yesterday, and I highly recommend it. You are given a good-sized cosmetic bag of full-size, high-end make up for free (valued at $150 at least). Plus a cosmetician teaches you how to apply it. She also talks about hair,…
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Hemph Oil
Has anyone heard of any studies or research using hemph oil to cure lung cancer? I have found a few stories on the internet but cant find any medical studies.
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Stage iv NSCLC - bone mets/? treatment options
Dear all, I hope all of you who are dealing with this condition or have loved ones with it , the best of luck and plenty of ease . My father was diagnosed with non small cell lung ca stage 4. the primary is in the R lung , with lymph node metastases and bone ( Both arms, thighs, ribs and spine) . no brain or liver mets.…
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Stage IV Lung Cancer with 4 brain Mets
My Mother (age 47) was just Diagnosed with stage 4 lung cancer that has spread to her Brain (4 mets total). She has undergone 2 days of radiation to treat the brain mets (cyberknife treatment). Her doc’s only did 2 days of radiation treatments (2-3 hrs per day). She will then undergo another MRI in two weeks to see how the…
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Dental implants stage 4 nsclc
I have Stage 4 nscls. I am on keytruda. Just finished a second 12 day radiation because a golf ball lymph node was found after I initially had reductiond of 78% of mediastinal mass and 62% in the lymph nodes. I will be rechecked in 6 to 8 weeks. If there are more growths or no shrinkage, i will be put on chemo. 2 days ago…
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Swelling and a couple other questions
Hi. I care for my father who is 84 and was diagnosed with stage 4 lung cancer about 8 months ago. He is under hospice care at home and I am his sole caregiver. He has an aspira drain on each side. The right side fluid stopped (that's where the cancer started) and I drain 1000 ml from the left every 3rd day. The fluid color…
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Assistance on MD Anderson for NSCLC Lung Cancer
Dear all My mom was recently diagnosed with stage 4 lung cancer (NSCLC). Our oncologist is prescribing chemo but has told us there is no cure. However I've come across MD Anderson online and have read a lot about them. The problem is we live so far away in Malaysia, which is over a full day flight and I can't subject her…