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XL999 clinical trials re-opening!
I've been participating in a clinical trial of Exelixis' XL999 for over a year, now. It was suspended to investigate cardiotoxicity, and it's finally reopening again. I have NSCLC, which has been held in check by this drug - I'm excited to see the trial opening up again! Please, ask your doctor about it!
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I'm 27. Stage IV Lung Cancer. New Diagnosis
About a month ago, I went to the hospital for chest pain. On the x-ray, the doc noticed a nodule. CT scan confirmed and showed some baby nodules. After a fine needle aspiriation at one hospital, they diagnosed it as neuroendocrine carcinoma (a rare aggressive cancer). I went to MSK for a second opinion. They did a core…
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Swallowing and eating
I have have lung cancer, operated on, chemo and now it has returned. I'm about to have radiation on a new spot and also a lymph gland nearby. I was told I would have pain and trouble eating. Has anyone had this same problem? If so, how did you handle it?
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PET scan
My mom is having a PET scan today. Any words of wisdom? I've heard about potential false negatives and false positives... what are your experienes?
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cancer side effects
My husband has just started radiation and chemo. I am so frightened I dont know what to expect. I hope I can help him through the road ahead. Any advice would be appreciated. Thanks
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congestion
Hi. My dad has lung cancer and has really bad congestion and coughing lately. Is there ANYTHING that might help this (prescription, natural remedies, food, etc)??? I Know this is caused by the cancer, but he can't sleep at night. He doesn't want to take ambien because he said he thinks he might choke to death. If anyone…
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Thoracentisis
Hi, my mom has colon cancer, but she's been in the ICU for a week now and it is her lungs that is causing her trouble. She has emphysema. They've performed 2 rounds of thoracentisis and removed a liter each time from her lung. Does anyone know how many times they can/will do this?
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So many questions
I have felt very bad for about a year. I was just diagnosed w/ lung cancer but don't know stage yet. I wonder how fast does lung cancer grow? Being sick for a year, does that mean I am probably in an advanced stage by now? Also, I would like to know if those of you who also experienced severe fatigue and flu like symptoms,…
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No answer also
I had my left lung removed May 3rd 2006. I was told I had a tumor in the upper left lobe . They did a CT scan an found some of my lymps lit up. Ten weeks after the sugery I started chemo Taxol an carboplaten . I was walking a mile an a half six weeks after the surgery. After the chemo treatment it took me six months to get…
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my mom is going in for surgery tomarrow so scared
My mom has a 2.7cm mass in her lung and she has had a Pet scan, ct, bonescan, and they did a needle biopsy. she has been to two different surgeons one does VATS the other dont she went with the one that does Vats. Even though he scared us so bad. That it still can spread even though her tests were good. He said so many…
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Still No Answers
I have had 2 CT Scans, 1 Needle Biopsy CT Guided, 1 PET/CT Fusion Scan and still no conclusive answers to 1CM Spiculated nodule in upper lobe of left lung. Between the second CT and Needle Biopsy they saw 3 additional lesions 1.2, 1.3 and 1.5 CM. Primary is sending me to a Thoracic Surgeon as he believes surgery is only…
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Lost My Sister 5-26-07
Hi I have posted before in February. Haven't posted since because I left my home/state to go to my sister and become her caregiver. Her courageous battle with lung cancer began in Nov/06. She did numerous chemo/radiation treatments and even still the cancer spread to many different areas including the bones. She lost her…
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can anyone please help me
My mom is going to have surgery to have a lobe of her lung removed the surgeon we talked to said it would be a thorcotomy.I asked him about the minimally invasive surgery and he said no it will be a cut 8inches and he said he would spread the ribs and in the hopitial about 6 days. My question is should we see another…
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Cancer Treatment Center of America???
Please, if anyone has any experience with this hospital, good or bad, would you post your opinion?
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New Info to Nodule in Left Lung
I just found out that my doctor did not tell me about 3 new "Lesions" seen on last CT so between the first and the last about 2 weeks 3 new lesions appeared that are between 1.2 and 1.5 cm. The needle biopsy came back inconclusive and it appears they did not biopsy the original nodule with spiculation but one of the new…
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Statistics what it means to me
I know a lot of you through this web site and have learned a lot. I keep hearing about statistics and finally wrote what they mean to me. I gave a copy to my oncologist today and I think he will use it for some of his patients that are stuck on statistics what he tells people are you are you, the statistic does not apply.…
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Here we go again
Hi Everyone: I am new to this board. My husband had a lobe removed from his right lung 2 years ago in August. At that time they were not doing the VATS surgery so he had be harder surgery. Stage 1 with no lymph involvement - no treatments. He just had his routine chest x-ray and Dr. appt. last week. Something showed up on…
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A Cancer Journal
Greetings from Vancouver... I'm a member of the colorectal discussion group and haven't posted here before. I've recently started a weblog where I'm sharing reflections, resources, and insights from my 3 year journey with metastatic colon cancer and recurrences. Todays post is on "Spontaneous Remission". Previous posts…
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Mom Newly Diagnosed, I am scared to lose another parent
Hi, I am 31 years old and my my who is 61 was just was newly diganosed with NSCLC on 5/10 with mets to the brain and adrenal gland. The doc said no to surgery due to the location of the mass - it is in her left side lower lobe on the inner part and is about 6 by 4 by 2 cm. She considered stage 4. She is currently having…
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Depressed and lonely
I am at a loss where to go on the internet for help and understanding. In the past, when I was in treatment, or recovering from surgery, I felt I belonged here. But since I am currently cancer free, (by the Grace of God), I don't feel I have the right to be here, complaining. It sounds so wierd to say, but I felt I…
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stage 4 lung cancer
My wife Sandy is 59.She was dio with stage 4 lung cancer.We were treated with taxol chemo and everything doubled in size.We have been on Alimta for 12 weeks now and the spots on her adrenal glands are gone and the remaining cancer has shrunk by more then half.This is the first real hope we have had and honestly believe…
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Coping
I was diagnosed January 2007 with NSCLC and had my left upper lobe removed on February 13. They declared me cancer-free and told me to return in six months for a new CT scan and pulmonary function tests, which will be August. I was a smoker and had a problem quitting the cigarettes, but am proud to say that I am now…
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Chemo effects - any advice?
Hi I have posted before - my mum has Small Cell Lung Cancer - extensive and has just completed her first round of carboplatin & etoposide. She had very few effects apart from tiredness but was able to carry on shopping gardening etc. Her hair is thinning and she does get sharp pains in her back which radiate round her…
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Wheezing symptons?
Hi, My mum has developed wheezing when she breathes, even at rest.She has never had this before. It does seem too much of a problem and her oncolgist was not duly concerned. He gave her her second round of chemo. Does anyone else have experience of this? Does it mean the chemo isnt working or is the cancer getting worse? I…
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Stage IIIA/IIIB NSCLC Patients
Just noticed that information is now available about a vaccine that has very promising survival results. See for yourself. This contact information just came out yesterday. It is all about survival! Best luck to all. Keep the faith! http://www.nsclcstudy.com/
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Tarceva - new news!
Hello everyone! I haven't posted for a while, I hope everyone is doing well... I just received this little bit of information about Tarceva and how a new drug is being developed to help prevent resistance to it. I know many of you have/had/might have experience with Tarceva, so I thought I would share it! Keep you head up…
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ncslc IV 34 woman looking for kind souls to chat with about this terrible disease
I was diagnosed in the middle of March, and have been submerged in my chemo treatment ever since. The side effects are the worst! My emotions are a mess, and I don't know who to talk to about what all is going on with me than those suffering the same fate. I would just love some feedback about how well you all are…
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Dexamethasone (decadron)
I am wondering if it is the Dexamethasone (Decadron) that is causing me so much trouble and not the Alimta or Avastin. I am taking 4mg every other day. Does anyone else out there have any experience with taking this drug for several months? I went from Taxol/Avastin/Prednisone to Alimta/Avastin/Decadron and I have been…
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Starnge symptons - any ideas?
"Hi My mum has been diagnosed with extensive SCLC .Her brain scan was clear. She has been getting some rather worrying symptons which are panicking me. All these symptons appeared before she was even diagnosed but were not as severe. She has numbness in her left arm and her left leg was affected a couple of days ago but…
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Doctor's wrong call?
My father was recently diagnosed with emphazemia (sp) and his PA also told him that he had 2 softball sized dark spots one on each lung that she is fairly sure (70%) are cancer. (Both my grandparents died of lung cancer). His PA has decided not to have any testing done for 2 months and is only treating the emph with…