-
May I have this Dance ?
A long time ago, when I was in high school there was a girl who had Luekemia. I still remember her name but I won't post it. We students all knew she had it but were not aware why her face was balloonish. I didn't then and don't still know how they treat luekemia. Or if there was a treament. Anyway the was a school dance…
-
Mom in hospital getting induction chemo for AML
She also has multiple myeloma, got a BMT 2 years ago, it came back, then she got myelodysplasia which turned into AML. She has been in the hospital for 3 weeks now- She finished her first round of seven day chemotherapy last week and now is in the ICU with high blood pressure, trouble breathing, severe mouth sores,…
-
relapse chronic lymphocytic leukemia
Anybody know the treatment for relapse chronic lymphocytic leukemia? Can chemotherpy work again? Thanks Richard
-
holistic/integrated medicine for leukemia?
Has anyone tried a holistic way of healing their leukemia? My mom was told that she has no more options to cure her disease because chemo no longer has an effect on her leukemia. She has a very aggressive rare form of leukemia that is a mixture of AML and ALL she also had a mediastinal mass in her chest that is now pretty…
-
AML resistence to chemo - clinical trials?
Hi, My mom has AML and had a tumor in her chest cavity. She achieved remission from the first induction chemo but it only lasted a few weeks. She went for a second induction chemo but it had little to no effect on the leukemia. The doctors say that the chemo is ineffective against her leukemia and that they need to look…
-
AML and tumor
Hi, My mom was recently diagnosed with AML (A month and a half ago). She has been in the hospital since. She has an anterior mediastinal mass - which is in her chest. I am curious if anyone has ever heard of this before. I am very scared - please help. Claire
-
long term affects after treatment
hi i was just wondering if anyone else who had all leukemia had any other problems down the road after treatment and transplant. cause i have had 3 strokes a kiddney transplant and now depression cause of my thyroid not working i hadnt been taking my thyroid medicine cause all blood test would show my thyroid levels…
-
Newbie just found i have CLL nEED ADVICE
Was just diaginosed with CLL Just took flow test still waiting for results Was told that it is not a bad thing since the DRS do not think it is advanced I am a healthy so i thaught 63 year old male who is of eastern euroupien backgroung Can somebodt PLEASE help me here
-
Recent CLL Diagnosis
I am a 60 year old man who recently was diagnosed with CLL. It was found thru routine bloodwork preceding a physical exam. I have an oncologist (something I did not think I would have 2 weeks ago) and she has staged it as Stage II with some symptoms (enlarged nodes and spleen, weight loss, fatigue). She wants to treat it…
-
CLL and Gleevec??
I am writing this for my father who has CLL. He would like to know if Gleevec is ever used for CLL? Does anyone know about any studies or trials using Gleevec for CLL?
-
Myelofibrosis turning into AML. Having a hard time with whether or not to do stem cell transplant!
My father was diagnosed with myelofibrosis 25 years ago. He never required any treatment for it, since he never had any symptoms or problems. In August of 2009 we found out through routine blood work that it had turned into AML. He had two rounds of induction chemo then did consolidation. He was in remission for 10 months,…
-
New to the boards and recently AML diagnosis
Hi to all, I am enjoying reading the posts. It's emotional and at the same time supportive to read other leukies' stories. It still amazes me how many people have this disease. I was diagnosed May 20, 2010 with AML 2. I was put in 100% remission after 9 weeks. I spent 27 days in the hospital for induction therapy. I have…
-
cancer treatment centers of america
anyone have experience with these hospitals
-
Just diagnosed with CML
I think I'm still in shock. I was diagnosed with CML two weeks ago & couldn't believe it, so I went to two more doctors for a 2nd and 3rd opinion. Unfortunately, the diagnosis remained the same. I am only 25 years old! I know that people much younger get this disease, but I'm just shocked, I can't believe it's true. One of…
-
survivor
My son was diagnosed at 2 with ALL in 1978. He is 27 years old now and I am facing some strange survivor behavor that I think is from the chemo and cranial radiation. Is there anyone who has similar problems that I could talk with?
-
Things to prevent recurrence in ALL.
My 6 year old son was diagnosed with ALL in January 2010. Everything turned dark and I was very down. Doctor said he is responding well to the treatment. But I'm very scared of what it's called a relapse. Could you please give me some advise how to prevent, lifestyle .... or diet, maybe...??? Especially for you who are a…
-
CML, Gleevac and weight gain?
I have been on Gleevac for a year now and am gaining weight rather fast. Was wondering if anyone else is having this same problem. And if so, what did you do to help change. Thanks
-
brother newly diagnosed
Today we found out my little brother has leukemia. I am not sure what type as all he remembers is that they said leukemia. He has his first appt on wed and I would appreciate any help with what questions to ask the doctor. This is incredibly hard for me and my whole family as I was diagnosed with uterine sarcoma 6 weeks…
-
Newbie
Hate to post again but i think i messed up with last post Was diagnosed with CLL Can somebody give me some advice
-
New treatment for AML ?
Hello. It's both sad and inspiring to read about your struggle against this disease, but there might be more hope during the next year or so. I can't find that you have been discussing Ceplene + Interleukin-2 as a treatment for AML that have reached first remission. This treatment was approved in Europe in 2008, and are…
-
AML Please share with me some information even though is a little bit
i have an uncle. his age is 33. he took 2 chemotherapy. Can you guys give me information whatever you guys know about AML. And what if he take Bone Marrows Transplantation, how long after he take the BMT? our family now get confusing in his situation cause some Dr said that he do not need to take the BMT then his life can…
-
MRD unconclusive results.
My son had a t(12;21)TEL-AML1, ALL, his first MRD on day 33, MRD by Igh VH3-D5J4, <1x10(-3), but there is no result, DNA undetectable. The oncologist ordered a repeat, but the result was the same. Then 2 months later, did another MRD, with same result, DNA undetectable. Following BMA results, there was no t(12;21)…
-
Diagnosed on 2/20/10 with AML-5 45 year old male
I went to the emergency room thinking I had a bad infection. After a blood test, the Doctor informed me I had a white cell count of 260,000 and had Leukemia. It's been a bit of a roller coaster ride since then. 26 days in the hospital and the highest dose of Chemo ever given in the state of Colorado(according to my…
-
Just lost my mother!
I just lost my mother 2 weeks ago and its been so hard to say the least! She had AML but the thing is she was able to get it under control even after relapsing twice! She was coughing all night long so we took her to the hospital thinking she will just get antibiotics and be ok. She ended up having pneumonia and got DIC…
-
I am once again battling Leukemia for the 3rd time in my life.
Hello, I am 48 years old, and in December I went to see my doctor because of the continues pain in my legs, he went and did his exam, ordered lab work, and x-rays. After I had done that, and he reviewed the results, he sent me out for a MRI, did that and he tells me that my Leukemia is back again. You see, I first got it…
-
Have horrible headaches, anyone know anything about Petadolex?
Ok, so I have a question about headaches and a certain medication. I have been going through a battle of horrible headaches, that may or may not be related to my leukemia, my neurologist is not sure. I have spinal fluid build up around my brain and have to go in for spinal taps to relieve my pressure. However, I have…
-
anyone who had iron shooting up to 6k from normal of 200 due to prior transfusios of blood during th
i was diagnosed with acute myeloid leukemia in May 29, 2009. I just finished with my 5th and last chemo in february, 2010. Due to transfusions during my treatment, my iron went up to 6000 vs normal count of 200, is there anyone who has an idea how much damage it may cause me. Apart from suffering from high dose leukemia, i…
-
my dad has AML and wondering if we should get a new doctor
Hi, my dad is 56. He has a blood disorder - myeloidfibrosis and AML. He went through induction chemo. After he had tons of blood transfusions and his blood cell counts aren't going up the doctor says his body is "ripping up the blood." So they have been dumping blood in and not much is happening. In the middle of all of it…
-
My Mother
Hey there everyone I'm Nick and I'm 18 years my Mother has AML. My mom (winnie or ma from here on out) was diagnosed with AML on March 31st 2010. Winnie has been a CNA for the last 14 years and she is tough as nails. She started chemo the next day and has been doing either as well as expected or better throughout. Well…
-
I'm really scared and would like some advice/guidance...
I've lost my twin sister, my dad, my mum, my grandpa and my aunt to cancer and my doctor told me I now have it. I'm really scared because I really wanted to get married, have kids and grow old but I was told I'm lucky if I make it to the end of the year... I used to get compliments about my long brown hair but now I get…