Another day another drug

Footstomper
Footstomper Member Posts: 1,237 Member
in Kidney Cancer #1

Goodbye Avastin, Hello Nivomalab. Good luck and may the force be with you. Take down Darth Tumour.

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Comments

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #2
    Well that is very promising!

    Well that is very promising! Wishing you the best results, Stomps!

    May the force be with you!

    Hugs

    Jojo

  • foxhd
    foxhd Member Posts: 3,181 Member
    #3
    Jojo61 said:

    Well that is very promising!

    Well that is very promising! Wishing you the best results, Stomps!

    May the force be with you!

    Hugs

    Jojo

    If you are

    anything like me, you are going to be so happy not having to deal with all the crappy side effects from your previous treatments. Good luck!

  • APny
    APny Member Posts: 1,995 Member
    #4
    foxhd said:

    If you are

    anything like me, you are going to be so happy not having to deal with all the crappy side effects from your previous treatments. Good luck!

    Wishing you the best!

    Wishing you the best!

  • hardo718
    hardo718 Member Posts: 853 Member
    #5
    APny said:

    Wishing you the best!

    Wishing you the best!

    Best wishes Footstomper

    And I'll be praying for you too.  Think positively....every day this side of the grass is a great day.....right? Smile

    Donna~

  • Positive_Mental_Attitude
    Positive_Mental_Attitude Member Posts: 454
    #6
    Best of luck.  Nivomalab just

    Best of luck.  Nivomalab just rolls off the tongue so easily. 

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #7
    foxhd said:

    If you are

    anything like me, you are going to be so happy not having to deal with all the crappy side effects from your previous treatments. Good luck!

    I'm not thinking

    about Darth Tumour any more. I'm just crossing my fingers for the side effects

  • nancybuck
    nancybuck Member Posts: 117
    #8
    Footstomper said:

    I'm not thinking

    about Darth Tumour any more. I'm just crossing my fingers for the side effects

    New Meds

    Wishing you much success with your new treatment.

     

    Nancy

  • Eliezer2
    Eliezer2 Member Posts: 85
    #9
    got good news for you

    this past summer i did a regamin of opdivo with yervoy.  i had been on sutent for 4 years but it stopped working.  i was in VERY bad shape in summer, lost 15 kg, so weak could not sit up, lungs filled with diseased tissue, hemoglobin at 8, and frankly it looked terminal.  the mixed opdivo-yervoy regimen lasted 3 months, then continued just opdivo.  the opdivo itself has almost no side effects, altho yervoy had some, but not too bad.  bottom line, 6-8 months later, the effectiveness of the treatment has been so remarkable that my case is talk of the town where i am (israel).  lungs almost completely cleared, weight recovered, hemoglobin at 15, i climb hills and stairs.  one drawback - without the yervoy the opdivo does not work as well, but there are risks of doing the yervoy - there is some risk of stroke.  

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #10
    Eliezer2 said:

    got good news for you

    this past summer i did a regamin of opdivo with yervoy.  i had been on sutent for 4 years but it stopped working.  i was in VERY bad shape in summer, lost 15 kg, so weak could not sit up, lungs filled with diseased tissue, hemoglobin at 8, and frankly it looked terminal.  the mixed opdivo-yervoy regimen lasted 3 months, then continued just opdivo.  the opdivo itself has almost no side effects, altho yervoy had some, but not too bad.  bottom line, 6-8 months later, the effectiveness of the treatment has been so remarkable that my case is talk of the town where i am (israel).  lungs almost completely cleared, weight recovered, hemoglobin at 15, i climb hills and stairs.  one drawback - without the yervoy the opdivo does not work as well, but there are risks of doing the yervoy - there is some risk of stroke.  

    Hey Footstomper.. stomping my

    Hey Footstomper.. stomping my foot in your behalf!

    Hope this works even better and betterer~

    Hugs, Jan

  • grafer
    grafer Member Posts: 20
    #11
    Footstomper said:

    I'm not thinking

    about Darth Tumour any more. I'm just crossing my fingers for the side effects

    Nivo

    Don't worry Footstomper. Nivo is a walk in the park I have been on it fortnightly for nearly 10 months - the worst side effect I have developed is a small rash and one lousy mouth ulcer which only had the nerve to hang around for 4 days!   Enjoy!

  • BDS
    BDS Member Posts: 172
    #12
    PD-1

    Footstomper, to reiterate what Fox and others have already posted – You are going to love being on at PD-1 drug.  Being on Keytruda, I have not suffered from any side effects at all. - BDS

  • saintmont
    saintmont Member Posts: 63
    #13
    PD-1

    `Hi, I have being on it for nearly 3 months, you will really like it I feel like a "normal person"no side effects. First scans just done my onc rang me to say scan amazing every met shrunk and a few disappeared completely. Hope you find as good as I have.

  • foxhd
    foxhd Member Posts: 3,181 Member
    #14
    saintmont said:

    PD-1

    `Hi, I have being on it for nearly 3 months, you will really like it I feel like a "normal person"no side effects. First scans just done my onc rang me to say scan amazing every met shrunk and a few disappeared completely. Hope you find as good as I have.

    After 3 infusions

     and no more votrient, My hair color is returning. Too bad my hair has already left the building. No upset belly. No diarrhea. And I've gained about 6 pounds.

    Hey man, don't bogart that nivo my friend. Pass it over to me....

  • marosa
    marosa Member Posts: 334 Member
    #15
    foxhd said:

    After 3 infusions

     and no more votrient, My hair color is returning. Too bad my hair has already left the building. No upset belly. No diarrhea. And I've gained about 6 pounds.

    Hey man, don't bogart that nivo my friend. Pass it over to me....

    Best wishes Stomps!
    Here cheering for your new treatment success!!!
  • pamstayner
    pamstayner Member Posts: 111 Member
    #16
    Good for you Footstomper

    Had my first infusion on Feb 18th. Was there 3 hrs... first hour and a half was a tour of the infusion center, shown where all the bathrooms were, the patient kitchen where free juice , water, soup crackers, microwave and fridge were, and the full information about Nivo and who, when, and where to call if side effects occur. The infusion is made up fresh in the oncology pharmacy , and fixed according to your at the moment weight. That only was 1 hr start to finish. I took a nap.

    as to side effects, I had none, expect none, and am considering selling off my stash of Cottonell moist wipes... Have no need anymore... Woo hoo 

     

     

  • jason.2835
    jason.2835 Member Posts: 337 Member
    #17
    The Force is With You...

    Young Footstomper... but you are not a NED-I yet... You must learn from Yodamulab... for 800 years trained NED-I has he...

    - Jay

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #18
    jason.2835 said:

    The Force is With You...

    Young Footstomper... but you are not a NED-I yet... You must learn from Yodamulab... for 800 years trained NED-I has he...

    - Jay

    Thanks you lot

    No side effects, no need for tthe moist towelettes. Still knackered all the time but that might be custom rather than symptom.

    Of course I dont know how well its working on Darth Tumour, but the head of NIH has told my wife that if I need a second opinion he is available.

    Which is nice.

    I raise a glass of Cabernet Sauvignon and wish you all the luck and all the luv you wish me.

  • Bellweather
    Bellweather Member Posts: 102
    #19
    don't Bogart that nivolumab

    Lol!  Just checking in and 

    Fox has me cracking up.  

  • APny
    APny Member Posts: 1,995 Member
    #20
    Bellweather said:

    don't Bogart that nivolumab

    Lol!  Just checking in and 

    Fox has me cracking up.  

    Stupid question. If the side

     

    Stupid question. If the side effects are so minimal with Nivo (opdivo) why don’t they start people on them to begin with? Why Votrient and/or Avastin first when the side effects are so horrible for most people?

     

  • foxhd
    foxhd Member Posts: 3,181 Member
    #21
    APny said:

    Stupid question. If the side

     

    Stupid question. If the side effects are so minimal with Nivo (opdivo) why don’t they start people on them to begin with? Why Votrient and/or Avastin first when the side effects are so horrible for most people?

     

    The current protocol

    for the administration of nivo is that it is to be used after failing a TKI. A tyrosine kinase inhibitor like sutent or votrient. Probably cost related.

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