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1 year
So, had follow up with Urologist yesterday and there is no evidence of cancer. So, yay! It's been one year and that is a huge relief as you all know. There are multiple cysts on my remaining kidney, one of which is pushing 5cm. The septation is thin and he wants to keep an eye on it. He doesn't see any reason why it would…
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Family Affair continues
Hello everyone, I've been so swamped this month and have very little time to get on her but I still think of you all and feel very reassured to know that you all are here. I'm excited to say that any day now I will be a nana for the 4th time!! First granddaughter!!! My son has recovered nicely and was back to work two…
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Changing from Sutent to Votrient ... Advice?
Original surgery in Feb 2013. I've been on Sutent since Oct 2014 when 5 mets showed up in my chest. The Sutent (plus radiation) effectively shrunk the mets until now. The old mets are either gone or stable, but one new one showed up in this week's PET scan. We're taking that as a signal that my cancer is becoming resistant…
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Always get a second opinion.
The doctor said, "The good news is I can cure your headaches. The bad news is that it will require castration. You have a very rare condition that causes your testicles to press on your spine and the pressure creates one hell of a headache. The only way to relieve the pressure is to remove the testicles." I was shocked…
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Anniversary and Scanxiety
My three year anniversary of my diagnosis and nephrectomy are fast approaching. I don't hang out here as much, mainly because my work has become increasingly demanding so I don't have time to browse and reply like I used to. Three years ago I spent Thanksgiving looking for a surgeon to remove my kidney after spending time…
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My Story
Hi All, I've been occationally looking at this forum for the past two years, and I thought it was time to share my story for the benefit of others. I'll be succinct. I'm male, 55yrs, and have been physically active all my life. So, for the record: * 2012: Pee'd blood, kidney pain. Went to clinic, thought to be kidney…
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Mom with stage 3a clear cell carcinoma, story.
Hi everyone, While i cannot say i myself have been diagnosed renal cell carcinoma, but the most important person in my life has been diagnosed with this, my mom. At first we had no idea, she presented with gross hematura, and within 2 days a large mass was shown by ct on her left kidney measuering 14 x 12 x 10. So quite a…
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SCCA/UWMC (Seattle) Kidney Cancer Specialists
I am recently diagnosed with Stage 3 Kidney Cancer. I have been referred to specialists at Seattle Cancer Care Alliance/ University of Washington Medical Center. I am wondering anyone on the forum have been treated at SCCA/UWMC. I am just looking for some feedback on specialists used, things to watch out for, impressions…
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Medical MJ
We haven't discussed this topic in a while. It's like keeping skeletons in the closet or having a strange uncle Stanley that no one talks about. I haven't talked about it much because I never wanted to jeopardize my status with my doctors, my care givers, and insurance. However, medical mj is available here in Ct. I have a…
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Feelings of guilt
I'm starting to have guilty feelings about using this web resource. I honestly don't feel like I'm a survivor of anything. I didn't even really know I had cancer until after it was removed and I was "cured". The guilt goes even further than this, with my tumor being so small the real odds of me ever having to deal with…
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Has anyone heard from Alexadra?
Hi, i know some of you here know Alex from the Ovary cancer boards. I have not heard from her in a long while. She last checked in online October 10th. I see that her facebook page has been taken down, although she has not been posting for a while anyway. Just kind of concerned for her. Prayers going out for all! xoo Ange
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MRI of Head
My turn again, MRI for my brain is Monday, the 23 (I have graduated to every 6 months for the body, thatCT scan is in February). Why is it we can all feel so wonderful, then the scans/MRI get closer and every little thing starts to hurt or ache! I guess that is why we all call it scanxiety! Here's hoping Mr. NED has taken…
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Scan results Votrient/Pazopanib 8 Weeks In
3 Months after my diagnosis/Nephorectemy and 8 weeks on Votrient/Pazopanib I had some shrinkage of my lung mets, not huge though. Last scan was Sept 21. Current Scan Oct 20. My largest nodes where 2.0x1.9cm and 1.0x1.0cm with numerous others throughout all lobes of my lungs. Shrinkage on these was 1.6x1.8cm and .9x.8cm…
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Broken ribs.
Long time, no see! Hope you're all doing well. I had open heart surgery and a thoracotomy in July. Chest CT after thoracotomy to check for collaterol damage (fractured bones) that came back negative. Coughing end of Sept. and ribs started hurting bad (same side as thoracotomy). X-rays showed #6 rib broken. 3 weeks later,…
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Malignant ALM
So i have in fact made it to the other side of my Partial Neph. I was in the hospital for 6 days and it's been 12 since my surgery. Even though this was a robotic partial it was by no means an easy recovery. But here I am among the living again. There were complications and the tumor was larger then originally thought…
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Stage 2 to stage 4 in less than 10 months
Hello all. I have been away for a while and have come back to share information I had hoped not to share. A recent needle biopsy confirmed that my RCC has metasticized to my mediastinal lymph node. I have a couple of nodes on the lungs - 4 mm and 9 mm - that are "indeterminate", however, are most likely mets. This is a…
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Thanksgiving
Thanksgiving is Turkey, a visit from Uncle NED and just watching (5 minutes ago) my grandson on center stage in the Macy's Thanksgiving Day Parade (he was one of the drummers in the Walled Lake Central High School Marching Band which followed Cirque de Soliel). Icemantoo
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MSK Research on Nanoparticles in Targeted Therapy.
Since I had my surgery at MSK I receive their newsletter and the latest one had some very promising findings. While researching the ability to deliver nanoparticles to target lung cancer tumors, they found that while very few showed up in the lungs, many ended up in the proximal tube where RCC starts. So now they’re…
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Bowel wake up after partial left nephrectomy done open method
Hello my name is Randy I'm currently in recovery mode at UW Hospital in Madison, WI after having a 2.8cm cancerous tumor removed from my left kidney on 11/24/2015. I was wondering how long it takes for the bowels to wake up. When I started flushing the bowels early Monday afternoon I never got to clear fluid. I went just…
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Not Sure What to Think
I have a scan a week before Christmas last year two days before Christmas I found out that my cancer returned and that I was stage IV, my wife and kids and I made a decision to not let that ruin our holiday. I was in NED the last two scans. Starting two weeks ago I have begun coughing up blood and blood clots sometimes a…
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Back spasms
My cancer was found in September after my Dr sent me to the ER thinking I had appendicitis. They did a CT scan and found that I didn't but did find a tumor on my right kidney. On November 9th I had a partial nephrectomy and recovery has been ok so far. However today I have had the worse either back spasms or someone called…
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Some more pictures
Hi, guys, So I've been a little quiet on here lately; Jake has been a good baby overall but between working and taking care of him I've had literally ZERO time... Just thought you'd enjoy a couple more pics of his first few weeks. I'll try to be more active here as things calm down. I've seen some good news lately; very…
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nesting
I understand expectant mothers do this. But I remember doing this a few years back. I seem to be doing it again. I am cleaning, disposing, and giving things away. Maybe preparing for winter is part of it. Simplifying my life is a big part of it. Maybe being retired has something to do with it. The uncertain future of…
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I officially joined the club today
Today I officially joined a club that I never wanted a membership to... My doctor, from MD Anderson, called this evening with the pathology results, and I did have cancer. I actually had two masses on my right kidney. The first was 2.2cm and the second one was 8mm both were malignant, but both are now gone and I got to…
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NED
Hi everyone. I've been lurking around these days trying to keep up on all that is happening. I had my one year scan done last week and although I have not gotten the official word, I believe that I have had a visit with uncle NED. I have seen the films and am still waiting for the report. Films to me show a couple of cysts…
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Stage 4 breast cancer for 18 years. If this isn't inspiration I don't know what is
This made me cry and laugh and is a great story. http://www.usatoday.com/story/news/humankind/2015/11/25/18-months-turns-into-18-years-stage-4-cancer-survivor/76378732/
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Nivolumab is FDA approved to treat Kidney Cancer.
YES! http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm473971.htm
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Hepatitis is cured !!!!
Yeah, we did it !!! :-) Time for champagne. After all, virus damaging the liver is eliminated, so we could damage it a bit with alcohol :-) Thank you all for support, it is so important and helpful! Alla
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warning about Nivolumab
Nivolumab is a most promising drug but it appears to carry some risk of triggering a stroke, as i have discovered. after treatment with Nivolumab for several weeks i had a (relatively mild) stroke. may be because drug causes blood vessel inflammation. evidently this might be preventable by taking low dose steroids while…
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Anyone have a lot of liver Mets?
I seem to have a plethora of liver Mets that have sprung up since March. Four have been sized - the largest is 2 cm, but the CT refers to several others as well. They are scattered throughout the liver. I confess that I googled liver Mets and that was disheartening - prognosis is poor when you've got lots - or so possibly…