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Sensible fingers
Hi all, I've started the combination of Pembrolizumab + Axitinib recently (my first treatment, via clinical trial KEYNOTE 426, 4th cycle started on monday), and managed side-effects well so far. Recenlty though, the top of my fingers (near the nails) became really sensible - that's painful when I do buttons or manipulate…
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I'm ashamed of myself
Too many recent deaths. They impact me for the obvious reasons. It isn't fair and it will not be. One person dies and another lives. Same dx. and treatment. I'll never be ned, but I've always been a partial responder to treatments, so as long as new options become available, I may be ok. There is some survivors guilt but…
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Foxhd
just wanted to say, that's an awesome jacket.
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Night sweats post-op anyone?
Hi, I am now 4 weeks post-op and things are slowly returning to normal. I am now back at work part time and "normal" life is resuming. Pain is 90% gone, so i am off pain medicine since 1 week. The thing bothering me are those heavy night sweats. I was blaming it on pain drugs, but it keeps happening even without it. Anyone…
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Beemurguia?
Just wondering if anyone has heard how she is doing.
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Clear cell RCC 1.2 cm
Hello, Just looking for some clarification. My initial MRI reports showed that I had a Bosniak 2f cyst that was 1.2 cm. Really none of the urologist were in a hurry to take it out, they wanted to watch it. We watched it for almost 2 years until I finally told them to remove it. The pathology did not say anything about a…
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Happy Mothers Day to all!!
I am wishing a Happy Mother's Day to all early. If you are a Survivor or Caregiver know that we love you, even if we don't say it enough. Enjoy the Day.
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Thoughts
Hi, i am a new silent member of this group. My husband ,37 yr old ,got diagnosed with RCC just a day after we got to know that we r expecting our third baby. Fast forward he has his open radical nephrectomy on 11th of April and they removed his left kidney . We received his pathology report which says clear cell carcinoma…
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Stereotactic radiation highly effective for kidney cancer
Read this a few days ago and it seems pretty good for advanced patients. Especially when I read this https://www.sciencedaily.com/releases/2017/05/170502113808.htm "... According to Dr. Hannan, the new study shows that patients with metastatic kidney cancer can be treated with stereotactic radiation therapy with the goal…
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Before Google
Fifteen years ago this Spring I peed blood after doing some yard work. My GP sent me to a Urologist who after doing an exam ordered a CT scan which I didn't think anything of. My GP said I probably just broke a blood vessel. I didn't ask and the Uro didn't offer any opinions as to what it could be. I just thought it was a…
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Kevin, (WhatIsLife) has passed..
I rarely post, but I feel I owe my dear friend, Kevin, the respect by coming here to announce he passed March 31st in his sleep. Kevin 54yo, was immensely supported by many of you and it meant to the world to him. He had no partner, family, children, just his two cats. His only remaining friend worked out of the USA. He…
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Surgery Scheduled
Well, up until I was 50 years old, I had never had surgery in my life. Now I'm scheduled, May 4th, for my third major surgery in 7 months. I had a radical nephrectomy in September of last year, a laminectomy in October to debulk a spinal tumor and give me back control of the lower half of my body, now I need major hip…
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Any rcc with thyroid cancer?
Hey all! Just checking in. For those that know me. Caregiver for now almost 85 year old mom with Stage 4 RCC that has been stable for 5 years on 200 mgs of Votrient. Sono shows 1.5 cm mass on thyroid that had no uptake on scan one year ago and no mention of it on report. Says it has several 0.1 calcifications, mixed…
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Stage 4 Bone Met at 4 months Post Nephrectomy
Hi, all, I am new to this forum. This is my first post. I wish this post could be under better circumstances. In May 2016, I had a TIA stroke (mini-stroke), at which time a 7 cm tumor was detected in my left kidney. I underwent endartarectomy surgery on my left carotid artery for the TIA. I had to wait 2 months to recover…
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Interesting potential treatment
Come across this new interesting potential treatment which is like delivering a bomb directly to the tumour (I like this idea). Wondering if this method can be used over and over again whenever the tumour grow. If so, then it will definately prolong the survival of the patients.…
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Lab results
we got my husbands regular labwork back from his dr electronically but he is out of his office for over a week and no one will tell us what these results mean. i associate high blood counts to cancer- but that could be simply my ignorance to the disease. he is a healthy man in his 40's with no symptoms - no medications…
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Help can a ct/scan
I'm needing help understanding if a kidney mass could be distinguished by a ct.scan I was sent to a kidney specialist after a 5cm mass was found on my right kidney and was told it could be cancer it could not be but a MRI is needed to determine more but he's already telling me to find a urologist I'm confused help please
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I was waiting for the official report
While I had a quick reading on Wednesday (myself and urologist), I now have officially heard from the radiologist AND my surgeon both that my CT and chest x-ray are ALL CLEAR!!!! I go back in February! Thank you all for the well wishes!!!!!
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Rescheduled my appointments for Insufficient Funds
My appointments were for 4/25/17, 4/26/17, and 4/28/17 at MD Anderson Cancer Center in Houston, Texas. I didn't have the funds for the labs, specimens, CT, ultrasound, two doctor visits, etc. I moved the appointments to August. I've rescheduled these appointment multiple times. I keep hoping that some miracle will happen…
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Are there oranizations that help with tasks?
I am a rcc survivor with ckd, crps, ddd, fibro, etc. I have a hard time doing chores, errands, etc. Are there any new ACS or Kidney Cancer Association programs to help? If not, are there any organizations that give free massages to cute cancer survivors? I am so behind with everything! Kidney_Cancer_Kid
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Cabo
Is Cabo that bad? I keep hearing about this hand and foot thing and I'm getting nervous.
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I'm absolutely beside myself!!
Had my oncologist appointment on Monday and have been having pain on my left side ( right nephrectomy was done ). Doctor orders a catscan w/o contrast , I had to drink 2 bottles of fruity nastiness. Anyway on my way home doctor calls me says everything ok, stop votrient for a week and resume only taking 600 mg in a week.…
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Five years ago...
Five years ago this weekend, I was on top of the world. Life was going well. Work was amazing. I had just eaten at Taste of Vienna...and then got to watch the Nats rookie play his first game, and hit a double off the wall. Yeah, I was a little tired all the time, but figured that was because I was approaching 50. But, I…
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Guess who's coming to dinner!
Uncle NED! I hope he likes polenta, sweet potatoes, and green beans, 'cause it's what's on the menu. Next appointment in six months, CT and chest x-ray (We'll look at type of contrast and premedicating). Woot! Jerzy PS I'm setting the table with the "You Are Special Today" plates. Which reminds me: You folks who read the…
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Doctor appointment results
So I went to dr today to see what his plan of action was for my bad catscan results. Apparently the votrient did decrease some of the mets but some of other ones have grown. It said the could be inflamed from the taking of the votrient or it could be the cancer progressing. So he put me on a steriod for my abdominal pain I…
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And the beat goes on....
It’s been referenced here more than once that cancer is like having a bad song stuck in your head. As much as we try to think about other things and “forget” about the diagnosis, it’s always there. That harmonic beat reminding you what you’ve been through and the possibility of what’s ahead. I was fortunate that my cancer…
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Doctor this morning
i have my followup to the horrible catscan this morning. Didn't sleep all weekend, cant eat , I'm so nervous to hear what this dr has to say, especially since his initial reading he said it was ok and it wasn't!! Just venting , maybe it will be ok.
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Need To Hear Your Experience on Abdominal Pain
Hi, this is Brad. I am a new member and have only commented a few times but I am an avid reader of the forum. Well I need any input/knowledge you may have to prepare for Dr visit, so can you suggest any questions/commnets I should take with me. i had a laparoscopic left radical nephrectomy on Feb 20, 2017. All went well…
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Surgery tomorrow
so the time has finally come...tomorrow is my turn to get this 3.6 cm alien out of my body. I'm not scared, just a bit anxious is all. It's amazing how many scenarios of what is going to happen can run through your mind. You try not to dwell on the bad ones but they seem to be the ones that always pop up. I find that I…
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My turn
I'm a 63 yr old very active retiree. I hike, bike, swim and golf. My world was turned upside down on 3/31 when I was told I had a 9cm mass in my right kidney. More bad news after the MRI last week. I am numb. At first I said no surgery....what's the point. The Urologist convinced me otherwise. Surgery to remove kidney,…