-
Upper Tract Urothelial Carcinoma
Hello. First time posting, I think this is the correct board? I'm looking for any others that can share stories about UTUC treament? My mother recently had a small tumor and part of her ureter removed. Margins and lymph nodes have come back clear and she was diagnosed at stage 3. At this time her surgeon is suggesting…
-
First Scans in two weeks, feeling anxious
Hi everyone! I have not been on in awhile, just been trying to keep my anxiety down and continue on with my life. You all have helped me in so many ways, however I do feel when I get on here often my anxiety goes crazy when I read the bad stories, so I made myself stay off for awhile, but the good old scans since my…
-
Scanning.
after my next scan, I'm thinking about not scanning anymore. It's been over a year, I'll have 3 good scans behind me. It just seems like an unnecessary money drain. What's your opinion?
-
Complex Regional Pain Syndrome after RCC
How many of you developed CRPS or fibromyalgia after the renal cell carcinoma? What are you doing to deal with those horrors? I wish I had the power to remove cancer and other terrible conditions from our human experience. I hate…
-
New here with a question about after surgery pains
1 month ago I had my left kidney removed for Papillary RCC. I am 41 years old and have never joined a board like this. I have a question about a soreness I have in my left testicle. I know this is probably not the way to start out but it is a concern and hoping someone knows if this is a common thing or something I should…
-
Bumpy ride 2 weeks post Radical Nephrectomy
Hello all...well just when I thought I was feeling better and more energetic 10 days post surgery my energy level plummeted and the day that I went for my 2 week follow-up, reported having a weird deep pain at my right side. I can describe the pain as trapped air...everytime I breathed i would feel the stab of pain. My…
-
Worries about health 6 months after surgery
Hello everyone! I have learned a lot from reading your posts since my own experiences with kidney cancer began and finally found the courage to join you all a few days ago. My own kidney cancer journey began several months ago when an ultrasound revealed a small mass on my kidney. The mass turned out to be a 1.2cm clear…
-
Renal cell carcinoma treatment options (current and future practise)
Read a new article about treatment of RCC and believe it can help some new members to understand the process and treatment options. Carmen ----------------------------------------------------------------------------------------------------- Given the increasing understanding of tumour biology and the increasing number of…
-
Cancer mass
Hey guys I have yet to see the urologist but my concern is my MRI that was done after ct ... is a mass that doesn't show definetive characteristic of a cyst automatically considerd cancer??
-
Here we go again
Recently there has been a lot of conversation around scans. My second set is tomorrow with my first appointment at 6:40 am. I meet with one of the PA's on my doctor's staff at 11:00 am. Hoping Uncle NED visits! Stub
-
Cystoscopy Question
Hello.....my husband is scheduled to have cystoscopy next week with his urologic oncologist. At that time, we will also discuss how to proceed with the 2 cm kidney tumor that was an incidental finding. Since this was discovered around two weeks ago, he noticed a small amount of blood in his urine (only once). Is this test…
-
Hole In My Soul
Hello everyone! Let me introduce myself. My name is Debbie and I have joined this network because my husband, Mike, was just told that he most likely has renal cell carcinoma. I have never been so terrified in my life! Our whole world was just turned upside down. Twelve days ago, my husband went to the ER for something…
-
My Journey
I will never forget March 13, 2017 at 3:00 p.m. That's the exact time I received the call from my PCP telling me that they had found RCC on a routine CT scan. When I heard the PCP's voice on the other end of the phone I knew something serious was up. My PCP had never called me in all the years I have been seeing him. I…
-
Help me understand biopsy report and what should I do next?
Hi Friends- I am a 26 yrs old female. I had a gross hematuria (sometimes blood clots) 1 month ago. I ultrasound and subsequent ct scan I was diognised with possible renal carcinoma. Had a radical left nephrectomy 10 days ago. My biopsy reports details below: Gross description: Kidney with perinephric fat – 14X9X6 cm ;…
-
1.2 cm Renal Cell Carcinoma(low grade and dormant)
About a week ago, I had surgery to remove a 1.2 cm cyst that turned out to be a small cancer. The doctors had been watching it for almost 2 years, and it had done nothing. With all the anxiety and stress, I just wanted it removed. I am glad I did. The surgeon told me it was remove, and told me it was curative surgery, and…
-
What a kick in the ****!!
I've waited all this time only to find out MRI doesn't she defentive c characteristic of a cyst or cyst area tried of being in pain & not knowing what's going on
-
Lymph node ??
Hi all! I am 7 months post op from a right partial nephrectomy. Had a CT done due to flank pain and a cyst was discovered on my left kidney Dr stated it was benign but there was a 6.6mm node found near the main vein in my right kidney. My PCP wanted to do a repeat CT scan in 8 weeks but my urologist opted for a Petscan.…
-
6 weeks post op
Saw my Surgeon today for a 6 week follow up today. We went over my treatment that follows the National Comprehensive Cancer Network for Stage 2 RCC. Blood work today for Kidney function, 6 month appointment for MRI. No restrictions for gym or normal daily activities. He gave some literature for diet and nutrition. I feel…
-
Single Kidney Long Term
To all of you long term nephrectomees... I am very curious to know how your single kidney function has held up over time. Does it hold steady or decline slowly? I always assumed, and I think it is a common assumption, that people get along just fine with only one kidney and it is just as though they had never lost or…
-
Passed Out and Now Have Abdominal Pain After Robotic Partial Nephrectomy
I am a fit 56 year old male and on May 16, 2017 I underwent a robotic partial nephrectomy to remove a 4 cm renal cell carcinoma from the upper pole of the left kidney. Recovery up until post-op day 9 on May 25th was going very well and was walking several miles per day....feeling pretty good. On post-op day 9 I was sitting…
-
Got to fight
So I've been on here for close to three months and I have had lots of ups and downs. Today I saw a childhood friend in the food store and I filled him in on all that I've been dealing with. Now I've literally known him since kindergarten. What he said to me really hit me hard. He said that I am a fighter . Not to let this…
-
Repost about thinking about cancer
With many new people here, I thought this repost might make sense. (from a couple years back) Did you ever get a song in your head and you can't get it out? This weekend I had another experience that we have all had. Some good intentioned person was asking me how I'm doing. During our conversation they uttered that…
-
Best therapy options for mets?
My step-father was diagnosed with renal cancer with mets to the bone, lungs, and regional lymph nodes a week ago. He had a radical nephrectomy three days ago to remove a 7cm tumor along with his entire right kidney. We do not have the pathology report back yet (we expect it hopefully by next Tuesday) because we are in…
-
Bad news on CT scan (good update)
Since I got the report from Hospital Patient Portal on my phone this morning showing that I had bone cancer...I got ahold of the nurse who had called me the day before telling me I was free of disease on scan. I told her what had come across in my portal and she said that she was looking at my scan results showing no…
-
Cryoablation and Open Partial Nephrectomy
Hello all, I was diagnosed with RCC about 9 months ago, and with the advice of my urologist had cryoablation done. I am 59 and healthy. All went well. On my second CT scan (6 months after the procedure) an anomoly showed up, so my urologist sent me to the head urologist at the univerisity medical center. The issue my first…
-
Bad news on CT scan
Yesterday the nurse called and gave me a report that everything was clear on the scan results but the doctor wanted to see me in 3 months and to have another CT scan because of a small spot that was probably a cyst. I got my report this morning...shows I have another mass in my remaining kidney plus a malignant neoplasm in…
-
Hello all
I felt like i should intrduce myself and say hello and a little about me. I am 41 from boston male about two months ago i had to go to the ER because i was passing large blood clots and could not go pee. One week ago i had a CT scan of my lower abdomen which at the time they seen my kidney and lyphnode was enlarged.…
-
RCC stage 4. Tumor in last remaining kidney
Hi all. I posted here maybe five months ago when I was just in the process of gathering information about a recurrence of RCC, after 4 years of clear scans on follow up. This is an update. As a recap, a pulmonary node and lymph node showed up in my lungs via a CT scan for my heart in December, flagged as RCC. I was…
-
Everything tastes like nothing
Been on Cabo for like 3 weeks and my taste buds are non existent! I'm very nauseous, going to get something for that in a couple of days. Ive lost 10 lbs probably because I rarely have an appetite. I even have been buying my favorite foods and still the are tasteless. This is absolutely horrible, I eat just because my…
-
New to the Forum
Hello everybody! Papillary RCC is what I have. Right kidney was roboticly removed in January 2016. CT Scan followup 6 months later showed mysterious nodules in lungs began growing. Uh oh! Biopsy of two in right lung resulted one benign, one malignant. Got into a clinical trial at MSK end of 2016. February CT Scan showed…