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Here we go again
Recently there has been a lot of conversation around scans. My second set is tomorrow with my first appointment at 6:40 am. I meet with one of the PA's on my doctor's staff at 11:00 am. Hoping Uncle NED visits! Stub
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Cystoscopy Question
Hello.....my husband is scheduled to have cystoscopy next week with his urologic oncologist. At that time, we will also discuss how to proceed with the 2 cm kidney tumor that was an incidental finding. Since this was discovered around two weeks ago, he noticed a small amount of blood in his urine (only once). Is this test…
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Hole In My Soul
Hello everyone! Let me introduce myself. My name is Debbie and I have joined this network because my husband, Mike, was just told that he most likely has renal cell carcinoma. I have never been so terrified in my life! Our whole world was just turned upside down. Twelve days ago, my husband went to the ER for something…
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My Journey
I will never forget March 13, 2017 at 3:00 p.m. That's the exact time I received the call from my PCP telling me that they had found RCC on a routine CT scan. When I heard the PCP's voice on the other end of the phone I knew something serious was up. My PCP had never called me in all the years I have been seeing him. I…
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Help me understand biopsy report and what should I do next?
Hi Friends- I am a 26 yrs old female. I had a gross hematuria (sometimes blood clots) 1 month ago. I ultrasound and subsequent ct scan I was diognised with possible renal carcinoma. Had a radical left nephrectomy 10 days ago. My biopsy reports details below: Gross description: Kidney with perinephric fat – 14X9X6 cm ;…
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1.2 cm Renal Cell Carcinoma(low grade and dormant)
About a week ago, I had surgery to remove a 1.2 cm cyst that turned out to be a small cancer. The doctors had been watching it for almost 2 years, and it had done nothing. With all the anxiety and stress, I just wanted it removed. I am glad I did. The surgeon told me it was remove, and told me it was curative surgery, and…
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What a kick in the ****!!
I've waited all this time only to find out MRI doesn't she defentive c characteristic of a cyst or cyst area tried of being in pain & not knowing what's going on
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Lymph node ??
Hi all! I am 7 months post op from a right partial nephrectomy. Had a CT done due to flank pain and a cyst was discovered on my left kidney Dr stated it was benign but there was a 6.6mm node found near the main vein in my right kidney. My PCP wanted to do a repeat CT scan in 8 weeks but my urologist opted for a Petscan.…
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6 weeks post op
Saw my Surgeon today for a 6 week follow up today. We went over my treatment that follows the National Comprehensive Cancer Network for Stage 2 RCC. Blood work today for Kidney function, 6 month appointment for MRI. No restrictions for gym or normal daily activities. He gave some literature for diet and nutrition. I feel…
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Single Kidney Long Term
To all of you long term nephrectomees... I am very curious to know how your single kidney function has held up over time. Does it hold steady or decline slowly? I always assumed, and I think it is a common assumption, that people get along just fine with only one kidney and it is just as though they had never lost or…
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Passed Out and Now Have Abdominal Pain After Robotic Partial Nephrectomy
I am a fit 56 year old male and on May 16, 2017 I underwent a robotic partial nephrectomy to remove a 4 cm renal cell carcinoma from the upper pole of the left kidney. Recovery up until post-op day 9 on May 25th was going very well and was walking several miles per day....feeling pretty good. On post-op day 9 I was sitting…
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Got to fight
So I've been on here for close to three months and I have had lots of ups and downs. Today I saw a childhood friend in the food store and I filled him in on all that I've been dealing with. Now I've literally known him since kindergarten. What he said to me really hit me hard. He said that I am a fighter . Not to let this…
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Repost about thinking about cancer
With many new people here, I thought this repost might make sense. (from a couple years back) Did you ever get a song in your head and you can't get it out? This weekend I had another experience that we have all had. Some good intentioned person was asking me how I'm doing. During our conversation they uttered that…
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Best therapy options for mets?
My step-father was diagnosed with renal cancer with mets to the bone, lungs, and regional lymph nodes a week ago. He had a radical nephrectomy three days ago to remove a 7cm tumor along with his entire right kidney. We do not have the pathology report back yet (we expect it hopefully by next Tuesday) because we are in…
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Bad news on CT scan (good update)
Since I got the report from Hospital Patient Portal on my phone this morning showing that I had bone cancer...I got ahold of the nurse who had called me the day before telling me I was free of disease on scan. I told her what had come across in my portal and she said that she was looking at my scan results showing no…
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Cryoablation and Open Partial Nephrectomy
Hello all, I was diagnosed with RCC about 9 months ago, and with the advice of my urologist had cryoablation done. I am 59 and healthy. All went well. On my second CT scan (6 months after the procedure) an anomoly showed up, so my urologist sent me to the head urologist at the univerisity medical center. The issue my first…
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Bad news on CT scan
Yesterday the nurse called and gave me a report that everything was clear on the scan results but the doctor wanted to see me in 3 months and to have another CT scan because of a small spot that was probably a cyst. I got my report this morning...shows I have another mass in my remaining kidney plus a malignant neoplasm in…
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Hello all
I felt like i should intrduce myself and say hello and a little about me. I am 41 from boston male about two months ago i had to go to the ER because i was passing large blood clots and could not go pee. One week ago i had a CT scan of my lower abdomen which at the time they seen my kidney and lyphnode was enlarged.…
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RCC stage 4. Tumor in last remaining kidney
Hi all. I posted here maybe five months ago when I was just in the process of gathering information about a recurrence of RCC, after 4 years of clear scans on follow up. This is an update. As a recap, a pulmonary node and lymph node showed up in my lungs via a CT scan for my heart in December, flagged as RCC. I was…
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Everything tastes like nothing
Been on Cabo for like 3 weeks and my taste buds are non existent! I'm very nauseous, going to get something for that in a couple of days. Ive lost 10 lbs probably because I rarely have an appetite. I even have been buying my favorite foods and still the are tasteless. This is absolutely horrible, I eat just because my…
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New to the Forum
Hello everybody! Papillary RCC is what I have. Right kidney was roboticly removed in January 2016. CT Scan followup 6 months later showed mysterious nodules in lungs began growing. Uh oh! Biopsy of two in right lung resulted one benign, one malignant. Got into a clinical trial at MSK end of 2016. February CT Scan showed…
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Results
So while the MRI radiologist thinks my 2.9 cm mass is a large cyst in my left kidney, my doctor wants me to have several doctors confirming this, which is why I like my doctor. I got the MRI film after the procedure and sent it to my mom's oncologist, a top kidney oncologist. There are cystic renal cell carcinomas too. I…
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New here! Looking for some clarity.
I am a 38 yo female. I have always had bladder and kidney problems from a young age. Had kidney stones a time or two and way to many to count uti infections. last fall I had 6 uti infections in 4 months or possibly just one that never went away. My primary dr sent me to a urologist to make sure there wasn't something going…
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sick with worry
I'm 38 yrs old and went to the doctor for lower back pain and intermittent pain in the pelvic area. The doctor ordered a pelvic and abdominal ultrasound. All symptoms pointed to the ovaries. Well, pelvic came back normal but showed an isoechoic lesion in the mid left kidney measuring 3cm and an isoechoic lesion in the left…
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Recent scan results
Update on my son-in-law John (stage IV, grade 4, 60% sarcomatoid features, dx last summer). After a week of SBRT last month on the tracheal/aorta tumor and probably six months so far on Opdivo he had another set of scans last week and met with the Onc on Friday. We're happy to report that the chest tumor has shrunk by half…
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Recently Diagnosed?
I stumbled across this board by chance while searching the web for information about kidney masses. About two week ago I was feeling perfectly fine, but I started peeing blood. After being poked and prodded by doctors, I was scheduled to have a CT scan. The next day, two weeks after I started peeing blood, the doctor sat…
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Cramping with votrient
Everyday seems to being something different with votrient . Being on it for a little over a month. I've been experiencing cramping followed by diarrhea, sorry to be so forward with this. Is that a normal side effect? It seems to happen every other day. Also my gums feel very sore. My moods are very irrational, I feel like…
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Friendly Reminder
I want to take this opportunity to welcome all the new members that have joined us the past couple months. In order for members to give advice it helps having a good understanding of your journey. At the top of the page you will see.... "Click here" to create or update your member "About Me" page. Follow those instructions…
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Delayed Response?
My husband had his left kidney removed along with a 13cm tumor and 27 cancerous lymph nodes in November 2016. He has remaining mets in some neck lymph nodes and chest area lymph nodes, he is Stage 4 (5% sarcomotoid). He started a trial at UT Southwestern that incorporated 5 doses of SBRT on one lymph node and four doses of…
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In so much pain
I am in so much pain, this has literally been a very bad week. Doctor prescribed tramadol 50 mg 4 x a day, it's not working , I called today and I was told to try Percocet, which also doesn't work. My original oncologist called me this evening because I emailed him my scary catscan from the other day . He is glad I am…