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Opdiva after four treatments
So I just had my fourth treatment of Opdiva, I was hoping for good things but I won't have a scan until next week. However I did have a broncoscopy on Friday, my ONC wanted to see where the bleeding in lungs was coming from. The Pulmonary doctor found many new tumors that were not on his first report from my ONC, he took a…
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Kidney OPN update
Thank you to this group for the support. I had an OPN (abour 23 incision) June 8 around 12:30. Dr was worried about prior cryoablation, but ended up saying my surgery was textbook with NO issues. The recovery has been long (minutes actually seem like minutes turned to hours), but am doing much better. Up walking a lot, and…
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My potassium is up..
my egfr is 40, down from 49 and my GP is on vacation. Life is good. I've been instructed if I have "muscle issues" to go to the ER.
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Newly diagnosed and feeling rattled
Hi there, I am a 45 year old father of 2 boys, 4 and a half and 2 and a half. I received the news I was expecting from the CT scan. 3.9 cm Tumor RCC on the upper pole of left kidney. So far no sign of metastatic disease. Lymph nodes Normal, CT and ultrasound show nothing else noteworthy, chest X ray clean. It was caught…
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A week vacation from Cabo
Well went to doctor on Monday and he wasnt happy because of all the side effects I'm having. Also I lost 15 lbs since last months visit. He told me to take a week off the Cabo since it's kicking my butt! He's concerned with the weight loss, I told him I have no appetite at all and everything I eat taste metallic. He's…
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New here.....50 y.o. man with incidentally-discovered 4.9cm solid mass
Hi all -- I had an ultrasound a week ago for my liver....and like many people I guess, my liver was fine, but a 4.9cm solid mass was discovered rising from the lower pole of the left kidney. I guess it's normal to be very frightened. I'm glad I found this site, and would love any stories/advice from folks with a similar…
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Recurrence Rates
Does anyone know the chances of recurrence of tumors less than 2cm? I was told they are super low. Does anyone have any information that could be helpful? My follow up plan is CT, chest X-ray, and blood work at 6 months for a year, then yearly for 5 years.
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ACA repeal - latest attempt.....
It now looks like our friends in the GOP want to take the 'pre-existing' condition provision away From the ACA. This sounds like such better healthcare for all, doesn't it? :)
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38 yrs old 15cm renal mass with spread to lungs, adrenal, and lymph nodes
Hi Everyone! My name is Mike and I am 38 years old. I got my CT back on Tuesday. I have 15cm renal mass on my right kidney. There are "extensive scatterered cannonball metastatic lesions" in my lower lungs. I also have 1.6cm metastatic lesion in my left adrenal, something about about lymph nodes. I have a appointment with…
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Kidney Cancer
Hello Dear All, Can Anybody tell me about that, My Father was operated on last Monday Dated: 09-06-2017 due to kidney cancer the has been remove his kidney and now he is sleeping from last 10 hours continually and not waking up after force But before that he was not sleeping properly at morning of today doctor say that…
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Depression
So I'm back on Cabo after a weeks break. My depression is getting to me. I'm so not myself, I try to be me but by one in the afternoon I'm done. It's very depressing because I used to work 10 hour days and I loved my job and I can't do it anymore. Maybe I'm just feeling sorry for myself but this just really sucks!!!!
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CT scan
Hi All, A few days ago I was sent to the ER due to my Ulceriative Colitis. During this time, they took a CT scan of my abdomen, which not only confirmed my UC flare-up but also a 1.6cm lesion on my kidney as well as an ovarian cyst. The ER doctor did not even bother to tell me about the lesion or cyst, just that I was…
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Surgery Issue
i had surgery back on May to remove a small grade 1 stage pt1a tumor from my right kidney. The pathology report stated "the disruption of the tumor may be caused by tearing during surgery". Has anyone else ever had this, I have asked my surgeon about it, and he doesn't seem to be concerned. What I am concerned about is…
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Scan
Monday going for the first scan after 4 clinical trial infusions. 2 months worth. Anyone who was involved with the Opvido trial see results after 4 infusions?
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Surgical resection
Looking for a little advice. I had a surgery to remove a 1.2 cm clear cell rcc from my right kidney. I just can't seem to get a straight answer in reference to a comment on the pathology report. The report stated "a 1.2 cm in diameter tumor disrupted in inflamed frayed external capsule". Does anyone know what this means?…
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Renal Cell or Transitional Cell is the Question
My husband had the additional CT scan and Cystoscopy that his Urologic Oncologist requested. His bladder is good...everything is normal. Even though they don't usually do biopsies on kidney tumors, he wants my husband to have one because he said it's very important that we know the cell type before we do surgery. He needs…
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Asbestos over exposed and kidney cancer
I have been lable as over exposed to asbestos by the VA. Have junk in my chest, problems of getting tired. No cancer but have it in my kidney. They are going to do a partial on the kidney cancer. My asbestos in my lungs bother me the worse because it could of been prevented. It took 42 years to get me. The cancer in the…
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Treatment after surgery
I just wanted to get an input on what the next step of treatment would be for my husband. Left kidney removed and 10 radiation treatments to a met in sacrum area. He sees a medical oncologist later this month.
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Transplant Surgeon Discusses Activity and Exercise After Surgery
I found the following transcript of an interview with a transplant surgeon in Utah. It's not specific to nephrectomy but much of his advice should apply. Many of you, like myself, want to become more active and exercise as soon as possible after your surgery. In my case, I may have overdid it which cost me an unscheduled…
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1.2 cm rcc pathology report
i am looking for some advice. The pathology report on my surgery indicated that the "tumor disrupted in inflamed frayed external capsule". Does this mean it was broken and possible cells leaked out? nothing was said about it in the operative report. A surgeon who is a friend of mine said it would be mentioned in the…
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How to Exercise after a NEPH
Begin by standing at a comfortable surface where you have plenty of room at each side. With a 5lb. potato bag in each hand, extend your arms straight out from your sides and hold them there as long as you can. Try to reach a full minute and then relax. Each day you will find that you can hold this position a little bit…
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Upper Tract Urothelial Carcinoma
Hello. First time posting, I think this is the correct board? I'm looking for any others that can share stories about UTUC treament? My mother recently had a small tumor and part of her ureter removed. Margins and lymph nodes have come back clear and she was diagnosed at stage 3. At this time her surgeon is suggesting…
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First Scans in two weeks, feeling anxious
Hi everyone! I have not been on in awhile, just been trying to keep my anxiety down and continue on with my life. You all have helped me in so many ways, however I do feel when I get on here often my anxiety goes crazy when I read the bad stories, so I made myself stay off for awhile, but the good old scans since my…
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Scanning.
after my next scan, I'm thinking about not scanning anymore. It's been over a year, I'll have 3 good scans behind me. It just seems like an unnecessary money drain. What's your opinion?
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Complex Regional Pain Syndrome after RCC
How many of you developed CRPS or fibromyalgia after the renal cell carcinoma? What are you doing to deal with those horrors? I wish I had the power to remove cancer and other terrible conditions from our human experience. I hate…
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New here with a question about after surgery pains
1 month ago I had my left kidney removed for Papillary RCC. I am 41 years old and have never joined a board like this. I have a question about a soreness I have in my left testicle. I know this is probably not the way to start out but it is a concern and hoping someone knows if this is a common thing or something I should…
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Bumpy ride 2 weeks post Radical Nephrectomy
Hello all...well just when I thought I was feeling better and more energetic 10 days post surgery my energy level plummeted and the day that I went for my 2 week follow-up, reported having a weird deep pain at my right side. I can describe the pain as trapped air...everytime I breathed i would feel the stab of pain. My…
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Worries about health 6 months after surgery
Hello everyone! I have learned a lot from reading your posts since my own experiences with kidney cancer began and finally found the courage to join you all a few days ago. My own kidney cancer journey began several months ago when an ultrasound revealed a small mass on my kidney. The mass turned out to be a 1.2cm clear…
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Renal cell carcinoma treatment options (current and future practise)
Read a new article about treatment of RCC and believe it can help some new members to understand the process and treatment options. Carmen ----------------------------------------------------------------------------------------------------- Given the increasing understanding of tumour biology and the increasing number of…
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Cancer mass
Hey guys I have yet to see the urologist but my concern is my MRI that was done after ct ... is a mass that doesn't show definetive characteristic of a cyst automatically considerd cancer??