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RCC Chromophobe
It is almost that time again when I get my scans to see if the cancer is still gone and I start thinking (and worrying) about it. My doctor said RCC Chromophobe rarely reoccurs and I shouldn't worry about it but I am just curious if there is anyone out there that has a similar diagnosis with recurrance? I was 38 years old…
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Donna??
Has anyone heard from Donna (hardo718)? I sent her a pm about a week ago and haven't heard back from her. She was last online on May 16. Stub
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Advice
I am looking for advice. For about 1.5 years i had imaging that showed a possible Bosniak 2f cyst, we watched for almost 2 years with no change at all. On May 2nd, a 1.2cm clear cell rcc was removed from my right kidney. My urologist told me that everything went well and it was gone. He said it was so small that they…
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Exhaustion, still tired.
Tomorrow will mark 16 weeks post op for my wife's partial on her left kidney stage 1 3.5 cm RCC. For the most part, she's doing well. Been back to work since about the 4 week mark but.......on most days, by mid to late afternoon she is exhausted. She's getting pretty frustrated with it all. In general, what was most…
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Kidney stone
happy fourth of July to every one ....i spend mine in ER I peed blood the night befor with CT scan they found a stone in the right kidney I was shocked I just had my rotten CT scan 2 months ago no one said any about kidney stone I was told its 3mm am going to see my urologist soon the ct scan noticed no changes on the left…
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1 year since relapse diagnosed
Hello, I am new to the blog. In early Dec '05 I was diagnosed with Renal Cell Carcinoma, a 6.8cm tumor on my left kidney. I had a radical Nephectomy 10 days later. It was performed Laparoscpically. 5+ years of scans all fine. In March of 2016 (10+ years later) I asked my PCP about a lump on right flank that had recently…
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Cholesterol
Hi Everyone, I'm new here. I am 56 and I had my right kidney removed in Sept 2015 due to RCC. There were no other concerns, cancer had not spread. Didn't need radiation or chemo. This was my first ever surgery! I had never even been in the hospital except to have my children. So it came as quite a shock. Cancer was…
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The Problem with Family (Feeling Betrayed)
I was recently diagnosed with Renal Cancer, and I decided to keep things private. I only told my mom, my husband and my boss (I needed days off for testing and appointments) and my aunt Nancy (my mom needed someone to talk to) I swore them all to privacy. They agreed to maintain my privacy. I also help take care of my…
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mental and physical exhaustion after surgery
I had surgery to remove my right kidney 5 weeks ago, and now t seems i am tired all the time and if try an use my mind to for a while I get disoriented and extremely tired. I have pains but I figure they come with the surgery hopefully my Dr. s correc twhen he says they will get better. My right testicule is the worst. I…
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New here and wanted to say hello.
Hi, I'm Forger. (Think hot steel, not hot checks..) I have RCC on my right adrenal gland and some of the surrounding lymph nodes. DX'd last December. (Thanks Santa... I asked for a Tacoma, not a carcinoma.) It is a recurrance from 2010 when I had a tumor removed from my right kidney. They found a mass while doing a CT to…
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One of those days!
For the most part, I do my follow-ups and take care of myself physically, but I don't think of my kidney cancer every minute like I used to. However, today has been one of those days I can't get it out of my head. I know I'm extremely lucky that I found this cancer on myself, but it feels so strange to think lucky and…
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UPDATED Lost in the world of waiting
I've been reading through the board for a couple of weeks now and am finally pulling the trigger on making a post. I found out 3 weeks ago that I have a 1.8 cm complex partially cystic mass with enhancing soft tissue at the bottom of my left kidney. It was an incidental finding on an MRI for lower back pain. I followed up…
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Waiting for diagnose and panicking
Hi all, I am new to (probable) kidney cancer, but have had Thyroid, Breast and Endometrium primary cancers previously, all successfully treated. For that reason, I keep a close watch on what's going on with my voluble body. My control abdomen CT scan last week showed: "A low-density lesion in the left interpolar region…
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Relay for Life Soon + A Walker = Happy
Relay is coming up soon. My boyfriend purchased a walker with wheels and a seat for me. I will make a ton of laps! Well, I'll make at least two laps. Any more Relay people? Kidney_Cancer_Kid
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Today's scan.
im Ned. I think the doc was surprised I knew that term.
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Scans - Feel something before it shows up?
I've asked my doctor a few times now. As far as I've noticed he's never answered this question. I'm on a 3-month scan schedule. Is it possible I could feel something before they would see it on a scan? Maybe it's a vague question, or he doesn't like giving me the complicated answer, or the answer isn't reassuring? When I…
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Update on Scans
Hi everyone! Hope you all are having a wonderful Saturday. I just wanted to spread some good news on the forum and let everyone know that my scans came back good and NED!! Everything was looking great and I left that appointment feeling back to my old self again and the 1000 pd weight was released. I go back in another…
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Very depressed
I've been so depressed lately, I feel kind of useles. I can't remember the last time I cooked dinner. I just always feel like crap. I drag myself out of bed every day and I try but by noon I'm just done. It's killing my spirit and that scares the hell out of me. I have such a great family and my grandson is the light of my…
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Adjusting to the new reality
Hello How are you all? I joined our illustrious group last week and I wanted to pick your brains again if you'll allow me. You were all a great help to me last week and I am looking for some more illumination and I refuse to go on the internet again and search Google haphazardly (been there, done that). I am formulating a…
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Ablation of Ureter
Hi,I would appreciate anyfeedack. Thanks Hoping someone can give a little insight as to the pain and recup time on a Cystoscopy- ablation of right Distal ureter. I had right kidney and ureter removed an now they said they ave to go back in and sear the nub on the baladder.
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Met bone pain from radiation
Hello, This is my first time posting. My husband was diagnosed March 30 with RCC. He had his left kidney removed on April 24th. Tumor size was 12cm. He has a solitary bone met to the sacrum area. He has received 10 radiation treatments which ended on May 26th. He is having severe pain. Is this normal and how long does it…
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Happy Father's Day
Happy Father's Day to all the Dad's on this forum. May your day be filled with the love of your family. Stub
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New here and have Kidney surgery July 24th
i recently had a diagnosis of a 4.5 cm unidentified mass on left kidney after having kidney stone removal. Doc isn't sure it is cancer; he said it is 50/50. Also, he isn't sure that it will be a partial or total operation, or laparoscopic or open. He won't know until he does the procedure. Boy am I scared! first time at 55…
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Ganglioneuroblastoma
I found out march 4 2107 that my 9 year old son had a baseball sized tumor attached to his right kidney. the hospital removed the whole tumor but had to take some lining from his kidney. I cant really find anything on the liklihood of the cancer coming back, and the doctors say they arent sure either. I am scared of every…
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Opdiva after four treatments
So I just had my fourth treatment of Opdiva, I was hoping for good things but I won't have a scan until next week. However I did have a broncoscopy on Friday, my ONC wanted to see where the bleeding in lungs was coming from. The Pulmonary doctor found many new tumors that were not on his first report from my ONC, he took a…
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Kidney OPN update
Thank you to this group for the support. I had an OPN (abour 23 incision) June 8 around 12:30. Dr was worried about prior cryoablation, but ended up saying my surgery was textbook with NO issues. The recovery has been long (minutes actually seem like minutes turned to hours), but am doing much better. Up walking a lot, and…
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My potassium is up..
my egfr is 40, down from 49 and my GP is on vacation. Life is good. I've been instructed if I have "muscle issues" to go to the ER.
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Newly diagnosed and feeling rattled
Hi there, I am a 45 year old father of 2 boys, 4 and a half and 2 and a half. I received the news I was expecting from the CT scan. 3.9 cm Tumor RCC on the upper pole of left kidney. So far no sign of metastatic disease. Lymph nodes Normal, CT and ultrasound show nothing else noteworthy, chest X ray clean. It was caught…
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A week vacation from Cabo
Well went to doctor on Monday and he wasnt happy because of all the side effects I'm having. Also I lost 15 lbs since last months visit. He told me to take a week off the Cabo since it's kicking my butt! He's concerned with the weight loss, I told him I have no appetite at all and everything I eat taste metallic. He's…
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New here.....50 y.o. man with incidentally-discovered 4.9cm solid mass
Hi all -- I had an ultrasound a week ago for my liver....and like many people I guess, my liver was fine, but a 4.9cm solid mass was discovered rising from the lower pole of the left kidney. I guess it's normal to be very frightened. I'm glad I found this site, and would love any stories/advice from folks with a similar…