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Help please
Apr 26, 2017 - 8:47 am Hi guys so went to doc this week and there was blood in my urine so I've just had bloods and ultra sound done this week waiting on results from doctor tomorrow so Ive had for the past 2 years 4-5 pees per night lower back pain (constant) feel like I'm constantly needing to pee when lying on my right…
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Rash around incisions
Hi all, so I am 4 weeks and 2 days post surgery. Last Thursday I noticed a small rash forming around 2 of my incisions. Didn't think much of it because truly it's not that bothersome. It's not really changed much on either incision, but I am just curious has this happened to anyone else? The surgical tape has come off one…
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Cancer is actually Fungus?
So, I was diagnosed with RCC as a result of incidental finding post low back injury. I have a 8cm tumor at my right kidney. I am scheduled for a radical nephrectomy until 5/9/17...finally! I have been waiting since mid March. Naturally have been researching alternative treatments because the thought of losing an organ has…
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Back in Hospital
Went back for scans and they showed bile duct redction and blood work showed high elevations of liver and pancrease enzymes. That was the bad news, good news is no new cancer in lungs and embolized liver tumors are still blacked out. They admitted me on Tuesday, had stent put in to open bile duct ad proceded to get acute…
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Financial struggles?
do any of you suffer the hit of financial struggle? My husband and I run a small roofing company and he does the roofing and I do the office work! We usually work all spring summer and fall to have a little money put aside to go through ontarios neverending winter! The cancer diagnosis was a huge hit and now not being able…
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Working out
just wondering if anyone else in here was heavy into working out, I.e. Lifting weights and cardio...mostly treadmill. Curious to know how long before you were able to get back into it. I am going in for surgery (davinci robotics) on wed to remove a 3.6 cm tumor....they are hoping for partial, but because of location may…
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It's that time again
I had my labs and chest x-ray today and will have my CT Wednesday. as per usual, I am so scared! Scanxiety is more like scanterrified! It feels even worse than usual in light of the recent posts about stage 1 cancers that have spread and the recent losses.
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Another question
heres another question....anyone else go into the kidney surgery also having an umbilical hernia? If so....did they do anything about it as long as they were invading your insides, or did you have to wait and get that repaired later. The closer I get to surgery the more things are floating through my mind
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How to avoid scanxiety (in 147 easy steps)
I got the orders for my first post-op scan and labs in January, with instructions to call back in March for them to get approval for the scan, labs, and appointment in April. Did that. Got called back and appointment was changed to later in April. Huh. Right in the middle of my vacation. Changed all that. Scheduled CT…
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4 Days Post Op
Surgery was on Monday.Full Lapriscopic Nephretomy of left kidney. Was released Thursday afternoon In no particular order. As many Posters have said the after surgery pain is bad...but what is tha alternative? I should have asked for a sleep aid for night before as I could't get to sleep at all. Surgery was delayed about an…
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oncologist referral near Raleigh NC?
Can anyone let me know if they are aware of a good oncologist specializing in RCC, I had Chromophobe I think (pathology report was not conclusive) near Raleigh NC? I searched Duke Cancer Center and found Dr Thomas Polascik, anyone have feedback on him? Thanks in advance, Brent
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5-year milestone
Hello all, It's been quite awhile since I've posted here. Yesterday was my 5-year anniversary for my nephrectomy. I went in for blood tests this morning and go for CT scan in another week. I'm feeling great (getting tired of the Oregon rain this winter;-)) and doing everything that my artificial knees allow me to do! Well,…
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Renal mass ...New here to this group
Hi I'm new here but very no nervous about findings on a CT scan I had done in the er .. a 5 cm renal mass was found along with enlarged lymph nodes my concern is 6 month prior this tumor was 2.6cm I don't see a doctor until next week but I'm worried because I have a lump in my side and back ...Have night sweats fatigue and…
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Losses
I am just heading out to an appointment, but got notice of this news...I had to reach out to everyone here and say something. I cannot believe that we have received news of the passing of two very special friends here on CSN. This reminds me of when Djinnie and Neil passed...their losses were close in date, and we greatly…
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New to the Site - what next?
Hi little about me, 36 when we found my cancer in 2013 quite by accident during some medical testing. i had a stage 1 grade 3, completelty encapsualed tumor that was removed with a partial nephrectomy with good margins. foe the next three years we never missed a scheduled scan and up until september of 16 all indications…
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Two Days Post-surgery
Its two days post-surgery and I want to share my story. Back in October 2016 I had bad lower left side cramps. My doctor sent me for a CT scan to confirm diverticulitis and to make sure I did not have a blockage. This CT scan found a 11 mm solid, enhancing mass in the lower pole of the right kidney represents a Bosniak 4…
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Post op digestion issues
Had open partial nephrectomy on April 7. Man did I have hallucinations fr morphine. I swear I lived thru many different lives while in Hosp. Besides the usual, most urgent is gas, constipation nausea. Any suggestions? This afternoon I almost had family call 911. The cramps finally stopped but now afraid to eat. I am…
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HD IL2 started with my husband
This past week my husband went in to receive is first round of HD IL2. There were to be 14 possible dosages........unfortunately, he was only to receive 4 out of the 14. He is very disappointed and I am trying to be positive. This has been a difficult weekend for the both of us because I really do not know what to say or…
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Surgery tomorrow
My Surgery is tomorrow afternoon. I was given Diagnosis on St Patricks Day and the Kidney is being removed on Easter Monday..kind of ironic in a Divine Intervention way. The Sciattica pain from the Herniated Disc which led to Diagnosis has lessened through PT..I can now sleep a few hours in bed before going to recliner.…
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Diet
Question.....after surgery were you given a specific diet or list of stuff to avoid?
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I won the Lottery!!
2017-04-17 My wife keeps hoping that one day we will win the lottery (money). However, my wife and I both feel we won the lottery with the early and unexpected detection of the renal mass. While fighting with a nasty case pneumonia in March a chest scan revealed a mass about 6 cm in size. However, my wife and I both feel…
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I'm back
Had a couple on non RCC incidents and wounf up in the hoapital and rehah. Hope to get back icing down the newbies in the next few days, Icemantoo
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Indiana University Cancer Center
Has anyone ever heard of or had any interaction with IU Health Melvin & Bren Simon Cancer Center? I have an appoitnment there in 2 weeks because I wanted a second opinion on my records and case and was told these guys are some of the best in the area. I expect they will be fine, just curious if anyone else had any…
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lifetime of fun
I have access to my medical records through the "My Chart" online system. It eliminates the need of getting copies of everything as it is available on line. However, something truely mind boggling became apparent. I can not always remember all my treatments, results of tests, chronological order of my care, and more. Part…
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High Blood Pressure?
Just wanted to know if anyone else with rcc had their blood pressure go very high. My BP has spiked since rcc was discovered on my right kidney. My surgery is not until 28 April. Don't want to have a coronery waiting for my surgery. GATOR
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How Long Is Your Scar/Incision for those with Open Nephrectomys
I see in the literature that there is a newer mini-flank incision of 3-4 inches but I believe mine will be about 7 when I have the surgery on April 6. Anyone get the mini-flank version?
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Diet Soda
I'm curious as to how many of us under 50 who've been diagnosed with some form of renal cell carcinoma (mine was chromophobe renal cell carcinoma) were moderate/heavy diet soda drinkers?
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dying from cancer
Recent deaths hurt me. A few members have been here longer than me. But I'm sort of the last dinosaur. I started as the "Poster Boy" for potential to beat rcc. I have seen death and survived. Now it is like being in the final four. Scheduled to play against UConn. I manage to find ways to postpone the series but it is…
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An incidental finding=RCC
I just found out that I have RCC. I originally hurt my lower back by lifting a heavy object. I began to experience pain in my abdomen, mainly left side of abdomen to the rib cage. Although the pain was along the left side the CT scan did not show muscle tear or any anomoly in that area but a 7cm size tumor at my right…
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NED!
Hello, I can report Uncle NED's visit to my husband today! Abdominal ultrasound - all clear. Chest x-ray was done in December 2016 (due to suspicion of pneumonia), also clear. We are very-very lucky. I am relieved, however, it is not an overwhelming joy as it usually is. Guess it is because of Mark and Footstomper. Almost…