Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Broken-Hearted Daughter
I am writing on behalf of my beautiful mom, who was diagnosed with Stage IV renal cell carcinoma on July 2, 2015, a day in which I will remember for the rest of my life. Since that day, my life as well as the rest of my family's life has forever changed. I have watched this group and the people that talk on here and share…
Funny story...related to nephrectomy
I have had a bug for the last week or so. Tuesday of last week, I woke up in agony: extreme pain on my right side. So, I went to the local ER. Since I did not think it was cardiac (wrong location), I chose the hospital based on the ER wait. In the hospital, they did some tests and a CT scan to make sure there were no…
Hi everyone! Just a tad stressed...
Have been on and off just checking in from time to time and not saying much... Have not been posting much lately...first because time has been flying and have had a lot of things going on (good things like a new grandson, a niece's marriage, friends visiting from abroad, selling my photography and working on a new proyect)…
I got a NED today...............
First time since Dec of 2015 I got a NED, looks like the two seperate lung surgeries to remove the mets worked, here is to hoping it doesnt come back on me again. Good luck to all.
Newbe
Good day. I am a newbe to this forum. I am scheduled for surgery Apr 11th. Still trying to wrap my hands around this entire thing. It is good to hear the stories from you all and to hear that things will get better. Just wish it was tomorrow. The waiting and the unknown is the worst part of all. My emotions are all over…
Long time listener, first time caller. Less that 24 hrs from surgery.
Well, I guess it's time we introduced ourselves. I am the husband 46 and my wife is 44 from Arkansas, married 21 yrs this June. First a brief history.....on Feb 8 my wife sent me a text saying thaqt she was in extreme pain in her right side and that she was going to the ER. While she was there the ER doctor who happened to…
Swelling in neck/clavicle following radical nephrectomy
Hi everyone, My stepmother recently had a radical nephrectomy to remove what the consultant originally believed to be a large tumour but contained to one kidney. Fairly sure it must have been at least a stage 3. Following the surgery (4 weeks ago) my stepmother has had terrible pain in both her back and now her tummy, the…
Ketogenic diet for cancer...
I saw a special on this tonight and there was a man there who had three months to live and gave this a try. He is alive a year later with no cancer and no treatment. Anyone hear of it! May also be called the metabolic diet. http://www.theketogenicdiet.org/the-ketogenic-diet-and-cancer/ Www.nbcnews.com has info on it as…
Good heavens, folks...!!
Lately I haven't always been on the forum to check the kidney cancer discussion board every day. As a result, when I've been gone a few days and I do check, there are SCADS of comments to read. Yikes! What's WITH us kidney folks?! Please DON'T STOP writing, reading, asking, commenting! I look at other cancer-specific…
Measurement on CT Scans
Do any of you know if there is only one measurement on the printed report of the CT scan if that is the largest measurement? Or where does that number come from? I am asking because my husband had his presurgery physical today and the doctor said his back pain is from having a little arthritis. He also had a chiropractor…
Find Out the Pathology Report Results Tomorrow
Oh, the nerves are back in full force!! Not that they ever left. I have been trying to keep busy. First my son had the flu for a week and then my daughter for a week so that has filled the two week's time since my husband's surgery. He is doing really well. His biggest complaint by far was the gas. I have said all along…
Worried sick
my husband was diagnosed with kidney cancer last week Tuesday! He received 8 blood transfusions and numerous ct scans to see if it has spread! As of now it is contained to his left kidney in a15cm large tumour! We are awaiting surgery this Friday or early next week to do an open kidney removal! His doctoe told us that the…
Not sure what to do, hoping for some suggestions
I'm 50 and had an ultrasound for upper left abdominal/ flank pain. " Indeterminate nodule adjacent to the left kidney, extending towards the spleen". It is 1.5 cm. They suggested CT or MRI. I went with MRI, but because I have alergies, no contrast. MRI : "There are mulple tiny round, T2 high signal lesions throughout the…
Scans Tomorrow
My quarterly scans are coming up tomorrow. These days I get my results a week after, but not this time because I have a business trip that came up next week. This business trip is going to put me right back where I was 4 1/2 years ago when my first tumor was found. I'm even staying at the same hotel. I did that on purpose.…
Votrient. Done.
votrient. done. ~3 year run. next up: optivo.
A couple of questions for current or past votrient users
I had a couple of questions in regard to votrient, I started today . I'm taking it at 7 am on an empty stomach, can I have coffee prior or wait the hour after. Also I take zanax usually only before bed, I am prescribed 4 a day .25 but I don't take them ( dr said I really should ) I'm pretty sure I discussed it with dr ,…
Good News for all at Coffee this morning
We call ourselves the Bakery Family, because that's where we see one another...or all at the same time. If one is there, the next one joins in. Kathy had good results on her follow up CT scan for lung cancer treatment, which she has been undergoing for a year. Letha (age 84) had skin cancers on her scalp removed a week…
Short
Not just my height.... I'm done on the phase 2 trial with Ibrunitib and Nivolumab. Lasted 56 days whooptie Doo I lasted for 2 cycles of 28 days each, 4 more Nivo injections, got scanned... and now have a big fat liver met, and a little larger lung mets since I began the trial, 56 days ago. And I might add, 18 more big fat…
My Partial Nephrectomy Too Complex for da Vinci?
Scheduled for an OPEN left partial nephrectomy for a 4cm renal cell carcinoma in a few weeks. Really like my urologist. He is very skilled surgeon, listens to my questions and has a great bedside manor. He is telling me that he recommends that I have an open procedure instead of robotic because of the complexity of the…
No side effects
So it's day 4 with votrient and still no side effects. Is that normal? I'm not complaining but it's just strange. Does it take a while to get them? Just curious, thank you all for listening to my questions.
That black cloud keeps following me
So I posted something the other day about my concern with starting votrient and returning to work. Well work is not going to happen yet. I saw my doctors the other day after he read my scans from hospital visit this past Sunday I also have a metastatic lesion on my liver. So i am now stage 4, was told to still start the…
Votrient
I have to start taking 800 mg of votrient this week when it gets delivered. I have been out of work on disability since January having had my kidney removed because I had stage 3 cancer. Should I wait to see if I have any side effects before returning to work. I was a healthy 49 year old until this was found by accident in…
Trial
Anyone in this trial? Lirilumab plus Nivolumab.
Here's a switch: Freaking out the physician(s)
Before I had my surgery, I realized that the copy of my Advance Directive that most of my regular medical team had was -- oops -- just a tad out-of-date. As in, the people they were encouraged to chat with, should the need arise, had already gone on to their rewards (I'd encourage you to pause here and look on YouTube for…
I'm CRash.
52 year old dude. Last year, I too pissed blood. No other symptoms. My tumor on my left kidney was as big as an eggplant, when they cut it out. 9 months and 3 scans later, just learning to live before it's too late. Definitely a wake up call. i live in the southeastern US.
Bloodwork Questions
This is my first post to the Discussion Board. I was diagnosed with kidney cancer February 6, 2017 and had a successful left radical nephrectomy on Feb 20, 2017. The tumor was contained and was removed with the kidney without complications For which I am very thankfu. My recovery has gone great and I feel fantastic well…
Doesn't matter to me, but I care
I am 73 and on Medicare so my medical needs are taken care of. Wouldn't it be nice if none of our members had to worry about their medical hospital or presription costs. Instead of taking a step forward to universal health care it looks like we are about to take a big step back. Icemantoo
Hair problems with Votrient
I was diagnosed with kidney cancer in 2013 and after removing a 7 pound tumor and my kidney and spleen the doctors were sure they got it all and no follow up treatment was done. Three years later, almost to the date. I found out it was back in my lung and bones. After many test and a few months I was put on 800mg of…
33 diagnosed with 2.2cm Clear Cell Renal Carcinoma
Well never thought I would wind up here this early in my life! But Hi everyone, I was diagnosed with Clear Cell Renal Cell Carcinoma yesterday morning! I have cried and cried but I think I have cried all my tears out and now I am trying to be as positive as I can be about this whole situation that has been following me…
Hair Loss
I have an open radical nephrectomy in August. I was told that they got it all and that at this time I do not need any further treatment so I am not on any medications. I am finding that I am losing a lot of hair. My hair is now about 1/2 as thick as it use to be. Is it normal to have a lot of hair loss and is it going to…

Kidney Cancer

Discussion List

Discussion Boards