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Nervous, surgery tomorrow afternoon
Hi everyone!! Hope you all are doing well! I am getting anxious for my robotic laparsocpic partial nephrectomy that is taking place tomorrow. Part of me is so scared, but another part is so damn excited to get this nasty little invader out of me. I know I am good hands and just praying for a smooth surgery and a speedy…
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4 days since surgery - first post
i found this forum last month after diagnosis, looked around a little and got freaked out. Now that the surgery is over I feel so much better ano a little braver to read about everybody's stories. I had a radical nephrectomy on my right kidney Thursday. My surgeon used the DaVinci method so I have 8 incisions, but I am…
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Who also has Skin Cancer...
I have to have a Basel Cell growth on my face taken off this week; how many other of us are also dealing with Skin Cancer as well?
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HELP - Overwhelmed with Clinic Options
Two weeks ago tomorrow my husband was diagnosed with sarcomatoid renal cell carcinoma. As a young wife and mother of a seven month old, we have been struggling hard to accept this news. From what we have been told it is a very aggressive form of kidney cancer that does not respond well to chemo or radiation. We spent the…
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Have my first urologist appointment Monday have a3.8 cm nodule not a cyst.
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Hernia Disc = Kidney Cancer- Incidental find
Hello to all. I am so glad I found This Forum on Google. I have read so many stories this weekend that has ease some anxiety. I had to join to ease the stress Where to start. I am a 56 yo Male in pretty good health or so I thought. I shoveled the snow in early February and had some back pain. Nothing out of the ordinary.…
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Update on Son-in-Law
Next week John begins six weeks of radiation condensensed into five days using SBRT. He was accepted into the study because he has fewer than 3 mets and is young and healthy. (Reminder...he is 42 years old, stage IV, grade 4, 60% sarcomatoid RCC). For those not familiar with SBRT (Stereotactic Body Radiation Therapy), it…
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New CSN pictures in Spotlight
Congrats to Jan4you and domma_lee for havind their pitures in the CSN spotlight after others including APny and myself were rotated out. Icemantoo
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Day 7 on votrient, only side effects are fatigue
Is this to good to be true???? Just fatigue??? I'm not complaining, but seems strange from everything I have read. I called my oncologist and he said they may still come or I'm very lucky. Luck? dont know what to think really . Anyone else have little or no side effects.
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So much anxiety
Hey guys, hope you all are doing well. Since my diagnosis of Clear Cell Renal Carcinoma on Tuesday I have had so much anxiety. I am really trying hard to stay positive and strong, but I have these bouts of anxiety that just overcome me and leave me so fearful of what my life ahead is going to be like. I am only 33 years…
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Clear Margins?
I have a question that I forgot to ask the doctor yesterday when we found out my husband's pathology results. There was one microscopic area where there were a few cells on the outer wall of the kidney in the fat, which makes it stage 3 automatically. However, he said that he removed all of the fat along with the kidney…
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On Sutent , lost all taste
i am taking sunitinib (Sutent) and for the second time have lost all taste, sometimes a metal taste . I read on this forum that taking Lglutamine might help. I have been taking 5grams /day for 2 weeks to no avail. I'm not sure if the dosage is right or not. Anyone out there with this problem?
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Broken-Hearted Daughter
I am writing on behalf of my beautiful mom, who was diagnosed with Stage IV renal cell carcinoma on July 2, 2015, a day in which I will remember for the rest of my life. Since that day, my life as well as the rest of my family's life has forever changed. I have watched this group and the people that talk on here and share…
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Funny story...related to nephrectomy
I have had a bug for the last week or so. Tuesday of last week, I woke up in agony: extreme pain on my right side. So, I went to the local ER. Since I did not think it was cardiac (wrong location), I chose the hospital based on the ER wait. In the hospital, they did some tests and a CT scan to make sure there were no…
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Hi everyone! Just a tad stressed...
Have been on and off just checking in from time to time and not saying much... Have not been posting much lately...first because time has been flying and have had a lot of things going on (good things like a new grandson, a niece's marriage, friends visiting from abroad, selling my photography and working on a new proyect)…
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I got a NED today...............
First time since Dec of 2015 I got a NED, looks like the two seperate lung surgeries to remove the mets worked, here is to hoping it doesnt come back on me again. Good luck to all.
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Newbe
Good day. I am a newbe to this forum. I am scheduled for surgery Apr 11th. Still trying to wrap my hands around this entire thing. It is good to hear the stories from you all and to hear that things will get better. Just wish it was tomorrow. The waiting and the unknown is the worst part of all. My emotions are all over…
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Long time listener, first time caller. Less that 24 hrs from surgery.
Well, I guess it's time we introduced ourselves. I am the husband 46 and my wife is 44 from Arkansas, married 21 yrs this June. First a brief history.....on Feb 8 my wife sent me a text saying thaqt she was in extreme pain in her right side and that she was going to the ER. While she was there the ER doctor who happened to…
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Swelling in neck/clavicle following radical nephrectomy
Hi everyone, My stepmother recently had a radical nephrectomy to remove what the consultant originally believed to be a large tumour but contained to one kidney. Fairly sure it must have been at least a stage 3. Following the surgery (4 weeks ago) my stepmother has had terrible pain in both her back and now her tummy, the…
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Ketogenic diet for cancer...
I saw a special on this tonight and there was a man there who had three months to live and gave this a try. He is alive a year later with no cancer and no treatment. Anyone hear of it! May also be called the metabolic diet. http://www.theketogenicdiet.org/the-ketogenic-diet-and-cancer/ Www.nbcnews.com has info on it as…
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Good heavens, folks...!!
Lately I haven't always been on the forum to check the kidney cancer discussion board every day. As a result, when I've been gone a few days and I do check, there are SCADS of comments to read. Yikes! What's WITH us kidney folks?! Please DON'T STOP writing, reading, asking, commenting! I look at other cancer-specific…
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Measurement on CT Scans
Do any of you know if there is only one measurement on the printed report of the CT scan if that is the largest measurement? Or where does that number come from? I am asking because my husband had his presurgery physical today and the doctor said his back pain is from having a little arthritis. He also had a chiropractor…
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Find Out the Pathology Report Results Tomorrow
Oh, the nerves are back in full force!! Not that they ever left. I have been trying to keep busy. First my son had the flu for a week and then my daughter for a week so that has filled the two week's time since my husband's surgery. He is doing really well. His biggest complaint by far was the gas. I have said all along…
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Worried sick
my husband was diagnosed with kidney cancer last week Tuesday! He received 8 blood transfusions and numerous ct scans to see if it has spread! As of now it is contained to his left kidney in a15cm large tumour! We are awaiting surgery this Friday or early next week to do an open kidney removal! His doctoe told us that the…
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Not sure what to do, hoping for some suggestions
I'm 50 and had an ultrasound for upper left abdominal/ flank pain. " Indeterminate nodule adjacent to the left kidney, extending towards the spleen". It is 1.5 cm. They suggested CT or MRI. I went with MRI, but because I have alergies, no contrast. MRI : "There are mulple tiny round, T2 high signal lesions throughout the…
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Scans Tomorrow
My quarterly scans are coming up tomorrow. These days I get my results a week after, but not this time because I have a business trip that came up next week. This business trip is going to put me right back where I was 4 1/2 years ago when my first tumor was found. I'm even staying at the same hotel. I did that on purpose.…
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Votrient. Done.
votrient. done. ~3 year run. next up: optivo.
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A couple of questions for current or past votrient users
I had a couple of questions in regard to votrient, I started today . I'm taking it at 7 am on an empty stomach, can I have coffee prior or wait the hour after. Also I take zanax usually only before bed, I am prescribed 4 a day .25 but I don't take them ( dr said I really should ) I'm pretty sure I discussed it with dr ,…
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Good News for all at Coffee this morning
We call ourselves the Bakery Family, because that's where we see one another...or all at the same time. If one is there, the next one joins in. Kathy had good results on her follow up CT scan for lung cancer treatment, which she has been undergoing for a year. Letha (age 84) had skin cancers on her scalp removed a week…
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Short
Not just my height.... I'm done on the phase 2 trial with Ibrunitib and Nivolumab. Lasted 56 days whooptie Doo I lasted for 2 cycles of 28 days each, 4 more Nivo injections, got scanned... and now have a big fat liver met, and a little larger lung mets since I began the trial, 56 days ago. And I might add, 18 more big fat…