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Kidney Cancer

Cabozantinib
Hi, I’m a 47 male from the Uk, and I was diagnosed in december2016 with Renal Cell Cancer, with secondary’s spread to my right arm and a spot on my Vertebrae. My left kidney was removed followed by two week’s radiotherapy. I then started on Sutent 37.5mg 4-2 cycle. After 2 cycles, I was scanned and the cancer has now…
Cabo update
Well I am going into month 3 on 60 mg Cabo. Not having fun yet but learning how to deal with side effects. I've learned unfortunately if I want to have the slightest bit of normalcy I can not eat before I go out. If I have errands to do I need to do them in the morning because I'm worn out from doing nothing. I'm…
Do You Look at Test Results?
My husband has his first scans next week since having his right kidney removed in March. Worried doesn't even begin to describe what I am feeling but I know that you all can understand that. He doesn't see the doctor until the following week. His results should be in the patient portal before then but I am not sure if we…
Talked with a neighbor
A very good man. Of course we discussed my health. I stated that at least I know what I'm going to die from. He answered that that wasn't true. Because maybe I might get hit by a bus tomorrow. I decided not to put a song in his head. It's the first time I've heard that comment in a while.
Awaiting kidney cancer diagnosis
I have created this page for information for myself and my fiancé. He is our patient here. We are 26 years old and just can't catch a break. Recently he had a collapsed lung and was diagnosed with bleb disease and underwent surgery to resect the blebs in his left lung. Just so happened to catch a solid mass on his right…
Two Weeks
Being that waiting is not my strong suit, ESPECIALLY where RCC is concerned, I feel like I'm missing something being on Opdivo. While on Votrient, I felt like I was doing something every day to kick "Bob's" @$$. "Bob" being The Wife's and my name for the annoyances in our life... But from what I've read here most everyone…
Movies You Like And Your Major Gripe About It
Godzilla, 1998. The first Apache AH-64 chase thru the streets of NYFC. They lose Godzilla and he winds up taking out 2 choppers and the last makes a run for it, and gets chased thru the streets. Then as the pilot reports he's lost the target, Godzilla comes up from the street and snaps the chopper off from the rotor on…
Gout after removal of kidney
Has anyone who never had gout before been diagnosed after removal of a kidney? I am 6yrs post surgery for stage 3 kidney cancer and now I have had to bouts of gout. Because I a m not getting rid of uric acid. I am going to start a nephrologist havent before had one. I am 69 yrs old and still working. I have hypothytoidism…
Nearly 2 years now, About to get radiation (1st round)
My progression has been slowed by cabo or just luck, but I have progression now that is beginning to effect me. 3 Lymph nodes, 1 in my neck, 1 Back and 1 abdomen. My neck one has grown to 5.5 cm and is pressing my carteroid, larynx, thyroid. My abdomen is pinching my IVC and other vessels causing blood fow obstruction. I…
Long term drug effectiveness
I have had great success with Votrient. The RCC had come back twice in my chest and Votrient has been very effective in controlling it. Obviously, I'm very happy about that. It's been about 18 months under the Votrient treatment. Whether it's Votrient or some other chemo drug, what are some stories from our group as to…
Oncocytoma with necrosis??
Our docs have been back and forth for 3 weeks now with diagnosis, it has been sent out to the Mayo and various other places who "are scratching their heads". This morning we got a call to celebrate, said that it's an oncocytoma and referred us to a surgeon at UPMC shadyside in Pittsburgh. When they did his biopsy they told…
Desparate for Advice on Nexavar (Sorafenib) Side Effects
Hi and hope everyone is doing great. My husband started Nexavar 2 weeks ago and has developed a severe body rash and extremely painful blisters on his feet. We are looking for some advice on how to make him feel better as he is starting a new job after being off for the past 1 1/2 years and cannot afford to pass up this…
Scanxiety
Getting my next follow up scan tomorrow. I'm just feeling ....eery. I know the first one (right after procedure) was fine, but what if it comes back? What if the last scan was wrong? Anyone else have these feelings?
New Here. Confused by differing radiology reports
In June I had a CT scan with contrast for suspected diverticulitis. it turned out that there was a 3cm solid mass on my right kidney & multiple sub cm cysts. There was a 1.6 cm mildly complex cyst on the left. I was referred to a urologist who told me that the left cyst was probably just a cyst but that we'd watch it. He…
Follow Up Scans Revisited
I had a ct scan on Thursday and Today I got my first NED... But, it might be my last because apparently no further scans are required (except an ultrasound in six months to 'monitor renal bed'). Now isn't that strange? I assumed I'd get a similar follow up protocol to you North Americans. Are there any other Australians…
RCC Chromophobe
It is almost that time again when I get my scans to see if the cancer is still gone and I start thinking (and worrying) about it. My doctor said RCC Chromophobe rarely reoccurs and I shouldn't worry about it but I am just curious if there is anyone out there that has a similar diagnosis with recurrance? I was 38 years old…
Donna??
Has anyone heard from Donna (hardo718)? I sent her a pm about a week ago and haven't heard back from her. She was last online on May 16. Stub
Advice
I am looking for advice. For about 1.5 years i had imaging that showed a possible Bosniak 2f cyst, we watched for almost 2 years with no change at all. On May 2nd, a 1.2cm clear cell rcc was removed from my right kidney. My urologist told me that everything went well and it was gone. He said it was so small that they…
Exhaustion, still tired.
Tomorrow will mark 16 weeks post op for my wife's partial on her left kidney stage 1 3.5 cm RCC. For the most part, she's doing well. Been back to work since about the 4 week mark but.......on most days, by mid to late afternoon she is exhausted. She's getting pretty frustrated with it all. In general, what was most…
Kidney stone
happy fourth of July to every one ....i spend mine in ER I peed blood the night befor with CT scan they found a stone in the right kidney I was shocked I just had my rotten CT scan 2 months ago no one said any about kidney stone I was told its 3mm am going to see my urologist soon the ct scan noticed no changes on the left…
1 year since relapse diagnosed
Hello, I am new to the blog. In early Dec '05 I was diagnosed with Renal Cell Carcinoma, a 6.8cm tumor on my left kidney. I had a radical Nephectomy 10 days later. It was performed Laparoscpically. 5+ years of scans all fine. In March of 2016 (10+ years later) I asked my PCP about a lump on right flank that had recently…
Cholesterol
Hi Everyone, I'm new here. I am 56 and I had my right kidney removed in Sept 2015 due to RCC. There were no other concerns, cancer had not spread. Didn't need radiation or chemo. This was my first ever surgery! I had never even been in the hospital except to have my children. So it came as quite a shock. Cancer was…
The Problem with Family (Feeling Betrayed)
I was recently diagnosed with Renal Cancer, and I decided to keep things private. I only told my mom, my husband and my boss (I needed days off for testing and appointments) and my aunt Nancy (my mom needed someone to talk to) I swore them all to privacy. They agreed to maintain my privacy. I also help take care of my…
mental and physical exhaustion after surgery
I had surgery to remove my right kidney 5 weeks ago, and now t seems i am tired all the time and if try an use my mind to for a while I get disoriented and extremely tired. I have pains but I figure they come with the surgery hopefully my Dr. s correc twhen he says they will get better. My right testicule is the worst. I…
New here and wanted to say hello.
Hi, I'm Forger. (Think hot steel, not hot checks..) I have RCC on my right adrenal gland and some of the surrounding lymph nodes. DX'd last December. (Thanks Santa... I asked for a Tacoma, not a carcinoma.) It is a recurrance from 2010 when I had a tumor removed from my right kidney. They found a mass while doing a CT to…
One of those days!
For the most part, I do my follow-ups and take care of myself physically, but I don't think of my kidney cancer every minute like I used to. However, today has been one of those days I can't get it out of my head. I know I'm extremely lucky that I found this cancer on myself, but it feels so strange to think lucky and…
UPDATED Lost in the world of waiting
I've been reading through the board for a couple of weeks now and am finally pulling the trigger on making a post. I found out 3 weeks ago that I have a 1.8 cm complex partially cystic mass with enhancing soft tissue at the bottom of my left kidney. It was an incidental finding on an MRI for lower back pain. I followed up…
Waiting for diagnose and panicking
Hi all, I am new to (probable) kidney cancer, but have had Thyroid, Breast and Endometrium primary cancers previously, all successfully treated. For that reason, I keep a close watch on what's going on with my voluble body. My control abdomen CT scan last week showed: "A low-density lesion in the left interpolar region…
Relay for Life Soon + A Walker = Happy
Relay is coming up soon. My boyfriend purchased a walker with wheels and a seat for me. I will make a ton of laps! Well, I'll make at least two laps. Any more Relay people? Kidney_Cancer_Kid
Today's scan.
im Ned. I think the doc was surprised I knew that term.

Kidney Cancer

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