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Relay for Life Soon + A Walker = Happy
Relay is coming up soon. My boyfriend purchased a walker with wheels and a seat for me. I will make a ton of laps! Well, I'll make at least two laps. Any more Relay people? Kidney_Cancer_Kid
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Today's scan.
im Ned. I think the doc was surprised I knew that term.
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Scans - Feel something before it shows up?
I've asked my doctor a few times now. As far as I've noticed he's never answered this question. I'm on a 3-month scan schedule. Is it possible I could feel something before they would see it on a scan? Maybe it's a vague question, or he doesn't like giving me the complicated answer, or the answer isn't reassuring? When I…
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Update on Scans
Hi everyone! Hope you all are having a wonderful Saturday. I just wanted to spread some good news on the forum and let everyone know that my scans came back good and NED!! Everything was looking great and I left that appointment feeling back to my old self again and the 1000 pd weight was released. I go back in another…
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Very depressed
I've been so depressed lately, I feel kind of useles. I can't remember the last time I cooked dinner. I just always feel like crap. I drag myself out of bed every day and I try but by noon I'm just done. It's killing my spirit and that scares the hell out of me. I have such a great family and my grandson is the light of my…
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Adjusting to the new reality
Hello How are you all? I joined our illustrious group last week and I wanted to pick your brains again if you'll allow me. You were all a great help to me last week and I am looking for some more illumination and I refuse to go on the internet again and search Google haphazardly (been there, done that). I am formulating a…
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Ablation of Ureter
Hi,I would appreciate anyfeedack. Thanks Hoping someone can give a little insight as to the pain and recup time on a Cystoscopy- ablation of right Distal ureter. I had right kidney and ureter removed an now they said they ave to go back in and sear the nub on the baladder.
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Met bone pain from radiation
Hello, This is my first time posting. My husband was diagnosed March 30 with RCC. He had his left kidney removed on April 24th. Tumor size was 12cm. He has a solitary bone met to the sacrum area. He has received 10 radiation treatments which ended on May 26th. He is having severe pain. Is this normal and how long does it…
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Happy Father's Day
Happy Father's Day to all the Dad's on this forum. May your day be filled with the love of your family. Stub
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New here and have Kidney surgery July 24th
i recently had a diagnosis of a 4.5 cm unidentified mass on left kidney after having kidney stone removal. Doc isn't sure it is cancer; he said it is 50/50. Also, he isn't sure that it will be a partial or total operation, or laparoscopic or open. He won't know until he does the procedure. Boy am I scared! first time at 55…
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Ganglioneuroblastoma
I found out march 4 2107 that my 9 year old son had a baseball sized tumor attached to his right kidney. the hospital removed the whole tumor but had to take some lining from his kidney. I cant really find anything on the liklihood of the cancer coming back, and the doctors say they arent sure either. I am scared of every…
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Opdiva after four treatments
So I just had my fourth treatment of Opdiva, I was hoping for good things but I won't have a scan until next week. However I did have a broncoscopy on Friday, my ONC wanted to see where the bleeding in lungs was coming from. The Pulmonary doctor found many new tumors that were not on his first report from my ONC, he took a…
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Kidney OPN update
Thank you to this group for the support. I had an OPN (abour 23 incision) June 8 around 12:30. Dr was worried about prior cryoablation, but ended up saying my surgery was textbook with NO issues. The recovery has been long (minutes actually seem like minutes turned to hours), but am doing much better. Up walking a lot, and…
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My potassium is up..
my egfr is 40, down from 49 and my GP is on vacation. Life is good. I've been instructed if I have "muscle issues" to go to the ER.
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Newly diagnosed and feeling rattled
Hi there, I am a 45 year old father of 2 boys, 4 and a half and 2 and a half. I received the news I was expecting from the CT scan. 3.9 cm Tumor RCC on the upper pole of left kidney. So far no sign of metastatic disease. Lymph nodes Normal, CT and ultrasound show nothing else noteworthy, chest X ray clean. It was caught…
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A week vacation from Cabo
Well went to doctor on Monday and he wasnt happy because of all the side effects I'm having. Also I lost 15 lbs since last months visit. He told me to take a week off the Cabo since it's kicking my butt! He's concerned with the weight loss, I told him I have no appetite at all and everything I eat taste metallic. He's…
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New here.....50 y.o. man with incidentally-discovered 4.9cm solid mass
Hi all -- I had an ultrasound a week ago for my liver....and like many people I guess, my liver was fine, but a 4.9cm solid mass was discovered rising from the lower pole of the left kidney. I guess it's normal to be very frightened. I'm glad I found this site, and would love any stories/advice from folks with a similar…
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Recurrence Rates
Does anyone know the chances of recurrence of tumors less than 2cm? I was told they are super low. Does anyone have any information that could be helpful? My follow up plan is CT, chest X-ray, and blood work at 6 months for a year, then yearly for 5 years.
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ACA repeal - latest attempt.....
It now looks like our friends in the GOP want to take the 'pre-existing' condition provision away From the ACA. This sounds like such better healthcare for all, doesn't it? :)
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38 yrs old 15cm renal mass with spread to lungs, adrenal, and lymph nodes
Hi Everyone! My name is Mike and I am 38 years old. I got my CT back on Tuesday. I have 15cm renal mass on my right kidney. There are "extensive scatterered cannonball metastatic lesions" in my lower lungs. I also have 1.6cm metastatic lesion in my left adrenal, something about about lymph nodes. I have a appointment with…
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Kidney Cancer
Hello Dear All, Can Anybody tell me about that, My Father was operated on last Monday Dated: 09-06-2017 due to kidney cancer the has been remove his kidney and now he is sleeping from last 10 hours continually and not waking up after force But before that he was not sleeping properly at morning of today doctor say that…
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Depression
So I'm back on Cabo after a weeks break. My depression is getting to me. I'm so not myself, I try to be me but by one in the afternoon I'm done. It's very depressing because I used to work 10 hour days and I loved my job and I can't do it anymore. Maybe I'm just feeling sorry for myself but this just really sucks!!!!
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CT scan
Hi All, A few days ago I was sent to the ER due to my Ulceriative Colitis. During this time, they took a CT scan of my abdomen, which not only confirmed my UC flare-up but also a 1.6cm lesion on my kidney as well as an ovarian cyst. The ER doctor did not even bother to tell me about the lesion or cyst, just that I was…
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Surgery Issue
i had surgery back on May to remove a small grade 1 stage pt1a tumor from my right kidney. The pathology report stated "the disruption of the tumor may be caused by tearing during surgery". Has anyone else ever had this, I have asked my surgeon about it, and he doesn't seem to be concerned. What I am concerned about is…
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Scan
Monday going for the first scan after 4 clinical trial infusions. 2 months worth. Anyone who was involved with the Opvido trial see results after 4 infusions?
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Surgical resection
Looking for a little advice. I had a surgery to remove a 1.2 cm clear cell rcc from my right kidney. I just can't seem to get a straight answer in reference to a comment on the pathology report. The report stated "a 1.2 cm in diameter tumor disrupted in inflamed frayed external capsule". Does anyone know what this means?…
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Renal Cell or Transitional Cell is the Question
My husband had the additional CT scan and Cystoscopy that his Urologic Oncologist requested. His bladder is good...everything is normal. Even though they don't usually do biopsies on kidney tumors, he wants my husband to have one because he said it's very important that we know the cell type before we do surgery. He needs…
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Asbestos over exposed and kidney cancer
I have been lable as over exposed to asbestos by the VA. Have junk in my chest, problems of getting tired. No cancer but have it in my kidney. They are going to do a partial on the kidney cancer. My asbestos in my lungs bother me the worse because it could of been prevented. It took 42 years to get me. The cancer in the…
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Treatment after surgery
I just wanted to get an input on what the next step of treatment would be for my husband. Left kidney removed and 10 radiation treatments to a met in sacrum area. He sees a medical oncologist later this month.
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Transplant Surgeon Discusses Activity and Exercise After Surgery
I found the following transcript of an interview with a transplant surgeon in Utah. It's not specific to nephrectomy but much of his advice should apply. Many of you, like myself, want to become more active and exercise as soon as possible after your surgery. In my case, I may have overdid it which cost me an unscheduled…