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RCC Specialist in Atlanta
I have been recently diagnosed with Clear RCC, 11cm on left kidney and smaller Mets in two other spots. I received my diagnosis at N Ga Medical Center and am now considering a trip to MD Anderson for a second treatment opinion as recommended by my Urologist. My question is can anyone recommend an RCC specialist here in the…
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Third times a charm???
Ok so we will be trying for a biopsy with CT GUIDED cyroablation again on the 25th of June. Hopefully we will accomplish our goal this time! Hope everyone is well!
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surveillance protocol for stage 2, grade 3
Hello to all. I am wondering what the follow up protocol is for pT2aN0M0, grade 3, 10% necrosis 10% sarcomotoid. My surgical oncologist wants to do the usual CT’s once a year with bloodwork every 6 mo. While I’m happy not to have scans every 6 mo, I thought it was recommended for the first few years.
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Dromedary hump or kidney mass?
Hello, I'm Marcelo from Brazil. I did a Unenhanced CT a month ago and the results were: Kidneys of position, dimensions and parenchymal thickness within normality, identifying nodular image hypodense and heterogeneous in the anterior cortical of the middle / lower third of the left kidney, measuring 1.5 cm, indeterminate…
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OS exact meaning?
During my reading on kidney cancer medical documents (for my dad condition) I have gained a good insight into the illness and its treatment but there is one thing that is not fully clear to me. I am sure you will know to explain it: Whenever you read about a clinical trial, different achronyms appear like PFS, ORR and OS.…
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Crippling pain
Hi I was just wondering if anyone has crippling pain in side especially when u wake up. That' when it' the worst. I have a 1.1 mass on my right kidney. Not big at all but could that be causing my pain. I need answers that Drs cannot give me. And was wondering if anyone else as had pain like this.
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Husband had surgery today 6-6-18
Radical nephrectomy with tumor on the kidney. Tumor was encapsulated and nothing found in general area. Surgery went well only 75 minutes. I finally got home after a long day at hospital. We got the big mother out, next step recovery, then start working on the mother's children on his ribs.
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When a Double Ear Infection is actually a Good Thing
Before having cancer touch your life, little aches and pains go mostly unnoticed or can be put out of our minds with the help of a little ibuprofen. After having cancer touch your life, every feeling is a "What if" or "Maybe I should be worried". My husband started getting bumps up and down his neck a while ago. He had…
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Pain Question
I am 7 months post nephrectomy. The past month or so I’ll have a pain On my left side where my only remaining kidney is. It comes and goes. It’s not double over pain or stop me in my tracks pain it but I notice it now because of what I’ve been through. If I’m doing something and not thinking about it I dont notice it. I…
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Partial Nephrectomy
Hello all. I was just diagnosed with a 2.4cm mass on my left kidney a couple of weeks ago. I will be scheduled for surgery in a few weeks. I am 41 and this is my first surgery. Of course I'm nervous about the whole process and it's mostly about what happens after surgery. Is the pain level extremely bad after surgery and…
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First Post-Op Follow Up
I had my first follow up procedure to my mid-February radical neph yesterday - a chest x-ray. I was surprised at the scanxiety that I felt (I guess really 'x-ray-xiety), but the results came back really quickly and I was releived to see that all looks clear in the lungs. One down, a few more years to go!
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Cystoscopy and urethral dilation
Anyone have to do this before? Since my partial last september, I keep getting UTI's and have to keep taking antibiotics. Its a never ending cycle and the infections are hard on me. They make me tired and nauseated and my left kidney area hurts. My urology doctor wants to do a cystoscopy and urethral dilation so I was…
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Just been diagnosed
Hi i was diagnosed just over a week ago with a 5cm on my left kidney. A ct scan confirmed it is cancer. Today I got a call from my cons to say he wants to do a biopsy and put a camera in to have a better look because he is not sure if it is in the tube or not. He mentioned that sometimes chemo is needed before surgery. I…
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The time has come
So today is the last day of my self imposed break from plexing on my cancer...lol Thursday I will finally be headed down to Seattle for an MRI, bloodwork and a biopsy followed by a CT GUIDED cyroablation. Now as most of you know this has been a bit of a circus act trying to get this done so here's hoping there is no hitch…
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26 years old facing nephrectomy
Hello, I am new to both major surgeries and blogs. On April 19 I was told I have a 3.7cm tumor on my right kidney. The initial urologist recommended a robotic partial nephrectomy. I am set for surgery on May 7. I went in for a second opinion as I am still in disbelief. The second urologist/oncologist stated the tumor has a…
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First Post - Just had my nephrectomy and got pathology report
At the beginning of May I found out that I had a large mass in my left kidney I had a radical laproscopic nephrectomy last Wednesday. I got the the pathology report today and it turns out that it was ccRCC but stage 3 because the tumor had invaded the perirenal fat a little bit. We had been anticipating stage 2 based on…
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Drug Trial for recent nephrectomy patients
For anyone who has recently has a nephrectomy, I wanted to make you aware of drug trials that are out there. I know of two. Since the treatment for RCC is surgery and then watch and wait (unless there is mets), they are doing drug trials for Immonotherapy drugs to see if its helps lower recurrence. You must get started…
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Clinical Trial Available
Read a post for IKCC, a reminder for those looking for Clinical Trials, please take a look at this site. https://www.10forio.info/discovering-clinical-trials-for-kidney-cancer#adjuvant-trials-for-patients-immediately-after-surgery All the best!
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National Cancer Suvivors Day
So I found out today is National Cancer Survivors Day. 8 months ago I was told I had cancer at the age of 37. I didn’t know what the future held. I didn’t know how bad it was. All I knew was that I needed surgery to remove my kidney where the cancer was. All I could think about were my wife and kids and not being there for…
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Mets to liver- positive stories please!
Who has had kidney cancer mets to their liver and have had a positive outcome? Need some encouraging stories.
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Clear chest X-ray why am I in a funk
So, hope you all are doing ok. Dec had partial nephrectomy to remove clear cell carcinoma. stage 1. Easy back to life. I’ve been super busy. All of a sudden time for 1st chest X-ray and blood work. All is fine. I wasn’t worried really. I only had stage 1 after all. All of a sudden I’m in a funk. I mean fine I work I’m…
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Back in touch saintmont
Hi Everyone, Just a catch on what has being going on. The news is after 6 1\2 Years I am in remission. I had surgery on the 9\5\18 in Melbourne (Australia) the took the last of my RCC in the neck out ( yah) and everything is all clear. A review of the last 6 1\2 years. 2011 radical nephrectory 2 large tumours on the right…
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New here, husband has stage 4 kidney cancer
My husband was having a racing heart and went to ER. He had a x-ray on his chest and they found a mass on his 5th rib. Had a biopsy done and came back kidney active. Went to have a CT and showed a 5 x 6 cm mass connected to his kidney. We are only beginning this journey. 5-25-18. Any advice or recommendations welcome.
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And the circus is still in town!
So after a long anticipated wait for what is supposed to be a "simple procedure" has yet again been put on hold due to the fact that whatever a******* are in scheduling screwed up and after a almost 4 hr drive bloodwork and an unnecessary MRI the machine to do the cyroablation is unavailable to do a procedure that has been…
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Anyone hear from amy jo?
I know Amy Jo is going through a hard time and I haven't heard from her. Just wondering if someone else did.. --stephanie
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White Hair Stories:
On May 29, 2012 I was diagnosed with RCC. Back then I weighed 194 pounds and did not have a gray hair on my head. On June 11, 2012 my left kidney was surgically removed at Fox Chase Cancer Center in Philadelphia. I started taking Votrient on July 28, 2012. I now weigh 174 pounds and have Santa Claus white hair. For the…
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Complex Kidney Cyst
Hi everyone, I found out yesterday that the simple cyst on my right kidney is now complex. I have had it for a few years. It did get bigger which is why the ultrasound tech recommended the CT Scan. My doctor called and said I have to see a urologist because there is a 5 percent chance its cancer. I know this seems like a…
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Question about pelvic C.T scan
Hi everybody Anyone knows whether hips skeleton is being checked out in an abdomen and pelvic C.T scan without contrast?
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Well Shoot
While I am virtually cetain this is not the result of my chromophobe RCC and resultant surgery, I figured I'd post it to just because it's another of life's frustrating moments. When I went to bed last night, little did I know I would wake up in the morning with a very plugged up ear and severe hearing loss. A similar…
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Mom just diagnosed today
On Friday my mom, who has been the school nurse for over 30 years in the very small town I grew up in located in MA, began writing illegibly around 9:30 am, by 12:30 she was slurring her speech and passed out. She was taken by ambulance to the hospital. I now live in Texas so I am very far away from her. My older sister…