Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Back in touch saintmont
Hi Everyone, Just a catch on what has being going on. The news is after 6 1\2 Years I am in remission. I had surgery on the 9\5\18 in Melbourne (Australia) the took the last of my RCC in the neck out ( yah) and everything is all clear. A review of the last 6 1\2 years. 2011 radical nephrectory 2 large tumours on the right…
New here, husband has stage 4 kidney cancer
My husband was having a racing heart and went to ER. He had a x-ray on his chest and they found a mass on his 5th rib. Had a biopsy done and came back kidney active. Went to have a CT and showed a 5 x 6 cm mass connected to his kidney. We are only beginning this journey. 5-25-18. Any advice or recommendations welcome.
And the circus is still in town!
So after a long anticipated wait for what is supposed to be a "simple procedure" has yet again been put on hold due to the fact that whatever a******* are in scheduling screwed up and after a almost 4 hr drive bloodwork and an unnecessary MRI the machine to do the cyroablation is unavailable to do a procedure that has been…
Anyone hear from amy jo?
I know Amy Jo is going through a hard time and I haven't heard from her. Just wondering if someone else did.. --stephanie
White Hair Stories:
On May 29, 2012 I was diagnosed with RCC. Back then I weighed 194 pounds and did not have a gray hair on my head. On June 11, 2012 my left kidney was surgically removed at Fox Chase Cancer Center in Philadelphia. I started taking Votrient on July 28, 2012. I now weigh 174 pounds and have Santa Claus white hair. For the…
Complex Kidney Cyst
Hi everyone, I found out yesterday that the simple cyst on my right kidney is now complex. I have had it for a few years. It did get bigger which is why the ultrasound tech recommended the CT Scan. My doctor called and said I have to see a urologist because there is a 5 percent chance its cancer. I know this seems like a…
Question about pelvic C.T scan
Hi everybody Anyone knows whether hips skeleton is being checked out in an abdomen and pelvic C.T scan without contrast?
Well Shoot
While I am virtually cetain this is not the result of my chromophobe RCC and resultant surgery, I figured I'd post it to just because it's another of life's frustrating moments. When I went to bed last night, little did I know I would wake up in the morning with a very plugged up ear and severe hearing loss. A similar…
Mom just diagnosed today
On Friday my mom, who has been the school nurse for over 30 years in the very small town I grew up in located in MA, began writing illegibly around 9:30 am, by 12:30 she was slurring her speech and passed out. She was taken by ambulance to the hospital. I now live in Texas so I am very far away from her. My older sister…
Oncologist or Not
I received my pathology report back this week. Grade 2 stage pT1a. I meet with my family practice dr Thursday morning and my urologist next Thursday morning. My question do I ask for an oncologist or just let the two Drs I see now continue to monitor me. I totally understand that my situation is better than a lot of others…
Interesting Observations
Good morning! Some things pop in to my mind and they are quite interesting. Since having my kidney and cancer removed, I have noticed the following... Night sweats are gone. I am not freezing cold all the time. I mean the kind of cold where you sit in a hot bath and your inner core still feels freezing. My hair seems to be…
Relay for Life
Anyone on here do this? I'm thinking about joining one here and not sure what to expect. Looks cool, but locally there doesn't seem to be much info.
How long has it been since your kidney surgery? What stage were you? Any recurrences of cancer?
April 18, 2018 Hi: 1. How long has it been since your kidney surgery? My husband's kidney removal was on Feb. 14, 2018. So, around 2 months! 2. What was your staging? His was/is PT3. (I never know if I say 'was' or 'is' when it comes to the staging) Tumor size: 5 cm. 3. After you had your kidney removal surgery, did you go…
Diagnosis, Surgery & Discharged in 7 days. Now the Waiting ...
March 27, 2018 I felt fine - a little tired and had some unexplained night sweats but I wasn’t concerned - life was normal. The next day while sitting in a meeting I developed a horrible pain in my abdomen. When I stood up I almost fell over from the pain. I went home, took some Tylenol and tried to sleep. The next day the…
Anyone on this trial ? Atezolizumab & Avastin
My Mom just had her 2 month scan appointment today . She started Cabo 60mg on 3/13; she took about 5 days off after 3 weeks. And then did 60 every other day and then on 4/26 started 40 every day. While the kidney tumorshowed no growth, the bone mets in her spine showed some progression & now a new spot on the liver. Her…
Very long but need any advice on 6 month CT scan
So I have been following and posting here randomly . I dont always know what to say but try to help. You all have been a great help to me. I am here agian for any advice and prayers. I just had my six month scan results today and I am really trouble and scared. Here is my history again. Stage 1 Grade 1 4.5cm. No Rhabdoid…
Missing CSN Emails
Most of my valued friends and saved messages are missing from my csn email. It saddens me.Particularly lost messages from those that have passed. Anyone else having this issue? Treasured correspondence is just gone. Some going back many years. Perhaps a moderator can be of some assistance.
Relatively New to Forum, First Post
Relatively new to the forum although I have been looking in ocassionally. First round with RCC was Nov. of 2016 left kidney nephretomy,first post-op CT was done in Feb. 2017 and was clean. That all changed with another CT in Aug. of 2017. After a CT biopsy it was confirmed that I had a metastic RCC tumor on my paritineum…
Why is my son waiting for Kidney surgery so long?
My son was diagnosed with Stage 3 Kidney Cancer about 2 weeks ago. Been thru all the tests, scans and MRI. Schedualed for Full kidney removal surgery May 30th. He is in constant Pain, Night Sweats, Cold at night and eating very little. Medication is Hydrocodon with Tylenol every 6 hours with advil in between that. He has a…
Anemia after surgery
Hi everyone. My dad had a radical nephrectomy on 3/28. Prior to surgery he was very anemic, which is what led them to discover the tumor. He had a blood transfusion before surgery, but they did not transfuse during or after. They try to hold off on transfusions if possible. After surgery his hemoglobin started to climb, he…
Opdivo out. Next up?
Opdivo stopped working for me. I got 14 months out of if. Now looking into Axitinib and clinical trials.
Help. New and so confused.
Good afternoon. I am hoping for advice from some people who are/have been in the same boat. Approx a year ago during a CT scan for something else, a small tumor was found on the bottom of my left kidney. I was placed on "active surveillance" without much explanation. I switched doctors because I could not get into see the…
Multiple cancer in Right Kidney and 1 exophytic tumor in Left
Ok.....Here's the update. Still blood in my urine. That's not good news. Something is going on with the section of my right kidney that they did a partial Di Vinci surgery on 17 weeks ago today. Clear Cell Renal Cell Carcinoma, Grade 2, pT1a. There is a 'subtle abnormality' identified in the posterior lateral aspect of the…
chromophobe rcc
Hi Everyone, I wanted to know if there are any people with similar circumstances to me. I had severe stomach pain in April thisnyear andnthe dr sent me for an ultrasound suspicious it was my gall bladder. The ultrasound tech told me my gall bladder was fine so I didn't go back to collect results and put it down to a…
Hello
i don't know if any of you remember me. It has been over four years since my husband passed from kidney cancer (collecting duct carcinoma). I check in periodically and am glad to see fox, Jan, and iceman still doing well! It's amazing to me how many new advances there have been over the last several years. When we started…
Had Brain MRI the 16th
After kidney cancer surgery 3/8/18, and all info on that is in my profile, I have begun to get dizzy. I had a week where I was pretty much down and out! Earth shattering dizziness. Doc couldn't figure it out, so they ordered a brain scan. Just before that, I started taking antihistamines, thinking I had a bug or allergies…
Question with Pathology report?
How come on my pathology report it stated multinucleated sarcomatoid tumor giant cells are present but it's doesn't no mention the percentage of it. Can anyone help me to understand what it mean? Thanks!
Afinitor and Lenvema
I am a chromophobe who has been on the combination of Afinitor and Lenvema since August - so far pretty positive results with few to no side effects. Anyone else on this treatment??? Just curious...
Chromophobe RPLND Surgery
Two years ago I underwent a very successful surgery called RPLND surgery, this surgery is the reason I am alive today. Two days from now I will be attending my youngest daughters high school graduation. The sole driver for me to turn down targeted therapy, and instead pursue surgery, was a thought CSN post July 2012 from…
3 months after partial nephrectomy
This is my status 3 months after my partial nephrectomy Feeling better , much better.... I already playing soccer again...2-3 days / week.... I could say that phisically I am 95%... mentally, well, thats the problem... hard episodes of fear and anxiety, but still working on it. Trying to lose the extra pounds. first time…

Kidney Cancer

Discussion List

Discussion Boards