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Kidney Cancer

sensitive scar question
I had open total neph. on right kidney 3 weeks ago and the wound site is extremely sensitive, what can I do???? I can't were a shirt w/o covering wound with bandage, I've read tapping on it constantly helps some but is there anything else I can do. my scar is healing very well.
Kidney Stone Removal before Partial Nephrectomy
Newbie. Recently diagnosed with RCC - 3.2 cm mass in medial right lower renal pole Aggressive growth - compared to an earlier CT where it was missed the first time. Have a long history of kidney stones. Have passed over 24 in the last 20 years. 2 Cystoscopies and 1 litho - rest naturally. Both cystoscopies were nightmares.…
Bloating and gaining weight
I’m 8 months post op. after surgery I weighed about 157 I’m now at 165 pounds. I’ve been working out but still feel very bloated and like I have a full belly. Anyone else have any issues with this? Been trying to watch what I eat and become more active but still feel like Im 4 months pregnant
And the results are in..
So the circus came to town and left Uncle NED behind! The pathology is in and the results are inflammation of fibrous tissue not malignant! I am so relieved. I hope you all have a great 4th and are safe and well Cin
So bummed out
Had my presurgery physical Monday June 25. EKG tech handed me my printout and told me to take it back to primary and wait because it was "not quite normal". Sat in my primary's waiting room for 10 minutes and nurse came out to tell me T waves were not quite right but would not affect surgery. Friday I'm in hospital, fully…
Hounsfield Units and Disappearing Devils
After a recent US for an unrelated issue I was referred for a CT due to a complex cyst on the left kidney. I have received the report from the CT scan and I believe everything looks okay. The report indicates nothing at all about the left kidney (the cyst in question from the US) but advises that there is a small cyst (no…
Open, Robotic, Cryo...oh my!
Hi I had posted back in February (can't find that post) when it was discovered incidentally that I have a 1.7cm RCC on the lower right lobe of my kidney. I went in becuase I'd been having intermittent severe right side stomach pain which they thought might be gall stones. No stones. I do have an umbilical hernia 7cm x 4cm…
Agent Orange and Kidney Cancer
I would appreciate hearing from any Veterans who have been diagnosed with Kidney Cancer and had a kidney removed. I am trying to get the Dept of VA to admit that Vietnam Veterans had an exposure to Agent Orange which in time caused kidney cancer. Seems it is always the right kidney. This is my first post on Cancer…
Agent Orange and/or Camp Lejeune
I have been busy drafting my comment to the Department of Veterans Affairs (VA) Proposed Rule: AO78 - Proposed Rule - Hospital Care and Medical Services for Camp Lejeune Veterans and felt compelled to share and inquire. One of my primary objections is they are trying to impose a September 11, 2015, deadline for anyone…
Survivorship. How long ago did you have your RCC?
Looking forward to living a long healthy life following RCC and need some positive info. How long have you been an RCC survivor?
Fatigue after surgery. How long does it last?
I had an open partial last september. I thought 7 months was plenty of time to heal, but the fatigue has not gone away. Some days are worse than others, but I literally feel like my body is just so tired sometimes. I get plenty of sleep, had a comfortable bed...etc.. My rcc was stage 1 so I didn't figure I would have many…
5 years ago today
It was July 3, 2013 that my husband was told that he had a large tumor in his kidney and two mestases to his spine; we were also told that the treatments had not been successful and gave him “maybe a year but more likely not past Christmas “. the holiday weekend loomed until further tests and appointments could happen; I…
Hello NED!
6 month post op CT came back NED! Woo hoo! Having this parasite grow inside me has been an interesting experience. It has taught me that life is short, do what you love and follow your passion . I start school in the fall for an LPN program. Nursing is something I love but I was too scared to go back to school for. I just…
So hard to get any rest/sleep
It's three weeks post op from my partial Nephrectomy and instead of becoming more comfortable, and getting rest, I'm feeling exhausted. The wound sites from the robotic surgery are healing very well but below the skin theres almost like a lumpiness. When I lay down to sleep or rest it's almost like body parts inside of me,…
Stem Cell and other Nontraditional Options
My Husband is being treated at MD Anderson and it is the best (or one of the best) cancer treatment centers in our nation. Right now his tumors are stable and the onc calls that successful treatment. I feel like I trust MD Anderson. If there comes a time that they say "there is nothing more we can do for you" maybe then I…
Thank you, everyone!
Had my ECHO today and cardiologist exam. It's a go for (hopefully partial) nephrectomy this Thursday, July 5th. My heart is healthy, normal (for 67 year old) so no restrictions. Thank you all for considering my fears. I appreciate all of you so much. My surgery is 3:30 pm so hoping to update y'all sometime Friday. Thank…
So now what?
cancer comes into our lives and changes everything. Our thoughts, our lives, the way we think. A new normal. Constantly concerned. Planning around appts. But, what happens when the doc gives an all clear? I’m not who I was before, but now I’m ok. So, is it another new normal? ive Learned so much about life, it seems odd to…
Wound leaking clear with blood
Should my husband's wound from nephrectomy be leaking bloody fluid? Not pure blood just clear fluid with blood in it? It has been a week and a half post surgery. Is not bad, just is.
Guess what???
Yes, it's scan week! You guys know how much I love scanning. Fun fact, you really only hear from me every 6 months during scan week! Hate it. It's Friday, so you know I'm already stressing. Did bloodwork on Friday, videoed the whole thing and didn't flinch. Freaked the girl out. My scan is early like 9am and I've taken the…
Looks like mets for me
I found out today that my 9mm nodule on my lung has grown to 1.4cm in 1 month. We did extra scans to see if I could get in a drug trial. Not going to get in this drug trial, obviously. There are a few other tiny spots nearby in my lung. No other spots so far. Biopsy will be very soon and my Oncologist is researching drug…
Thank you 'all
I hope all of you can appreciate the support you give me. Sorry I can't email everyone but the karma is so thick I remain in a very good place. It always comes down to counting blessings and not wasting opportunities. I hope I send that message loud and clear. No one can be prepared to face cancer without help. By…
Emotionally draining day at work.
A little back ground, I was diagnosed with RCC middle of May this year, had a partial lap nephrectomy April. I am an ER nurse. I went back to work 4 weeks ago and was put on light duty. Yesterday was my first day having my own patients again. My first patient came in shortly after 0700 and it was a cardiac arrest. A young…
Jojo?
Hi guys, haven't seen Jojo for a while. I see that she was active here in May, but didn't post. Somehow I'm sure she is fine, just wondering how' life going.... Alla
Well its done
Well the third time was a charm. Procedure is finally done. Should have pathology back by end of week. I'm home but very very sore. Hope all is well with everyone! Cin
Inspiration
The latest post by Fox made me cry. This is increadably inspirational, something which will be burned into me forever. Its a celebration of human strength and love of life. It made me think of how I feel about life. I'm a very positive person despite health anxiety. But I still worry about totally insignificant things…
I'm new...2weeks post partial nephrectomy
Sooooo... This recovery is rough... Found out about my tumor in late April, they removed "the passenger" two weeks tomorrow. Pain comes and goes, I've tried off and on pain meds but as I've got 3&2 year old kids I'm a bit scared to mask the pain and over do it- can't turn off being a Mom and this is heartbreaking to not be…
Observances, rash on legs and other symptoms pre diagnosis... hmmm.
My husband got a rash on his legs and went to doctor Nov 2015. Three months later they came back saying it was a fungal thing. He also had a big toenail with a long dark lines down it. After the kidney removal last week, the rash has completely gone away and the toenail dark lins have disappeared. I assume his kidney tumor…
Opdivo/Yervoy side effects
My dad had his first infusion of opdivo/yervoy 2 weeks ago. About five days after the infusion he began to get extremely fatigued and weak. Has anyone else experienced this with this drug combo? He didn’t have a whole lot of energy before the infusion but now his fatigue is to a whole new level.
60 Mg cabo is brutal and we are running out of options
Hi. I haven't been very active on here. I lurk from time to time. My husband was taking 40MG cabo. They determined it wasn't enough. 60MG is brutal on his health and well-being. He now rotates them 40mg one day 60 mg the next. He just took a week off both after a trip to the emergency room. We had scans recently and all…
MMJ
Since Fox brought it up, I've always wondered. Any supporters here? I used to not believe in it, for the moral reasons Fox mentions, but cancer changed me. Quick poll, who's down? I know I am.

Kidney Cancer

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