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Kidney Cancer

Got a brain met and now it is dead I hope
I ended up going to ER mid June with seizures, they did a cat scan and found a single brain met in my parietal lobe. Began on Dex methasone to keep the swelling down and with no more seizures was able to to go and have SBR in 5 gy in one sitting. Pretty amazing technology. So for now, I guess this dead tissue will live in…
Uncle Ned / Need advice
Hi, all - Uncle Ned will be having dinner with me. YAY! It's too hot to heat up the kitchen by cooking, so take-away pizza is sounding really good right now. Maybe we'll get a movie and eat in front of the TV instead of doing the dining room dinner thing. Which makes me wonder... After not drinking beer in decades, I…
Have been gone for awhile-latest CT shows a 3mm lung nodule
Have been well since I was diagnosed with RCC back in Dec 2016. I was retired, but went back to work after my Right kidney was removed Jan 2017, so I have been pretty busy. CT scan yesterday shows a 3mm lung nodule. Five months ago when I had a CT, the nodule was only 2mm. So, it has changed. I called for my results but…
Introduction and my kidney cancer story
In June of 2014, a year and a half after my first child was born, I went back to my obstetrician and asked when the troublesome uterin fibroid I had was ever going to go away as she said it would. Well, it wasn’t a fibroid, but a grapefruit sized tumor on my right kidney. A few weeks later my right kidney was removed at…
Prayers please ...... Amy_Jo
I had an open neph on 3/8/18. My pathology showed clear margins. Two weeks later I had another scan which found blood clots in my lung. April 15 I began having excruciating back pain, after report to the ER I was told my scan showed lesions on my spine liver and lungs. I had a pet scan and biopsy of my liver yesterday…
New to the board here on behalf of my father
I've been lurking and reviewing posts the last few days. I am here on behalf of my Dad and figured I'd make an introductory post. Dad had the flu in January and afterwards he had some rib pain. The NP he had been using as his defacto GP diagnosed him with broken ribs. Fast forward to March, he has his medicare physical and…
To Fozhd
Hey Fox, how have you been? I've been able to figure out that you appear to be logging in daily. But I don't see a lot of posts from you. I'm thinking you're probably in the same predicament as I am, and your comprehension isn't allowing you to get around this discussion board as easliy as you used to. My brain mets are…
Partial, Radical, Biopsy?
Hi I am writing on behalf of my wife. She is 46. She was diagnosed with a 6 cm tumor on left kidney. MRI seems to indicate RCC. No indications of spread, and stage 1B as near as can be told with MRI & CT Scan. We have seen two urologic oncologists at 2 different hospitals (both hospitals have stellar reps, one of them is…
back after 3 months and have questions
Well , I'm back on here, after 3 months, to see if anyone can shed some light on what my wife might be in for. ANY informative feedback is greatly appreciated . The oncologists, after 2 different biopsies, determined she has stage 4 Papillary Renal Cell Carcinoma (nncRCC). She has a small tumor on one kidney. With no mets…
Test before treatment
What test would you want before treatment to establish a baseline and why would you want such test? I am going to have some form of treatment for a small tumor sooner or later (probably sooner) and would like to know as much as I can before hand in order to know where I stand after. Thanks Perry
Scan Results
Just finished up at the Drs for my scan results. Uncle NED stopped by for a visit. I am so blessed and very thankful!!!! I was surprised when the Dr said he would see me in a year. I thought I would go in another 6 months then if all clear go yearly. GFR was 100 and creatinine was .9. The Dr mentioned losing 20 more lbs,…
Had to Flip a Coin
I had to flip a coin to see which forum I would make my first post. Kidney won. While battling Sepsis from a prostate biopsy in April a Bosniak 4 tumor was found on my right kidney with a Pelvic CT Scan. The good news is the tumor is < 3cm and the prostate cancer appears to be localized with all testing/results thus far.…
Scanxiety
ufff Just received the reminder for my first scan after 6 months of my partial.... I am so scare that already made a "pit stop" at the hospital with a panic-anxiety/attack.... all blood work was in order and chest Xray . Just the ALT and ASt (liver) a little bit high Any advice of how to deal with this?? Thanks
Done for a Year!
Just got back from Stanford, where I was treated for my RCC. All's well. But, of course, after getting the chest x-ray results and the CT results, we knew that. I guess I have to be a lot better since I've made the following progression in terms of who sees me: At six months, the surgeon handled the appointment. At one…
Confused about surgeons ...
Little backstory - I'm a 41 year old who found a kidney tumor as part of a heart valve repair that occured on 3rd of May this year. The tumor was detected on a CT scan as part of the preop testing. Most surgeons we spoke to recommended waiting for 3 months before the next surgery, so that timeline is coming next month. My…
CT shows 8.7 cm Cystic entity possibly vascular but US doesn't
I had a CT done because I have been having upper abdominal pain especially to touch for 3 years but the scopes come back clean. This showed an 8.7 cystic entity possibly vascular and a 2 mm, they recommended another CT scan with IV contrast. The Nurse Practitioner that I see set me up for an US saying something along the…
Low Alkaline Phosphate
Anyone have low alk phosphate? I had blood work done for possible food allergies and IBS and my blood work came back good (no food allergies) but low alk phosphate... Just weird. Wondering if it has something to do with my partial neph or rcc has come back haha! You know the paranoia of metastasis. Stephanie
Anyone contacted to conduct interview on CSN?
Status is Quo
I woke up this morning to see that he results of my annual CT scan were sitting in my online account at the hospital. Logged in to check and the note from the surgeon said, “CT is Fine. Good news.” A bit of an understatement as at 5AM, I was doing cartwheels.
new mets
Hi everyone, I am writing this on behalf of Abunai. On Tuesday, he started having weakness with the left side of his body, with his memory, and concentration. We were instructed to go to the ER. After a CT and then an MRI, we were told he has about 20 tumors in his brain. Up until this point, there had never been any sign…
9 month itchy scar
9 months post open Partial Nephi and I have healed nicely, I believe. No pain really just my scar is itchy sometimes just on the scar line.Just a weird thing I guess..
First post-op
Ultrasound today. All is clear B"H. Hope to hear good news from all of you as well-June
Surgery done!
Had partial nephrectomy yesterday afternoon and word on the street has it I may be discharged sometime this afternoon. Pain consistently #2-3, so very thankful, so far have only needed Tylenol. Using the spirometer religiously, walked a circle around nurses station last night and am anxious to get up and moving again after…
you cannot kill a Fox
I've been unable to post due to my health and computer issues. I will try again. Folks, I've been doing this 7 1/2 years. Stage 4. Life expectancy was June 2011. Long time ago. I've made a few mistakes but have played almost every hand close to perfect. I responded to drugs, radiation, surgical intervention, and I have an…
Canada day, July 4th, 16 years ago
One month before my neph. Time to relax on the Canadian side of Lake Huron. Why not take in a British Pub while your at it. That cart which brings you the offerings is a nice touch. The Kidney Pie was not. Its the little things you remember. icemantoo
Half of Scanxiety Gone
Had my chest X-ray and blood work on Monday for my 2 year Scan. This was the first one since I was put on the 12 month rotation. Blood work showed creatinine of 1.02, right where it was just before surgery in 2016. Chest X-ray was clear. So half of the anxiety for the year is gone. Wednesday, the 11th, for the CT, then the…
2 years down
I had my 2 year scans this morning (well--I was diagnosed in July 2016, but this is close enough) and met with a doctor from the surgical team this afternoon--everything is clear. They have made the recommendation to move to annual scans and I agreed. I feel completely overwhelmed with joy and excitement about the NED, but…
so scared
At the age of 46, my husband was diagnosed with clear cell kidney cancer last March and had a partial in April. He suffered internal bleeding after the surgery and had to go through an angioembolization procedure to fix the blood vessels. His tumor was 3*4, in the center of the kidney with invasion to the surrounding fat…
Husband follow up to oncologist.
Went to oncologist totoday. Good news is it is renal clear cell carcinoma. Which is the 75 percent of the ormal kidney cancer. JAY will do another blood test to make sure his one kidney is working good. Then another CT scan as a post kidney removal starting point. Then in two weeks we start checkmate 214, Nivolumab plus…
Deer in the headlights
Hello all, A little over a month ago my husband was diagnosed with kidney cancer. The tumor was removed last week with a total removal of his right kidney. One lymph was effected and removed during surgery, and there are three very small spots on his lungs. The largest being 0.7 centimeters. Which seems to pale in…

Kidney Cancer

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