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Kidney Cancer

Checkmate 214 - Nivolumab / Ipilimumab
Hi- I'm in Brisbane Australia. This is a great site with alot of info on offer. I'm currently 4 mths into the Checkmate 214 trial. Previously diagnosed March 2015 with Stage 4 RCC. - Mass on left kidney, with some extension into diaphragm. Numerous mets on both lungs up to 19mm. Surgeon says cannot recommend op until lungs…
New Treatment Option
Hello Everyone, While I usually hang out with the wonderful warrior ladies on the uterine cancer board because of Mrs. Red‘s prior serous cancer bout (she’s NED now thank the Lord), I also look at this board a lot too because my sister bravely fought renal cell cancer for 10 years until the end. I saw a new treatment for…
Fatigue
5 months after my partial nephrectomy... I have spent my last month visiting ER and my doctor... symptons: episodes of very low energy, sometimes at the point that I can barely walk... headaches and multiple body aches... and my anxiety growing... I can barely be in a meeting without feel myself out of breath and with no…
Nephrectomy
I get a big pain 3 years after I had a full left nephrectomy
pain on Votrient
Hi everyone. My husband has stage IV kidney cancer...had his left kidney removed 5 years ago and was "cured" ....then it popped up in his lungs and on his scalp by his five year check. We did high dose IL II....horrible treatment and didn't do a thing. In fact, he now has three lesions on his liver, one on his thyroid, one…
RCC at 28 years
Hi everyone, My 28 year old wife has been diagnosed in December 2017 with a big kidney tumour (12cm/5inches). This happend after she experienced some pain on the right side of her abdomen (found out later it was gallblader issue), made an MRI and we were shocked about the presence of this tumour. She didn't experience any…
Genetic tests are in...
And it's all negative.... Not that I wanted it to be postiive for anything (they tested for 64 things based on personal and family history). But I was hoping for some answers, especially since my younger sister also has a kidney lesion. The geneticist thinks it may be something they don't have a test for yet so she wants…
Waiting in secret
I am a new member to the board, but I have not received a diagnosis yet. I was diagnosed with my first kidney stone 10 days before my wedding. I had complained about pain in my side for months leading up to my wedding, but my GP at the time told me that I must have pulled a muscle or some other silly conclusion. It was…
Urine testing
I've had higher (+2) leukocyte esterase and wbc (10-20) with urine tests the last several times. I did have one cultured and no bacteria in urine. Nobody seems concerned when I ask. Although, when I look it up I see can mean infection which I don't have or could be sign of kidney or bladder cancer. Anyone have any…
Got a brain met and now it is dead I hope
I ended up going to ER mid June with seizures, they did a cat scan and found a single brain met in my parietal lobe. Began on Dex methasone to keep the swelling down and with no more seizures was able to to go and have SBR in 5 gy in one sitting. Pretty amazing technology. So for now, I guess this dead tissue will live in…
Uncle Ned / Need advice
Hi, all - Uncle Ned will be having dinner with me. YAY! It's too hot to heat up the kitchen by cooking, so take-away pizza is sounding really good right now. Maybe we'll get a movie and eat in front of the TV instead of doing the dining room dinner thing. Which makes me wonder... After not drinking beer in decades, I…
Have been gone for awhile-latest CT shows a 3mm lung nodule
Have been well since I was diagnosed with RCC back in Dec 2016. I was retired, but went back to work after my Right kidney was removed Jan 2017, so I have been pretty busy. CT scan yesterday shows a 3mm lung nodule. Five months ago when I had a CT, the nodule was only 2mm. So, it has changed. I called for my results but…
Introduction and my kidney cancer story
In June of 2014, a year and a half after my first child was born, I went back to my obstetrician and asked when the troublesome uterin fibroid I had was ever going to go away as she said it would. Well, it wasn’t a fibroid, but a grapefruit sized tumor on my right kidney. A few weeks later my right kidney was removed at…
Prayers please ...... Amy_Jo
I had an open neph on 3/8/18. My pathology showed clear margins. Two weeks later I had another scan which found blood clots in my lung. April 15 I began having excruciating back pain, after report to the ER I was told my scan showed lesions on my spine liver and lungs. I had a pet scan and biopsy of my liver yesterday…
New to the board here on behalf of my father
I've been lurking and reviewing posts the last few days. I am here on behalf of my Dad and figured I'd make an introductory post. Dad had the flu in January and afterwards he had some rib pain. The NP he had been using as his defacto GP diagnosed him with broken ribs. Fast forward to March, he has his medicare physical and…
To Fozhd
Hey Fox, how have you been? I've been able to figure out that you appear to be logging in daily. But I don't see a lot of posts from you. I'm thinking you're probably in the same predicament as I am, and your comprehension isn't allowing you to get around this discussion board as easliy as you used to. My brain mets are…
Partial, Radical, Biopsy?
Hi I am writing on behalf of my wife. She is 46. She was diagnosed with a 6 cm tumor on left kidney. MRI seems to indicate RCC. No indications of spread, and stage 1B as near as can be told with MRI & CT Scan. We have seen two urologic oncologists at 2 different hospitals (both hospitals have stellar reps, one of them is…
back after 3 months and have questions
Well , I'm back on here, after 3 months, to see if anyone can shed some light on what my wife might be in for. ANY informative feedback is greatly appreciated . The oncologists, after 2 different biopsies, determined she has stage 4 Papillary Renal Cell Carcinoma (nncRCC). She has a small tumor on one kidney. With no mets…
Test before treatment
What test would you want before treatment to establish a baseline and why would you want such test? I am going to have some form of treatment for a small tumor sooner or later (probably sooner) and would like to know as much as I can before hand in order to know where I stand after. Thanks Perry
Scan Results
Just finished up at the Drs for my scan results. Uncle NED stopped by for a visit. I am so blessed and very thankful!!!! I was surprised when the Dr said he would see me in a year. I thought I would go in another 6 months then if all clear go yearly. GFR was 100 and creatinine was .9. The Dr mentioned losing 20 more lbs,…
Had to Flip a Coin
I had to flip a coin to see which forum I would make my first post. Kidney won. While battling Sepsis from a prostate biopsy in April a Bosniak 4 tumor was found on my right kidney with a Pelvic CT Scan. The good news is the tumor is < 3cm and the prostate cancer appears to be localized with all testing/results thus far.…
Scanxiety
ufff Just received the reminder for my first scan after 6 months of my partial.... I am so scare that already made a "pit stop" at the hospital with a panic-anxiety/attack.... all blood work was in order and chest Xray . Just the ALT and ASt (liver) a little bit high Any advice of how to deal with this?? Thanks
Done for a Year!
Just got back from Stanford, where I was treated for my RCC. All's well. But, of course, after getting the chest x-ray results and the CT results, we knew that. I guess I have to be a lot better since I've made the following progression in terms of who sees me: At six months, the surgeon handled the appointment. At one…
Confused about surgeons ...
Little backstory - I'm a 41 year old who found a kidney tumor as part of a heart valve repair that occured on 3rd of May this year. The tumor was detected on a CT scan as part of the preop testing. Most surgeons we spoke to recommended waiting for 3 months before the next surgery, so that timeline is coming next month. My…
CT shows 8.7 cm Cystic entity possibly vascular but US doesn't
I had a CT done because I have been having upper abdominal pain especially to touch for 3 years but the scopes come back clean. This showed an 8.7 cystic entity possibly vascular and a 2 mm, they recommended another CT scan with IV contrast. The Nurse Practitioner that I see set me up for an US saying something along the…
Low Alkaline Phosphate
Anyone have low alk phosphate? I had blood work done for possible food allergies and IBS and my blood work came back good (no food allergies) but low alk phosphate... Just weird. Wondering if it has something to do with my partial neph or rcc has come back haha! You know the paranoia of metastasis. Stephanie
Anyone contacted to conduct interview on CSN?
Status is Quo
I woke up this morning to see that he results of my annual CT scan were sitting in my online account at the hospital. Logged in to check and the note from the surgeon said, “CT is Fine. Good news.” A bit of an understatement as at 5AM, I was doing cartwheels.
new mets
Hi everyone, I am writing this on behalf of Abunai. On Tuesday, he started having weakness with the left side of his body, with his memory, and concentration. We were instructed to go to the ER. After a CT and then an MRI, we were told he has about 20 tumors in his brain. Up until this point, there had never been any sign…
9 month itchy scar
9 months post open Partial Nephi and I have healed nicely, I believe. No pain really just my scar is itchy sometimes just on the scar line.Just a weird thing I guess..

Kidney Cancer

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