-
NED ?
Had my (almost) 1 year CT Chest, Abdomen and Pelvis. All clear! Until the end of the report which states an enlarged lymph node, cannot rule out metastatic disease. Urologist says no worries it is less then 1 cm and “we don’t worry unless larger then 1 cm”. Report also states unchanged from previous CT. However on previous…
-
Tell me something good.
It's no doubt that cancer is terrible and has effected us all. But, I have noticed that it has changed the way I see life and living. I now live with more urgency and abandon. We live 4 hours from the Smoky Mountains. We now take more trips as a family and see more and do more. I have probaby been to the mounatins 6 times…
-
been taking a major hit
I may not be posting much. Hold the fort. Build the karma. FLY!
-
Newbie-Postop 6 days partial nephrectomy w/DaVinci Robotic System
Thanks to everyone who take their time to read and respond to posts here. I was diagnosed 6 weeks ago with RCC and the tumor located on uper pole right kidney was approx. 5.7 X 3.7. I was told they think they discovered it early because a year ago I had an MRI from a previous back surgery and there were just clear cysts…
-
NED ?
Had my (almost) 1 year CT Chest, Abdomen and Pelvis. All clear! Until the end of the report which states an enlarged lymph node, cannot ruke out metastatic disease. Urologist says no worries it is less then 1 cm and “we don’t worry unless larger then 1 cm”. Report also states unchanged from previous CT. However on previous…
-
Enlarged neck nodes
Have had enlarged lymph nodes on the left side of my neck for several weeks. Consistent dull ache at most times also a tight feeling that radiates from below my ear down to my collarbone. I’ve been waiting to see if the swelling would go down. It has not, ugh. Has anyone experienced something similar? Have reached out to…
-
possibility recurrence will happen
On my pathology report show the following: Clear Cell 4.6 cm tumor Stage 1 Grade 4 Clear margin Sarcomatoid present- No percentage giving Necrosis present What is the possibility of recurrence?
-
Open Partial Nephrectomy
I’m scheduled for surgery on June 22nd. Now I’m getting a little nervous.
-
Immunotherapy Starts Tomorrow
Tomorrow I get my first infusion of Yervoy & Opdivo. I am excited to get started and of course nervous about how I will respond. I am ready to start fighting back against this nasty cancer. I can't wait for my immune system to kick in and start kicking some cancer **** . One day at a time and tomorrow is a BIG day.
-
new here, need help
I just got my husbands US report.... RT kidney exophytic lesion with internal low level echoes extending from the midpole, 4.2 x 3.5 x 3.0 Lt kidney.... upper pole CYST 1.8 x 2.4 x 1.7 other.....oviod hypo echoic vascular lesion medial to the left kidney possibly an enlarged retroperitoneal lymph node we will be going for…
-
Fox
I apologize for not being active lately. This exhaustion is kicking my behind (but all is well). I read Fox's post and I just wanna say....I would love for you all to encourage him the best you can on here. No matter how terrible he has felt he has always been here for us. He has used wisdom and humor and is just amazing.…
-
Amy Jo
Hey guys sorry I have been quite it's been a tough month. Unfortunately radiation did not work on the Mets on my spine. So I was hospitalized with a compression fractue to my spine. I received an ablation and kyphoplasty and I'm up walking again although it's not like before I'm moving. I received my first treatment of…
-
Got another NED today....
Thats 18 months now since my last lung surgery in Jan of 2017. Good luck to everyone.
-
Husband got staples out and kidney doctor started talking surgery for lymph nodes
I am so mad. Husband just got the staples out today after 8 days, and kidney doctor said he has two lymph glands in his lower spine area that are slightly enlarged and we should schedule surgery to remove them. He is still healing, this is crazy. The oncologist follow up is not for another 2.5 weeks and he said no more…
-
ASCO Highlights from the International Kidney Cancer Coalition (IKCC)
The American Society of Clinical Oncology (ASCO) Conference in Chicago June 1-5 2018 brought together oncology professionals, patient advocates, and organisations from around the world. For kidney cancer specifically, the conference included the presentation of results from one large blockbuster surgical trial, and several…
-
Scan tomorrow
Arrived in Iowa last night - yearly visit to see family, retreat, jazz camp, and... preventive maintenance medical appointments. This year is a big one - tomorrow morning I have CT scan and meet with surgeoun for 2-year followup. Have been nervous about it for weeks. Oh, who am I kidding - months. It's comforting to know…
-
Renal cell carcinoma
I have RCC had a kidney removed in 2015 it came back in 2018 on my right lung now it’s stage 4 cancer just started immune therapy I hope this work. What is the life expectancy for this cancer
-
Cancer is sneaky
Just thought I'd share some feedback from the tumor board reviewing my case. So I've got a met in my adrenal gland detected in latest PET/CT. When asked about potential symptoms, the answer was "none", a benign tumor, yes, but not cancer. What a insidious and sneaky disease!
-
Is there a kidney "cancer survivors network" facebook group?
Are any of you in a kidney "cancer survivors network" facebook group? I don't know of any groups. If so, please share the group name or link so that I (and others) could find it and join. Thank you.
-
Three months post partial...
Hello friends. So, I had the partial nephrectomy Feb 26 and I was the one who may have overdid it on elliptical and swinging a golf club a few weeks after surgery. :( ( My lesion was cancerous but small, margins great, cancer free, etc. I guess my question to the wonderful people on this forum involves the soreness that…
-
Scared and alone
Hi I'm knew to this forum. I' just looking for answers and a little relief. 2 weeks ago I found out that I have a mass on my right kidney. Sympoms I have are pain flank and weight oss which my Dr is not concerned about cause I'm overweight. And I am vomiting. Now this mass is not very big only 1.1 centimeter. But they…
-
RCC Specialist in Atlanta
I have been recently diagnosed with Clear RCC, 11cm on left kidney and smaller Mets in two other spots. I received my diagnosis at N Ga Medical Center and am now considering a trip to MD Anderson for a second treatment opinion as recommended by my Urologist. My question is can anyone recommend an RCC specialist here in the…
-
Third times a charm???
Ok so we will be trying for a biopsy with CT GUIDED cyroablation again on the 25th of June. Hopefully we will accomplish our goal this time! Hope everyone is well!
-
surveillance protocol for stage 2, grade 3
Hello to all. I am wondering what the follow up protocol is for pT2aN0M0, grade 3, 10% necrosis 10% sarcomotoid. My surgical oncologist wants to do the usual CT’s once a year with bloodwork every 6 mo. While I’m happy not to have scans every 6 mo, I thought it was recommended for the first few years.
-
Dromedary hump or kidney mass?
Hello, I'm Marcelo from Brazil. I did a Unenhanced CT a month ago and the results were: Kidneys of position, dimensions and parenchymal thickness within normality, identifying nodular image hypodense and heterogeneous in the anterior cortical of the middle / lower third of the left kidney, measuring 1.5 cm, indeterminate…
-
OS exact meaning?
During my reading on kidney cancer medical documents (for my dad condition) I have gained a good insight into the illness and its treatment but there is one thing that is not fully clear to me. I am sure you will know to explain it: Whenever you read about a clinical trial, different achronyms appear like PFS, ORR and OS.…
-
Crippling pain
Hi I was just wondering if anyone has crippling pain in side especially when u wake up. That' when it' the worst. I have a 1.1 mass on my right kidney. Not big at all but could that be causing my pain. I need answers that Drs cannot give me. And was wondering if anyone else as had pain like this.
-
Husband had surgery today 6-6-18
Radical nephrectomy with tumor on the kidney. Tumor was encapsulated and nothing found in general area. Surgery went well only 75 minutes. I finally got home after a long day at hospital. We got the big mother out, next step recovery, then start working on the mother's children on his ribs.
-
When a Double Ear Infection is actually a Good Thing
Before having cancer touch your life, little aches and pains go mostly unnoticed or can be put out of our minds with the help of a little ibuprofen. After having cancer touch your life, every feeling is a "What if" or "Maybe I should be worried". My husband started getting bumps up and down his neck a while ago. He had…
-
Pain Question
I am 7 months post nephrectomy. The past month or so I’ll have a pain On my left side where my only remaining kidney is. It comes and goes. It’s not double over pain or stop me in my tracks pain it but I notice it now because of what I’ve been through. If I’m doing something and not thinking about it I dont notice it. I…