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Emotionally draining day at work.
A little back ground, I was diagnosed with RCC middle of May this year, had a partial lap nephrectomy April. I am an ER nurse. I went back to work 4 weeks ago and was put on light duty. Yesterday was my first day having my own patients again. My first patient came in shortly after 0700 and it was a cardiac arrest. A young…
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Jojo?
Hi guys, haven't seen Jojo for a while. I see that she was active here in May, but didn't post. Somehow I'm sure she is fine, just wondering how' life going.... Alla
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Well its done
Well the third time was a charm. Procedure is finally done. Should have pathology back by end of week. I'm home but very very sore. Hope all is well with everyone! Cin
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Inspiration
The latest post by Fox made me cry. This is increadably inspirational, something which will be burned into me forever. Its a celebration of human strength and love of life. It made me think of how I feel about life. I'm a very positive person despite health anxiety. But I still worry about totally insignificant things…
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I'm new...2weeks post partial nephrectomy
Sooooo... This recovery is rough... Found out about my tumor in late April, they removed "the passenger" two weeks tomorrow. Pain comes and goes, I've tried off and on pain meds but as I've got 3&2 year old kids I'm a bit scared to mask the pain and over do it- can't turn off being a Mom and this is heartbreaking to not be…
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Observances, rash on legs and other symptoms pre diagnosis... hmmm.
My husband got a rash on his legs and went to doctor Nov 2015. Three months later they came back saying it was a fungal thing. He also had a big toenail with a long dark lines down it. After the kidney removal last week, the rash has completely gone away and the toenail dark lins have disappeared. I assume his kidney tumor…
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Opdivo/Yervoy side effects
My dad had his first infusion of opdivo/yervoy 2 weeks ago. About five days after the infusion he began to get extremely fatigued and weak. Has anyone else experienced this with this drug combo? He didn’t have a whole lot of energy before the infusion but now his fatigue is to a whole new level.
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60 Mg cabo is brutal and we are running out of options
Hi. I haven't been very active on here. I lurk from time to time. My husband was taking 40MG cabo. They determined it wasn't enough. 60MG is brutal on his health and well-being. He now rotates them 40mg one day 60 mg the next. He just took a week off both after a trip to the emergency room. We had scans recently and all…
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MMJ
Since Fox brought it up, I've always wondered. Any supporters here? I used to not believe in it, for the moral reasons Fox mentions, but cancer changed me. Quick poll, who's down? I know I am.
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NED ?
Had my (almost) 1 year CT Chest, Abdomen and Pelvis. All clear! Until the end of the report which states an enlarged lymph node, cannot rule out metastatic disease. Urologist says no worries it is less then 1 cm and “we don’t worry unless larger then 1 cm”. Report also states unchanged from previous CT. However on previous…
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Tell me something good.
It's no doubt that cancer is terrible and has effected us all. But, I have noticed that it has changed the way I see life and living. I now live with more urgency and abandon. We live 4 hours from the Smoky Mountains. We now take more trips as a family and see more and do more. I have probaby been to the mounatins 6 times…
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been taking a major hit
I may not be posting much. Hold the fort. Build the karma. FLY!
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Newbie-Postop 6 days partial nephrectomy w/DaVinci Robotic System
Thanks to everyone who take their time to read and respond to posts here. I was diagnosed 6 weeks ago with RCC and the tumor located on uper pole right kidney was approx. 5.7 X 3.7. I was told they think they discovered it early because a year ago I had an MRI from a previous back surgery and there were just clear cysts…
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NED ?
Had my (almost) 1 year CT Chest, Abdomen and Pelvis. All clear! Until the end of the report which states an enlarged lymph node, cannot ruke out metastatic disease. Urologist says no worries it is less then 1 cm and “we don’t worry unless larger then 1 cm”. Report also states unchanged from previous CT. However on previous…
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Enlarged neck nodes
Have had enlarged lymph nodes on the left side of my neck for several weeks. Consistent dull ache at most times also a tight feeling that radiates from below my ear down to my collarbone. I’ve been waiting to see if the swelling would go down. It has not, ugh. Has anyone experienced something similar? Have reached out to…
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possibility recurrence will happen
On my pathology report show the following: Clear Cell 4.6 cm tumor Stage 1 Grade 4 Clear margin Sarcomatoid present- No percentage giving Necrosis present What is the possibility of recurrence?
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Open Partial Nephrectomy
I’m scheduled for surgery on June 22nd. Now I’m getting a little nervous.
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Immunotherapy Starts Tomorrow
Tomorrow I get my first infusion of Yervoy & Opdivo. I am excited to get started and of course nervous about how I will respond. I am ready to start fighting back against this nasty cancer. I can't wait for my immune system to kick in and start kicking some cancer **** . One day at a time and tomorrow is a BIG day.
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new here, need help
I just got my husbands US report.... RT kidney exophytic lesion with internal low level echoes extending from the midpole, 4.2 x 3.5 x 3.0 Lt kidney.... upper pole CYST 1.8 x 2.4 x 1.7 other.....oviod hypo echoic vascular lesion medial to the left kidney possibly an enlarged retroperitoneal lymph node we will be going for…
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Fox
I apologize for not being active lately. This exhaustion is kicking my behind (but all is well). I read Fox's post and I just wanna say....I would love for you all to encourage him the best you can on here. No matter how terrible he has felt he has always been here for us. He has used wisdom and humor and is just amazing.…
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Amy Jo
Hey guys sorry I have been quite it's been a tough month. Unfortunately radiation did not work on the Mets on my spine. So I was hospitalized with a compression fractue to my spine. I received an ablation and kyphoplasty and I'm up walking again although it's not like before I'm moving. I received my first treatment of…
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Got another NED today....
Thats 18 months now since my last lung surgery in Jan of 2017. Good luck to everyone.
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Husband got staples out and kidney doctor started talking surgery for lymph nodes
I am so mad. Husband just got the staples out today after 8 days, and kidney doctor said he has two lymph glands in his lower spine area that are slightly enlarged and we should schedule surgery to remove them. He is still healing, this is crazy. The oncologist follow up is not for another 2.5 weeks and he said no more…
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ASCO Highlights from the International Kidney Cancer Coalition (IKCC)
The American Society of Clinical Oncology (ASCO) Conference in Chicago June 1-5 2018 brought together oncology professionals, patient advocates, and organisations from around the world. For kidney cancer specifically, the conference included the presentation of results from one large blockbuster surgical trial, and several…
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Scan tomorrow
Arrived in Iowa last night - yearly visit to see family, retreat, jazz camp, and... preventive maintenance medical appointments. This year is a big one - tomorrow morning I have CT scan and meet with surgeoun for 2-year followup. Have been nervous about it for weeks. Oh, who am I kidding - months. It's comforting to know…
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Renal cell carcinoma
I have RCC had a kidney removed in 2015 it came back in 2018 on my right lung now it’s stage 4 cancer just started immune therapy I hope this work. What is the life expectancy for this cancer
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Cancer is sneaky
Just thought I'd share some feedback from the tumor board reviewing my case. So I've got a met in my adrenal gland detected in latest PET/CT. When asked about potential symptoms, the answer was "none", a benign tumor, yes, but not cancer. What a insidious and sneaky disease!
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Is there a kidney "cancer survivors network" facebook group?
Are any of you in a kidney "cancer survivors network" facebook group? I don't know of any groups. If so, please share the group name or link so that I (and others) could find it and join. Thank you.
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Three months post partial...
Hello friends. So, I had the partial nephrectomy Feb 26 and I was the one who may have overdid it on elliptical and swinging a golf club a few weeks after surgery. :( ( My lesion was cancerous but small, margins great, cancer free, etc. I guess my question to the wonderful people on this forum involves the soreness that…
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Scared and alone
Hi I'm knew to this forum. I' just looking for answers and a little relief. 2 weeks ago I found out that I have a mass on my right kidney. Sympoms I have are pain flank and weight oss which my Dr is not concerned about cause I'm overweight. And I am vomiting. Now this mass is not very big only 1.1 centimeter. But they…