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How to find me
So a couple of us thought it might be a good idea to get to know each other a little better outside of this forum so I thought I would let you all know that you can reach me here by sending me a private message or I am on Facebook as well under Cinammen Townsend Zeilstra. Hope you all are well! Cin
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TUMOR
Hi All, Last Thursday my mother got some bad news that she has a tumor that is rapid growing tumor located on her kidney (it has grown 1cm between scans within a 4 week peroid). Mum has been told that she will need to wait until the 26.04.2018 for the next board meeting so they can discuss where to go from here. They did…
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NED
Had my scans and blood work last week. Talked to the oncologist yesterday. No changes. That's good news. I was a little more anxious this time just because I've been sick alot (flu, shingles, two colds in succession) and just tired all the time. Just a bit worried thinking my immune system is down and wondering what that's…
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cyberknife
So, I have stage 4 RCC that has moved into my spine. I have a tumor at my L3/L4 spine that is crushing the nerves in that area. One of the issues that causes is that I can't lay down flat for any length of time without immense, intractable pain in that area. Well, I need to lay on my back in order to do the CT Sim…
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Update on my son-in-law, John
As some of the longer-term members on this forum may know, my SIL was diagnosed with Stage IV, grade 4, 60% sarcomatoid RCC just about two years ago. He had a total left nephrectomy for a 13 cm tumor. After a nasty stint on Votrient he moved on to Opdivo which appeared to be keeping the beast away. His last three scans…
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Blood in urine
I am trying not to worry but my husband became really ill about 2 weeks ago. We thought it was the flu- fever, cold, enlarged lymph nodes and at the same time had quite a bit of blood in his urine. (may have nothing to do with each other but happened at the same time) He does not have a UTI, blood work all looks good but…
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THE 10 GREAT LIFE LESSONS CANCER HAS TAUGHT ME
THE 10 GREAT LIFE LESSONS CANCER HAS TAUGHT ME Go to this below link to read: https://www.linkedin.com/pulse/10-great-life-lessons-cancer-has-taught-me-liam-ryan ============================================================== Liam Ryan can be found on this Cancer Survivors Network site:…
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Woo hoo
So I finally heard back from my surgeon and praise the Lord...there is no second Tumor! My scans were reviewed by 3 urologist and 3 radiologist and it was a mistake by the original radiologist. So I still have the original "spot" 1.5 cm that hasn't moved or grown at all and the plan is still in place to burn that sucker…
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Info please...Newbie: pT3, Fuhrman grade 2, papillary type
Dear All, I have been reading the posts published in this website and I find it very supportive and encouraging. Last month my dad underwent a radical nephrectomy due to a tumor in his left kidney. The pathology report showed that the tumor was 4cm, pt3, fuhrman grade 2, papillary type (got into the fatty tissue, but not…
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Transitional cell/urothelial cancer
My wife had her right kidney, ureter, part of her bladder, and two lymph nodes removed in February, 2010. There was cancer in her kidney, ureter, and one lymph node. She was diagnosed with transitional cell cancer and the staging was T3,N1,M0 - stage III. Her medical oncologist will begin a 4-week cycle treatment using…
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Tumor invades into renal parenchyma, focally. What does this mean?
Tumor invades into renal parenchyma. What does this mean? Also, what do they mean by focally? I think my husband's staging would have been a 1 or 2 if that wasn't present. So, his stage is PT3. Maybe I'm basically asking "how bad is this" or "how worried should I be"?
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PT3, NX Pathology Report - anyone else out there with PT3 - how are you doing?
Hi everyone: I have been reading over the message boards for quite some time now but have never participated. I find everyone's comments to be very helpful. Sometimes I leave the messages boards (or the entire Internet) feeling a little optimistic and then other times (most times) I have to close the lap top lid and walk…
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And round 2
Dr just called I go in today at 4 for a follow up CT. What are the chances of it being a mistake? I've been up all night. I haven't cried this much since this all began. I'm sad, scared and just plain pissed off! I feel so defeated. I feel like a Teflon pan that has none of the non sticky stuff left.
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First scan out of the way...NED
I haven't posted for awhile...life kept punching me so I went into the fetal position for a month or so. I was diagnosed in August, had surgery in October, got the path report in November (T3A). As I was digesting all of that my Mom passed away unexpectedly in December, I came down witb pneumonia in January, then a friend…
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Thank you!!
Thank you ! Thank you! You people are amazing. Your experience and knowledge is pricelss. There is a certain comfort in reading all your posts and the caring and hand holding is the BEST!!!! Continue doing what you do-I'm learning from a great group of people and hope I can help as well.
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The relief of disability
Well, I did it. Effective yesterday, I'm officially out on disability. And I have to say that I feel lighter, like a burden has been lifted from my body. I don't think I realized just how much the stress of trying to manage the workload was taking a toll on me. I knew it was, but now the difference is palpable. Now my…
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Husband diagnosed with 6 cm kidney cancer
I'm still kinda shaken. Husband was diagnosed tonight with a 6cm solid mass kidney cancer by our family doctor. He is sending him to a specialist to have his kidney removed.the test showed everything was clean around it and it is still in kidney.my question is is this very far advanced and does this sound promising ? Thank…
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What in the HELL!!!
No procedure today they found another tumor. Waiting to hear from surgeon. Sounds like I will be headed down to Seattle soon for a major procedure. How in the hell can something grow that fast. I can't even breathe right now. The hits keep coming... Cin
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Best scan news in almost a year!
Saw the doc today to follow up last week's scans. Tumors are either showing no progression, or they're shrinking. Some of the smaller, newer ones weren't visible at all. The Votrient appears to be off to a great start! Thank you, everyone, for the support and feedback along the way. This is a fantastic group of people, and…
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new guy
Hello everyone, looks like you might be having a new member. I wish I could say I was happy about it but after glancing thru some discussions, it looks to me like a wonderful group of people. Hopeing for some advice as I was just diagnosed late last week with a 3.3 c.m. tumor in my right kidney. So far have been sticking…
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Tomorrow is the Day!
So tomorrow is the day for my Ablation. I have to be at the hospital at 6:30 am for an 8 am procedure. I am just praying this works. So everyone please start sending good vibes, positive energy, prayers or whatever you believe on my way. I hope you all are well and happy. Anyone else that have had this done please feel…
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New to group
I recently went for an ultrasound on my gallbladder but an 11.2 cm complex cyst showed up. I am awaiting my MRI then doc appointment next week. scared very scared and wondering what others symptoms were in beginning. Feeling extremely tired and nauseous at times and back and pain under ribs off and on.thanks in advance and…
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Scanxiety hitting me hard this time
Had my CXR and CT yesterday and I'm just out of my mind. 5-1/2 years post-op. Since I had the flu a month & a half ago and coughed myself silly I have felt strange pings & pains on my left side. The primary doc made mention of adhesions and couldn't answer my question regarding the possibility of the coughing causing…
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Stupid question?
What is the consensus on drinking coconut water? I love it but have steered clear of it because of the amount of potassium. To be honest I have not been put on any restrictions as far as diet except the usual watch your sodium and protein intake. My blood work is all normal. I do not drink anything (literally) except water…
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Immunotheraphy Blog
I am a 34 year old that just had a 10cm tumour, my kidney, and adrenal gland removed on December 20. I have recently started a clinical trail for immunotheraphy in hopes to stop any cancer from coming back. I have decided to start a blog to document the process in hopes to help anyone going through the same thing. My blog…
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Another NED
US and chest x Ray all clear surgeon says I am on right route and other things like the tiredness and wobbly legs will settle scary Thing is after all the anxiety you become immune to the good news it might sink in over the next few days Annie
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Post Op Kidney Function Percentages
How long after surgery has it taken for your kidney function to regulate? I'm almost seven weeks out now - right after surgery I was at 37% (a radical neph on my left kidney). Both myuruologist and nephrologist agreed that my number was low because of trauma I had during surgery complications and that it would rise. The…
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Taking Cabometyx 60 mg day
EDITED: To remove post. I guess it was just a stupid question. Sorry.
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Thank you, everyone!
I'm new here but have been reading your posts for a couple of months. I filled out my profile page so won't reiterate here but have surgery date of June 29, 2018. I can't emphasize enough how much this board has meant to me. You have answered all of my questions and calmed most of my fears. Just want to post a huge THANK…
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Surgery tomorrow
Tomorrow I will finally be having surgery. I think the wait is the worst. I will let you know whether or not it is better than a colon resection which I had 2 years ago. Been so busy this past week am looking forward to a rest. haha if Your so inclined please send prayers.