Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

New here--RCC metastasized to lungs
Greetings. My husband, age 58, was diagnosed last year with Kidney cancer--clear cell kind. His kidney was removed. At same time small nodules were seen on lungs. Later scans showed growth in the tumors in lungs. Biopsy confirmed cancerous. They cannot be removed. Good news--we are told that these tuomors are very slow…
Back to back surgeries
Hi Folks - I'm a 41 year old male, who recently found out that I have a leaky heart valve (mitral) and needed to undergo mitral valve repair to fix my severe regurgitation. The surgery for that is scheduled for next week (3rd May) and as part of the pre-op workup, a CT of the chest revealed the presence of a 4.8cm tumor on…
Follow up
So my appt for my refferal to Seattle is tomorrow. I would be lying if I said I wasn't nervous. I will meet an Oncologist for the first time (up till now I have been seeing just a urologist) and I will consult with a new Urologist. My Urologist that performed my surgery and has been my DR so far on this journey has spoken…
Day 2 post-op
morning y'all. The doctor came today after a rough night. Finally got good pain relief and they made amazing heat packs which moved the gas out of my shoulder! When the doctor changed my dressing she let me know they got the path results and it was papillary RCC. She thinks it said stage 2. But I'll get the full path…
Keytruda Off Label
I just started a monotherapy of Keytruda (Off Label) 1 week ago this past Thursday. I saw on another post that Nano happened to start Keytruda on the same day (although it appears not to a monotherapy). Does anyone else have any experience with Keytruda?
Probability of stage1 recurrence
Hello What are the stats of stage1 recurrence? Thanks Justin
Renal Cystic Lesion
Hello all, I got an ultrasound about a week ago and while waiting for my doctor to call me, I went to get the report from the radiologist and this is what the report indicated: Large cystic structure, mid-left kidney, 7cm x 7cm x 6cm containing several internal septations and thickening of the wall. I am very worried,…
Second opinions?
So, I had my 2 week post-op today. I wasn't really impressed with the Urologist. (The same one who downplayed the mass last summer and said it was probably just benign). I got my pathology report from him today and I could tell he was a little annoyed with my questions. It's a Type 2 Papillary RCC 4.5cm x 3.2 cm T1b NX The…
Almost three weeks since surgery
Had my surgery on April 3 and everything went well. My surgeon utilizeses the Da Vinci robot and it was quite intimidating being wheeled into the OR and seeing this massive machine in the corner...then it was sleepy time. I was originally supposed to have a partial nephrectomy, but because of the tumor size (larger than…
almost 6 weeks Post surgery
I had my robotic partial Neph on 3-21 around 1pm. Got to a room around 8 that night. Stayed in the hospital until around 12 the next day and then they sent me home. I was pretty tender but able to move around fine. Had my follow up on April 10th, got the pathology that confirmed it was RCC but they got it all. I am back to…
If you would like to look at any results on various clinical trials, here's the link: https://www.cl
If you would like to look at any results on various clinical trials: Here's the link: https://www.clinicaltrials.gov/
Kidney cancer
2nd Visit to Oncologist today - Scan results
I'm a little nervous, not too bad. This is my first scan post-op and I can't wait to see what they've found. Or not found! I had quite an extensive, 10 hour surgery and I have 16 1/2" of cuts. An upside down "Y" it is. Quite the battle scar. Surgery was Mar. 8th and doing good from that. At age 63 it was not a picnic in…
AnnissaP?, Jan4you?
Where are they? They both disappeared from here a couple weeks ago. Especially after Anissa proudly posted her videos. She was here every day. Jan never missed the chance to share someones stress. It doesn't feel right.
How to find me
So a couple of us thought it might be a good idea to get to know each other a little better outside of this forum so I thought I would let you all know that you can reach me here by sending me a private message or I am on Facebook as well under Cinammen Townsend Zeilstra. Hope you all are well! Cin
TUMOR
Hi All, Last Thursday my mother got some bad news that she has a tumor that is rapid growing tumor located on her kidney (it has grown 1cm between scans within a 4 week peroid). Mum has been told that she will need to wait until the 26.04.2018 for the next board meeting so they can discuss where to go from here. They did…
NED
Had my scans and blood work last week. Talked to the oncologist yesterday. No changes. That's good news. I was a little more anxious this time just because I've been sick alot (flu, shingles, two colds in succession) and just tired all the time. Just a bit worried thinking my immune system is down and wondering what that's…
cyberknife
So, I have stage 4 RCC that has moved into my spine. I have a tumor at my L3/L4 spine that is crushing the nerves in that area. One of the issues that causes is that I can't lay down flat for any length of time without immense, intractable pain in that area. Well, I need to lay on my back in order to do the CT Sim…
Update on my son-in-law, John
As some of the longer-term members on this forum may know, my SIL was diagnosed with Stage IV, grade 4, 60% sarcomatoid RCC just about two years ago. He had a total left nephrectomy for a 13 cm tumor. After a nasty stint on Votrient he moved on to Opdivo which appeared to be keeping the beast away. His last three scans…
Blood in urine
I am trying not to worry but my husband became really ill about 2 weeks ago. We thought it was the flu- fever, cold, enlarged lymph nodes and at the same time had quite a bit of blood in his urine. (may have nothing to do with each other but happened at the same time) He does not have a UTI, blood work all looks good but…
THE 10 GREAT LIFE LESSONS CANCER HAS TAUGHT ME
THE 10 GREAT LIFE LESSONS CANCER HAS TAUGHT ME Go to this below link to read: https://www.linkedin.com/pulse/10-great-life-lessons-cancer-has-taught-me-liam-ryan ============================================================== Liam Ryan can be found on this Cancer Survivors Network site:…
Woo hoo
So I finally heard back from my surgeon and praise the Lord...there is no second Tumor! My scans were reviewed by 3 urologist and 3 radiologist and it was a mistake by the original radiologist. So I still have the original "spot" 1.5 cm that hasn't moved or grown at all and the plan is still in place to burn that sucker…
Info please...Newbie: pT3, Fuhrman grade 2, papillary type
Dear All, I have been reading the posts published in this website and I find it very supportive and encouraging. Last month my dad underwent a radical nephrectomy due to a tumor in his left kidney. The pathology report showed that the tumor was 4cm, pt3, fuhrman grade 2, papillary type (got into the fatty tissue, but not…
Transitional cell/urothelial cancer
My wife had her right kidney, ureter, part of her bladder, and two lymph nodes removed in February, 2010. There was cancer in her kidney, ureter, and one lymph node. She was diagnosed with transitional cell cancer and the staging was T3,N1,M0 - stage III. Her medical oncologist will begin a 4-week cycle treatment using…
Tumor invades into renal parenchyma, focally. What does this mean?
Tumor invades into renal parenchyma. What does this mean? Also, what do they mean by focally? I think my husband's staging would have been a 1 or 2 if that wasn't present. So, his stage is PT3. Maybe I'm basically asking "how bad is this" or "how worried should I be"?
PT3, NX Pathology Report - anyone else out there with PT3 - how are you doing?
Hi everyone: I have been reading over the message boards for quite some time now but have never participated. I find everyone's comments to be very helpful. Sometimes I leave the messages boards (or the entire Internet) feeling a little optimistic and then other times (most times) I have to close the lap top lid and walk…
And round 2
Dr just called I go in today at 4 for a follow up CT. What are the chances of it being a mistake? I've been up all night. I haven't cried this much since this all began. I'm sad, scared and just plain pissed off! I feel so defeated. I feel like a Teflon pan that has none of the non sticky stuff left.
First scan out of the way...NED
I haven't posted for awhile...life kept punching me so I went into the fetal position for a month or so. I was diagnosed in August, had surgery in October, got the path report in November (T3A). As I was digesting all of that my Mom passed away unexpectedly in December, I came down witb pneumonia in January, then a friend…
Thank you!!
Thank you ! Thank you! You people are amazing. Your experience and knowledge is pricelss. There is a certain comfort in reading all your posts and the caring and hand holding is the BEST!!!! Continue doing what you do-I'm learning from a great group of people and hope I can help as well.
The relief of disability
Well, I did it. Effective yesterday, I'm officially out on disability. And I have to say that I feel lighter, like a burden has been lifted from my body. I don't think I realized just how much the stress of trying to manage the workload was taking a toll on me. I knew it was, but now the difference is palpable. Now my…

Kidney Cancer

Discussion List

Discussion Boards